Nikki Newhouse - Academia.edu (original) (raw)
Papers by Nikki Newhouse
Extended Abstracts of the 2019 CHI Conference on Human Factors in Computing Systems
The proliferation of digital technologies has facilitated the adoption of innovative approaches t... more The proliferation of digital technologies has facilitated the adoption of innovative approaches to addressing global maternal health challenges. Worldwide, HCI researchers - from both resource-constrained and resource-rich countries are actively engaged in developing novel responses to an ever-evolving maternal health landscape. However, opportunities for these researchers to interact and engage in sustained dialogue and collaboration are limited. The purpose of this Special Interest Group (SIG) is to bring these professionals together to support an active global network of maternal health researchers and facilitate collaboration across borders.
BMC Health Services Research
Background Acceptability is recognised as a key concept in the development of health intervention... more Background Acceptability is recognised as a key concept in the development of health interventions, but there has been a lack of consensus about how acceptability should be conceptualised. The theoretical framework of acceptability (TFA) provides a potential tool for understanding acceptability. It has been proposed that acceptability measured before use of an intervention (anticipated acceptability) may differ from measures taken during and after use (experienced acceptability), but thus far this distinction has not been tested for a specific intervention. This paper 1) directly compares ratings of anticipated and experienced acceptability of a text message-based intervention, 2) explores the applicability of the TFA in a technology-based intervention, and 3) uses these findings to inform suggestions for measuring acceptability over the lifespan of technology-based health interventions. Methods Data were obtained from a quantitative online survey assessing anticipated acceptability...
DIGITAL HEALTH, 2021
Background Patients with chronic obstructive pulmonary disease (COPD) are often hospitalised with... more Background Patients with chronic obstructive pulmonary disease (COPD) are often hospitalised with acute exacerbations (AECOPD) and many patients get readmitted. Intervening with hospitalised patients may be optimal timing to provide support. Our previous work demonstrated use of a digital monitoring and self-management support tool in the community. However, we wanted to explore the feasibility of recruiting patients whilst hospitalised for an AECOPD, and to identify the rate of dropout attrition around admission for AECOPD. Methods Patients were recruited to the EDGE2 study between May 2019 and March 2020. Patients were identified by the clinical teams and patients were recruited by members of the clinical research team. Participants were aged 40 years or older, had a diagnosis of COPD and were attending or admitted to hospital for an AECOPD. Participants were given a tablet computer, Bluetooth-linked pulse oximeter and wrist-worn physical activity monitor to use until 6 months pos...
International Journal for Quality in Health Care, 2021
Proceedings of the 2016 CHI Conference Extended Abstracts on Human Factors in Computing Systems, 2016
First-time pregnancy is a significant life event and holistic maternal wellbeing is important. Do... more First-time pregnancy is a significant life event and holistic maternal wellbeing is important. Dominant social narratives state that pregnancy is a time of fulfilment and stability but many women report feeling otherwise. Healthcare prioritises generic information relating to physical health and psychological support is often overlooked. Social support is an important mediator of maternal wellbeing and significant numbers of pregnant women go online to seek out others they can talk to. This research is exploring the potential of digital resources to provide social support in first time pregnancy. Participatory design methods will be used to develop a prototype digital resource with the aim of facilitating tailored peer support to enhance subjective wellbeing during pregnancy and beyond birth.
The notion of wellbeing is synonymous with feeling competent, supported and satisfied with one’s ... more The notion of wellbeing is synonymous with feeling competent, supported and satisfied with one’s life. Understanding how to sustain one’s own wellbeing is important at times of significant life change. The transition to motherhood is characterised by major emotional and physiological changes, which can impact on maternal subjective wellbeing and affect pregnancy outcomes. While Human Computer Interaction (HCI) has begun to address some of the challenges in the prevention and treatment of affective disorders in vulnerable perinatal groups, approaches that promote holistic maternal wellbeing in the low-risk majority have received less attention. This thesis draws on the multidisciplinary legacy of digital intervention development, utilising best practice from eHealth and HCI. Six studies using quantitative and qualitative methods were conducted. Study 1 was a systematic, interdisciplinary literature review, which proposed an integrated framework of factors involved in the successful d...
