Mikael Jensen-johansen - Academia.edu (original) (raw)

Papers by Mikael Jensen-johansen

Research paper thumbnail of Breast cancer patients treated with chemotherapy reports more unmet supportive care needs in the early treatment phase, than patients treated only with radiotherapy

Background: Palliative care day services (typically known as “day hospices”) are provided routine... more Background: Palliative care day services (typically known as “day hospices”) are provided routinely across Europe. Due largely to the historically localised nature of development, there is wide variability in the organisation and content of services, which militates against strategic planning and development.Aims: We aimed to address this knowledge deficit by identifying core service provision within one country by mapping three regional providers of palliative care day services. Methods: A retrospective, observational study design, using the Donabedian quality framework, involved two components. Firstly, a review of local policy and operational documents at each site provided information on the structure of each service (how care is organised). This covered four key areas: service organisational structure; funding arrangements and expenditure; staffing and management structure, and; other information relevant to estimating the costs of service delivery. Secondly, a retrospective review of the clinical records of patients referred to the service at each site delivered information on the process of care (what is provided). Using reported attendance figures, cases were randomly selected according to a proportionate regime. Results: The review covers key features of: the local-level patient populations, including socio-economic and diagnostic profile; referral, allocation and discharge; all interventions offered; service uptake, and; contextual information onpatient circumstances, need and preferences for care. Itdelivers a comprehensive body of evidence concerning thestructure and process of UK palliative care day services.Conclusions:Our study makes a fundamental contributionto a previously limited evidence base on the organisation,content and mechanisms of delivery of palliative care dayservices.

Research paper thumbnail of Travelling through no-man's land - women's experience of being treated for breast cancer

Nordisk sygeplejeforskning, 2019

Research paper thumbnail of Rejsen gennem ingenmandsland: kvinders oplevelse af at være i behandlingsforløb for brystkræft

Nordisk sygeplejeforskning, Mar 7, 2019

Research paper thumbnail of Breast cancer patients treated with chemotherapy reports more unmet supportive care needs in the early treatment phase, than patients treated only with radiotherapy

Palliative Medicine, 2016

Background: Palliative care day services (typically known as “day hospices”) are provided routine... more Background: Palliative care day services (typically known as “day hospices”) are provided routinely across Europe. Due largely to the historically localised nature of development, there is wide variability in the organisation and content of services, which militates against strategic planning and development.Aims: We aimed to address this knowledge deficit by identifying core service provision within one country by mapping three regional providers of palliative care day services. Methods: A retrospective, observational study design, using the Donabedian quality framework, involved two components. Firstly, a review of local policy and operational documents at each site provided information on the structure of each service (how care is organised). This covered four key areas: service organisational structure; funding arrangements and expenditure; staffing and management structure, and; other information relevant to estimating the costs of service delivery. Secondly, a retrospective review of the clinical records of patients referred to the service at each site delivered information on the process of care (what is provided). Using reported attendance figures, cases were randomly selected according to a proportionate regime. Results: The review covers key features of: the local-level patient populations, including socio-economic and diagnostic profile; referral, allocation and discharge; all interventions offered; service uptake, and; contextual information onpatient circumstances, need and preferences for care. Itdelivers a comprehensive body of evidence concerning thestructure and process of UK palliative care day services.Conclusions:Our study makes a fundamental contributionto a previously limited evidence base on the organisation,content and mechanisms of delivery of palliative care dayservices.

Research paper thumbnail of Results from MLMs (baseline, 3- and 9 month follow-up) (Time × Group) of physical symptoms (PHQ), number of GP visits, and number of GP telephone contacts (2a), and results of moderation analyses with repressive coping (2b), social constraints (SCS-C) (2bc), rumination (ECQ) (2d), alexithymia (TA...

