Sofi Fristedt - Academia.edu (original) (raw)

Papers by Sofi Fristedt

Research paper thumbnail of Women’s experience of the health information process involving a digital information tool before commencing radiation therapy for breast cancer: a deductive interview study

BMC Health Services Research

Background Individuals undergoing radiation therapy for breast cancer frequently request informat... more Background Individuals undergoing radiation therapy for breast cancer frequently request information before, throughout and after the treatment as a means to reduce distress. Nevertheless, the provision of information to meet individuals needs from their level of health literacy is often overlooked. Thus, individuals information needs are often unmet, leading to reports of discontent. Internet and digital information technology has significantly augmented the available information and changed the way in which persons accesses and comprehends information. As health information is no longer explicitly obtained from healthcare professionals, it is essential to examine the sequences of the health information process in general, and in relation to health literacy. This paper reports on qualitative interviews, targeting women diagnosed with breast cancer who were given access to a health information technology tool, Digi-Do, before commencing radiation therapy, during, and after treatment...

Research paper thumbnail of Number 3 Article 7 Factors Influencing the Use of Evidence-Based Practice among Physiotherapists and Occupational Therapists in Their Clinical Work. The Internet Journal of Allied Health Sciences and Practice

Background: Evidence-based practice (EBP) is a process through which research is applied in daily... more Background: Evidence-based practice (EBP) is a process through which research is applied in daily clinical practice. Occupational therapists (OTs) and physiotherapists (PTs) are expected to work in line with EBP in order to optimise health care resources. This expectation is too seldom fulfilled. Consequently, research findings may not be implemented in clinical practice in a timely manner, if at all. To remedy this situation, additional knowledge is needed regarding what factors influence the process of EBP among practitioners. The purpose of the present study was to identify factors that influence the use of EBP and the experienced effects of the use of EBP among PTs and OTs in their clinical work. Method: This was a qualitative interview study that consisted of six group interviews involving either OTs or PTs employed by the Jönköping County Council in the South of Sweden. Resulting data were analysed using content analysis. Results: The analysis resulted in the following categories: "definition of evidence and EBP," "sources of evidence," "barriers to acquiring evidence and to using evidence in clinical work," "factors that facilitate the acquisition of evidence and the use of evidence in clinical work," and "personal experiences of using EBP." Basing clinical practice on scientific evidence evoked positive experiences, although an ambivalent view towards acting on clinical experience was evident. Participants reported that time for and increased knowledge about searching for, evaluating, and implementing EBP were needed. Conclusion: Because OTs are more oriented towards professional theories and models, and PTs are more focused on randomised controlled trials of interventions, different strategies appear to be needed to increase EBP in these two professions. Management support was considered vital to the implementation of EBP. However, the personal obligation to work in line with EBP must also be emphasised; the participants apparently underestimate its importance. BACKGROUND Evidence-based medicine (EBM) is defined as "the conscientious, explicit and judicious use of current best evidence in making decisions about the care of individual patients." 1 Evidence-based practice (EBP) is a process through which research and clinical experience are synthesised and applied in the clinical context. 2,3 Like all health professionals, occupational therapists (OTs) and physiotherapists (PTs) are expected to use EBP to optimise health care resources by using the most effective interventions for their clients. In fact, it may be considered unethical not to offer clients new and appropriate interventions. 4 Despite this expectation, personal obligation, and ethical aspects, this is not always the case. 4,5 Thus, research findings may not be implemented in clinical practice in a timely manner (or at all), causing a knowing-doing gap. In other words, what is known from research is not always implemented in clinical practice. 6,7 For example, previous research has shown that although OTs are willing to access new knowledge to guide clinical practice, they do not implement research findings to the fullest extent possible. 8 The same gap has been observed among PTs. 9 The existence of this gap may compromise quality in occupational therapy, physiotherapy, and client value.