UNSTRUCTURED Type 2 diabetes is a common lifelong condition, affecting over 400 million people wo... more UNSTRUCTURED Type 2 diabetes is a common lifelong condition, affecting over 400 million people worldwide. Use of effective medications and active self-management can reduce the risk of serious complications. However, people often have concerns when starting new medications, and face difficulties in taking their medications regularly. Support provided by using brief messages delivered through mobile phone-based text messages can be effective in some long-term conditions. We have identified key behaviour change techniques (BCTs) to promote medication adherence in this population via systematic reviewing, and developed text messages that target these BCTs. Feasibility work has shown that these messages have fidelity to intended BCTs, are acceptable to patients, and are successful at changing the intended determinants of medication adherence. We now plan to test this intervention at a larger scale in a clinical trial. The aim of this trial is to determine the effectiveness and cost-effe...
JMIR Formative Research, 2021
Background Poor adherence to oral medications is common in people with type 2 diabetes and can le... more Background Poor adherence to oral medications is common in people with type 2 diabetes and can lead to an increased chance of health complications. Text messages may provide an effective delivery method for an intervention; however, thus far, the majority of these interventions do not specify either a theoretical basis or propose specific mechanisms of action. This makes it hard to determine how and whether an intervention is having an effect. The text messages included in the current intervention have been developed to deliver specific behavior change techniques. These techniques are the “active ingredients” of the intervention and were selected to target psychological constructs identified as predictors of medication adherence. Objective There are 2 aims of this study: (1) to assess whether a text message intervention with specified behavior change techniques can change the constructs that predict medication adherence behaviors in people with type 2 diabetes and (2) to assess whet...
JMIR Human Factors, 2021
Background Digital health research encompasses methods from human-computer interaction and health... more Background Digital health research encompasses methods from human-computer interaction and health research. Objective This paper aims to describe how these methods were combined to develop HeLP-Diabetes: Starting Out, a web-based structured education program for people newly diagnosed with type 2 diabetes. Methods The development process consisted of three phases: initial design for effectiveness, optimization for usability, and in the wild testing in the National Health Service with people newly diagnosed with type 2 diabetes, and further revisions. We adopted an iterative user-centered approach and followed steps from the human-computer interaction design life cycle and the Medical Research Council guidelines on developing and evaluating complex interventions. Results The initial design process resulted in an 8-session program containing information and behavior change techniques targeting weight loss, being more active, and taking medication. The usability testing was highlighted...
BMJ Open, 2019
IntroductionType 2 diabetes is common, affecting over 400 million people worldwide. Risk of serio... more IntroductionType 2 diabetes is common, affecting over 400 million people worldwide. Risk of serious complications can be reduced through use of effective treatments and active self-management. However, people are often concerned about starting new medicines and face difficulties in taking them regularly. Use of brief messages to provide education and support self-management, delivered through mobile phone-based text messages, can be an effective tool for some long-term conditions. We have developed messages aiming to support patients’ self-management of type 2 diabetes in the use of medications and other aspects of self-management, underpinned by theory and evidence. The aim of this trial is to determine the feasibility of a large-scale clinical trial to test the effectiveness and cost-effectiveness of the intervention, compared with usual care.Methods and analysisThe feasibility trial will be a multicentre individually randomised, controlled trial in primary care recruiting adults ...
Painscapes, 2017
The Internet is changing the way that people are experiencing illness and is increasingly the fir... more The Internet is changing the way that people are experiencing illness and is increasingly the first port of call for information as well as support and practical advice for self-management, reassurance, encouragement, to compare experiences of treatment, and to offer advice and support to others. This chapter considers how people experiencing pain use the Internet to express, share, and learn from others’ experiences.