<p>Results from MLMs (baseline, 3- and 9 month follow-up) (Time × Group) of physical sympto... more <p>Results from MLMs (baseline, 3- and 9 month follow-up) (Time × Group) of physical symptoms (PHQ), number of GP visits, and number of GP telephone contacts (2a), and results of moderation analyses with repressive coping (2b), social constraints (SCS-C) (2bc), rumination (ECQ) (2d), alexithymia (TAS-20) (2e), and writing topic (own cancer vs. other topic vs. neutral writing) included as moderators.</p

Research paper thumbnail of Psychosocial health care needs in a group of women newly diagnosed with breast cancer

Palliative Medicine, 2016

Research paper thumbnail of Self-reported self-control in breast-cancer patients

Quality of Life Research, 2016

Research paper thumbnail of CONSORT study flow diagram

<p>CONSORT study flow diagram.</p

Research paper thumbnail of Effects of an expressive writing intervention (EWI) with women treated for breast cancer explored with recurrence quantification analysis (RQA) of changes in text structure - a proof-of-concept study

Psychosomatic Medicine, 2014

Research paper thumbnail of Alexithymia as moderator: Mean number of telephone contacts with general practitioner (GP) (Error bars: 95%CI) from baseline to follow-up of high and low alexithymic women in the EWI and neutral writing control group

<p>Alexithymia as moderator: Mean number of telephone contacts with general practitioner (G... more <p>Alexithymia as moderator: Mean number of telephone contacts with general practitioner (GP) (Error bars: 95%CI) from baseline to follow-up of high and low alexithymic women in the EWI and neutral writing control group.</p

Research paper thumbnail of Writing topic as moderator: Mean number of telephone contacts with general practitioner (GP) (Error bars: 95%CI) from baseline to follow-up of EWI participants writing about their own cancer, EWI participants writing about other topics, and neutral writing controls

<p>Writing topic as moderator: Mean number of telephone contacts with general practitioner ... more <p>Writing topic as moderator: Mean number of telephone contacts with general practitioner (GP) (Error bars: 95%CI) from baseline to follow-up of EWI participants writing about their own cancer, EWI participants writing about other topics, and neutral writing controls.</p

Research paper thumbnail of Descriptive statistics and baseline differences

<p>Descriptive statistics and baseline differences.</p

Research paper thumbnail of Phd dissertation on: Effects of an expressive writing intervention in a nationwide sample of breast cancer patients: A randomized clinical trial

Research paper thumbnail of understAID WP2. Task 2.2. Final Report. Results section - Denmark

Research paper thumbnail of Unmet needs among Danish women with breast cancer in the transition from diagnosis into the early treatment phase

Journal of Nursing Education and Practice, 2021

This study investigates the supportive needs of women diagnosed with breast cancer in the early t... more This study investigates the supportive needs of women diagnosed with breast cancer in the early treatment phase. The aim of this study was to identify unmet supportive care needs in the early treatment phase of women treated for breast cancer. This study employed a quantitative longitudinal design with baseline questionnaire (Time 1) and a six-month follow-up questionnaire (Time 2) that explored a variety of characteristics using both standardized scales and more explorative questions about employment situation, needs, rehabilitation, psychological, physical and social experiences. Eighty-five percent of the invited potential women agreed to participate, and 100 participants completed the baseline questionnaire. The analysis identified results concerning employment situation, depressive symptoms, unmet needs, distress, sexual life, social constraints and cancer-related quality of life. The study concludes that health professionals must embrace the challenges faced by the women and p...

Research paper thumbnail of Rejsen gennem ingenmandsland

Nordisk sygeplejeforskning, 2019

Research paper thumbnail of The transitional experience of women with newly diagnosed breast cancer

Journal of Nursing Education and Practice, 2019

The aim of the study was to provide insights into the transitional experience of women newly diag... more The aim of the study was to provide insights into the transitional experience of women newly diagnosed with breast cancer progressing to their primary treatment. The psychosocial impact of patients in the recovery phase after breast cancer treatment has been investigated in recent years, however, little is known about the transition experience and psychosocial needs of Danish breast cancer patients during the phase of transition from diagnosis to treatment. This study employed a qualitative descriptive design with data collection including 12 semi-structured interviews with women undergoing radiation-or chemotherapy treatment. The transcribed interviews were analysed which identified five main themes; 1) Uncertainty, 2) Sense of powerlessness, 3) Sustaining normality, 4) Worrying about the future, 5) Fortunate only having radiotherapy. Understanding care needs of women in transition, from diagnosis to treatment, and how it impacts on their lives, is essential to enable health profe...