Research paper thumbnail of Fysisk aktivitet och träning - möjlig prevention av arbetsrelaterade belastningsbesvär

Research paper thumbnail of Äldre Mäns Och Kvinnors Perspektiv På Mobilitet Och Delaktighet

Research paper thumbnail of User Involvement in Research on Aging and Health: Creating Knowledge and Technologies With Older Adults

Innovation in Aging, 2020

Although, user involvement is largely recognized as instrumental when developing relevant knowled... more Although, user involvement is largely recognized as instrumental when developing relevant knowledge, services as well as products - aging populations are still likely to be sparsely involved in such processes. Surprisingly, many gerontechnologies are still developed based on a technological perspective rather than a gerontological perspective. Consequently, age-related changes as well as needs, actual use or perceptions of older adults are disregarded or neglected. Similar problems apply to public and private environments with potentially negative implications on accessibility. The present symposium includes four presentations that address user involvement, by capturing older adults’ and aging populations’ use as well as perceptions of emerging technologies, successful development of gerontechnologies, and a multigenerational mass-experiment on housing accessibility in later life. The first study from Germany captures the everyday situation of smartphone use as well as aspects of us...

Research paper thumbnail of Changes in daily life and wellbeing in adults, 70 years and older, in the beginning of the COVID-19 pandemic

Scandinavian Journal of Occupational Therapy

BACKGROUND In the beginning of the COVID-19 pandemic, Swedish authorities enforced specific recom... more BACKGROUND In the beginning of the COVID-19 pandemic, Swedish authorities enforced specific recommendations on social distancing for adults 70 years and older (70+). Day-to-day life changed for 15% of the Swedish population. The aim of the study was to explore how adults 70+ experienced and managed changes in everyday life due to the COVID-19 pandemic and how those changes affected wellbeing at the beginning of the virus outbreak. METHODS Eleven women and six men, (mean age 76 years), living in ordinary housing, participated in remote semi-structured interviews in April 2020. The interviews were analysed with qualitative content analysis. FINDINGS The theme Suddenly at risk - '…but it could have been worse' included four categories My world closed down; Negotiations, adaptations and prioritizations to manage staying at home; Barriers and facilitators to sustain occupational participation; and Considerations of my own and other's health and wellbeing emerged from the data analysis. CONCLUSION Everyday life changes had implications for health and well-being. The participants questioned previous conceptions of meaning in relation to habitual activities, likely leading to consistent occupational changes. However, these long-term effects remain to be explored, and considered to enable older adult's health during the pandemic and beyond.

Research paper thumbnail of Integrating perspectives of patients, healthcare professionals, system developers and academics in the co-design of a digital information tool

PLOS ONE

Background Patients diagnosed with cancer who are due to commence radiotherapy, often, despite th... more Background Patients diagnosed with cancer who are due to commence radiotherapy, often, despite the provision of a considerable amount of information, report a range of unmet information needs about the treatment process. Factors such as inadequate provision of information, or the stressful situation of having to deal with information about unfamiliar things, may influence the patient’s ability to comprehend the information. There is a need to further advance the format in which such information is presented. The composition of information should be tailored according to the patient’s individual needs and style of learning. Method and findings The PD methodology is frequently used when a technology designed artefact is the desired result of the process. This research is descriptive of its kind and provides a transparent description of the co-design process used to develop an innovative digital information tool employing PD methodology where several stakeholders participated as co-des...

Research paper thumbnail of Life-space mobility and participation in daily activities and social life among older men and women

BackgroundLife-space mobility, i.e., the frequency and independence of transferring to different ... more BackgroundLife-space mobility, i.e., the frequency and independence of transferring to different life-spaces (extending from a person’s bedroom to places beyond hometown), is evident to decrease in ...

Research paper thumbnail of Validitet och reliabilitet för Life-Space Assessment (LSA) - ett instrument för bedömning av äldre personers mobilitet

Bakgrund: Formagan och mojligheter att forflytta (mobilitet) begransas ofta i senare delen av liv... more Bakgrund: Formagan och mojligheter att forflytta (mobilitet) begransas ofta i senare delen av livet, med negativa konsekvenser fordelaktighet i dagliga och sociala aktiviteter. Saval i praktisk ver ...

Research paper thumbnail of Dagliga aktiviteter hos äldre kvinnor som invandrat från västra Balkan - att hantera ett förändrat aktivitetsmönster

Dagliga aktiviteter hos aldre kvinnor som invandrat fran vastra Balkan - att hantera ett forandra... more Dagliga aktiviteter hos aldre kvinnor som invandrat fran vastra Balkan - att hantera ett forandrat aktivitetsmonster

Research paper thumbnail of Attitudes, acceptance and use of everyday technologies – a generational perspective

Technology is a fixed feature in today’s world, from smart phones to the everyday technology in o... more Technology is a fixed feature in today’s world, from smart phones to the everyday technology in our homes. Research is limited regarding perceptions of and attitudes to technology among people of d ...

