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Papers by Ronald Blount

Research paper thumbnail of The Role of Self-Competence in Health-Related Quality of Life and Behavioral Functioning of Children with Tourette Syndrome

Journal of Developmental and Behavioral Pediatrics, Nov 1, 2015

To evaluate self-competence, health-related quality of life (HRQOL), and emotional/behavioral fun... more To evaluate self-competence, health-related quality of life (HRQOL), and emotional/behavioral functioning in children with Tourette syndrome (TS) compared to normative data and to examine self-competence as a potential protective factor against poorer HRQOL and emotional/behavioral outcomes in this population. Thirty-nine children between the ages of 8 and 17 years and 72 caregivers participated in this study. Participants completed measures of children's HRQOL, emotional/behavioral functioning, and self-competence. Participants reported significantly lower levels of emotional/behavioral functioning and HRQOL compared with norms of healthy children. No significant differences were found in domains of perceived self-competence. Social and general self-competence domains were significantly and positively correlated with most emotional and behavioral outcomes examined. Only social self-competence was significantly correlated with domains of HRQOL. Self-competence, particularly in the social realm, may play a protective role against lower HRQOL and worse emotional and behavioral outcomes in children with TS. Children with this condition may benefit from self-competence-promoting interventions targeting children's perceptions of their own abilities.

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Research paper thumbnail of Developing pediatric psychology science and application competencies in doctoral-level graduate programs: Timing and sequencing of training at the University of Georgia

Clinical practice in pediatric psychology, Sep 1, 2015

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Research paper thumbnail of The role of executive functioning, healthcare management, and self-efficacy in college students’ health-related quality of life

Journal of American College Health, Jan 5, 2021

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Research paper thumbnail of Management of pain and distress due to medical procedures

Sponsored by the Society of Pediatric Psychology, this handbook is recognized as the definitive r... more Sponsored by the Society of Pediatric Psychology, this handbook is recognized as the definitive reference in the field.

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Research paper thumbnail of Barriers to Medication Adherence in Pediatric Organ Transplant Recipients

PsycEXTRA Dataset, 2014

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Research paper thumbnail of Caregiver‐reported outcomes of pediatric transplantation: Changes and predictors at 6 months post‐transplant

Pediatric Transplantation, Jun 16, 2021

BackgroundIt is widely assumed that pediatric solid organ transplantation results in better careg... more BackgroundIt is widely assumed that pediatric solid organ transplantation results in better caregiver‐reported outcomes, including reduced caregiver psychological distress and increased child health‐related quality of life (HRQOL), yet little empirical evidence of this expectation exists. The current investigation aims to fill this gap and identify key clinical course factors predictive of caregiver‐reported outcomes.MethodsForty‐nine caregivers of children (Mage = 10.30 years, SD = 5.43) presenting for kidney, liver, or heart transplant evaluation reported on their psychological distress levels (anxiety, depression, somatization, and global psychological stress) and their children's HRQOL at children's pretransplant evaluations and 6 months post‐transplant. Clinical course factors were abstracted via medical chart review.ResultsCaregivers did not report significant changes in their psychological distress from pre‐ to post‐transplant but reported significantly improved child HRQOL across most domains (ds = −.45 to −.54). Higher post‐transplant caregiver global psychological distress was predicted by older child age, shorter time since diagnosis, and lower pretransplant caregiver‐reported child HRQOL even after controlling for pretransplant caregiver psychological distress. Lower post‐transplant child total HRQOL was predicted by more post‐transplant hospitalizations even after controlling for pretransplant child total HRQOL.ConclusionsThese preliminary results indicate pediatric solid organ transplantation was associated with some improved caregiver‐reported outcomes, specifically children's HRQOL, but not caregivers’ psychological distress. Linear regression models identify several clinical course and pretransplant factors associated with transplantation outcomes. Characterizing how caregivers view their psychological distress levels and children's HRQOL across the transplantation process could inform family‐centered holistic care and support caregiver adaptation to transplantation.

