Parvaneh Rabiee - Academia.edu (original) (raw)

Papers by Parvaneh Rabiee

Research paper thumbnail of The IBSEN project-National evaluation of the Individual Budgets Pilot Projects

Research paper thumbnail of Desired outcomes for children and young people with complex health care needs, and children who do not use speech for communication

Health Social Care in the Community, Sep 1, 2005

Within recent policies and initiatives, there is a growing emphasis on outcomes-focused practice ... more Within recent policies and initiatives, there is a growing emphasis on outcomes-focused practice and user-defined outcomes to ensure that the children and families most at risk of social exclusion have every opportunity to build successful and independent lives. However, we still know little about what children and young people with disabilities consider constitutes a good quality of life. The present paper reports the findings of a qualitative research project that aimed to identify the desires and aspirations of children and young people with complex health care needs (CHNs), as well as those who do not use speech for communication (NS) and their parents. Fifty families participated in this study; 26 families had a child with CHNs and 24 had a child with NS. Semistructured interviews were carried out with 50 parents, 18 children and 17 other informants (teachers and other non-parent carers who knew the child well). A range of visual or non-verbal techniques were used to facilitate interviews with children. The research found that, while children and their parents aspired to the same sort of outcomes as those of non-disabled children, such as to have friends, interests and future independence, the specific meaning they attached to certain outcomes and the way they prioritised aspirations differed. These findings have implications for the ways in which outcomes are defined and measured, and the role of services in achieving these outcomes.

Research paper thumbnail of The organisation and content of home care re-ablement services

Home care re-ablement is high on the English adult social care policy agenda. It aims to help peo... more Home care re-ablement is high on the English adult social care policy agenda. It aims to help people regain skills and confidence so they can live as independently as possible, thus reducing needs for longer-term home care services. However, little is known about what re-ablement involves or how best to organise services. This first study of five well-established re-ablement services shows which features are considered to contribute to success.

Research paper thumbnail of How far do managed personal budgets offer choice and control for older people using home care services?

Research paper thumbnail of Investigating the Longer Term Impact of Home Care Re-ablement Services: The Short-term Outcomes and Costs of Home Care Re-ablement Services

Research paper thumbnail of Choice and control for older people using home care services: how far have council-managed personal budgets helped?

Quality in Ageing and Older Adults, 2014

Research paper thumbnail of Supporting choice: Support planning, older people and managed personal budgets

Journal of Social Work, 2015

ABSTRACT

Research paper thumbnail of Council-managed personal budgets for older people: Improving choice through market development and brokerage?

Journal of Care Services Management, 2013

Research paper thumbnail of Individual Budgets: Lessons from Early Users' Experiences

British Journal of Social Work, 2009

Within the context of modernization, there has been a trend towards "cash for care" schemes desig... more Within the context of modernization, there has been a trend towards "cash for care" schemes designed to bring choice and control closer to the service user. In England, Individual Budgets (IBs) are being piloted with the aim of promoting personalized support for disabled people and other users of social care services. This paper reports on the experiences and outcomes of early IB users two to three months after first being offered an IB. The users included adults with physical/sensory impairments, learning difficulties, mental health problems and older people. Semi-structured interviews were carried out with nine service users and five proxies.

Research paper thumbnail of Exploring the Relationships between Choice and Independence: Experiences of Disabled and Older People

British Journal of Social Work, 2013

Extending choice and control to the users of publicly funded services is a cornerstone in the per... more Extending choice and control to the users of publicly funded services is a cornerstone in the personalisation agenda. It is assumed that giving service users greater choice and control will promote users' independence. As service users are increasingly given the responsibility to determine their support, social work practitioners need to work differently with service users in order to provide personalised support in exercising choice. This requires practitioners having a nuanced understanding of people's concepts of independence, how people make choices about support services and how those choices can impact on their perceived independence in the longer term. This paper reports new findings from a longitudinal qualitative study of choice and control over the life course in England. Semi-structured interviews were carried out with fifty adults and older people experiencing fluctuating support needs and/or a sudden deterioration in health. The paper discusses the relationships between choice and independence as experienced by disabled and older people. The findings show that independence is not a fixed concept, but is relative and multidimensional. There are multiple relationships between the choices people make and the consequences of those choices for people's subjective views of their independence. The paper concludes by highlighting the implications of findings for the role of social work practitioners.