Patient Preference and Adherence, 2019
Background: Many people with type 2 diabetes do not take their treatment as prescribed. Brief mes... more Background: Many people with type 2 diabetes do not take their treatment as prescribed. Brief messages to support medication use could reach large numbers of people at a very low cost per person, but current interventions using brief messages rarely adequately describe the content of the messages, nor base these messages on explicit behavior change principles. This study reports the views of people with type 2 diabetes concerning the acceptability of 1) a messaging system and 2) proposed messages based on behavior change techniques (BCTs) and beliefs and concerns around taking medication. Methods: The proposed system and brief messages were discussed in focus groups of people with type 2 diabetes recruited through general practices in England. Transcripts were analyzed thematically. Participants: Twenty-three participants took part in one of five focus group discussions. All participants were over 18 years, were taking tablet medication for their diabetes, and had access to a mobile phone. Key exclusion criteria were recent hospitalization for hyper-or hypoglycemia or diagnosis with a terminal illness. Results: Four themes were identified as relating to the acceptability of the messaging system: "opportunities and limitations of technology", "us and them (who is the system for?)", "responsibility for adherence", and "diabetes management beyond medication". Participants recognized the benefit of using technology. Those with high confidence in their ability to adhere were keen to make a distinction between themselves and those who did not adhere; participants were more comfortable taking responsibility for medication than diet and exercise. Acceptability of the messages hinged on avoiding "preaching to the converted". Conclusions: These findings show that brief messaging could be acceptable to the target population for a range of diabetes-related behaviors but highlight the need for such a system to be perceived as personally relevant. Acceptable messages would need to maintain novelty for the target population.
BACKGROUND The prevalence of type 2 diabetes is greater in South Asian populations and health out... more BACKGROUND The prevalence of type 2 diabetes is greater in South Asian populations and health outcomes are poorer. British South Asians are up to six times more likely to have type 2 diabetes than the general population, to develop the condition at a younger age, and to experience diabetes-related complications. Interventions to support people in effectively self-managing their condition can potentially reduce costly, debilitating complications. Evidence to support the use of digital devices, including mobile phones, in type 2 diabetes management has shown positive impacts on glycaemic control. There is increasing recognition that health interventions that are culturally adapted to the needs of specific groups are more likely to be relevant and acceptable, but evidence to support the effectiveness of adapted interventions is limited and inconclusive. OBJECTIVE This formative study aims to explore the perceptions and views of British South Asian patients with type 2 diabetes on a dig...
Proceedings of the ACM on Human-Computer Interaction, 2017
Baby wearable technologies are becoming increasingly popular, particularly in early infancy. Howe... more Baby wearable technologies are becoming increasingly popular, particularly in early infancy. However, little research has been conducted to investigate how baby wearable technologies are adopted and used in parenting. This paper presents a two-week in-depth situated study with six mothers in their homes consisting of contextual entry and exit interviews, video recordings of "out-of-box" experiences, and a diary study. Using interpretative phenomenological analysis, participants' use and expectations of the baby wearable technology were examined. Use of the device directly impacted upon parents' knowledge production and anxiety, and influenced the perceived physicality and social factors of parenting. We frame these findings around sociological norms of the vulnerable child and responsible mother, as well as the notion of "lived informatics", where individuals' interaction with the technology influenced the perception, use and impact of the baby wearab...
Digital health
Research and development for interactive digital health interventions requires multi-disciplinary... more Research and development for interactive digital health interventions requires multi-disciplinary expertise in identifying user needs, and developing and evaluating each intervention. Two of the central areas of expertise required are Health (broadly defined) and Human-Computer Interaction. Although these share some research methods and values, they traditionally have deep differences that can catch people unawares, and make interdisciplinary collaborations challenging, resulting in sub-optimal project outcomes. The most widely discussed is the contrast between formative evaluation (emphasised in Human-Computer Interaction) and summative evaluation (emphasised in Health research). However, the differences extend well beyond this, from the nature of accepted evidence to the culture of reporting. In this paper, we present and discuss seven lessons that we have learned about the contrasting cultures, values, assumptions and practices of Health and Human-Computer Interaction. The lesson...
