Niklas Juth - Academia.edu (original) (raw)

Papers by Niklas Juth

Research paper thumbnail of Against Ulysses contracts for patients with borderline personality disorder

Medicine, Health Care and Philosophy

Patients with borderline personality disorder (BPD) sometimes request to be admitted to hospital ... more Patients with borderline personality disorder (BPD) sometimes request to be admitted to hospital under compulsory care, often under the argument that they cannot trust their suicidal impulses if treated voluntarily. Thus, compulsory care is practised as a form of Ulysses contract in such situations. In this normative study we scrutinize the arguments commonly used in favour of such Ulysses contracts: (1) the patient lacking free will, (2) Ulysses contracts as self-paternalism, (3) the patient lacking decision competence, (4) Ulysses contracts as a defence of the authentic self, and (5) Ulysses contracts as a practical solution in emergency situations. In our study, we have accepted consequentialist considerations as well as considerations of autonomy. We conclude that compulsory care is not justified when there is a significant uncertainty of beneficial effects or uncertainty regarding the patient’s decision-making capacity. We have argued that such uncertainty is present regarding ...

Research paper thumbnail of Should we accept a higher cost per health improvement for orphan drugs? A review and analysis of egalitarian arguments

Research paper thumbnail of Misuse of Coauthorship in Medical Theses in Sweden

Journal of Empirical Research on Human Research Ethics

The aim of this study was to explore experiences of authorship issues among persons who have rece... more The aim of this study was to explore experiences of authorship issues among persons who have recently received their doctoral degree in medicine in Sweden. A survey was mailed to all who received their PhD at a medical faculty at a Swedish university the first half of 2016. Questions concerned experiences of violations of the first three authorship criteria in the Vancouver rules and of misuse of authorship order in the articles of their thesis, and the respondents’ attitudes to these matters. The questionnaire was returned by 285 respondents (68%). According to the majority (53%), the Vancouver rules were not fully respected in the articles of their thesis. A vast majority (97%) found it important that authorship issues are handled correctly, but only 19% responded that their department has a clear and consistently applied policy. We conclude that authorship guidelines are frequently disrespected at medical faculties in Sweden. The universities seem to provide limited support on au...

Research paper thumbnail of Moral Distress among Disaster Responders: What is it?

Prehospital and Disaster Medicine

Introduction: Current research of moral distress is mainly derived from challenges within high-re... more Introduction: Current research of moral distress is mainly derived from challenges within high-resource health care settings, and there is lack of clarity among the different definitions. Disaster responders are prone to a range of moral challenges during the work, which may give rise to moral distress. Further, organizations have considered increased drop-out rates and sick leaves among disaster responders as consequences of moral distress. Therefore, initiatives have been taken to address and understand the impacts of moral distress and its consequences for responders. Since there is unclarity among the different definitions, a first step is to understand the concept of moral distress and its interlinkages within the literature related to disaster responders. Hypothesis/Problem: To examine how disaster responders are affected by moral challenges, systematic knowledge is needed about the concepts related to moral distress. This paper aims to elucidate how the concept of moral distr...

Research paper thumbnail of What are the medical indications for providing extremely premature infants with intensive care?

Research paper thumbnail of Value-impregnated factual claims may undermine medical decision-making

Clinical Ethics

Clinical decisions are expected to be based on factual evidence and official values derived from ... more Clinical decisions are expected to be based on factual evidence and official values derived from healthcare law and soft laws such as regulations and guidelines. But sometimes personal values instead influence clinical decisions. One way in which personal values may influence medical decision-making is by their affecting factual claims or assumptions made by healthcare providers. Such influence, which we call 'value-impregnation,' may be concealed to all concerned stakeholders. We suggest as a hypothesis that healthcare providers' decision making is sometimes affected by valueimpregnated factual claims or assumptions. If such claims influence e.g. doctor-patient encounters, this will likely have a negative impact on the provision of correct information to patients and on patients' influence on decision making regarding their own care. In this paper, we explore the idea that value-impregnated factual claims influence healthcare decisions through a series of medical examples. We suggest that more research is needed to further examine whether healthcare staff's personal values influence clinical decision-making.

