Margot Mütsch - Academia.edu (original) (raw)
Papers by Margot Mütsch
Journal of Travel Medicine, 2011
Background. Travelers' diarrhea (TD) remains a frequent travel-associated infection. Between 4 an... more Background. Travelers' diarrhea (TD) remains a frequent travel-associated infection. Between 4 and 32% of enteric infections were followed by a postinfectious irritable bowel syndrome (pIBS) with long-term sequelae in various settings. Travel-related IBS incidence rates are based on small studies and IBS predictors have not been sufficiently evaluated. Methods. Adult travelers to resource-limited destinations participated in a prospective questionnaire-based cohort study. Demographics, travel characteristics, and medical history were assessed and those with functional or organic gastrointestinal disorders were excluded. Immediately after return from abroad, the volunteers completed a second questionnaire on TD, other health impairments, and on nutritional hygiene. Six-months post-travel, a follow-up questionnaire assessed IBS based on Rome III criteria. Risk factors were analyzed by multiple logistic regression. Results. Among a total of 2,476 subjects analyzed (participation rate 72.4%), 38 (1.5%) developed new IBS, and the 6-month incidence rate for pIBS was 3.0% (95% CI 1.9-4.2) following TD. Significant risk factors were TD during the surveyed journey (OR 3.7; 95% 1.8-7.4), an adverse life event experienced within 12 months pre-travel (OR 3.1; 1.4-6.8), and a diarrheal episode experienced within 4 months pre-travel (OR 2.7; 95% CI 1.3-5.6). Following multiple diarrheal episodes, the risk of acquiring IBS increased by six times. Conclusions. In a large population of European travelers IBS had a lower incidence rate as compared to previous studies. Particular risk groups were identified; those may need to be protected.
Zielsetzung: Die Cochrane Public Health Group ist eine von insgesamt 53 Review Gruppen der Cochra... more Zielsetzung: Die Cochrane Public Health Group ist eine von insgesamt 53 Review Gruppen der Cochrane Collaboration und hat ihren Standort in der University of Melbourne, Melbourne School of Population and Global Health, Australien. Ihr Ziel ist die Unterstützung und Verbreitung von systematischen[for full text, please go to the a.m. URL]
Zielsetzung: Teilnehmer(-innen) aus Wissenschaft und Praxis für die Relevanz der Evidenzkommunika... more Zielsetzung: Teilnehmer(-innen) aus Wissenschaft und Praxis für die Relevanz der Evidenzkommunikation und die gewünschte Nutzung des standardisierten Formats sensibilisieren Perspektivenwechsel im Rahmen eines realistischen Entscheidungsszenarios ermöglichen Reflexion und Diskussion[zum vollständigen Text gelangen Sie über die oben angegebene URL]
Hintergrund/Fragestellung: Entscheidungen im Public Health Bereich sollen auf Basis der besten Ev... more Hintergrund/Fragestellung: Entscheidungen im Public Health Bereich sollen auf Basis der besten Evidenz getroffen werden. Gute Kommunikation zwischen Stakeholdern ist ein förderlicher Faktor für den Einbezug von Evidenz bei Entscheidungen. Es ist aber wahrscheinlich, dass Stakeholder aus[zum vollständigen Text gelangen Sie über die oben angegebene URL]
Zielsetzung: Im folgenden Workshop wird das Konzept Rapid Review (RR) als mögliches Tool zur schn... more Zielsetzung: Im folgenden Workshop wird das Konzept Rapid Review (RR) als mögliches Tool zur schnellen Evidenzsynthese vorgestellt. Dabei wird auf die unterschiedlichen methodischen Herangehensweisen von RRs eingegangen und die potentiellen Vor- und Nachteile der Evidenzsynthese mittels RR werden[zum vollständigen Text gelangen Sie über die oben angegebene URL]
... Epub 26 March 2004. Guyatt HL, Noor AM, Ochola SA, Snow RW. Use of inter-mittent presumptive ... more ... Epub 26 March 2004. Guyatt HL, Noor AM, Ochola SA, Snow RW. Use of inter-mittent presumptive treatment and insecticide treated bed nets by pregnant women in four Kenyan districts. ... Curr Infect Dis Rep 2004; 6(1):5462. Yoon J, Segal-Maurer S, Rahal JJ. ...