Frontiers in Public Health, 2016
Proceedings of the 2017 CHI Conference Extended Abstracts on Human Factors in Computing Systems, 2017
Extended Abstracts of the 2019 CHI Conference on Human Factors in Computing Systems
The proliferation of digital technologies has facilitated the adoption of innovative approaches t... more The proliferation of digital technologies has facilitated the adoption of innovative approaches to addressing global maternal health challenges. Worldwide, HCI researchers - from both resource-constrained and resource-rich countries are actively engaged in developing novel responses to an ever-evolving maternal health landscape. However, opportunities for these researchers to interact and engage in sustained dialogue and collaboration are limited. The purpose of this Special Interest Group (SIG) is to bring these professionals together to support an active global network of maternal health researchers and facilitate collaboration across borders.
BMC Health Services Research
Background Acceptability is recognised as a key concept in the development of health intervention... more Background Acceptability is recognised as a key concept in the development of health interventions, but there has been a lack of consensus about how acceptability should be conceptualised. The theoretical framework of acceptability (TFA) provides a potential tool for understanding acceptability. It has been proposed that acceptability measured before use of an intervention (anticipated acceptability) may differ from measures taken during and after use (experienced acceptability), but thus far this distinction has not been tested for a specific intervention. This paper 1) directly compares ratings of anticipated and experienced acceptability of a text message-based intervention, 2) explores the applicability of the TFA in a technology-based intervention, and 3) uses these findings to inform suggestions for measuring acceptability over the lifespan of technology-based health interventions. Methods Data were obtained from a quantitative online survey assessing anticipated acceptability...
DIGITAL HEALTH, 2021
Background Patients with chronic obstructive pulmonary disease (COPD) are often hospitalised with... more Background Patients with chronic obstructive pulmonary disease (COPD) are often hospitalised with acute exacerbations (AECOPD) and many patients get readmitted. Intervening with hospitalised patients may be optimal timing to provide support. Our previous work demonstrated use of a digital monitoring and self-management support tool in the community. However, we wanted to explore the feasibility of recruiting patients whilst hospitalised for an AECOPD, and to identify the rate of dropout attrition around admission for AECOPD. Methods Patients were recruited to the EDGE2 study between May 2019 and March 2020. Patients were identified by the clinical teams and patients were recruited by members of the clinical research team. Participants were aged 40 years or older, had a diagnosis of COPD and were attending or admitted to hospital for an AECOPD. Participants were given a tablet computer, Bluetooth-linked pulse oximeter and wrist-worn physical activity monitor to use until 6 months pos...
International Journal for Quality in Health Care, 2021
Proceedings of the 2016 CHI Conference Extended Abstracts on Human Factors in Computing Systems, 2016
First-time pregnancy is a significant life event and holistic maternal wellbeing is important. Do... more First-time pregnancy is a significant life event and holistic maternal wellbeing is important. Dominant social narratives state that pregnancy is a time of fulfilment and stability but many women report feeling otherwise. Healthcare prioritises generic information relating to physical health and psychological support is often overlooked. Social support is an important mediator of maternal wellbeing and significant numbers of pregnant women go online to seek out others they can talk to. This research is exploring the potential of digital resources to provide social support in first time pregnancy. Participatory design methods will be used to develop a prototype digital resource with the aim of facilitating tailored peer support to enhance subjective wellbeing during pregnancy and beyond birth.
The notion of wellbeing is synonymous with feeling competent, supported and satisfied with one’s ... more The notion of wellbeing is synonymous with feeling competent, supported and satisfied with one’s life. Understanding how to sustain one’s own wellbeing is important at times of significant life change. The transition to motherhood is characterised by major emotional and physiological changes, which can impact on maternal subjective wellbeing and affect pregnancy outcomes. While Human Computer Interaction (HCI) has begun to address some of the challenges in the prevention and treatment of affective disorders in vulnerable perinatal groups, approaches that promote holistic maternal wellbeing in the low-risk majority have received less attention. This thesis draws on the multidisciplinary legacy of digital intervention development, utilising best practice from eHealth and HCI. Six studies using quantitative and qualitative methods were conducted. Study 1 was a systematic, interdisciplinary literature review, which proposed an integrated framework of factors involved in the successful d...