Research paper thumbnail of Getting down to the business of teaching ethics. An inter-disciplinary case study

International Journal of Ethics Education

Research paper thumbnail of From Child Protection to Paradigm Protection—The Genesis, Development, and Defense of a Scientific Paradigm

The Journal of Medicine and Philosophy: A Forum for Bioethics and Philosophy of Medicine

A scientific paradigm typically embraces research norms and values, such as truth-seeking, critic... more A scientific paradigm typically embraces research norms and values, such as truth-seeking, critical thinking, disinterestedness, and good scientific practice. These values should prevent a paradigm from introducing defective assumptions. But sometimes, scientists who are also physicians develop clinical norms that are in conflict with the scientific enterprise. As an example of such a conflict, we have analyzed the genesis and development of the shaken baby syndrome (SBS) paradigm. The point of departure of the analysis is a recently conducted systematic literature review, which concluded that there is very low scientific evidence for the basic assumption held by Child Protection Teams: when certain signs are present (and no other "acceptable" explanations are provided) the infant has been violently shaken. We suggest that such teams have developed more value-based than scientific-based criteria when classifying SBS cases. Further, we suggest that the teams are victims of "groupthink," aggravating the difficulties in considering critics' questioning the criteria established by the teams.

Research paper thumbnail of Psychiatrists' motives for practising in-patient compulsory care of patients with borderline personality disorder (BPD)

International Journal of Law and Psychiatry

Research paper thumbnail of »Sjukvård efter behov« är inte en självklarhet - Behovsbegreppet är inte helt lätt att tillämpa i klinisk vardag

Lakartidningen, Jan 17, 2017

Research paper thumbnail of Principles of Need and the Aggregation Thesis

Health Care Analysis

Principles of need are constantly referred to in health care priority setting. The common denomin... more Principles of need are constantly referred to in health care priority setting. The common denominator for any principle of need is that it will ascribe some kind of special normative weight to people being worse off. However, this common ground does not answer the question how a plausible principle of need should relate to the aggregation of benefits across individuals. Principles of need are sometimes stated as being incompatible with aggregation and sometimes characterized as accepting aggregation in much the same way as utilitarians do. In this paper we argue that if one wants to take principles of need seriously both of these positions have unreasonable implications. We then characterize and defend a principle of need consisting of sufficientarian elements as well as prioritarian which avoids these unreasonable implications.

Research paper thumbnail of Ethics of Screening

International Encyclopedia of Public Health, 2017

Research paper thumbnail of Value-impregnated factual claims and slippery-slope arguments

Medicine, Health Care and Philosophy, 2016

Slippery-slope arguments typically question a course of action by estimating that it will end in ... more Slippery-slope arguments typically question a course of action by estimating that it will end in misery once the first unfortunate step is taken. Previous studies indicate that estimations of the long-term consequences of certain debated actions, such as legalizing physicianassisted suicide, may be strongly influenced by tacit personal values. In this paper, we suggest that to the extent that slippery-slope arguments rest on estimations of future events, they may be mere rationalizations of personal values. This might explain why there are proponents even for strikingly poor slippery-slope arguments.

Research paper thumbnail of Behovsprincipen i vården

Tidskrift For Politisk Filosofi, Sep 15, 2011

Research paper thumbnail of Om den personliga egalitarismen - replik till Rabinowicz

Tidskrift For Politisk Filosofi, Mar 15, 2005

Research paper thumbnail of Heed or disregard a cancer patient’s critical blogging? An experimental study of two different framing strategies

BMC Medical Ethics, 2016

Background: We have examined healthcare staff attitudes of toward a blogging cancer patient who p... more Background: We have examined healthcare staff attitudes of toward a blogging cancer patient who publishes critical posts about her treatment and their possible effect on patient-staff relationships and treatment decisions. Methods: We used two versions of a questionnaire containing a vignette based on a modified real case involving a 39-year-old cancer patient who complained on her blog about how she was encountered and the treatment she received. Initially she was not offered a new, and expensive treatment, which might have influenced her perception of further encounters. In one version of the vignette, the team decides to put extra effort into both encounters and offers the expensive new cancer treatment. In the other version, the team decides to follow the clinic's routine to the letter. Subsequently, blog postings became either positive or negative in tone. We also divided participants into value-neutral and value-influenced groups (regarding personal values) by asking how their trust in healthcare would be affected if the team's suggestion were followed. Results: A total of 56 % (95 % CI: 51-61) of the respondents faced with a team decision to 'do something-extra' in encounters would act in accordance with this ambition. Concerning treatment, 32 % (95 % CI: 28-38) would follow the team's decision to offer a new and expensive treatment. A large majority of those who received the "follow-routine" version agreed to do so in encountering [94 % (95 % CI: 91-97)]. Similar proportions were found regarding treatment [86 % (95 % CI: 82-90)]. A total of 83 % (95 % CI: 76-91) of the value-neutral participants who received the "do-something-extra" version stated that they would act as the team suggested regarding encounters, while 57 % (95 % CI: 47-67) would do so in regard to treatment. Among the value-influenced participants who received the "do-something-extra" version, 45 % (95 % CI: 38-51) stated that they would make an extra effort to accommodate the patient and her needs, while the proportion for treatment was 22 % (95 % CI: 16-27). Among those who had received the "follow-routine" version, a large majority agreed, and no difference was indicated between the value-neutral and the value-influenced participants. Conclusion: The present study indicates that healthcare staff is indeed influenced by reading a patient's critical blog entries, largely regarding encounters, but also concerning treatment is concerned. Value-neutral healthcare personnel seem to exhibit a pragmatic attitude and be more inclined to heed and respond to a patient whose criticism may well be warranted. The study also indicates that healthcare staff is partly positive or negative to future blogging patients depending on how the issue has been framed. For future research we suggest as a bold hypothesis that the phrase "clinical routine" might conceal power aspects masquerading as adopted ethical principles.