The prototype summary format applied to the Cochrane review on 'Portion, package or tableware... more The prototype summary format applied to the Cochrane review on 'Portion, package or tableware size for changing selection and consumption of food, alcohol and tobacco' (in German). (PDF 126 kb)
The revised summary format applied to the Cochrane review on 'Portion, package or tableware s... more The revised summary format applied to the Cochrane review on 'Portion, package or tableware size for changing selection and consumption of food, alcohol and tobacco' (in English). (DOCX 122 kb)
Journal of travel medicine, 2004
Swiss medical weekly, 2008
QUESTION UNDER STUDY To assess clinical reactions, immune responses and adverse events to undilut... more QUESTION UNDER STUDY To assess clinical reactions, immune responses and adverse events to undiluted, three- and sixfold diluted Lister strain vaccine stockpiled in Switzerland. METHODS A prospective, triple-blinded, randomised, parallel group clinical trial was performed. RESULTS From 2001 to 2007 104 persons with an indication for vaccinia vaccination were recruited. They had a median age of 33 years (range 18-65), 56 (53.8%) were re-vaccinees and 48 (46.2%) primary vaccinees. There was no statistically significant variation in the proportion of revaccinees between diluted and undiluted vaccine groups (75% vs 51%, p = 0.118). With an overall clinical take rate (major reaction) of 97.1% the majority of the vaccinia-naïve participants exhibited an at least fourfold increase of neutralising antibody titres (32/38, 84.2%) post-vaccination. Interestingly this proportion was lower among re-vaccinees (29/46, 63.0%, p = 0.048). No significant difference was observed in the take rate or at ...
European Addiction Research
Introduction: The nightlife-associated illicit drug and alcohol use presents diverse problems and... more Introduction: The nightlife-associated illicit drug and alcohol use presents diverse problems and includes different areas. In the Canton of Zurich, Switzerland, young adults in the nightlife setting were recently set as a priority group for preventive interventions. Method: Based on the predefined protocol, we systematically collated evidence on preventive interventions regarding young adults’ use of alcohol and illicit drugs in nightlife. EBSCO Medline, Embase, PsycInfo, and PsyIndex were searched for reviews (1990–2016) and primary studies (2012–2016). Additional sources and experts were consulted, and stakeholders involved throughout the research process. Interventions were summarized according to the before-, at- and after-the-party stages. Results: Before the party, good-quality studies were found for social media interventions, indicating positive effects on alcohol consumption. For the at-the-party stage, good evidence of low to medium quality was presented for crisis interv...
Journal of Medical Internet Research
Background The availability and use of health apps continues to increase, revolutionizing the way... more Background The availability and use of health apps continues to increase, revolutionizing the way mobile health interventions are delivered. Apps are increasingly used to prevent disease, improve well-being, and promote healthy behavior. On a similar rise is the incidence of skin cancers. Much of the underlying risk can be prevented through behavior change and adequate sun protection. Self-monitoring apps have the potential to facilitate prevention by measuring risk (eg, sun intensity) and encouraging protective behavior (eg, seeking shade). Objective Our aim was to assess health care consumer preferences for sun protection with a self-monitoring app that tracks the duration and intensity of sun exposure and provides feedback on when and how to protect the skin. Methods We conducted an unlabeled discrete choice experiment with 8 unique choice tasks, in which participants chose among 2 app alternatives, consisting of 5 preidentified 2-level attributes (self-monitoring method, privacy...