Research paper thumbnail of The effect of an expressive writing intervention (EWI) on stress in infertile couples undergoing assisted reproductive technology (ART) treatment: A randomized controlled pilot study

British Journal of Health Psychology, 2011

Infertile couples undergoing fertility treatments may experience stress and could benefit from ps... more Infertile couples undergoing fertility treatments may experience stress and could benefit from psychological intervention. Expressive Writing Intervention (EWI) has shown promising results on various psychological outcomes, yet only one study has applied the method to infertility-related stress. Our aim was to assess feasibility and effectiveness of EWI for patients in treatment with Assisted Reproductive Technology (ART). Patients enrolling in their first ART treatment at the fertility clinic, Aarhus University Hospital, Denmark were offered to participate. A total of 82 participants (45 women, 37 men), mean age: 33.17, were randomized to home-based EWI or neutral writing control group and completed an infertility-related stress questionnaire at treatment enrollment, 3 weeks later (at the time of down regulation), and 6 weeks after the intervention. The intervention took place 2 weeks after treatment start. Mixed between-within ANOVA showed a main effect of time (Wilks Lambda = 0.68, F(2,28) = 6.48) as well as a significant interaction effect between group (control/ EWI) and time (Wilks Lambda = 0.83, F(2,28) = 2.92). Infertility-related stress decreases were observed after the intervention in the EWI group compared to controls. Six weeks after the intervention, stress tended to increase in both groups, with the control group, follow-up stress levels exceeding baseline stress scores, whereas the follow-up scores of EWI-participants&amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;#39; did not exceed baseline levels. Our preliminary results suggest EWI to be a feasible, cost-effective, and efficient method for alleviating infertility-related stress, although results should be considered preliminary and further testing with a larger sample is warranted.

Research paper thumbnail of Effects of an expressive writing intervention on cancer-related distress in Danish breast cancer survivors - results from a nationwide randomized clinical trial

Psycho-oncology, 2013

To examine the effects of an expressive writing intervention (EWI) on cancer-related distress, de... more To examine the effects of an expressive writing intervention (EWI) on cancer-related distress, depressive symptoms, and mood in women treated for early stage breast cancer. A nationwide sample of 507 Danish women who had recently completed treatment for primary breast cancer were randomly assigned to three 20-min home-based writing exercises, one week apart, focusing on either emotional disclosure (EWI group) or a non-emotional topic (control group). Cancer-related distress [Impact of Event Scale (IES)], depressive symptoms (Beck Depression Inventory-Short Form), and negative (37-item Profile of Moods State) and positive mood (Passive Positive Mood Scale) were assessed at baseline and at 3 and 9 months post-intervention. Choice of writing topic (cancer versus other), alexithymia (20-item Toronto Alexithymia Scale), and social constraints (Social Constraints Scale) were included as possible moderators. Significant (p<0.01) group differences in mood change from before to immediatel...

Research paper thumbnail of Expressive writing intervention and self-reported physical health out-comes - Results from a nationwide randomized controlled trial with breast cancer patients

PloS one, 2018

The objective was to examine the effect of Expressive Writing Intervention (EWI) on self-reported... more The objective was to examine the effect of Expressive Writing Intervention (EWI) on self-reported physical symptoms and healthcare utilization in a nationwide randomized controlled trial with Danish women treated for primary breast cancer, and to explore participant characteristics related to emotion regulation as possible moderators of the effect. Women who had recently completed treatment for primary breast cancer (n = 507) were randomly assigned to three 20 min. home-based writing exercises, one week apart, focusing on emotional disclosure (EWI) of a distressing experience (their cancer or a non-cancer topic) or a non-disclosing topic (control). Outcomes were self-reported physical symptoms and healthcare utilization (visits and telephone contacts with GP) 3 and 9 months post-intervention. Potential moderators were repressive coping, alexithymia, rumination, social constraints, and writing topic. Results revealed no group by time interaction effects for any outcomes. Moderation a...