Research paper thumbnail of Etiska fr�gest�llningar vid klinisk till�mpning av gendiagnostik f�r �rftlig Alzheimer

Research paper thumbnail of Etiska aspekter p� reglering av f�rs�kringsbolags tillg�ng till genetisk information

Research paper thumbnail of The Right Not to Know and the Duty to Tell: The Case of Relatives

The Journal of Law, Medicine & Ethics, 2014

Research paper thumbnail of Scientific Dishonesty: A Survey of Doctoral Students at the Major Medical Faculties in Sweden and Norway

Journal of empirical research on human research ethics : JERHRE, 2015

As we need knowledge about the prevalence of scientific dishonesty, this study investigates the k... more As we need knowledge about the prevalence of scientific dishonesty, this study investigates the knowledge of, experiences with, and attitudes toward various forms of scientific dishonesty among PhD students at the main medical faculties in Sweden and Norway. An anonymous questionnaire was distributed to all post-graduate research students attending basic PhD courses at the medical faculties in Stockholm and Oslo during the fall 2014. The responding doctoral students reported to know about various forms of scientific dishonesty from the literature, in their department, and for some also through their own experience. Some forms of scientific misconduct were considered to be acceptable by a significant minority. There was a high level of willingness to report misconduct but little awareness of relevant policies for scientific conduct.

Research paper thumbnail of Against Ulysses contracts for patients with borderline personality disorder

Medicine, Health Care and Philosophy

Patients with borderline personality disorder (BPD) sometimes request to be admitted to hospital ... more Patients with borderline personality disorder (BPD) sometimes request to be admitted to hospital under compulsory care, often under the argument that they cannot trust their suicidal impulses if treated voluntarily. Thus, compulsory care is practised as a form of Ulysses contract in such situations. In this normative study we scrutinize the arguments commonly used in favour of such Ulysses contracts: (1) the patient lacking free will, (2) Ulysses contracts as self-paternalism, (3) the patient lacking decision competence, (4) Ulysses contracts as a defence of the authentic self, and (5) Ulysses contracts as a practical solution in emergency situations. In our study, we have accepted consequentialist considerations as well as considerations of autonomy. We conclude that compulsory care is not justified when there is a significant uncertainty of beneficial effects or uncertainty regarding the patient’s decision-making capacity. We have argued that such uncertainty is present regarding ...

Research paper thumbnail of Should we accept a higher cost per health improvement for orphan drugs? A review and analysis of egalitarian arguments

Research paper thumbnail of Misuse of Coauthorship in Medical Theses in Sweden

Journal of Empirical Research on Human Research Ethics

The aim of this study was to explore experiences of authorship issues among persons who have rece... more The aim of this study was to explore experiences of authorship issues among persons who have recently received their doctoral degree in medicine in Sweden. A survey was mailed to all who received their PhD at a medical faculty at a Swedish university the first half of 2016. Questions concerned experiences of violations of the first three authorship criteria in the Vancouver rules and of misuse of authorship order in the articles of their thesis, and the respondents’ attitudes to these matters. The questionnaire was returned by 285 respondents (68%). According to the majority (53%), the Vancouver rules were not fully respected in the articles of their thesis. A vast majority (97%) found it important that authorship issues are handled correctly, but only 19% responded that their department has a clear and consistently applied policy. We conclude that authorship guidelines are frequently disrespected at medical faculties in Sweden. The universities seem to provide limited support on au...

Research paper thumbnail of Moral Distress among Disaster Responders: What is it?

