Wendy Nehring - Academia.edu (original) (raw)
Papers by Wendy Nehring
Nursing Outlook, 2016
Nearly 750,000 adolescents and emerging adults with special health care needs (AEA-SHCN) enter in... more Nearly 750,000 adolescents and emerging adults with special health care needs (AEA-SHCN) enter into adulthood annually. The linkages to ensure the seamless transfer of care from pediatric to adult care and transition to adulthood for AEA-SHCN have yet to be realized. The purpose of this systematic review was to investigate the state of the science of health care transition (HCT) service models as described in quantitative investigations. A four-tier screening approach was used to obtain reviewed articles published from 2004 to 2013. A total of 17 articles were included in this review. Transfer of care was the most prominent intervention feature. Overall, using the Effective Public Health Practice Project criteria, the studies were rated as weak. Limitations included lack of control groups, rigorous designs and methodology, and incomplete intervention descriptions. As the findings indicate, HCT is an emerging field of practice that is largely in the exploratory stage of model development.
Online journal of issues in nursing, 2015
Nursing specialization involves focusing on nursing practice in an identified specific area withi... more Nursing specialization involves focusing on nursing practice in an identified specific area within the entire field of professional nursing. A defined specialty scope of practice statement and standards of professional practice, with accompanying competencies, are unique to each nursing specialty. These documents help assure continued understanding and recognition of nursing's diverse professional contributions. The purpose of this article is to demystify the process for specialty nurses who are creating or revising their specialty nursing scope and standards of practice. We provide best practices for the developmental process based on our recently published scope and standards of specialty nursing practice. The conclusion provides strategies to disseminate scope and standards documents to appropriate stakeholders.
Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners, Jan 15, 2015
This article details the process used to develop the revision of the original Guidelines that res... more This article details the process used to develop the revision of the original Guidelines that resulted in the development of the 2014 Health Care Quality and Outcomes Guidelines for Nursing of Children, Adolescents, and Families. Members of the 2014 Guidelines Revision Task Force conducted an extensive process of revision, which included the input and approval of 16 pediatric and child health nursing and affiliated organizational endorsements. The revised Guidelines were presented to and endorsed by the American Academy of Nursing Board. These Guidelines are designed for use by pediatric and child health nurses who work in a range of health care and community-based settings. The Guidelines are proposed to be used as a framework for nurse-directed services and intervention development and testing, as a model for undergraduate and graduate pediatric and child health nursing program curriculum development, and as the theoretical basis for nursing investigations on the care of children,...
Journal of Pediatric Nursing, 2015
Health care transition (HCT) for adolescents and emerging adults (AEA) with special health care n... more Health care transition (HCT) for adolescents and emerging adults (AEA) with special health care needs is an emerging field of interdisciplinary field of practice and research that is based upon an intergenerational approach involving care coordination between pediatric and adult systems of health care. Informed understanding of the state of the HCT science pertaining to this group of providers is needed in order to develop and implement service programs that will meet the comprehensive needs of AEA with special health care needs. The authors conducted a systematic review of the literature on the transition from child to adult care for adolescents and emerging adults (AEA) with special health care needs from 2004 to 2013. Fifty-five articles were selected for this review. An adaptation of the PRISMA guidelines was applied because all studies in this review used descriptive designs. Findings revealed lack of evidence due to the limitations of the research designs and methodology of the studies included in this systematic review. Study findings were categorized the following four types: adult provider competency, provider perspectives, provider attitudes, and HCT service models. The discipline of medicine was predominant; interdisciplinary frameworks based upon integrated care were not reported. Few studies included samples of adult providers. Empirical-based data are lacking pertaining to the role of providers involved in this specialty area of practice. Evidence is hampered by the limitations of the lack of rigorous research designs and methodology.
Journal of pediatric nursing
Health care transition (HCT) for adolescents and emerging adults (AEA) with special health care n... more Health care transition (HCT) for adolescents and emerging adults (AEA) with special health care needs is an emerging field of interdisciplinary field of practice and research that is based upon an intergenerational approach involving care coordination between pediatric and adult systems of health care. Informed understanding of the state of the HCT science pertaining to this group of providers is needed in order to develop and implement service programs that will meet the comprehensive needs of AEA with special health care needs. The authors conducted a systematic review of the literature on the transition from child to adult care for adolescents and emerging adults (AEA) with special health care needs from 2004 to 2013. Fifty-five articles were selected for this review. An adaptation of the PRISMA guidelines was applied because all studies in this review used descriptive designs. Findings revealed lack of evidence due to the limitations of the research designs and methodology of th...