JMIR Research Protocols
Background The incidence of sun-exposure-related skin conditions, such as melanoma, is a graduall... more Background The incidence of sun-exposure-related skin conditions, such as melanoma, is a gradually increasing and largely preventable public health problem. Simultaneously, the availability of mobile apps that enable the self-monitoring of health behavior and outcomes is ever increasing. Inevitably, recent years have seen an emerging volume of electronic patient-generated health data (PGHD), as well as their targeted application across primary prevention areas, including sun protection and skin health. Despite their preventive potential, the actual impact of these apps relies on the engagement of health care consumers, who are primarily responsible for recording, sharing, and using their PGHD. Exploring preferences is a key step toward facilitating consumer engagement and ultimately realizing their potential. Objective This paper describes an ongoing research project that aims to elicit the preferences of health care consumers for sun protection via app-based self-monitoring. Method...
Journal of Medical Internet Research
Background Digital innovations continue to shape health and health care. As technology socially i... more Background Digital innovations continue to shape health and health care. As technology socially integrates into daily living, the lives of health care consumers are transformed into a key source of health information, commonly referred to as patient-generated health data (PGHD). With chronic disease prevalence signaling the need for a refocus on primary prevention, electronic PGHD might be essential in strengthening proactive and person-centered health care. Objective This study aimed to review and synthesize the existing literature on the utilization and implications of electronic PGHD for primary disease prevention and health promotion purposes. Methods Guided by a well-accepted methodological framework for scoping studies, we screened MEDLINE, CINAHL, PsycINFO, Scopus, Web of Science, EMBASE, and IEEE Digital Library. We hand-searched 5 electronic journals and 4 gray literature sources, additionally conducted Web searches, reviewed relevant Web pages, manually screened reference ...
BACKGROUND Digital innovations continue to shape health and health care. As technology socially i... more BACKGROUND Digital innovations continue to shape health and health care. As technology socially integrates into daily living, the lives of health care consumers are transformed into a key source of health information, commonly referred to as patient-generated health data (PGHD). With chronic disease prevalence signaling the need for a refocus on primary prevention, electronic PGHD might be essential in strengthening proactive and person-centered health care. OBJECTIVE This study aimed to review and synthesize the existing literature on the utilization and implications of electronic PGHD for primary disease prevention and health promotion purposes. METHODS Guided by a well-accepted methodological framework for scoping studies, we screened MEDLINE, CINAHL, PsycINFO, Scopus, Web of Science, EMBASE, and IEEE Digital Library. We hand-searched 5 electronic journals and 4 gray literature sources, additionally conducted Web searches, reviewed relevant Web pages, manually screened reference ...
BMJ Open
ObjectiveEngaging stakeholders in reviews is considered to generate more relevant evidence and to... more ObjectiveEngaging stakeholders in reviews is considered to generate more relevant evidence and to facilitate dissemination and use. As little is known about stakeholder involvement, we assessed the characteristics of their engagement in systematic and rapid reviews and the methodological quality of included studies. Stakeholders were people with a particular interest in the research topic.DesignMethodological review.Search strategyFour databases (Medline, Embase, Cochrane database of systematic reviews, databases of the University of York, Center for Reviews and Dissemination (CRD)) were searched based on an a priori protocol. Four types of reviews (Cochrane and non-Cochrane systematic reviews, rapid and CRD rapid reviews) were retrieved between January 2011 and October 2015, pooled by potential review type and duplicates excluded. Articles were randomly ordered and screened for inclusion and exclusion criteria until 30 reviews per group were reached. Their methodological quality wa...
