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Papers by Nicole Thiele

Research paper thumbnail of European Standards of Care for Newborn Health—A project protocol

Acta Paediatrica, 2020

Among children who receive hospital care, preterm infants are Europe's largest group, whose n... more Among children who receive hospital care, preterm infants are Europe's largest group, whose numbers are continually increasing. Currently, no pan‐European standards of care for preterm or critically ill infants are available, except for a few specific topics, and practices vary widely in different regions.

Research paper thumbnail of Management and outcomes of extreme preterm birth

Research paper thumbnail of Erwartungen von Eltern an die Versorgung von Frühgeborenen – Sicht einer Elternvertretung

Frauenheilkunde up2date, 2018

Research paper thumbnail of Clinical trials in neonates: How to optimise informed consent and decision making? A European Delphi survey of parent representatives and clinicians

PLOS ONE, 2018

Objectives Parental consent for the participation of their neonate in neonatal research is influe... more Objectives Parental consent for the participation of their neonate in neonatal research is influenced by the quality of the information delivered and the interaction between parents and investigators. Failure to provide important information may lead to difficulties in the decision making process of parents. This Delphi survey aims to establish a consensus between parent representatives of neonatal associations and healthcare professionals concerning the information deemed essential by both parties in order to improve the recruitment of neonates into clinical trials.

Research paper thumbnail of Parental views on the principles for cluster randomised trials involving neonates and infants

Acta Paediatrica, 2018

The European Foundation for the Care of Newborn Infants (EFCNI) is the first pan-European organis... more The European Foundation for the Care of Newborn Infants (EFCNI) is the first pan-European organisation and network to represent the interests of preterm and newborn infants and their families. The Foundation brings together parents, healthcare experts from different disciplines and scientists with the common goal of improving the long-term health of preterm and newborn infants. It does this by ensuring that infants receive the best possible prevention, treatment, care and support, based on the best available evidence, which has ideally been proven in high-quality randomised, controlled clinical trials (1). This article is protected by copyright. All rights reserved.

Research paper thumbnail of Parents as Partners in Care: Seven Guiding Principles to Ease the Collaboration

Newborn and Infant Nursing Reviews, 2016

Abstract The family-centered care model is becoming a broadly accepted care concept for infants i... more Abstract The family-centered care model is becoming a broadly accepted care concept for infants in the intensive care environment. The involvement of parents as equal partners to deliver optimal care for the baby is one key element of this concept. This article highlights seven aspects to be addressed when parents become an integral part of the care team. Healthcare professionals need to stand in the parents’ shoes and to acknowledge the different coping strategies. Valuing the unique role of parents, the care team supports, educates, and guides the parents with respect and empathy, and according to the parents’ individual, needs. Achieving a successful partnership often requires a change of attitude and thinking among the healthcare team. Recognizing the dynamic process and foreseeing access to training and guidance, as well as creating an open atmosphere can help to overcome challenges and achieve acceptance of the new coaching role from the whole team.

Research paper thumbnail of “Caring for tomorrow”

Journal of Neonatal Nursing, 2012

Research paper thumbnail of European Standards of Care for Newborn Health—A project protocol

Acta Paediatrica, 2020

Among children who receive hospital care, preterm infants are Europe's largest group, whose n... more Among children who receive hospital care, preterm infants are Europe's largest group, whose numbers are continually increasing. Currently, no pan‐European standards of care for preterm or critically ill infants are available, except for a few specific topics, and practices vary widely in different regions.

Research paper thumbnail of Management and outcomes of extreme preterm birth

Research paper thumbnail of Erwartungen von Eltern an die Versorgung von Frühgeborenen – Sicht einer Elternvertretung

Frauenheilkunde up2date, 2018

Research paper thumbnail of Clinical trials in neonates: How to optimise informed consent and decision making? A European Delphi survey of parent representatives and clinicians

PLOS ONE, 2018

Objectives Parental consent for the participation of their neonate in neonatal research is influe... more Objectives Parental consent for the participation of their neonate in neonatal research is influenced by the quality of the information delivered and the interaction between parents and investigators. Failure to provide important information may lead to difficulties in the decision making process of parents. This Delphi survey aims to establish a consensus between parent representatives of neonatal associations and healthcare professionals concerning the information deemed essential by both parties in order to improve the recruitment of neonates into clinical trials.

Research paper thumbnail of Parental views on the principles for cluster randomised trials involving neonates and infants

Acta Paediatrica, 2018

The European Foundation for the Care of Newborn Infants (EFCNI) is the first pan-European organis... more The European Foundation for the Care of Newborn Infants (EFCNI) is the first pan-European organisation and network to represent the interests of preterm and newborn infants and their families. The Foundation brings together parents, healthcare experts from different disciplines and scientists with the common goal of improving the long-term health of preterm and newborn infants. It does this by ensuring that infants receive the best possible prevention, treatment, care and support, based on the best available evidence, which has ideally been proven in high-quality randomised, controlled clinical trials (1). This article is protected by copyright. All rights reserved.

Research paper thumbnail of Parents as Partners in Care: Seven Guiding Principles to Ease the Collaboration

Newborn and Infant Nursing Reviews, 2016

Abstract The family-centered care model is becoming a broadly accepted care concept for infants i... more Abstract The family-centered care model is becoming a broadly accepted care concept for infants in the intensive care environment. The involvement of parents as equal partners to deliver optimal care for the baby is one key element of this concept. This article highlights seven aspects to be addressed when parents become an integral part of the care team. Healthcare professionals need to stand in the parents’ shoes and to acknowledge the different coping strategies. Valuing the unique role of parents, the care team supports, educates, and guides the parents with respect and empathy, and according to the parents’ individual, needs. Achieving a successful partnership often requires a change of attitude and thinking among the healthcare team. Recognizing the dynamic process and foreseeing access to training and guidance, as well as creating an open atmosphere can help to overcome challenges and achieve acceptance of the new coaching role from the whole team.

Research paper thumbnail of “Caring for tomorrow”

Journal of Neonatal Nursing, 2012

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