Research paper thumbnail of Managed personal budgets for older people: what are English local authorities doing to facilitate personalized and flexible care?

Public Money & Management, 2013

ABSTRACT This paper explores how three local authorities in England have tried to facilitate pers... more ABSTRACT This paper explores how three local authorities in England have tried to facilitate personalized home care for older people through changes in commissioning and market development activities; and how these changes have been experienced by support planners and home care agency managers. Overall, it appears that changes are well intended, but the practicalities of implementing them raise some challenges that mean desired objectives may not always be achieved.

Research paper thumbnail of Hopes and fears: stakeholder views on the transfer of special school resources towards inclusion

International Journal of Inclusive Education, 2002

This paper reviews the findings and wider policy implications of an evaluation of two pilot proje... more This paper reviews the findings and wider policy implications of an evaluation of two pilot projects for the inclusion of disabled pupils from special schools into mainstream settings in a single English education authority. These included (a) paired Partnerships between ...

Research paper thumbnail of Desired outcomes for children and young people with complex health care needs, and children who do not use speech for communication

Health and Social Care in the Community, 2005

Within recent policies and initiatives, there is a growing emphasis on outcomes-focused practice ... more Within recent policies and initiatives, there is a growing emphasis on outcomes-focused practice and user-defined outcomes to ensure that the children and families most at risk of social exclusion have every opportunity to build successful and independent lives. However, we still know little about what children and young people with disabilities consider constitutes a good quality of life. The present paper reports the findings of a qualitative research project that aimed to identify the desires and aspirations of children and young people with complex health care needs (CHNs), as well as those who do not use speech for communication (NS) and their parents. Fifty families participated in this study; 26 families had a child with CHNs and 24 had a child with NS. Semistructured interviews were carried out with 50 parents, 18 children and 17 other informants (teachers and other non-parent carers who knew the child well). A range of visual or non-verbal techniques were used to facilitate interviews with children. The research found that, while children and their parents aspired to the same sort of outcomes as those of non-disabled children, such as to have friends, interests and future independence, the specific meaning they attached to certain outcomes and the way they prioritised aspirations differed. These findings have implications for the ways in which outcomes are defined and measured, and the role of services in achieving these outcomes.

Research paper thumbnail of Organisation and delivery of home care re-ablement: what makes a difference?

Health & Social Care in the Community, 2011

Home-care re-ablement or 'restorative&amp... more Home-care re-ablement or 'restorative' services are a cornerstone of preventive service initiatives in many countries. Many English local authorities are transforming their former in-house home-care services to provide intensive, short-term re-ablement instead. The focus of this paper is on the organisation and content of re-ablement services and the features of their organisation and delivery that have the potential to enhance or detract from their effectiveness. Qualitative data were collected from five sites with well-established re-ablement services. Data included semi-structured interviews with senior service managers in each site; observation of 26 re-ablement visits to service users across the five sites (four to six in each site) and a focus group discussion with front-line staff in each site (in total involving 37 front-line staff). The data generated from all three sources were analysed using the framework approach. All five services had developed from selective pilot projects to inclusive 'intake' service, accepting almost all referrals for home-care services. A number of features were identified as contributing to the effectiveness of re-ablement services. These included: service user characteristics and expectations; staff commitment, attitudes and skills; flexibility and prompt intervention; thorough and consistent recording systems; and rapid access to equipment and specialist skills in the team. Factors external to the re-ablement services themselves also had implications for their effectiveness; these included: a clear, widely understood vision of the service; access to a wide range of specialist skills; and capacity within long-term home-care services. The paper argues that re-ablement can be empowering for all service users in terms of raising their confidence. However, the move to a more inclusive 'intake' service suggests that outcomes are likely to be considerably lower for service users who have more limited potential to be independent. The paper discusses the implications for practice.