Research paper thumbnail of Viewpoints on community mobility and participation in older age

Background/Aim: Community mobility supports participation in activities. However, knowledge about... more Background/Aim: Community mobility supports participation in activities. However, knowledge about issues that influence community mobility and, hence, participation in activities outside the home i ...

Research paper thumbnail of Changes in daily life and wellbeing in adults, 70 years and older, in the beginning of the COVID-19 pandemic

Scandinavian journal of occupational therapy, 2021

BACKGROUND In the beginning of the COVID-19 pandemic, Swedish authorities enforced specific recom... more BACKGROUND In the beginning of the COVID-19 pandemic, Swedish authorities enforced specific recommendations on social distancing for adults 70 years and older (70+). Day-to-day life changed for 15% of the Swedish population. The aim of the study was to explore how adults 70+ experienced and managed changes in everyday life due to the COVID-19 pandemic and how those changes affected wellbeing at the beginning of the virus outbreak. METHODS Eleven women and six men, (mean age 76 years), living in ordinary housing, participated in remote semi-structured interviews in April 2020. The interviews were analysed with qualitative content analysis. FINDINGS The theme Suddenly at risk - '…but it could have been worse' included four categories My world closed down; Negotiations, adaptations and prioritizations to manage staying at home; Barriers and facilitators to sustain occupational participation; and Considerations of my own and other's health and wellbeing emerged from the data...

Research paper thumbnail of “Am I representative (of my age)? No, I’m not”—Attitudes to technologies and technology development differ but unite individuals across rather than within generations

PLoS ONE, 2021

While a broad spectrum of technologies is integrated in everyday life and routines, most research... more While a broad spectrum of technologies is integrated in everyday life and routines, most research on ageing, health and technology has focused on attitudes toward and adoption of digital technologies including e-health, or home based monitoring systems. The aim of this study was to explore differences and similarities in attitudes and experiences with different types of technologies and development within and between three generations. We applied a qualitative, descriptive design and recruited a purposeful sample of participants from three generations (30–39, 50–59, 70–79 year old). The 25 participants took part in 3 x 2 focus groups. Forming four categories, the findings show that technologies enable as well as complicate everyday life. Participants expressed trust as well as uncertainty about risks when using technology and stated that use of digital services is required while support is limited. They identified that technology development is inevitable but not always in the servi...

Research paper thumbnail of Digi-Do: a digital information tool to support patients with breast cancer before, during, and after start of radiotherapy treatment: an RCT study protocol

BMC Medical Informatics and Decision Making, 2021

Background Radiation Therapy (RT) is a common treatment after breast cancer surgery and a complex... more Background Radiation Therapy (RT) is a common treatment after breast cancer surgery and a complex process using high energy X-rays to eradicate cancer cells, important in reducing the risk of local recurrence. The high-tech environment and unfamiliar nature of RT can affect the patient’s experience of the treatment. Misconceptions or lack of knowledge about RT processes can increase levels of anxiety and enhance feelings of being unprepared at the beginning of treatment. Moreover, the waiting time is often quite long. The primary aim of this study will be to evaluate whether a digital information tool with VR-technology and preparatory information can decrease distress as well as enhance the self-efficacy and health literacy of patients affected by breast cancer before, during, and after RT. A secondary aim will be to explore whether the digital information tool increase patient flow while maintaining or increasing the quality of care. Method The study is a prospective and longitudi...

Research paper thumbnail of Understanding older people as occupational beings

There is limited research reporting older adults’ engagement in occupations. Until recently very ... more There is limited research reporting older adults’ engagement in occupations. Until recently very little research has been undertaken ‘about the nature of occupation and its significance to humans. ...