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Research paper thumbnail of Child-Adult Medical Procedure Interaction Scale--Infant Version

PsycTESTS Dataset, 2008

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Research paper thumbnail of Family Responsibility Questionnaire

PsycTESTS Dataset, 2013

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Research paper thumbnail of The Pediatric Symptom Checklist: Comparison of symptom profiles using three factor structures between pediatric gastroenterology and general pediatric patients

Children's Health Care, Mar 17, 2016

ABSTRACT This study evaluated and compared three different factor structures of the Pediatric Sym... more ABSTRACT This study evaluated and compared three different factor structures of the Pediatric Symptom Checklist (PSC) in a gastroenterology (GI) and a general pediatrics (GP) sample. Parents of GP (n = 169) and GI (n = 177) patients completed the PSC. Each structure includes internalizing, externalizing, and attention problems. Only one structure includes school problems. Hierarchical regression analyses revealed higher internalizing symptoms for GI patients across factor structures. The relationship between internalizing symptoms and age was moderated by group. The PSC seems sensitive to internalizing difficulties in GI patients regardless of factor structure. Older pediatric GI patients may be at increased risk for internalizing symptoms.

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Research paper thumbnail of Initial attendance and retention in adult healthcare as criteria for transition success among organ transplant recipients

Pediatric Transplantation

BackgroundAdolescent and young adult (AYA) solid organ transplant recipients experience worsening... more BackgroundAdolescent and young adult (AYA) solid organ transplant recipients experience worsening medical outcomes during transition to adult healthcare. Current understanding and definitions of transition success emphasize first initiation of appointment attendance in adult healthcare; however, declines in attendance over time after transfer remain possible, particularly as AYAs are further removed from their pediatric provider and assume greater independence in their care.MethodsThe current study assessed health‐care utilization, medical outcomes, and transition success among 49 AYA heart, kidney, or liver recipients recently transferred to adult healthcare. Differences in outcomes were examined along two transition success criteria: (1) initial engagement in adult healthcare within 6 or 12 months of last pediatric appointment and (2) retention in adult healthcare over 3 years following last pediatric appointment. Growth curve modeling examined change in attendance over time.Resul...

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Research paper thumbnail of Specific healthcare responsibilities and perceived transition readiness among adolescent solid organ transplant recipients: Adolescent and caregiver perspectives

Patient Education and Counseling, 2021

OBJECTIVE Adolescents and young adults (AYAs) with solid organ transplants must attain responsibi... more OBJECTIVE Adolescents and young adults (AYAs) with solid organ transplants must attain responsibility for healthcare tasks during transition to adult healthcare. However, healthcare systems often initiate transfer based on age and not independence in care. This study examines specific responsibilities distinguishing AYA organ transplant recipients reporting readiness to transfer. METHODS 65 AYAs (ages 12-21) with heart, kidney, or liver transplants and 63 caregivers completed questionnaires assessing AYA's transition readiness, healthcare responsibility, and executive functioning. Categorizations included mostly/completely ready versus not at all/somewhat ready to transition; responsibility was compared between groups. RESULTS 42% of AYAs and 24% of caregivers reported AYAs as mostly/completely ready to transition. AYAs mostly/completely ready reported similar routine healthcare responsibility (e.g., medication taking, appointment attendance), but greater managerial healthcare responsibility (e.g., knowing insurance details, appointment scheduling), compared to AYAs not at all/somewhat ready to transition. CONCLUSIONS All AYAs should be competent in routine healthcare skills foundational for positive health outcomes. However, the managerial tasks distinguish AYAs perceived as ready to transfer to adult healthcare. PRACTICE IMPLICATIONS Emphasis on developing responsibility for managerial tasks is warranted. The Hierarchy of Healthcare Transition Readiness Skills is a framework by which AYA responsibility can be gradually increased in preparation for transfer.