Research paper thumbnail of Same Difference? Older People's Organisations and Disability Issues

Disability & Society, 2002

This paper addresses some important areas of commonality in the political interests of older and ... more This paper addresses some important areas of commonality in the political interests of older and disabled people. The paper reports findings from survey and interview research with local organisations representing older people, and their engagement with disability issues ...

Research paper thumbnail of Choice: what, when and why? Exploring the importance of choice to disabled people

Disability & Society, 2010

Research paper thumbnail of Young Disabled People and the ‘New Arrangements’ for Leaving Care in England and Wales

Children and Youth Services Review, 2003

Research paper thumbnail of Desired Outcomes for Children and Adolescents with Autistic Spectrum Disorders

Children <html_ent glyph="@amp;" ascii="&"/> Society, 2006

Research paper thumbnail of Doing research with children and young people who do not use speech for communication

Children & Society, 2005

Rabiee, P., Sloper, P. and Beresford, B. (2005) Doing research with children and young people who... more Rabiee, P., Sloper, P. and Beresford, B. (2005) Doing research with children and young people who do not use speech for communication, Abstract Despite emphasis in policy on participation of disabled children 1 , we still know relatively little about how to obtain the views of disabled children with significant communication impairment and their views are often overlooked in planning and service provision. This article describes how the views of children who do not use speech were accessed in research aiming to identify disabled children and young people's priorities regarding outcomes of social care and support services. The main challenge was to develop a method that was reliable, nonthreatening, enjoyable and relevant to individual children, as well as enabling children to think beyond their everyday life and express what they aspire to. 5 first mode of communication and/or are perceived as having significant cognitive impairments (Morris, 1998a; Morris, 2003). Underpinned by medical discourses, children who do not communicate using speech have been and continue to be defined by what they cannot do, rather than what they can. However, there is a growing body of literature, which indicates a whole range of communication strengths and a great willingness and ability on the part of disabled young people to communicate their feelings and experiences and be involved in a process of change (Disabled people using Scope services, 2002; Rabiee and others, 2001; Morris, 1999a; Stalker and others, 2003; Watson and augmentative and alternative communication systems.

Research paper thumbnail of Every Child Matters outcomes: What Do They Mean for Disabled Children and Young People?

Research paper thumbnail of The IBSEN project-National evaluation of the Individual Budgets Pilot Projects

Research paper thumbnail of Desired outcomes for children and young people with complex health care needs, and children who do not use speech for communication

Health Social Care in the Community, Sep 1, 2005

Within recent policies and initiatives, there is a growing emphasis on outcomes-focused practice ... more Within recent policies and initiatives, there is a growing emphasis on outcomes-focused practice and user-defined outcomes to ensure that the children and families most at risk of social exclusion have every opportunity to build successful and independent lives. However, we still know little about what children and young people with disabilities consider constitutes a good quality of life. The present paper reports the findings of a qualitative research project that aimed to identify the desires and aspirations of children and young people with complex health care needs (CHNs), as well as those who do not use speech for communication (NS) and their parents. Fifty families participated in this study; 26 families had a child with CHNs and 24 had a child with NS. Semistructured interviews were carried out with 50 parents, 18 children and 17 other informants (teachers and other non-parent carers who knew the child well). A range of visual or non-verbal techniques were used to facilitate interviews with children. The research found that, while children and their parents aspired to the same sort of outcomes as those of non-disabled children, such as to have friends, interests and future independence, the specific meaning they attached to certain outcomes and the way they prioritised aspirations differed. These findings have implications for the ways in which outcomes are defined and measured, and the role of services in achieving these outcomes.

Research paper thumbnail of The organisation and content of home care re-ablement services

Home care re-ablement is high on the English adult social care policy agenda. It aims to help peo... more Home care re-ablement is high on the English adult social care policy agenda. It aims to help people regain skills and confidence so they can live as independently as possible, thus reducing needs for longer-term home care services. However, little is known about what re-ablement involves or how best to organise services. This first study of five well-established re-ablement services shows which features are considered to contribute to success.

Research paper thumbnail of How far do managed personal budgets offer choice and control for older people using home care services?

Research paper thumbnail of Investigating the Longer Term Impact of Home Care Re-ablement Services: The Short-term Outcomes and Costs of Home Care Re-ablement Services

Research paper thumbnail of Choice and control for older people using home care services: how far have council-managed personal budgets helped?