UNSTRUCTURED Type 2 diabetes is a common lifelong condition, affecting over 400 million people wo... more UNSTRUCTURED Type 2 diabetes is a common lifelong condition, affecting over 400 million people worldwide. Use of effective medications and active self-management can reduce the risk of serious complications. However, people often have concerns when starting new medications, and face difficulties in taking their medications regularly. Support provided by using brief messages delivered through mobile phone-based text messages can be effective in some long-term conditions. We have identified key behaviour change techniques (BCTs) to promote medication adherence in this population via systematic reviewing, and developed text messages that target these BCTs. Feasibility work has shown that these messages have fidelity to intended BCTs, are acceptable to patients, and are successful at changing the intended determinants of medication adherence. We now plan to test this intervention at a larger scale in a clinical trial. The aim of this trial is to determine the effectiveness and cost-effe...
JMIR Formative Research, 2021
Background Poor adherence to oral medications is common in people with type 2 diabetes and can le... more Background Poor adherence to oral medications is common in people with type 2 diabetes and can lead to an increased chance of health complications. Text messages may provide an effective delivery method for an intervention; however, thus far, the majority of these interventions do not specify either a theoretical basis or propose specific mechanisms of action. This makes it hard to determine how and whether an intervention is having an effect. The text messages included in the current intervention have been developed to deliver specific behavior change techniques. These techniques are the “active ingredients” of the intervention and were selected to target psychological constructs identified as predictors of medication adherence. Objective There are 2 aims of this study: (1) to assess whether a text message intervention with specified behavior change techniques can change the constructs that predict medication adherence behaviors in people with type 2 diabetes and (2) to assess whet...
JMIR Human Factors, 2021
Background Digital health research encompasses methods from human-computer interaction and health... more Background Digital health research encompasses methods from human-computer interaction and health research. Objective This paper aims to describe how these methods were combined to develop HeLP-Diabetes: Starting Out, a web-based structured education program for people newly diagnosed with type 2 diabetes. Methods The development process consisted of three phases: initial design for effectiveness, optimization for usability, and in the wild testing in the National Health Service with people newly diagnosed with type 2 diabetes, and further revisions. We adopted an iterative user-centered approach and followed steps from the human-computer interaction design life cycle and the Medical Research Council guidelines on developing and evaluating complex interventions. Results The initial design process resulted in an 8-session program containing information and behavior change techniques targeting weight loss, being more active, and taking medication. The usability testing was highlighted...
BMJ Open, 2019
IntroductionType 2 diabetes is common, affecting over 400 million people worldwide. Risk of serio... more IntroductionType 2 diabetes is common, affecting over 400 million people worldwide. Risk of serious complications can be reduced through use of effective treatments and active self-management. However, people are often concerned about starting new medicines and face difficulties in taking them regularly. Use of brief messages to provide education and support self-management, delivered through mobile phone-based text messages, can be an effective tool for some long-term conditions. We have developed messages aiming to support patients’ self-management of type 2 diabetes in the use of medications and other aspects of self-management, underpinned by theory and evidence. The aim of this trial is to determine the feasibility of a large-scale clinical trial to test the effectiveness and cost-effectiveness of the intervention, compared with usual care.Methods and analysisThe feasibility trial will be a multicentre individually randomised, controlled trial in primary care recruiting adults ...
Painscapes, 2017
The Internet is changing the way that people are experiencing illness and is increasingly the fir... more The Internet is changing the way that people are experiencing illness and is increasingly the first port of call for information as well as support and practical advice for self-management, reassurance, encouragement, to compare experiences of treatment, and to offer advice and support to others. This chapter considers how people experiencing pain use the Internet to express, share, and learn from others’ experiences.