Research paper thumbnail of Breast cancer patients treated with chemotherapy reports more unmet supportive care needs in the early treatment phase, than patients treated only with radiotherapy

Background: Palliative care day services (typically known as “day hospices”) are provided routine... more Background: Palliative care day services (typically known as “day hospices”) are provided routinely across Europe. Due largely to the historically localised nature of development, there is wide variability in the organisation and content of services, which militates against strategic planning and development.Aims: We aimed to address this knowledge deficit by identifying core service provision within one country by mapping three regional providers of palliative care day services. Methods: A retrospective, observational study design, using the Donabedian quality framework, involved two components. Firstly, a review of local policy and operational documents at each site provided information on the structure of each service (how care is organised). This covered four key areas: service organisational structure; funding arrangements and expenditure; staffing and management structure, and; other information relevant to estimating the costs of service delivery. Secondly, a retrospective review of the clinical records of patients referred to the service at each site delivered information on the process of care (what is provided). Using reported attendance figures, cases were randomly selected according to a proportionate regime. Results: The review covers key features of: the local-level patient populations, including socio-economic and diagnostic profile; referral, allocation and discharge; all interventions offered; service uptake, and; contextual information onpatient circumstances, need and preferences for care. Itdelivers a comprehensive body of evidence concerning thestructure and process of UK palliative care day services.Conclusions:Our study makes a fundamental contributionto a previously limited evidence base on the organisation,content and mechanisms of delivery of palliative care dayservices.

Research paper thumbnail of Travelling through no-man's land - women's experience of being treated for breast cancer

Nordisk sygeplejeforskning, 2019

Research paper thumbnail of Rejsen gennem ingenmandsland: kvinders oplevelse af at være i behandlingsforløb for brystkræft

Nordisk sygeplejeforskning, Mar 7, 2019

Research paper thumbnail of Breast cancer patients treated with chemotherapy reports more unmet supportive care needs in the early treatment phase, than patients treated only with radiotherapy

Palliative Medicine, 2016

Background: Palliative care day services (typically known as “day hospices”) are provided routine... more Background: Palliative care day services (typically known as “day hospices”) are provided routinely across Europe. Due largely to the historically localised nature of development, there is wide variability in the organisation and content of services, which militates against strategic planning and development.Aims: We aimed to address this knowledge deficit by identifying core service provision within one country by mapping three regional providers of palliative care day services. Methods: A retrospective, observational study design, using the Donabedian quality framework, involved two components. Firstly, a review of local policy and operational documents at each site provided information on the structure of each service (how care is organised). This covered four key areas: service organisational structure; funding arrangements and expenditure; staffing and management structure, and; other information relevant to estimating the costs of service delivery. Secondly, a retrospective review of the clinical records of patients referred to the service at each site delivered information on the process of care (what is provided). Using reported attendance figures, cases were randomly selected according to a proportionate regime. Results: The review covers key features of: the local-level patient populations, including socio-economic and diagnostic profile; referral, allocation and discharge; all interventions offered; service uptake, and; contextual information onpatient circumstances, need and preferences for care. Itdelivers a comprehensive body of evidence concerning thestructure and process of UK palliative care day services.Conclusions:Our study makes a fundamental contributionto a previously limited evidence base on the organisation,content and mechanisms of delivery of palliative care dayservices.

Research paper thumbnail of Results from MLMs (baseline, 3- and 9 month follow-up) (Time × Group) of physical symptoms (PHQ), number of GP visits, and number of GP telephone contacts (2a), and results of moderation analyses with repressive coping (2b), social constraints (SCS-C) (2bc), rumination (ECQ) (2d), alexithymia (TA...