Quality in Ageing and Older Adults, 2014

Research paper thumbnail of Supporting choice: Support planning, older people and managed personal budgets

Journal of Social Work, 2015

ABSTRACT

Research paper thumbnail of Council-managed personal budgets for older people: Improving choice through market development and brokerage?

Journal of Care Services Management, 2013

Research paper thumbnail of Individual Budgets: Lessons from Early Users' Experiences

British Journal of Social Work, 2009

Within the context of modernization, there has been a trend towards "cash for care" schemes desig... more Within the context of modernization, there has been a trend towards "cash for care" schemes designed to bring choice and control closer to the service user. In England, Individual Budgets (IBs) are being piloted with the aim of promoting personalized support for disabled people and other users of social care services. This paper reports on the experiences and outcomes of early IB users two to three months after first being offered an IB. The users included adults with physical/sensory impairments, learning difficulties, mental health problems and older people. Semi-structured interviews were carried out with nine service users and five proxies.

Research paper thumbnail of Exploring the Relationships between Choice and Independence: Experiences of Disabled and Older People

British Journal of Social Work, 2013

Extending choice and control to the users of publicly funded services is a cornerstone in the per... more Extending choice and control to the users of publicly funded services is a cornerstone in the personalisation agenda. It is assumed that giving service users greater choice and control will promote users' independence. As service users are increasingly given the responsibility to determine their support, social work practitioners need to work differently with service users in order to provide personalised support in exercising choice. This requires practitioners having a nuanced understanding of people's concepts of independence, how people make choices about support services and how those choices can impact on their perceived independence in the longer term. This paper reports new findings from a longitudinal qualitative study of choice and control over the life course in England. Semi-structured interviews were carried out with fifty adults and older people experiencing fluctuating support needs and/or a sudden deterioration in health. The paper discusses the relationships between choice and independence as experienced by disabled and older people. The findings show that independence is not a fixed concept, but is relative and multidimensional. There are multiple relationships between the choices people make and the consequences of those choices for people's subjective views of their independence. The paper concludes by highlighting the implications of findings for the role of social work practitioners.

Research paper thumbnail of Managed personal budgets for older people: what are English local authorities doing to facilitate personalized and flexible care?

Public Money & Management, 2013

ABSTRACT This paper explores how three local authorities in England have tried to facilitate pers... more ABSTRACT This paper explores how three local authorities in England have tried to facilitate personalized home care for older people through changes in commissioning and market development activities; and how these changes have been experienced by support planners and home care agency managers. Overall, it appears that changes are well intended, but the practicalities of implementing them raise some challenges that mean desired objectives may not always be achieved.

Research paper thumbnail of Hopes and fears: stakeholder views on the transfer of special school resources towards inclusion

International Journal of Inclusive Education, 2002

This paper reviews the findings and wider policy implications of an evaluation of two pilot proje... more This paper reviews the findings and wider policy implications of an evaluation of two pilot projects for the inclusion of disabled pupils from special schools into mainstream settings in a single English education authority. These included (a) paired Partnerships between ...

Research paper thumbnail of Desired outcomes for children and young people with complex health care needs, and children who do not use speech for communication

Health and Social Care in the Community, 2005

Within recent policies and initiatives, there is a growing emphasis on outcomes-focused practice ... more Within recent policies and initiatives, there is a growing emphasis on outcomes-focused practice and user-defined outcomes to ensure that the children and families most at risk of social exclusion have every opportunity to build successful and independent lives. However, we still know little about what children and young people with disabilities consider constitutes a good quality of life. The present paper reports the findings of a qualitative research project that aimed to identify the desires and aspirations of children and young people with complex health care needs (CHNs), as well as those who do not use speech for communication (NS) and their parents. Fifty families participated in this study; 26 families had a child with CHNs and 24 had a child with NS. Semistructured interviews were carried out with 50 parents, 18 children and 17 other informants (teachers and other non-parent carers who knew the child well). A range of visual or non-verbal techniques were used to facilitate interviews with children. The research found that, while children and their parents aspired to the same sort of outcomes as those of non-disabled children, such as to have friends, interests and future independence, the specific meaning they attached to certain outcomes and the way they prioritised aspirations differed. These findings have implications for the ways in which outcomes are defined and measured, and the role of services in achieving these outcomes.