Journal of family nursing, 2015
The period of health care transition (HCT) for adolescents and emerging adults with special healt... more The period of health care transition (HCT) for adolescents and emerging adults with special health care needs and disabilities involves a complex realignment of the parent-child relationship, including alterations in role responsibilities and decision making. The purpose of this systematic review was to analyze the research designs, methodology, and findings reported in studies of parents during this transition period to provide new insights for research and clinical practice. Results showed that parents were unable to clearly envision what the future held for their children and were not well prepared by the service system to anticipate future prospects. These parents have a myriad of needs that are not yet fully understood, as HCT research is in the early stages of development.
People with intellectual and developmental disabilities not only experience commonly occurring il... more People with intellectual and developmental disabilities not only experience commonly occurring illnesses but also may have more-and be at increased risk for-health problems. Given their vulnerabilities and health disparities, people with intellectual and developmental disabilities must have access to high quality and consistent health care provided by nurses who understand and address their health needs. Nurses with extensive experience and expertise in the field of intellectual and developmental disabilities worked collaboratively to develop "Guidelines to Improve the Health of People with Intellectual and Developmental Disabilities". These guidelines focus on nursing support and nurse staffing and offer important recommendations for nursing education, practice, and research.
Nursing education perspectives
The human patient simulator (HPS) has recently been introduced as an adjunct technology in nursin... more The human patient simulator (HPS) has recently been introduced as an adjunct technology in nursing education. An international survey of nursing schools and simulation centers that collaborate with nursing schools and have purchased a Medical Education Technologies, Inc. (METI) HPS was undertaken in 2002. Thirty-four schools of nursing (18 based in universities and 16 based in community colleges) and six simulation centers participated in the survey. Information gathered from the survey and reported on in this article includes curricular use, faculty time and use, student opinions, evaluation, and other uses of the HPS, specifically in research and continuing education. The results provide a foundation for early use of the HPS in nursing education at all levels.
Nursing Outlook, 2013
Special health care needs Review of literature Systematic review a b s t r a c t Background: A be... more Special health care needs Review of literature Systematic review a b s t r a c t Background: A better understanding of the needs of adolescents and emerging adults with special health care needs (AEA-SHCNs) is essential to provide health care transition services that represent best practices. The purpose of this systematic review was to evaluate the research on health care transition for AEA-SHCNs from their perspectives. Methods: A comprehensive literature review of research publications since 2005 was performed using the PubMed, Cumulative Index to Nursing and Allied Health Literature, and EBSCO databases. Thirty-five studies met the final review criteria. Results: The process of transition from child to adult for AEA-SHCNs is complex. Individuals experiencing the transition desire to be a part of the process and want providers who will listen and be sensitive to their needs, which are often different from others receiving health care at the same facility. Conclusions: More research that considers the voice of the AEA-SHCNs related to transition from pediatric to adult care is needed.
Journal of Pediatric Nursing, 2007
Journal of Nursing Scholarship, 2006
Purpose: To examine past, current, and future developmental and health care issues and concerns o... more Purpose: To examine past, current, and future developmental and health care issues and concerns of Caucasian, African American, and Mexican American adults, aged 20 to 75 years, with neural tube defects (NTDs). Design: Naturalistic inquiry. Methods: A semi-structured interview was used to obtain information from 16 Caucasian, 11 African American, and 15 Mexican American adults. Findings: Three themes identified in the analysis were uncertainty about the future, access to health care and information, and advocacy. Conclusions: Documenting the adult trajectories of chronic childhood conditions, such as NTDs, is important. Although much is known about such conditions in childhood, additional knowledge about health and developmental concerns across the lifespan enhances provision of appropriate anticipatory guidance and health care.
The Journal of Cardiovascular Nursing, 1999
It is imperative that clinicians understand basic human genetic concepts. In this article, the pa... more It is imperative that clinicians understand basic human genetic concepts. In this article, the patterns of inheritance for single gene disorders are described and include the traditional Mendelian, nontraditional, and multifactorial patterns. Next, chromosomal and structural abnormalities are described, followed by a description of the current measures by which genes are detected, including gene mapping and polymorphisms, and concluding with cytogenetic, molecular, and biochemical testing.