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Research paper thumbnail of Associations between executive functioning, personality, and posttraumatic stress symptoms in adolescent solid organ transplant recipients

Pediatric Transplantation, 2021

Pediatric solid organ transplant recipients are susceptible to posttraumatic stress symptoms (PTS... more Pediatric solid organ transplant recipients are susceptible to posttraumatic stress symptoms (PTSS), given the presence of a life‐threatening chronic medical condition and potential for complications. However, little is known about what individual characteristics are associated with an increased risk for PTSS among youth who received an organ transplant. The aim of the current study was to evaluate PTSS and its associations with executive functioning (EF) and personality (i.e., neuroticism and conscientiousness) among adolescents with solid organ transplants.

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Research paper thumbnail of Caregiver Medication Barriers to Adherence Scale

PsycTESTS Dataset, 2020

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Research paper thumbnail of Caregivers’ Barriers to Facilitating Medication Adherence in Adolescents/Young Adults With Solid Organ Transplants: Measure Development and Validation

Journal of Pediatric Psychology, 2020

Objective To evaluate the factor structure, validity, and reliability of the Caregiver Medication... more Objective To evaluate the factor structure, validity, and reliability of the Caregiver Medication Barriers to Adherence Scale (CMBAS), which assesses caregivers’ barriers to facilitating medication adherence in adolescent and young adults (AYAs) with solid organ transplants. Methods The sample included 93 caregivers of AYAs ages 12–22 years who received a liver, kidney, or heart transplant. Caregivers completed the CMBAS and surveys to assess its validity, including internalizing symptoms, personality traits (i.e., neuroticism, conscientiousness), and AYAs’ nonadherence to immunosuppressant medications. AYA nonadherence to tacrolimus was objectively assessed via the Medication Level Variability Index (MLVI). Results Confirmatory factor analyses of the CMBAS revealed a two-factor model: Caregiver Emotional Distress and Caregiver Cognitive Burden/Responsibility. Higher CMBAS scores were related to higher levels of caregiver internalizing symptoms (rs = .28 to .30), neuroticism (r = .2...

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Research paper thumbnail of Adherence Barriers for Adolescent and Young Adult Transplant Recipients: Relations to Personality

Journal of Pediatric Psychology, 2020

Objective Much of the extant literature on adherence barriers has focused on modifiable factors (... more Objective Much of the extant literature on adherence barriers has focused on modifiable factors (e.g., knowledge, social support); however, less is known about how barriers may be associated with relatively stable constructs, such as personality traits. The current study examines associations between personality (i.e., agreeableness, conscientiousness, neuroticism) and adherence barriers in a group of adolescent and young adult (AYA) solid organ transplant recipients. Demonstrating associations between barriers and personality may help in understanding why barriers are stable over time. Additionally, different personality traits may relate to different types of barriers. Methods The sample included 90 AYAs (Mage = 17.31; SD = 2.05; 58% male) who received a kidney (n = 36), liver (n = 29), or heart (n = 25) transplant at least 1 year prior to study enrollment. AYAs completed the Agreeableness, Conscientiousness, and Neuroticism scales from the NEO Five-Factor Inventory and the Adoles...

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Research paper thumbnail of Perioperative Child-Adult Medical Procedure Interaction Scale

PsycTESTS Dataset, 2005

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Research paper thumbnail of Relations Between Tic Severity, Emotion Regulation, and Social Outcomes in Youth with Tourette Syndrome

Child Psychiatry & Human Development, 2019

This study examined associations between tic severity, emotion regulation, social functioning, an... more This study examined associations between tic severity, emotion regulation, social functioning, and social impairment in youth with Tourette Syndrome (TS). Emotion regulation was examined as a mediator between tic severity and social outcomes. Seventy-seven caregivers of youth with TS ( M age = 13.1 years; SD = 2.29) were administered proxy-report measures of tic severity, emotion regulation, social functioning, and social impairment. Total and motor tic severity were negatively associated with emotion regulation and social functioning, and positively associated with social impairment ( r ’s = 0.23 to 0.43). Vocal tic severity was not related to emotion regulation or social functioning, but was positively associated with social impairment ( r = 0.36). Emotion regulation mediated the relations between total tic severity and both social outcomes, and motor tic severity and both social outcomes. Interventions that target emotion regulation would likely be a beneficial adjunctive therapy for youth with TS, and may result in improved social outcomes.