Research paper thumbnail of Organisation and delivery of home care re-ablement: what makes a difference?

Health & Social Care in the Community, 2011

Home-care re-ablement or &amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;#39;restorative&amp;amp... more Home-care re-ablement or &amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;#39;restorative&amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;#39; services are a cornerstone of preventive service initiatives in many countries. Many English local authorities are transforming their former in-house home-care services to provide intensive, short-term re-ablement instead. The focus of this paper is on the organisation and content of re-ablement services and the features of their organisation and delivery that have the potential to enhance or detract from their effectiveness. Qualitative data were collected from five sites with well-established re-ablement services. Data included semi-structured interviews with senior service managers in each site; observation of 26 re-ablement visits to service users across the five sites (four to six in each site) and a focus group discussion with front-line staff in each site (in total involving 37 front-line staff). The data generated from all three sources were analysed using the framework approach. All five services had developed from selective pilot projects to inclusive &amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;#39;intake&amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;#39; service, accepting almost all referrals for home-care services. A number of features were identified as contributing to the effectiveness of re-ablement services. These included: service user characteristics and expectations; staff commitment, attitudes and skills; flexibility and prompt intervention; thorough and consistent recording systems; and rapid access to equipment and specialist skills in the team. Factors external to the re-ablement services themselves also had implications for their effectiveness; these included: a clear, widely understood vision of the service; access to a wide range of specialist skills; and capacity within long-term home-care services. The paper argues that re-ablement can be empowering for all service users in terms of raising their confidence. However, the move to a more inclusive &amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;#39;intake&amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;#39; service suggests that outcomes are likely to be considerably lower for service users who have more limited potential to be independent. The paper discusses the implications for practice.

Research paper thumbnail of Same Difference? Older People's Organisations and Disability Issues

Disability & Society, 2002

This paper addresses some important areas of commonality in the political interests of older and ... more This paper addresses some important areas of commonality in the political interests of older and disabled people. The paper reports findings from survey and interview research with local organisations representing older people, and their engagement with disability issues ...

Research paper thumbnail of Choice: what, when and why? Exploring the importance of choice to disabled people

Disability & Society, 2010

Research paper thumbnail of Young Disabled People and the ‘New Arrangements’ for Leaving Care in England and Wales

Children and Youth Services Review, 2003

Research paper thumbnail of Desired Outcomes for Children and Adolescents with Autistic Spectrum Disorders

Children <html_ent glyph="@amp;" ascii="&"/> Society, 2006

Research paper thumbnail of Doing research with children and young people who do not use speech for communication

Children & Society, 2005

Rabiee, P., Sloper, P. and Beresford, B. (2005) Doing research with children and young people who... more Rabiee, P., Sloper, P. and Beresford, B. (2005) Doing research with children and young people who do not use speech for communication, Abstract Despite emphasis in policy on participation of disabled children 1 , we still know relatively little about how to obtain the views of disabled children with significant communication impairment and their views are often overlooked in planning and service provision. This article describes how the views of children who do not use speech were accessed in research aiming to identify disabled children and young people's priorities regarding outcomes of social care and support services. The main challenge was to develop a method that was reliable, nonthreatening, enjoyable and relevant to individual children, as well as enabling children to think beyond their everyday life and express what they aspire to. 5 first mode of communication and/or are perceived as having significant cognitive impairments (Morris, 1998a; Morris, 2003). Underpinned by medical discourses, children who do not communicate using speech have been and continue to be defined by what they cannot do, rather than what they can. However, there is a growing body of literature, which indicates a whole range of communication strengths and a great willingness and ability on the part of disabled young people to communicate their feelings and experiences and be involved in a process of change (Disabled people using Scope services, 2002; Rabiee and others, 2001; Morris, 1999a; Stalker and others, 2003; Watson and augmentative and alternative communication systems.

Research paper thumbnail of Every Child Matters outcomes: What Do They Mean for Disabled Children and Young People?