Health Research Policy and Systems
Background: Systematic reviews are an important source of evidence for public health decision-mak... more Background: Systematic reviews are an important source of evidence for public health decision-making, but length and technical jargon tend to hinder their use. In non-English speaking countries, inaccessibility of information in the native language often represents an additional barrier. In line with our vision to strengthen evidence-based public health in the German-speaking world, we developed a German language summary format for systematic reviews of public health interventions and undertook user-testing with public health decision-makers in Germany, Austria and Switzerland. Methods: We used several guiding principles and core elements identified from the literature to produce a prototype summary format and applied it to a Cochrane review on the impacts of changing portion and package sizes on selection and consumption of food, alcohol and tobacco. Following a pre-test in each of the three countries, we carried out 18 user tests with public health decision-makers in Germany, Austria and Switzerland using the 'thinkaloud' method. We analysed participants' comments according to the facets credibility, usability, understandability, usefulness, desirability, findability, identification and accessibility. We also identified elements that hindered the facile and satisfying use of the summary format, and revised it based on participants' feedback. Results: The summary format was well-received; participants particularly appreciated receiving information in their own language. They generally found the summary format useful and a credible source of information, but also signalled several barriers to a positive user experience such as an information-dense structure and difficulties with understanding statistical terms. Many of the identified challenges were addressed through modifications of the summary format, in particular by allowing for flexible length, placing more emphasis on key messages and relevance for public health practice, expanding the interpretation aid for statistical findings, providing a glossary of technical terms, and only including graphical GRADE ratings. Some barriers to uptake, notably the participants' wish for actionable recommendations and contextual information, could not be addressed.
BMJ Open
IntroductionRapidly expanding digital innovations transform the perception, reception and provisi... more IntroductionRapidly expanding digital innovations transform the perception, reception and provision of health services. Simultaneously, health system challenges underline the need for patient-centred, empowering and citizen-engaging care, which facilitates a focus on prevention and health promotion. Through enhanced patient-engagement, patient-provider interactions and reduced information gaps, electronic patient-generated health data (PGHD) may facilitate both patient-centeredness and preventive scare. Despite that, comprehensive knowledge syntheses on their utilisation for prevention and health promotion purposes are lacking. The review described in this protocol aims to fill that gap.Methods and analysisOur methodology is guided by Arksey and O’ Malley’s methodological framework for scoping reviews, as well as its advanced version by Levac, Colquhoun and O’Brien. Seven electronic databases will be systematically searched using predefined keywords. Key electronic journals will be ...
Journal of Travel Medicine, 2011
Background. Travelers' diarrhea (TD) remains a frequent travel-associated infection. Between 4 an... more Background. Travelers' diarrhea (TD) remains a frequent travel-associated infection. Between 4 and 32% of enteric infections were followed by a postinfectious irritable bowel syndrome (pIBS) with long-term sequelae in various settings. Travel-related IBS incidence rates are based on small studies and IBS predictors have not been sufficiently evaluated. Methods. Adult travelers to resource-limited destinations participated in a prospective questionnaire-based cohort study. Demographics, travel characteristics, and medical history were assessed and those with functional or organic gastrointestinal disorders were excluded. Immediately after return from abroad, the volunteers completed a second questionnaire on TD, other health impairments, and on nutritional hygiene. Six-months post-travel, a follow-up questionnaire assessed IBS based on Rome III criteria. Risk factors were analyzed by multiple logistic regression. Results. Among a total of 2,476 subjects analyzed (participation rate 72.4%), 38 (1.5%) developed new IBS, and the 6-month incidence rate for pIBS was 3.0% (95% CI 1.9-4.2) following TD. Significant risk factors were TD during the surveyed journey (OR 3.7; 95% 1.8-7.4), an adverse life event experienced within 12 months pre-travel (OR 3.1; 1.4-6.8), and a diarrheal episode experienced within 4 months pre-travel (OR 2.7; 95% CI 1.3-5.6). Following multiple diarrheal episodes, the risk of acquiring IBS increased by six times. Conclusions. In a large population of European travelers IBS had a lower incidence rate as compared to previous studies. Particular risk groups were identified; those may need to be protected.