Journal for Specialists in Pediatric Nursing, 2000
ISSUES AND PURPOSE. The stigma of HIV infection creates barriers to disclosure. The purpose of th... more ISSUES AND PURPOSE. The stigma of HIV infection creates barriers to disclosure. The purpose of this study was to identify to whom biological and foster mothers disclose the diagnosis of HIV infection, discuss their rationale, and describe the recipientS reactions. DESIGN AND METHODS. A descriptive, qualitative study included biological (n = 9) and foster (n = 11) mothers of children with HIV infection. RESULTS. Three themes emerged from the data: Telling for support, determining who should know, and telling children. These themes were present for both biological and foster mothers. PRACTICE IMPLICATIONS. It is important for nurses to realize that parental disclosure of the diagnosis of HIV infection is a long-term, age-appropriate process that will take place over many discussions and time, and should have the support of the interdisciplina y team. Additional psychological support also should be available.
Issues in Mental Health Nursing, 1988
Issues in Comprehensive Pediatric Nursing, 1995
An instrument was developed to assess the impact of chronic illness on the performance of parenti... more An instrument was developed to assess the impact of chronic illness on the performance of parenting tasks (e.g., lifting, feeding, transporting, etc.). Little research on the affect of illness in general on the performance of parenting tasks is in the literature. Mothers with narcolepsy (n = 20) were used as the sample for this pilot study along with a comparison of mothers without a chronic illness (n = 20). Mothers were matched by the age and sex of the oldest child. The age groups of childhood and adolescence from the Parenting Tasks Index (PTI) were used in this study. Good reliability and validity were found in the use of this instrument. Over 50% of the mothers with narcolepsy indicated many parenting tasks (e.g., assigning the child chores, disciplining, and performing household chores) that posed moderate to severe difficulty for them. Pediatric nurses will find this instrument useful in planning individualized interventions related to identified difficult parenting tasks and in furthering research in this area.
Holistic Nursing Practice, 1996
ABSTRACT Narcolepsy is a neurologic condition that is chronic and lifelong. The study reported de... more ABSTRACT Narcolepsy is a neurologic condition that is chronic and lifelong. The study reported describes the experience of living with the most prevalent symptoms of narcolepsy and the management strategies employed for those symptoms by persons with narcolepsy. Descriptions of living with excessive daytime sleepiness, sleep attacks, and cataplexy are given. Nonpharmacologic strategies for symptom management were described by 63.2% of the study participants for cataplexy, 54.5% for sleep attacks, and 35.5% for excessive daytime sleepiness. Specific management and coping strategies are provided.
Dimensions of Critical Care Nursing, 1986
Nursing Outlook, 2016
Nearly 750,000 adolescents and emerging adults with special health care needs (AEA-SHCN) enter in... more Nearly 750,000 adolescents and emerging adults with special health care needs (AEA-SHCN) enter into adulthood annually. The linkages to ensure the seamless transfer of care from pediatric to adult care and transition to adulthood for AEA-SHCN have yet to be realized. The purpose of this systematic review was to investigate the state of the science of health care transition (HCT) service models as described in quantitative investigations. A four-tier screening approach was used to obtain reviewed articles published from 2004 to 2013. A total of 17 articles were included in this review. Transfer of care was the most prominent intervention feature. Overall, using the Effective Public Health Practice Project criteria, the studies were rated as weak. Limitations included lack of control groups, rigorous designs and methodology, and incomplete intervention descriptions. As the findings indicate, HCT is an emerging field of practice that is largely in the exploratory stage of model development.
Online journal of issues in nursing, 2015
Nursing specialization involves focusing on nursing practice in an identified specific area withi... more Nursing specialization involves focusing on nursing practice in an identified specific area within the entire field of professional nursing. A defined specialty scope of practice statement and standards of professional practice, with accompanying competencies, are unique to each nursing specialty. These documents help assure continued understanding and recognition of nursing's diverse professional contributions. The purpose of this article is to demystify the process for specialty nurses who are creating or revising their specialty nursing scope and standards of practice. We provide best practices for the developmental process based on our recently published scope and standards of specialty nursing practice. The conclusion provides strategies to disseminate scope and standards documents to appropriate stakeholders.
Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners, Jan 15, 2015
This article details the process used to develop the revision of the original Guidelines that res... more This article details the process used to develop the revision of the original Guidelines that resulted in the development of the 2014 Health Care Quality and Outcomes Guidelines for Nursing of Children, Adolescents, and Families. Members of the 2014 Guidelines Revision Task Force conducted an extensive process of revision, which included the input and approval of 16 pediatric and child health nursing and affiliated organizational endorsements. The revised Guidelines were presented to and endorsed by the American Academy of Nursing Board. These Guidelines are designed for use by pediatric and child health nurses who work in a range of health care and community-based settings. The Guidelines are proposed to be used as a framework for nurse-directed services and intervention development and testing, as a model for undergraduate and graduate pediatric and child health nursing program curriculum development, and as the theoretical basis for nursing investigations on the care of children,...