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Research paper thumbnail of Looking beyond the individual: How family demands and capabilities affect family adjustment following pediatric solid organ transplant

Families, Systems, & Health, 2019

INTRODUCTION Better family adjustment following pediatric solid organ transplantation has been as... more INTRODUCTION Better family adjustment following pediatric solid organ transplantation has been associated with a number of beneficial medical and psychosocial outcomes. Yet few studies have examined which pretransplant variables are associated with posttransplant family adjustment. This information can aid in identifying families that may need support going into the transplantation process and those who are at lower risk of worse posttransplant adjustment. METHOD The sample included 66 parents of children with solid organ transplants and 22 children with solid organ transplants. Information regarding demographic factors, parent and child emotional functioning, and child social support was collected during the child's pretransplant evaluation and information on family adjustment was collected 6 months after transplantation. RESULTS Results indicated that pretransplant demands such as worse parent and child emotional functioning were related to worse family adjustment 6 months after transplantation. Pretransplant capabilities (i.e., higher family income, parent education level, parent marital status, child social support) were not associated with posttransplant family adjustment. DISCUSSION Pretransplant family demands such as parent and child emotional functioning, as opposed to family capabilities, should be assessed by family health care team members prior to transplantation because they may be related to worse family adjustment after the transplant. We offer recommendations for ways to assess and, if indicated, intervene upon pretransplant family demands in an effort to decrease the risk of worse posttransplant family adjustment. (PsycINFO Database Record (c) 2019 APA, all rights reserved).

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Research paper thumbnail of Sleep quality is associated with psychosocial functioning and health‐related quality of life in pediatric transplant recipients

Pediatric Transplantation, 2019

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Research paper thumbnail of A Systematic Review of Therapeutic Recreation Camp Impact on Families of Children With Chronic Health Conditions

Journal of Pediatric Psychology, 2019

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Research paper thumbnail of The Role of Self-Competence in Health-Related Quality of Life and Behavioral Functioning of Children with Tourette Syndrome

Journal of Developmental and Behavioral Pediatrics, Nov 1, 2015

To evaluate self-competence, health-related quality of life (HRQOL), and emotional/behavioral fun... more To evaluate self-competence, health-related quality of life (HRQOL), and emotional/behavioral functioning in children with Tourette syndrome (TS) compared to normative data and to examine self-competence as a potential protective factor against poorer HRQOL and emotional/behavioral outcomes in this population. Thirty-nine children between the ages of 8 and 17 years and 72 caregivers participated in this study. Participants completed measures of children's HRQOL, emotional/behavioral functioning, and self-competence. Participants reported significantly lower levels of emotional/behavioral functioning and HRQOL compared with norms of healthy children. No significant differences were found in domains of perceived self-competence. Social and general self-competence domains were significantly and positively correlated with most emotional and behavioral outcomes examined. Only social self-competence was significantly correlated with domains of HRQOL. Self-competence, particularly in the social realm, may play a protective role against lower HRQOL and worse emotional and behavioral outcomes in children with TS. Children with this condition may benefit from self-competence-promoting interventions targeting children's perceptions of their own abilities.

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Research paper thumbnail of Developing pediatric psychology science and application competencies in doctoral-level graduate programs: Timing and sequencing of training at the University of Georgia

Clinical practice in pediatric psychology, Sep 1, 2015

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Research paper thumbnail of The role of executive functioning, healthcare management, and self-efficacy in college students’ health-related quality of life

Journal of American College Health, Jan 5, 2021

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Research paper thumbnail of Management of pain and distress due to medical procedures

Sponsored by the Society of Pediatric Psychology, this handbook is recognized as the definitive r... more Sponsored by the Society of Pediatric Psychology, this handbook is recognized as the definitive reference in the field.