Prehospital and Disaster Medicine

Introduction: Current research of moral distress is mainly derived from challenges within high-re... more Introduction: Current research of moral distress is mainly derived from challenges within high-resource health care settings, and there is lack of clarity among the different definitions. Disaster responders are prone to a range of moral challenges during the work, which may give rise to moral distress. Further, organizations have considered increased drop-out rates and sick leaves among disaster responders as consequences of moral distress. Therefore, initiatives have been taken to address and understand the impacts of moral distress and its consequences for responders. Since there is unclarity among the different definitions, a first step is to understand the concept of moral distress and its interlinkages within the literature related to disaster responders. Hypothesis/Problem: To examine how disaster responders are affected by moral challenges, systematic knowledge is needed about the concepts related to moral distress. This paper aims to elucidate how the concept of moral distr...

Research paper thumbnail of What are the medical indications for providing extremely premature infants with intensive care?

Research paper thumbnail of Value-impregnated factual claims may undermine medical decision-making

Clinical Ethics

Clinical decisions are expected to be based on factual evidence and official values derived from ... more Clinical decisions are expected to be based on factual evidence and official values derived from healthcare law and soft laws such as regulations and guidelines. But sometimes personal values instead influence clinical decisions. One way in which personal values may influence medical decision-making is by their affecting factual claims or assumptions made by healthcare providers. Such influence, which we call 'value-impregnation,' may be concealed to all concerned stakeholders. We suggest as a hypothesis that healthcare providers' decision making is sometimes affected by valueimpregnated factual claims or assumptions. If such claims influence e.g. doctor-patient encounters, this will likely have a negative impact on the provision of correct information to patients and on patients' influence on decision making regarding their own care. In this paper, we explore the idea that value-impregnated factual claims influence healthcare decisions through a series of medical examples. We suggest that more research is needed to further examine whether healthcare staff's personal values influence clinical decision-making.

Research paper thumbnail of Getting down to the business of teaching ethics. An inter-disciplinary case study

International Journal of Ethics Education

Research paper thumbnail of From Child Protection to Paradigm Protection—The Genesis, Development, and Defense of a Scientific Paradigm

The Journal of Medicine and Philosophy: A Forum for Bioethics and Philosophy of Medicine

A scientific paradigm typically embraces research norms and values, such as truth-seeking, critic... more A scientific paradigm typically embraces research norms and values, such as truth-seeking, critical thinking, disinterestedness, and good scientific practice. These values should prevent a paradigm from introducing defective assumptions. But sometimes, scientists who are also physicians develop clinical norms that are in conflict with the scientific enterprise. As an example of such a conflict, we have analyzed the genesis and development of the shaken baby syndrome (SBS) paradigm. The point of departure of the analysis is a recently conducted systematic literature review, which concluded that there is very low scientific evidence for the basic assumption held by Child Protection Teams: when certain signs are present (and no other "acceptable" explanations are provided) the infant has been violently shaken. We suggest that such teams have developed more value-based than scientific-based criteria when classifying SBS cases. Further, we suggest that the teams are victims of "groupthink," aggravating the difficulties in considering critics' questioning the criteria established by the teams.

Research paper thumbnail of Psychiatrists' motives for practising in-patient compulsory care of patients with borderline personality disorder (BPD)

International Journal of Law and Psychiatry

Research paper thumbnail of »Sjukvård efter behov« är inte en självklarhet - Behovsbegreppet är inte helt lätt att tillämpa i klinisk vardag

Lakartidningen, Jan 17, 2017

Research paper thumbnail of Principles of Need and the Aggregation Thesis

Health Care Analysis

Principles of need are constantly referred to in health care priority setting. The common denomin... more Principles of need are constantly referred to in health care priority setting. The common denominator for any principle of need is that it will ascribe some kind of special normative weight to people being worse off. However, this common ground does not answer the question how a plausible principle of need should relate to the aggregation of benefits across individuals. Principles of need are sometimes stated as being incompatible with aggregation and sometimes characterized as accepting aggregation in much the same way as utilitarians do. In this paper we argue that if one wants to take principles of need seriously both of these positions have unreasonable implications. We then characterize and defend a principle of need consisting of sufficientarian elements as well as prioritarian which avoids these unreasonable implications.