Journal of Pediatric Nursing, 2015
Health care transition (HCT) for adolescents and emerging adults (AEA) with special health care n... more Health care transition (HCT) for adolescents and emerging adults (AEA) with special health care needs is an emerging field of interdisciplinary field of practice and research that is based upon an intergenerational approach involving care coordination between pediatric and adult systems of health care. Informed understanding of the state of the HCT science pertaining to this group of providers is needed in order to develop and implement service programs that will meet the comprehensive needs of AEA with special health care needs. The authors conducted a systematic review of the literature on the transition from child to adult care for adolescents and emerging adults (AEA) with special health care needs from 2004 to 2013. Fifty-five articles were selected for this review. An adaptation of the PRISMA guidelines was applied because all studies in this review used descriptive designs. Findings revealed lack of evidence due to the limitations of the research designs and methodology of the studies included in this systematic review. Study findings were categorized the following four types: adult provider competency, provider perspectives, provider attitudes, and HCT service models. The discipline of medicine was predominant; interdisciplinary frameworks based upon integrated care were not reported. Few studies included samples of adult providers. Empirical-based data are lacking pertaining to the role of providers involved in this specialty area of practice. Evidence is hampered by the limitations of the lack of rigorous research designs and methodology.
Journal of pediatric nursing
Health care transition (HCT) for adolescents and emerging adults (AEA) with special health care n... more Health care transition (HCT) for adolescents and emerging adults (AEA) with special health care needs is an emerging field of interdisciplinary field of practice and research that is based upon an intergenerational approach involving care coordination between pediatric and adult systems of health care. Informed understanding of the state of the HCT science pertaining to this group of providers is needed in order to develop and implement service programs that will meet the comprehensive needs of AEA with special health care needs. The authors conducted a systematic review of the literature on the transition from child to adult care for adolescents and emerging adults (AEA) with special health care needs from 2004 to 2013. Fifty-five articles were selected for this review. An adaptation of the PRISMA guidelines was applied because all studies in this review used descriptive designs. Findings revealed lack of evidence due to the limitations of the research designs and methodology of th...
Journal of family nursing, 2015
The period of health care transition (HCT) for adolescents and emerging adults with special healt... more The period of health care transition (HCT) for adolescents and emerging adults with special health care needs and disabilities involves a complex realignment of the parent-child relationship, including alterations in role responsibilities and decision making. The purpose of this systematic review was to analyze the research designs, methodology, and findings reported in studies of parents during this transition period to provide new insights for research and clinical practice. Results showed that parents were unable to clearly envision what the future held for their children and were not well prepared by the service system to anticipate future prospects. These parents have a myriad of needs that are not yet fully understood, as HCT research is in the early stages of development.
People with intellectual and developmental disabilities not only experience commonly occurring il... more People with intellectual and developmental disabilities not only experience commonly occurring illnesses but also may have more-and be at increased risk for-health problems. Given their vulnerabilities and health disparities, people with intellectual and developmental disabilities must have access to high quality and consistent health care provided by nurses who understand and address their health needs. Nurses with extensive experience and expertise in the field of intellectual and developmental disabilities worked collaboratively to develop "Guidelines to Improve the Health of People with Intellectual and Developmental Disabilities". These guidelines focus on nursing support and nurse staffing and offer important recommendations for nursing education, practice, and research.
Nursing education perspectives
The human patient simulator (HPS) has recently been introduced as an adjunct technology in nursin... more The human patient simulator (HPS) has recently been introduced as an adjunct technology in nursing education. An international survey of nursing schools and simulation centers that collaborate with nursing schools and have purchased a Medical Education Technologies, Inc. (METI) HPS was undertaken in 2002. Thirty-four schools of nursing (18 based in universities and 16 based in community colleges) and six simulation centers participated in the survey. Information gathered from the survey and reported on in this article includes curricular use, faculty time and use, student opinions, evaluation, and other uses of the HPS, specifically in research and continuing education. The results provide a foundation for early use of the HPS in nursing education at all levels.