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Research paper thumbnail of Barriers to Medication Adherence in Pediatric Organ Transplant Recipients

PsycEXTRA Dataset, 2014

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Research paper thumbnail of Caregiver‐reported outcomes of pediatric transplantation: Changes and predictors at 6 months post‐transplant

Pediatric Transplantation, Jun 16, 2021

BackgroundIt is widely assumed that pediatric solid organ transplantation results in better careg... more BackgroundIt is widely assumed that pediatric solid organ transplantation results in better caregiver‐reported outcomes, including reduced caregiver psychological distress and increased child health‐related quality of life (HRQOL), yet little empirical evidence of this expectation exists. The current investigation aims to fill this gap and identify key clinical course factors predictive of caregiver‐reported outcomes.MethodsForty‐nine caregivers of children (Mage = 10.30 years, SD = 5.43) presenting for kidney, liver, or heart transplant evaluation reported on their psychological distress levels (anxiety, depression, somatization, and global psychological stress) and their children's HRQOL at children's pretransplant evaluations and 6 months post‐transplant. Clinical course factors were abstracted via medical chart review.ResultsCaregivers did not report significant changes in their psychological distress from pre‐ to post‐transplant but reported significantly improved child HRQOL across most domains (ds = −.45 to −.54). Higher post‐transplant caregiver global psychological distress was predicted by older child age, shorter time since diagnosis, and lower pretransplant caregiver‐reported child HRQOL even after controlling for pretransplant caregiver psychological distress. Lower post‐transplant child total HRQOL was predicted by more post‐transplant hospitalizations even after controlling for pretransplant child total HRQOL.ConclusionsThese preliminary results indicate pediatric solid organ transplantation was associated with some improved caregiver‐reported outcomes, specifically children's HRQOL, but not caregivers’ psychological distress. Linear regression models identify several clinical course and pretransplant factors associated with transplantation outcomes. Characterizing how caregivers view their psychological distress levels and children's HRQOL across the transplantation process could inform family‐centered holistic care and support caregiver adaptation to transplantation.

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Research paper thumbnail of Child-Adult Medical Procedure Interaction Scale--Infant Version

PsycTESTS Dataset, 2008

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Research paper thumbnail of Family Responsibility Questionnaire

PsycTESTS Dataset, 2013

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Research paper thumbnail of The Pediatric Symptom Checklist: Comparison of symptom profiles using three factor structures between pediatric gastroenterology and general pediatric patients

Children's Health Care, Mar 17, 2016

ABSTRACT This study evaluated and compared three different factor structures of the Pediatric Sym... more ABSTRACT This study evaluated and compared three different factor structures of the Pediatric Symptom Checklist (PSC) in a gastroenterology (GI) and a general pediatrics (GP) sample. Parents of GP (n = 169) and GI (n = 177) patients completed the PSC. Each structure includes internalizing, externalizing, and attention problems. Only one structure includes school problems. Hierarchical regression analyses revealed higher internalizing symptoms for GI patients across factor structures. The relationship between internalizing symptoms and age was moderated by group. The PSC seems sensitive to internalizing difficulties in GI patients regardless of factor structure. Older pediatric GI patients may be at increased risk for internalizing symptoms.

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Research paper thumbnail of Initial attendance and retention in adult healthcare as criteria for transition success among organ transplant recipients

Pediatric Transplantation

BackgroundAdolescent and young adult (AYA) solid organ transplant recipients experience worsening... more BackgroundAdolescent and young adult (AYA) solid organ transplant recipients experience worsening medical outcomes during transition to adult healthcare. Current understanding and definitions of transition success emphasize first initiation of appointment attendance in adult healthcare; however, declines in attendance over time after transfer remain possible, particularly as AYAs are further removed from their pediatric provider and assume greater independence in their care.MethodsThe current study assessed health‐care utilization, medical outcomes, and transition success among 49 AYA heart, kidney, or liver recipients recently transferred to adult healthcare. Differences in outcomes were examined along two transition success criteria: (1) initial engagement in adult healthcare within 6 or 12 months of last pediatric appointment and (2) retention in adult healthcare over 3 years following last pediatric appointment. Growth curve modeling examined change in attendance over time.Resul...