Patient Preference and Adherence, 2019
Background: Many people with type 2 diabetes do not take their treatment as prescribed. Brief mes... more Background: Many people with type 2 diabetes do not take their treatment as prescribed. Brief messages to support medication use could reach large numbers of people at a very low cost per person, but current interventions using brief messages rarely adequately describe the content of the messages, nor base these messages on explicit behavior change principles. This study reports the views of people with type 2 diabetes concerning the acceptability of 1) a messaging system and 2) proposed messages based on behavior change techniques (BCTs) and beliefs and concerns around taking medication. Methods: The proposed system and brief messages were discussed in focus groups of people with type 2 diabetes recruited through general practices in England. Transcripts were analyzed thematically. Participants: Twenty-three participants took part in one of five focus group discussions. All participants were over 18 years, were taking tablet medication for their diabetes, and had access to a mobile phone. Key exclusion criteria were recent hospitalization for hyper-or hypoglycemia or diagnosis with a terminal illness. Results: Four themes were identified as relating to the acceptability of the messaging system: "opportunities and limitations of technology", "us and them (who is the system for?)", "responsibility for adherence", and "diabetes management beyond medication". Participants recognized the benefit of using technology. Those with high confidence in their ability to adhere were keen to make a distinction between themselves and those who did not adhere; participants were more comfortable taking responsibility for medication than diet and exercise. Acceptability of the messages hinged on avoiding "preaching to the converted". Conclusions: These findings show that brief messaging could be acceptable to the target population for a range of diabetes-related behaviors but highlight the need for such a system to be perceived as personally relevant. Acceptable messages would need to maintain novelty for the target population.
BACKGROUND The prevalence of type 2 diabetes is greater in South Asian populations and health out... more BACKGROUND The prevalence of type 2 diabetes is greater in South Asian populations and health outcomes are poorer. British South Asians are up to six times more likely to have type 2 diabetes than the general population, to develop the condition at a younger age, and to experience diabetes-related complications. Interventions to support people in effectively self-managing their condition can potentially reduce costly, debilitating complications. Evidence to support the use of digital devices, including mobile phones, in type 2 diabetes management has shown positive impacts on glycaemic control. There is increasing recognition that health interventions that are culturally adapted to the needs of specific groups are more likely to be relevant and acceptable, but evidence to support the effectiveness of adapted interventions is limited and inconclusive. OBJECTIVE This formative study aims to explore the perceptions and views of British South Asian patients with type 2 diabetes on a dig...
Proceedings of the ACM on Human-Computer Interaction, 2017
Baby wearable technologies are becoming increasingly popular, particularly in early infancy. Howe... more Baby wearable technologies are becoming increasingly popular, particularly in early infancy. However, little research has been conducted to investigate how baby wearable technologies are adopted and used in parenting. This paper presents a two-week in-depth situated study with six mothers in their homes consisting of contextual entry and exit interviews, video recordings of "out-of-box" experiences, and a diary study. Using interpretative phenomenological analysis, participants' use and expectations of the baby wearable technology were examined. Use of the device directly impacted upon parents' knowledge production and anxiety, and influenced the perceived physicality and social factors of parenting. We frame these findings around sociological norms of the vulnerable child and responsible mother, as well as the notion of "lived informatics", where individuals' interaction with the technology influenced the perception, use and impact of the baby wearab...
Digital health
Research and development for interactive digital health interventions requires multi-disciplinary... more Research and development for interactive digital health interventions requires multi-disciplinary expertise in identifying user needs, and developing and evaluating each intervention. Two of the central areas of expertise required are Health (broadly defined) and Human-Computer Interaction. Although these share some research methods and values, they traditionally have deep differences that can catch people unawares, and make interdisciplinary collaborations challenging, resulting in sub-optimal project outcomes. The most widely discussed is the contrast between formative evaluation (emphasised in Human-Computer Interaction) and summative evaluation (emphasised in Health research). However, the differences extend well beyond this, from the nature of accepted evidence to the culture of reporting. In this paper, we present and discuss seven lessons that we have learned about the contrasting cultures, values, assumptions and practices of Health and Human-Computer Interaction. The lesson...
Frontiers in Public Health, 2016
Proceedings of the 2017 CHI Conference Extended Abstracts on Human Factors in Computing Systems, 2017