Research paper thumbnail of Q metodologi i arbetsterapi - ett nytt sätt att identifiera subjektiva synsätt

Research paper thumbnail of Physical function factors associated with life-space mobility in later life

Research paper thumbnail of Older People’s Views Regarding Mobility and Participation

Research paper thumbnail of Occupation and health abroad as described by EU citizens begging in Sweden

Research paper thumbnail of Women’s experience of the health information process involving a digital information tool before commencing radiation therapy for breast cancer: a deductive interview study

BMC Health Services Research

Background Individuals undergoing radiation therapy for breast cancer frequently request informat... more Background Individuals undergoing radiation therapy for breast cancer frequently request information before, throughout and after the treatment as a means to reduce distress. Nevertheless, the provision of information to meet individuals needs from their level of health literacy is often overlooked. Thus, individuals information needs are often unmet, leading to reports of discontent. Internet and digital information technology has significantly augmented the available information and changed the way in which persons accesses and comprehends information. As health information is no longer explicitly obtained from healthcare professionals, it is essential to examine the sequences of the health information process in general, and in relation to health literacy. This paper reports on qualitative interviews, targeting women diagnosed with breast cancer who were given access to a health information technology tool, Digi-Do, before commencing radiation therapy, during, and after treatment...

Research paper thumbnail of Number 3 Article 7 Factors Influencing the Use of Evidence-Based Practice among Physiotherapists and Occupational Therapists in Their Clinical Work. The Internet Journal of Allied Health Sciences and Practice

Background: Evidence-based practice (EBP) is a process through which research is applied in daily... more Background: Evidence-based practice (EBP) is a process through which research is applied in daily clinical practice. Occupational therapists (OTs) and physiotherapists (PTs) are expected to work in line with EBP in order to optimise health care resources. This expectation is too seldom fulfilled. Consequently, research findings may not be implemented in clinical practice in a timely manner, if at all. To remedy this situation, additional knowledge is needed regarding what factors influence the process of EBP among practitioners. The purpose of the present study was to identify factors that influence the use of EBP and the experienced effects of the use of EBP among PTs and OTs in their clinical work. Method: This was a qualitative interview study that consisted of six group interviews involving either OTs or PTs employed by the Jönköping County Council in the South of Sweden. Resulting data were analysed using content analysis. Results: The analysis resulted in the following categories: "definition of evidence and EBP," "sources of evidence," "barriers to acquiring evidence and to using evidence in clinical work," "factors that facilitate the acquisition of evidence and the use of evidence in clinical work," and "personal experiences of using EBP." Basing clinical practice on scientific evidence evoked positive experiences, although an ambivalent view towards acting on clinical experience was evident. Participants reported that time for and increased knowledge about searching for, evaluating, and implementing EBP were needed. Conclusion: Because OTs are more oriented towards professional theories and models, and PTs are more focused on randomised controlled trials of interventions, different strategies appear to be needed to increase EBP in these two professions. Management support was considered vital to the implementation of EBP. However, the personal obligation to work in line with EBP must also be emphasised; the participants apparently underestimate its importance. BACKGROUND Evidence-based medicine (EBM) is defined as "the conscientious, explicit and judicious use of current best evidence in making decisions about the care of individual patients." 1 Evidence-based practice (EBP) is a process through which research and clinical experience are synthesised and applied in the clinical context. 2,3 Like all health professionals, occupational therapists (OTs) and physiotherapists (PTs) are expected to use EBP to optimise health care resources by using the most effective interventions for their clients. In fact, it may be considered unethical not to offer clients new and appropriate interventions. 4 Despite this expectation, personal obligation, and ethical aspects, this is not always the case. 4,5 Thus, research findings may not be implemented in clinical practice in a timely manner (or at all), causing a knowing-doing gap. In other words, what is known from research is not always implemented in clinical practice. 6,7 For example, previous research has shown that although OTs are willing to access new knowledge to guide clinical practice, they do not implement research findings to the fullest extent possible. 8 The same gap has been observed among PTs. 9 The existence of this gap may compromise quality in occupational therapy, physiotherapy, and client value.