Zielsetzung: Die Cochrane Public Health Group ist eine von insgesamt 53 Review Gruppen der Cochra... more Zielsetzung: Die Cochrane Public Health Group ist eine von insgesamt 53 Review Gruppen der Cochrane Collaboration und hat ihren Standort in der University of Melbourne, Melbourne School of Population and Global Health, Australien. Ihr Ziel ist die Unterstützung und Verbreitung von systematischen[for full text, please go to the a.m. URL]
Zielsetzung: Teilnehmer(-innen) aus Wissenschaft und Praxis für die Relevanz der Evidenzkommunika... more Zielsetzung: Teilnehmer(-innen) aus Wissenschaft und Praxis für die Relevanz der Evidenzkommunikation und die gewünschte Nutzung des standardisierten Formats sensibilisieren Perspektivenwechsel im Rahmen eines realistischen Entscheidungsszenarios ermöglichen Reflexion und Diskussion[zum vollständigen Text gelangen Sie über die oben angegebene URL]
Hintergrund/Fragestellung: Entscheidungen im Public Health Bereich sollen auf Basis der besten Ev... more Hintergrund/Fragestellung: Entscheidungen im Public Health Bereich sollen auf Basis der besten Evidenz getroffen werden. Gute Kommunikation zwischen Stakeholdern ist ein förderlicher Faktor für den Einbezug von Evidenz bei Entscheidungen. Es ist aber wahrscheinlich, dass Stakeholder aus[zum vollständigen Text gelangen Sie über die oben angegebene URL]
Zielsetzung: Im folgenden Workshop wird das Konzept Rapid Review (RR) als mögliches Tool zur schn... more Zielsetzung: Im folgenden Workshop wird das Konzept Rapid Review (RR) als mögliches Tool zur schnellen Evidenzsynthese vorgestellt. Dabei wird auf die unterschiedlichen methodischen Herangehensweisen von RRs eingegangen und die potentiellen Vor- und Nachteile der Evidenzsynthese mittels RR werden[zum vollständigen Text gelangen Sie über die oben angegebene URL]
... Epub 26 March 2004. Guyatt HL, Noor AM, Ochola SA, Snow RW. Use of inter-mittent presumptive ... more ... Epub 26 March 2004. Guyatt HL, Noor AM, Ochola SA, Snow RW. Use of inter-mittent presumptive treatment and insecticide treated bed nets by pregnant women in four Kenyan districts. ... Curr Infect Dis Rep 2004; 6(1):5462. Yoon J, Segal-Maurer S, Rahal JJ. ...
The prototype summary format applied to the Cochrane review on 'Portion, package or tableware... more The prototype summary format applied to the Cochrane review on 'Portion, package or tableware size for changing selection and consumption of food, alcohol and tobacco' (in German). (PDF 126 kb)
The revised summary format applied to the Cochrane review on 'Portion, package or tableware s... more The revised summary format applied to the Cochrane review on 'Portion, package or tableware size for changing selection and consumption of food, alcohol and tobacco' (in English). (DOCX 122 kb)
Journal of travel medicine, 2004
Swiss medical weekly, 2008
QUESTION UNDER STUDY To assess clinical reactions, immune responses and adverse events to undilut... more QUESTION UNDER STUDY To assess clinical reactions, immune responses and adverse events to undiluted, three- and sixfold diluted Lister strain vaccine stockpiled in Switzerland. METHODS A prospective, triple-blinded, randomised, parallel group clinical trial was performed. RESULTS From 2001 to 2007 104 persons with an indication for vaccinia vaccination were recruited. They had a median age of 33 years (range 18-65), 56 (53.8%) were re-vaccinees and 48 (46.2%) primary vaccinees. There was no statistically significant variation in the proportion of revaccinees between diluted and undiluted vaccine groups (75% vs 51%, p = 0.118). With an overall clinical take rate (major reaction) of 97.1% the majority of the vaccinia-naïve participants exhibited an at least fourfold increase of neutralising antibody titres (32/38, 84.2%) post-vaccination. Interestingly this proportion was lower among re-vaccinees (29/46, 63.0%, p = 0.048). No significant difference was observed in the take rate or at ...