<p>Results from MLMs (baseline, 3- and 9 month follow-up) (Time × Group) of physical sympto... more <p>Results from MLMs (baseline, 3- and 9 month follow-up) (Time × Group) of physical symptoms (PHQ), number of GP visits, and number of GP telephone contacts (2a), and results of moderation analyses with repressive coping (2b), social constraints (SCS-C) (2bc), rumination (ECQ) (2d), alexithymia (TAS-20) (2e), and writing topic (own cancer vs. other topic vs. neutral writing) included as moderators.</p

Research paper thumbnail of Psychosocial health care needs in a group of women newly diagnosed with breast cancer

Palliative Medicine, 2016

Research paper thumbnail of Self-reported self-control in breast-cancer patients

Quality of Life Research, 2016

Research paper thumbnail of CONSORT study flow diagram

<p>CONSORT study flow diagram.</p

Research paper thumbnail of Effects of an expressive writing intervention (EWI) with women treated for breast cancer explored with recurrence quantification analysis (RQA) of changes in text structure - a proof-of-concept study

Psychosomatic Medicine, 2014

Research paper thumbnail of Alexithymia as moderator: Mean number of telephone contacts with general practitioner (GP) (Error bars: 95%CI) from baseline to follow-up of high and low alexithymic women in the EWI and neutral writing control group

<p>Alexithymia as moderator: Mean number of telephone contacts with general practitioner (G... more <p>Alexithymia as moderator: Mean number of telephone contacts with general practitioner (GP) (Error bars: 95%CI) from baseline to follow-up of high and low alexithymic women in the EWI and neutral writing control group.</p

Research paper thumbnail of Writing topic as moderator: Mean number of telephone contacts with general practitioner (GP) (Error bars: 95%CI) from baseline to follow-up of EWI participants writing about their own cancer, EWI participants writing about other topics, and neutral writing controls

<p>Writing topic as moderator: Mean number of telephone contacts with general practitioner ... more <p>Writing topic as moderator: Mean number of telephone contacts with general practitioner (GP) (Error bars: 95%CI) from baseline to follow-up of EWI participants writing about their own cancer, EWI participants writing about other topics, and neutral writing controls.</p

Research paper thumbnail of Descriptive statistics and baseline differences

<p>Descriptive statistics and baseline differences.</p

Research paper thumbnail of Phd dissertation on: Effects of an expressive writing intervention in a nationwide sample of breast cancer patients: A randomized clinical trial

Research paper thumbnail of understAID WP2. Task 2.2. Final Report. Results section - Denmark

Research paper thumbnail of Unmet needs among Danish women with breast cancer in the transition from diagnosis into the early treatment phase

Journal of Nursing Education and Practice, 2021

This study investigates the supportive needs of women diagnosed with breast cancer in the early t... more This study investigates the supportive needs of women diagnosed with breast cancer in the early treatment phase. The aim of this study was to identify unmet supportive care needs in the early treatment phase of women treated for breast cancer. This study employed a quantitative longitudinal design with baseline questionnaire (Time 1) and a six-month follow-up questionnaire (Time 2) that explored a variety of characteristics using both standardized scales and more explorative questions about employment situation, needs, rehabilitation, psychological, physical and social experiences. Eighty-five percent of the invited potential women agreed to participate, and 100 participants completed the baseline questionnaire. The analysis identified results concerning employment situation, depressive symptoms, unmet needs, distress, sexual life, social constraints and cancer-related quality of life. The study concludes that health professionals must embrace the challenges faced by the women and p...

Research paper thumbnail of Rejsen gennem ingenmandsland

Nordisk sygeplejeforskning, 2019

Research paper thumbnail of The transitional experience of women with newly diagnosed breast cancer

Journal of Nursing Education and Practice, 2019

The aim of the study was to provide insights into the transitional experience of women newly diag... more The aim of the study was to provide insights into the transitional experience of women newly diagnosed with breast cancer progressing to their primary treatment. The psychosocial impact of patients in the recovery phase after breast cancer treatment has been investigated in recent years, however, little is known about the transition experience and psychosocial needs of Danish breast cancer patients during the phase of transition from diagnosis to treatment. This study employed a qualitative descriptive design with data collection including 12 semi-structured interviews with women undergoing radiation-or chemotherapy treatment. The transcribed interviews were analysed which identified five main themes; 1) Uncertainty, 2) Sense of powerlessness, 3) Sustaining normality, 4) Worrying about the future, 5) Fortunate only having radiotherapy. Understanding care needs of women in transition, from diagnosis to treatment, and how it impacts on their lives, is essential to enable health profe...