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Research paper thumbnail of Specific healthcare responsibilities and perceived transition readiness among adolescent solid organ transplant recipients: Adolescent and caregiver perspectives

Patient Education and Counseling, 2021

OBJECTIVE Adolescents and young adults (AYAs) with solid organ transplants must attain responsibi... more OBJECTIVE Adolescents and young adults (AYAs) with solid organ transplants must attain responsibility for healthcare tasks during transition to adult healthcare. However, healthcare systems often initiate transfer based on age and not independence in care. This study examines specific responsibilities distinguishing AYA organ transplant recipients reporting readiness to transfer. METHODS 65 AYAs (ages 12-21) with heart, kidney, or liver transplants and 63 caregivers completed questionnaires assessing AYA's transition readiness, healthcare responsibility, and executive functioning. Categorizations included mostly/completely ready versus not at all/somewhat ready to transition; responsibility was compared between groups. RESULTS 42% of AYAs and 24% of caregivers reported AYAs as mostly/completely ready to transition. AYAs mostly/completely ready reported similar routine healthcare responsibility (e.g., medication taking, appointment attendance), but greater managerial healthcare responsibility (e.g., knowing insurance details, appointment scheduling), compared to AYAs not at all/somewhat ready to transition. CONCLUSIONS All AYAs should be competent in routine healthcare skills foundational for positive health outcomes. However, the managerial tasks distinguish AYAs perceived as ready to transfer to adult healthcare. PRACTICE IMPLICATIONS Emphasis on developing responsibility for managerial tasks is warranted. The Hierarchy of Healthcare Transition Readiness Skills is a framework by which AYA responsibility can be gradually increased in preparation for transfer.

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Research paper thumbnail of Associations between executive functioning, personality, and posttraumatic stress symptoms in adolescent solid organ transplant recipients

Pediatric Transplantation, 2021

Pediatric solid organ transplant recipients are susceptible to posttraumatic stress symptoms (PTS... more Pediatric solid organ transplant recipients are susceptible to posttraumatic stress symptoms (PTSS), given the presence of a life‐threatening chronic medical condition and potential for complications. However, little is known about what individual characteristics are associated with an increased risk for PTSS among youth who received an organ transplant. The aim of the current study was to evaluate PTSS and its associations with executive functioning (EF) and personality (i.e., neuroticism and conscientiousness) among adolescents with solid organ transplants.

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Research paper thumbnail of Caregiver Medication Barriers to Adherence Scale

PsycTESTS Dataset, 2020

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Research paper thumbnail of Caregivers’ Barriers to Facilitating Medication Adherence in Adolescents/Young Adults With Solid Organ Transplants: Measure Development and Validation

Journal of Pediatric Psychology, 2020

Objective To evaluate the factor structure, validity, and reliability of the Caregiver Medication... more Objective To evaluate the factor structure, validity, and reliability of the Caregiver Medication Barriers to Adherence Scale (CMBAS), which assesses caregivers’ barriers to facilitating medication adherence in adolescent and young adults (AYAs) with solid organ transplants. Methods The sample included 93 caregivers of AYAs ages 12–22 years who received a liver, kidney, or heart transplant. Caregivers completed the CMBAS and surveys to assess its validity, including internalizing symptoms, personality traits (i.e., neuroticism, conscientiousness), and AYAs’ nonadherence to immunosuppressant medications. AYA nonadherence to tacrolimus was objectively assessed via the Medication Level Variability Index (MLVI). Results Confirmatory factor analyses of the CMBAS revealed a two-factor model: Caregiver Emotional Distress and Caregiver Cognitive Burden/Responsibility. Higher CMBAS scores were related to higher levels of caregiver internalizing symptoms (rs = .28 to .30), neuroticism (r = .2...