European Addiction Research
Introduction: The nightlife-associated illicit drug and alcohol use presents diverse problems and... more Introduction: The nightlife-associated illicit drug and alcohol use presents diverse problems and includes different areas. In the Canton of Zurich, Switzerland, young adults in the nightlife setting were recently set as a priority group for preventive interventions. Method: Based on the predefined protocol, we systematically collated evidence on preventive interventions regarding young adults’ use of alcohol and illicit drugs in nightlife. EBSCO Medline, Embase, PsycInfo, and PsyIndex were searched for reviews (1990–2016) and primary studies (2012–2016). Additional sources and experts were consulted, and stakeholders involved throughout the research process. Interventions were summarized according to the before-, at- and after-the-party stages. Results: Before the party, good-quality studies were found for social media interventions, indicating positive effects on alcohol consumption. For the at-the-party stage, good evidence of low to medium quality was presented for crisis interv...
Journal of Medical Internet Research
Background The availability and use of health apps continues to increase, revolutionizing the way... more Background The availability and use of health apps continues to increase, revolutionizing the way mobile health interventions are delivered. Apps are increasingly used to prevent disease, improve well-being, and promote healthy behavior. On a similar rise is the incidence of skin cancers. Much of the underlying risk can be prevented through behavior change and adequate sun protection. Self-monitoring apps have the potential to facilitate prevention by measuring risk (eg, sun intensity) and encouraging protective behavior (eg, seeking shade). Objective Our aim was to assess health care consumer preferences for sun protection with a self-monitoring app that tracks the duration and intensity of sun exposure and provides feedback on when and how to protect the skin. Methods We conducted an unlabeled discrete choice experiment with 8 unique choice tasks, in which participants chose among 2 app alternatives, consisting of 5 preidentified 2-level attributes (self-monitoring method, privacy...
JMIR Research Protocols
Background The incidence of sun-exposure-related skin conditions, such as melanoma, is a graduall... more Background The incidence of sun-exposure-related skin conditions, such as melanoma, is a gradually increasing and largely preventable public health problem. Simultaneously, the availability of mobile apps that enable the self-monitoring of health behavior and outcomes is ever increasing. Inevitably, recent years have seen an emerging volume of electronic patient-generated health data (PGHD), as well as their targeted application across primary prevention areas, including sun protection and skin health. Despite their preventive potential, the actual impact of these apps relies on the engagement of health care consumers, who are primarily responsible for recording, sharing, and using their PGHD. Exploring preferences is a key step toward facilitating consumer engagement and ultimately realizing their potential. Objective This paper describes an ongoing research project that aims to elicit the preferences of health care consumers for sun protection via app-based self-monitoring. Method...
Journal of Medical Internet Research
Background Digital innovations continue to shape health and health care. As technology socially i... more Background Digital innovations continue to shape health and health care. As technology socially integrates into daily living, the lives of health care consumers are transformed into a key source of health information, commonly referred to as patient-generated health data (PGHD). With chronic disease prevalence signaling the need for a refocus on primary prevention, electronic PGHD might be essential in strengthening proactive and person-centered health care. Objective This study aimed to review and synthesize the existing literature on the utilization and implications of electronic PGHD for primary disease prevention and health promotion purposes. Methods Guided by a well-accepted methodological framework for scoping studies, we screened MEDLINE, CINAHL, PsycINFO, Scopus, Web of Science, EMBASE, and IEEE Digital Library. We hand-searched 5 electronic journals and 4 gray literature sources, additionally conducted Web searches, reviewed relevant Web pages, manually screened reference ...