Research paper thumbnail of The effect of an expressive writing intervention (EWI) on stress in infertile couples undergoing assisted reproductive technology (ART) treatment: A randomized controlled pilot study

British Journal of Health Psychology, 2011

Infertile couples undergoing fertility treatments may experience stress and could benefit from ps... more Infertile couples undergoing fertility treatments may experience stress and could benefit from psychological intervention. Expressive Writing Intervention (EWI) has shown promising results on various psychological outcomes, yet only one study has applied the method to infertility-related stress. Our aim was to assess feasibility and effectiveness of EWI for patients in treatment with Assisted Reproductive Technology (ART). Patients enrolling in their first ART treatment at the fertility clinic, Aarhus University Hospital, Denmark were offered to participate. A total of 82 participants (45 women, 37 men), mean age: 33.17, were randomized to home-based EWI or neutral writing control group and completed an infertility-related stress questionnaire at treatment enrollment, 3 weeks later (at the time of down regulation), and 6 weeks after the intervention. The intervention took place 2 weeks after treatment start. Mixed between-within ANOVA showed a main effect of time (Wilks Lambda = 0.68, F(2,28) = 6.48) as well as a significant interaction effect between group (control/ EWI) and time (Wilks Lambda = 0.83, F(2,28) = 2.92). Infertility-related stress decreases were observed after the intervention in the EWI group compared to controls. Six weeks after the intervention, stress tended to increase in both groups, with the control group, follow-up stress levels exceeding baseline stress scores, whereas the follow-up scores of EWI-participants&amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;#39; did not exceed baseline levels. Our preliminary results suggest EWI to be a feasible, cost-effective, and efficient method for alleviating infertility-related stress, although results should be considered preliminary and further testing with a larger sample is warranted.

Research paper thumbnail of Effects of an expressive writing intervention on cancer-related distress in Danish breast cancer survivors - results from a nationwide randomized clinical trial

Psycho-oncology, 2013

To examine the effects of an expressive writing intervention (EWI) on cancer-related distress, de... more To examine the effects of an expressive writing intervention (EWI) on cancer-related distress, depressive symptoms, and mood in women treated for early stage breast cancer. A nationwide sample of 507 Danish women who had recently completed treatment for primary breast cancer were randomly assigned to three 20-min home-based writing exercises, one week apart, focusing on either emotional disclosure (EWI group) or a non-emotional topic (control group). Cancer-related distress [Impact of Event Scale (IES)], depressive symptoms (Beck Depression Inventory-Short Form), and negative (37-item Profile of Moods State) and positive mood (Passive Positive Mood Scale) were assessed at baseline and at 3 and 9 months post-intervention. Choice of writing topic (cancer versus other), alexithymia (20-item Toronto Alexithymia Scale), and social constraints (Social Constraints Scale) were included as possible moderators. Significant (p<0.01) group differences in mood change from before to immediatel...

Research paper thumbnail of Expressive writing intervention and self-reported physical health out-comes - Results from a nationwide randomized controlled trial with breast cancer patients

PloS one, 2018

The objective was to examine the effect of Expressive Writing Intervention (EWI) on self-reported... more The objective was to examine the effect of Expressive Writing Intervention (EWI) on self-reported physical symptoms and healthcare utilization in a nationwide randomized controlled trial with Danish women treated for primary breast cancer, and to explore participant characteristics related to emotion regulation as possible moderators of the effect. Women who had recently completed treatment for primary breast cancer (n = 507) were randomly assigned to three 20 min. home-based writing exercises, one week apart, focusing on emotional disclosure (EWI) of a distressing experience (their cancer or a non-cancer topic) or a non-disclosing topic (control). Outcomes were self-reported physical symptoms and healthcare utilization (visits and telephone contacts with GP) 3 and 9 months post-intervention. Potential moderators were repressive coping, alexithymia, rumination, social constraints, and writing topic. Results revealed no group by time interaction effects for any outcomes. Moderation a...