Research paper thumbnail of Ethics of Screening

International Encyclopedia of Public Health, 2017

Research paper thumbnail of Value-impregnated factual claims and slippery-slope arguments

Medicine, Health Care and Philosophy, 2016

Slippery-slope arguments typically question a course of action by estimating that it will end in ... more Slippery-slope arguments typically question a course of action by estimating that it will end in misery once the first unfortunate step is taken. Previous studies indicate that estimations of the long-term consequences of certain debated actions, such as legalizing physicianassisted suicide, may be strongly influenced by tacit personal values. In this paper, we suggest that to the extent that slippery-slope arguments rest on estimations of future events, they may be mere rationalizations of personal values. This might explain why there are proponents even for strikingly poor slippery-slope arguments.

Research paper thumbnail of Behovsprincipen i vården

Tidskrift For Politisk Filosofi, Sep 15, 2011

Research paper thumbnail of Om den personliga egalitarismen - replik till Rabinowicz

Tidskrift For Politisk Filosofi, Mar 15, 2005

Research paper thumbnail of Heed or disregard a cancer patient’s critical blogging? An experimental study of two different framing strategies

BMC Medical Ethics, 2016

Background: We have examined healthcare staff attitudes of toward a blogging cancer patient who p... more Background: We have examined healthcare staff attitudes of toward a blogging cancer patient who publishes critical posts about her treatment and their possible effect on patient-staff relationships and treatment decisions. Methods: We used two versions of a questionnaire containing a vignette based on a modified real case involving a 39-year-old cancer patient who complained on her blog about how she was encountered and the treatment she received. Initially she was not offered a new, and expensive treatment, which might have influenced her perception of further encounters. In one version of the vignette, the team decides to put extra effort into both encounters and offers the expensive new cancer treatment. In the other version, the team decides to follow the clinic's routine to the letter. Subsequently, blog postings became either positive or negative in tone. We also divided participants into value-neutral and value-influenced groups (regarding personal values) by asking how their trust in healthcare would be affected if the team's suggestion were followed. Results: A total of 56 % (95 % CI: 51-61) of the respondents faced with a team decision to 'do something-extra' in encounters would act in accordance with this ambition. Concerning treatment, 32 % (95 % CI: 28-38) would follow the team's decision to offer a new and expensive treatment. A large majority of those who received the "follow-routine" version agreed to do so in encountering [94 % (95 % CI: 91-97)]. Similar proportions were found regarding treatment [86 % (95 % CI: 82-90)]. A total of 83 % (95 % CI: 76-91) of the value-neutral participants who received the "do-something-extra" version stated that they would act as the team suggested regarding encounters, while 57 % (95 % CI: 47-67) would do so in regard to treatment. Among the value-influenced participants who received the "do-something-extra" version, 45 % (95 % CI: 38-51) stated that they would make an extra effort to accommodate the patient and her needs, while the proportion for treatment was 22 % (95 % CI: 16-27). Among those who had received the "follow-routine" version, a large majority agreed, and no difference was indicated between the value-neutral and the value-influenced participants. Conclusion: The present study indicates that healthcare staff is indeed influenced by reading a patient's critical blog entries, largely regarding encounters, but also concerning treatment is concerned. Value-neutral healthcare personnel seem to exhibit a pragmatic attitude and be more inclined to heed and respond to a patient whose criticism may well be warranted. The study also indicates that healthcare staff is partly positive or negative to future blogging patients depending on how the issue has been framed. For future research we suggest as a bold hypothesis that the phrase "clinical routine" might conceal power aspects masquerading as adopted ethical principles.

Research paper thumbnail of Etiska fr�gest�llningar vid klinisk till�mpning av gendiagnostik f�r �rftlig Alzheimer

Research paper thumbnail of Etiska aspekter p� reglering av f�rs�kringsbolags tillg�ng till genetisk information

Research paper thumbnail of The Right Not to Know and the Duty to Tell: The Case of Relatives

The Journal of Law, Medicine & Ethics, 2014

Research paper thumbnail of Scientific Dishonesty: A Survey of Doctoral Students at the Major Medical Faculties in Sweden and Norway

Journal of empirical research on human research ethics : JERHRE, 2015

As we need knowledge about the prevalence of scientific dishonesty, this study investigates the k... more As we need knowledge about the prevalence of scientific dishonesty, this study investigates the knowledge of, experiences with, and attitudes toward various forms of scientific dishonesty among PhD students at the main medical faculties in Sweden and Norway. An anonymous questionnaire was distributed to all post-graduate research students attending basic PhD courses at the medical faculties in Stockholm and Oslo during the fall 2014. The responding doctoral students reported to know about various forms of scientific dishonesty from the literature, in their department, and for some also through their own experience. Some forms of scientific misconduct were considered to be acceptable by a significant minority. There was a high level of willingness to report misconduct but little awareness of relevant policies for scientific conduct.