Research paper thumbnail of Fysisk aktivitet och träning - möjlig prevention av arbetsrelaterade belastningsbesvär

Research paper thumbnail of Äldre Mäns Och Kvinnors Perspektiv På Mobilitet Och Delaktighet

Research paper thumbnail of User Involvement in Research on Aging and Health: Creating Knowledge and Technologies With Older Adults

Innovation in Aging, 2020

Although, user involvement is largely recognized as instrumental when developing relevant knowled... more Although, user involvement is largely recognized as instrumental when developing relevant knowledge, services as well as products - aging populations are still likely to be sparsely involved in such processes. Surprisingly, many gerontechnologies are still developed based on a technological perspective rather than a gerontological perspective. Consequently, age-related changes as well as needs, actual use or perceptions of older adults are disregarded or neglected. Similar problems apply to public and private environments with potentially negative implications on accessibility. The present symposium includes four presentations that address user involvement, by capturing older adults’ and aging populations’ use as well as perceptions of emerging technologies, successful development of gerontechnologies, and a multigenerational mass-experiment on housing accessibility in later life. The first study from Germany captures the everyday situation of smartphone use as well as aspects of us...

Research paper thumbnail of Changes in daily life and wellbeing in adults, 70 years and older, in the beginning of the COVID-19 pandemic

Scandinavian Journal of Occupational Therapy

BACKGROUND In the beginning of the COVID-19 pandemic, Swedish authorities enforced specific recom... more BACKGROUND In the beginning of the COVID-19 pandemic, Swedish authorities enforced specific recommendations on social distancing for adults 70 years and older (70+). Day-to-day life changed for 15% of the Swedish population. The aim of the study was to explore how adults 70+ experienced and managed changes in everyday life due to the COVID-19 pandemic and how those changes affected wellbeing at the beginning of the virus outbreak. METHODS Eleven women and six men, (mean age 76 years), living in ordinary housing, participated in remote semi-structured interviews in April 2020. The interviews were analysed with qualitative content analysis. FINDINGS The theme Suddenly at risk - '…but it could have been worse' included four categories My world closed down; Negotiations, adaptations and prioritizations to manage staying at home; Barriers and facilitators to sustain occupational participation; and Considerations of my own and other's health and wellbeing emerged from the data analysis. CONCLUSION Everyday life changes had implications for health and well-being. The participants questioned previous conceptions of meaning in relation to habitual activities, likely leading to consistent occupational changes. However, these long-term effects remain to be explored, and considered to enable older adult's health during the pandemic and beyond.

Research paper thumbnail of Integrating perspectives of patients, healthcare professionals, system developers and academics in the co-design of a digital information tool

PLOS ONE

Background Patients diagnosed with cancer who are due to commence radiotherapy, often, despite th... more Background Patients diagnosed with cancer who are due to commence radiotherapy, often, despite the provision of a considerable amount of information, report a range of unmet information needs about the treatment process. Factors such as inadequate provision of information, or the stressful situation of having to deal with information about unfamiliar things, may influence the patient’s ability to comprehend the information. There is a need to further advance the format in which such information is presented. The composition of information should be tailored according to the patient’s individual needs and style of learning. Method and findings The PD methodology is frequently used when a technology designed artefact is the desired result of the process. This research is descriptive of its kind and provides a transparent description of the co-design process used to develop an innovative digital information tool employing PD methodology where several stakeholders participated as co-des...

Research paper thumbnail of Life-space mobility and participation in daily activities and social life among older men and women

BackgroundLife-space mobility, i.e., the frequency and independence of transferring to different ... more BackgroundLife-space mobility, i.e., the frequency and independence of transferring to different life-spaces (extending from a person’s bedroom to places beyond hometown), is evident to decrease in ...

Research paper thumbnail of Validitet och reliabilitet för Life-Space Assessment (LSA) - ett instrument för bedömning av äldre personers mobilitet

Bakgrund: Formagan och mojligheter att forflytta (mobilitet) begransas ofta i senare delen av liv... more Bakgrund: Formagan och mojligheter att forflytta (mobilitet) begransas ofta i senare delen av livet, med negativa konsekvenser fordelaktighet i dagliga och sociala aktiviteter. Saval i praktisk ver ...

Research paper thumbnail of Dagliga aktiviteter hos äldre kvinnor som invandrat från västra Balkan - att hantera ett förändrat aktivitetsmönster

Dagliga aktiviteter hos aldre kvinnor som invandrat fran vastra Balkan - att hantera ett forandra... more Dagliga aktiviteter hos aldre kvinnor som invandrat fran vastra Balkan - att hantera ett forandrat aktivitetsmonster

Research paper thumbnail of Attitudes, acceptance and use of everyday technologies – a generational perspective

Technology is a fixed feature in today’s world, from smart phones to the everyday technology in o... more Technology is a fixed feature in today’s world, from smart phones to the everyday technology in our homes. Research is limited regarding perceptions of and attitudes to technology among people of d ...