BACKGROUND Digital innovations continue to shape health and health care. As technology socially i... more BACKGROUND Digital innovations continue to shape health and health care. As technology socially integrates into daily living, the lives of health care consumers are transformed into a key source of health information, commonly referred to as patient-generated health data (PGHD). With chronic disease prevalence signaling the need for a refocus on primary prevention, electronic PGHD might be essential in strengthening proactive and person-centered health care. OBJECTIVE This study aimed to review and synthesize the existing literature on the utilization and implications of electronic PGHD for primary disease prevention and health promotion purposes. METHODS Guided by a well-accepted methodological framework for scoping studies, we screened MEDLINE, CINAHL, PsycINFO, Scopus, Web of Science, EMBASE, and IEEE Digital Library. We hand-searched 5 electronic journals and 4 gray literature sources, additionally conducted Web searches, reviewed relevant Web pages, manually screened reference ...
BMJ Open
ObjectiveEngaging stakeholders in reviews is considered to generate more relevant evidence and to... more ObjectiveEngaging stakeholders in reviews is considered to generate more relevant evidence and to facilitate dissemination and use. As little is known about stakeholder involvement, we assessed the characteristics of their engagement in systematic and rapid reviews and the methodological quality of included studies. Stakeholders were people with a particular interest in the research topic.DesignMethodological review.Search strategyFour databases (Medline, Embase, Cochrane database of systematic reviews, databases of the University of York, Center for Reviews and Dissemination (CRD)) were searched based on an a priori protocol. Four types of reviews (Cochrane and non-Cochrane systematic reviews, rapid and CRD rapid reviews) were retrieved between January 2011 and October 2015, pooled by potential review type and duplicates excluded. Articles were randomly ordered and screened for inclusion and exclusion criteria until 30 reviews per group were reached. Their methodological quality wa...
Health Research Policy and Systems
Background: Systematic reviews are an important source of evidence for public health decision-mak... more Background: Systematic reviews are an important source of evidence for public health decision-making, but length and technical jargon tend to hinder their use. In non-English speaking countries, inaccessibility of information in the native language often represents an additional barrier. In line with our vision to strengthen evidence-based public health in the German-speaking world, we developed a German language summary format for systematic reviews of public health interventions and undertook user-testing with public health decision-makers in Germany, Austria and Switzerland. Methods: We used several guiding principles and core elements identified from the literature to produce a prototype summary format and applied it to a Cochrane review on the impacts of changing portion and package sizes on selection and consumption of food, alcohol and tobacco. Following a pre-test in each of the three countries, we carried out 18 user tests with public health decision-makers in Germany, Austria and Switzerland using the 'thinkaloud' method. We analysed participants' comments according to the facets credibility, usability, understandability, usefulness, desirability, findability, identification and accessibility. We also identified elements that hindered the facile and satisfying use of the summary format, and revised it based on participants' feedback. Results: The summary format was well-received; participants particularly appreciated receiving information in their own language. They generally found the summary format useful and a credible source of information, but also signalled several barriers to a positive user experience such as an information-dense structure and difficulties with understanding statistical terms. Many of the identified challenges were addressed through modifications of the summary format, in particular by allowing for flexible length, placing more emphasis on key messages and relevance for public health practice, expanding the interpretation aid for statistical findings, providing a glossary of technical terms, and only including graphical GRADE ratings. Some barriers to uptake, notably the participants' wish for actionable recommendations and contextual information, could not be addressed.
BMJ Open
IntroductionRapidly expanding digital innovations transform the perception, reception and provisi... more IntroductionRapidly expanding digital innovations transform the perception, reception and provision of health services. Simultaneously, health system challenges underline the need for patient-centred, empowering and citizen-engaging care, which facilitates a focus on prevention and health promotion. Through enhanced patient-engagement, patient-provider interactions and reduced information gaps, electronic patient-generated health data (PGHD) may facilitate both patient-centeredness and preventive scare. Despite that, comprehensive knowledge syntheses on their utilisation for prevention and health promotion purposes are lacking. The review described in this protocol aims to fill that gap.Methods and analysisOur methodology is guided by Arksey and O’ Malley’s methodological framework for scoping reviews, as well as its advanced version by Levac, Colquhoun and O’Brien. Seven electronic databases will be systematically searched using predefined keywords. Key electronic journals will be ...