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Research paper thumbnail of Adherence Barriers for Adolescent and Young Adult Transplant Recipients: Relations to Personality

Journal of Pediatric Psychology, 2020

Objective Much of the extant literature on adherence barriers has focused on modifiable factors (... more Objective Much of the extant literature on adherence barriers has focused on modifiable factors (e.g., knowledge, social support); however, less is known about how barriers may be associated with relatively stable constructs, such as personality traits. The current study examines associations between personality (i.e., agreeableness, conscientiousness, neuroticism) and adherence barriers in a group of adolescent and young adult (AYA) solid organ transplant recipients. Demonstrating associations between barriers and personality may help in understanding why barriers are stable over time. Additionally, different personality traits may relate to different types of barriers. Methods The sample included 90 AYAs (Mage = 17.31; SD = 2.05; 58% male) who received a kidney (n = 36), liver (n = 29), or heart (n = 25) transplant at least 1 year prior to study enrollment. AYAs completed the Agreeableness, Conscientiousness, and Neuroticism scales from the NEO Five-Factor Inventory and the Adoles...

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Research paper thumbnail of Perioperative Child-Adult Medical Procedure Interaction Scale

PsycTESTS Dataset, 2005

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Research paper thumbnail of Relations Between Tic Severity, Emotion Regulation, and Social Outcomes in Youth with Tourette Syndrome

Child Psychiatry & Human Development, 2019

This study examined associations between tic severity, emotion regulation, social functioning, an... more This study examined associations between tic severity, emotion regulation, social functioning, and social impairment in youth with Tourette Syndrome (TS). Emotion regulation was examined as a mediator between tic severity and social outcomes. Seventy-seven caregivers of youth with TS ( M age = 13.1 years; SD = 2.29) were administered proxy-report measures of tic severity, emotion regulation, social functioning, and social impairment. Total and motor tic severity were negatively associated with emotion regulation and social functioning, and positively associated with social impairment ( r ’s = 0.23 to 0.43). Vocal tic severity was not related to emotion regulation or social functioning, but was positively associated with social impairment ( r = 0.36). Emotion regulation mediated the relations between total tic severity and both social outcomes, and motor tic severity and both social outcomes. Interventions that target emotion regulation would likely be a beneficial adjunctive therapy for youth with TS, and may result in improved social outcomes.

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Research paper thumbnail of Looking beyond the individual: How family demands and capabilities affect family adjustment following pediatric solid organ transplant

Families, Systems, & Health, 2019

INTRODUCTION Better family adjustment following pediatric solid organ transplantation has been as... more INTRODUCTION Better family adjustment following pediatric solid organ transplantation has been associated with a number of beneficial medical and psychosocial outcomes. Yet few studies have examined which pretransplant variables are associated with posttransplant family adjustment. This information can aid in identifying families that may need support going into the transplantation process and those who are at lower risk of worse posttransplant adjustment. METHOD The sample included 66 parents of children with solid organ transplants and 22 children with solid organ transplants. Information regarding demographic factors, parent and child emotional functioning, and child social support was collected during the child's pretransplant evaluation and information on family adjustment was collected 6 months after transplantation. RESULTS Results indicated that pretransplant demands such as worse parent and child emotional functioning were related to worse family adjustment 6 months after transplantation. Pretransplant capabilities (i.e., higher family income, parent education level, parent marital status, child social support) were not associated with posttransplant family adjustment. DISCUSSION Pretransplant family demands such as parent and child emotional functioning, as opposed to family capabilities, should be assessed by family health care team members prior to transplantation because they may be related to worse family adjustment after the transplant. We offer recommendations for ways to assess and, if indicated, intervene upon pretransplant family demands in an effort to decrease the risk of worse posttransplant family adjustment. (PsycINFO Database Record (c) 2019 APA, all rights reserved).

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Research paper thumbnail of Sleep quality is associated with psychosocial functioning and health‐related quality of life in pediatric transplant recipients

Pediatric Transplantation, 2019

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Research paper thumbnail of A Systematic Review of Therapeutic Recreation Camp Impact on Families of Children With Chronic Health Conditions

Journal of Pediatric Psychology, 2019

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