Research paper thumbnail of Viewpoints on community mobility and participation in older age

Background/Aim: Community mobility supports participation in activities. However, knowledge about... more Background/Aim: Community mobility supports participation in activities. However, knowledge about issues that influence community mobility and, hence, participation in activities outside the home i ...

Research paper thumbnail of Changes in daily life and wellbeing in adults, 70 years and older, in the beginning of the COVID-19 pandemic

Scandinavian journal of occupational therapy, 2021

BACKGROUND In the beginning of the COVID-19 pandemic, Swedish authorities enforced specific recom... more BACKGROUND In the beginning of the COVID-19 pandemic, Swedish authorities enforced specific recommendations on social distancing for adults 70 years and older (70+). Day-to-day life changed for 15% of the Swedish population. The aim of the study was to explore how adults 70+ experienced and managed changes in everyday life due to the COVID-19 pandemic and how those changes affected wellbeing at the beginning of the virus outbreak. METHODS Eleven women and six men, (mean age 76 years), living in ordinary housing, participated in remote semi-structured interviews in April 2020. The interviews were analysed with qualitative content analysis. FINDINGS The theme Suddenly at risk - '…but it could have been worse' included four categories My world closed down; Negotiations, adaptations and prioritizations to manage staying at home; Barriers and facilitators to sustain occupational participation; and Considerations of my own and other's health and wellbeing emerged from the data...

Research paper thumbnail of “Am I representative (of my age)? No, I’m not”—Attitudes to technologies and technology development differ but unite individuals across rather than within generations

PLoS ONE, 2021

While a broad spectrum of technologies is integrated in everyday life and routines, most research... more While a broad spectrum of technologies is integrated in everyday life and routines, most research on ageing, health and technology has focused on attitudes toward and adoption of digital technologies including e-health, or home based monitoring systems. The aim of this study was to explore differences and similarities in attitudes and experiences with different types of technologies and development within and between three generations. We applied a qualitative, descriptive design and recruited a purposeful sample of participants from three generations (30–39, 50–59, 70–79 year old). The 25 participants took part in 3 x 2 focus groups. Forming four categories, the findings show that technologies enable as well as complicate everyday life. Participants expressed trust as well as uncertainty about risks when using technology and stated that use of digital services is required while support is limited. They identified that technology development is inevitable but not always in the servi...

Research paper thumbnail of Digi-Do: a digital information tool to support patients with breast cancer before, during, and after start of radiotherapy treatment: an RCT study protocol

BMC Medical Informatics and Decision Making, 2021

Background Radiation Therapy (RT) is a common treatment after breast cancer surgery and a complex... more Background Radiation Therapy (RT) is a common treatment after breast cancer surgery and a complex process using high energy X-rays to eradicate cancer cells, important in reducing the risk of local recurrence. The high-tech environment and unfamiliar nature of RT can affect the patient’s experience of the treatment. Misconceptions or lack of knowledge about RT processes can increase levels of anxiety and enhance feelings of being unprepared at the beginning of treatment. Moreover, the waiting time is often quite long. The primary aim of this study will be to evaluate whether a digital information tool with VR-technology and preparatory information can decrease distress as well as enhance the self-efficacy and health literacy of patients affected by breast cancer before, during, and after RT. A secondary aim will be to explore whether the digital information tool increase patient flow while maintaining or increasing the quality of care. Method The study is a prospective and longitudi...

Research paper thumbnail of Understanding older people as occupational beings

There is limited research reporting older adults’ engagement in occupations. Until recently very ... more There is limited research reporting older adults’ engagement in occupations. Until recently very little research has been undertaken ‘about the nature of occupation and its significance to humans. ...

Research paper thumbnail of Q metodologi i arbetsterapi - ett nytt sätt att identifiera subjektiva synsätt

Research paper thumbnail of Physical function factors associated with life-space mobility in later life

Research paper thumbnail of Older People’s Views Regarding Mobility and Participation

Research paper thumbnail of Occupation and health abroad as described by EU citizens begging in Sweden