Nursing Outlook, 2013
Special health care needs Review of literature Systematic review a b s t r a c t Background: A be... more Special health care needs Review of literature Systematic review a b s t r a c t Background: A better understanding of the needs of adolescents and emerging adults with special health care needs (AEA-SHCNs) is essential to provide health care transition services that represent best practices. The purpose of this systematic review was to evaluate the research on health care transition for AEA-SHCNs from their perspectives. Methods: A comprehensive literature review of research publications since 2005 was performed using the PubMed, Cumulative Index to Nursing and Allied Health Literature, and EBSCO databases. Thirty-five studies met the final review criteria. Results: The process of transition from child to adult for AEA-SHCNs is complex. Individuals experiencing the transition desire to be a part of the process and want providers who will listen and be sensitive to their needs, which are often different from others receiving health care at the same facility. Conclusions: More research that considers the voice of the AEA-SHCNs related to transition from pediatric to adult care is needed.
Journal of Pediatric Nursing, 2007
Journal of Nursing Scholarship, 2006
Purpose: To examine past, current, and future developmental and health care issues and concerns o... more Purpose: To examine past, current, and future developmental and health care issues and concerns of Caucasian, African American, and Mexican American adults, aged 20 to 75 years, with neural tube defects (NTDs). Design: Naturalistic inquiry. Methods: A semi-structured interview was used to obtain information from 16 Caucasian, 11 African American, and 15 Mexican American adults. Findings: Three themes identified in the analysis were uncertainty about the future, access to health care and information, and advocacy. Conclusions: Documenting the adult trajectories of chronic childhood conditions, such as NTDs, is important. Although much is known about such conditions in childhood, additional knowledge about health and developmental concerns across the lifespan enhances provision of appropriate anticipatory guidance and health care.
The Journal of Cardiovascular Nursing, 1999
It is imperative that clinicians understand basic human genetic concepts. In this article, the pa... more It is imperative that clinicians understand basic human genetic concepts. In this article, the patterns of inheritance for single gene disorders are described and include the traditional Mendelian, nontraditional, and multifactorial patterns. Next, chromosomal and structural abnormalities are described, followed by a description of the current measures by which genes are detected, including gene mapping and polymorphisms, and concluding with cytogenetic, molecular, and biochemical testing.
Journal for Specialists in Pediatric Nursing, 2000
ISSUES AND PURPOSE. The stigma of HIV infection creates barriers to disclosure. The purpose of th... more ISSUES AND PURPOSE. The stigma of HIV infection creates barriers to disclosure. The purpose of this study was to identify to whom biological and foster mothers disclose the diagnosis of HIV infection, discuss their rationale, and describe the recipientS reactions. DESIGN AND METHODS. A descriptive, qualitative study included biological (n = 9) and foster (n = 11) mothers of children with HIV infection. RESULTS. Three themes emerged from the data: Telling for support, determining who should know, and telling children. These themes were present for both biological and foster mothers. PRACTICE IMPLICATIONS. It is important for nurses to realize that parental disclosure of the diagnosis of HIV infection is a long-term, age-appropriate process that will take place over many discussions and time, and should have the support of the interdisciplina y team. Additional psychological support also should be available.
Issues in Mental Health Nursing, 1988
Issues in Comprehensive Pediatric Nursing, 1995
An instrument was developed to assess the impact of chronic illness on the performance of parenti... more An instrument was developed to assess the impact of chronic illness on the performance of parenting tasks (e.g., lifting, feeding, transporting, etc.). Little research on the affect of illness in general on the performance of parenting tasks is in the literature. Mothers with narcolepsy (n = 20) were used as the sample for this pilot study along with a comparison of mothers without a chronic illness (n = 20). Mothers were matched by the age and sex of the oldest child. The age groups of childhood and adolescence from the Parenting Tasks Index (PTI) were used in this study. Good reliability and validity were found in the use of this instrument. Over 50% of the mothers with narcolepsy indicated many parenting tasks (e.g., assigning the child chores, disciplining, and performing household chores) that posed moderate to severe difficulty for them. Pediatric nurses will find this instrument useful in planning individualized interventions related to identified difficult parenting tasks and in furthering research in this area.
Holistic Nursing Practice, 1996
ABSTRACT Narcolepsy is a neurologic condition that is chronic and lifelong. The study reported de... more ABSTRACT Narcolepsy is a neurologic condition that is chronic and lifelong. The study reported describes the experience of living with the most prevalent symptoms of narcolepsy and the management strategies employed for those symptoms by persons with narcolepsy. Descriptions of living with excessive daytime sleepiness, sleep attacks, and cataplexy are given. Nonpharmacologic strategies for symptom management were described by 63.2% of the study participants for cataplexy, 54.5% for sleep attacks, and 35.5% for excessive daytime sleepiness. Specific management and coping strategies are provided.
Dimensions of Critical Care Nursing, 1986