Wendy Rowan - Academia.edu (original) (raw)

Papers by Wendy Rowan

Research paper thumbnail of The role of digital leaders’ emotional intelligence in mitigating employee technostress

Business horizons, Mar 1, 2024

Research paper thumbnail of The dark side of digitalization and social media platform governance: a citizen engagement study

Internet Research

PurposeSocial media platforms are a pervasive technology that continues to define the modern worl... more PurposeSocial media platforms are a pervasive technology that continues to define the modern world. While social media has brought many benefits to society in terms of connection and content sharing, numerous concerns remain for the governance of social media platforms going forward, including (but not limited to) the spread of misinformation, hate speech and online surveillance. However, the voice of citizens and other non-experts is often missing from such conversations in information systems literature, which has led to an alleged gap between research and the everyday life of citizens.Design/methodology/approachThe authors address this gap by presenting findings from 16 h of online dialog with 25 citizens on social media platform governance. The online dialog was undertaken as part of a worldwide consultation project called “We, the internet”, which sought to provide citizens with a voice on a range of topics such as “Digitalization and Me,” “My Data, Your Data, Our Data” and “A ...

Research paper thumbnail of Promoting active citizen engagement in sustainable energy transitions: a co-creation approach

Journal of decision systems, Apr 24, 2024

Research paper thumbnail of Open e-learning platforms and the design-reality gap: exploring the impact of user-perceived functional affordances

European Conference on Information Systems, Jun 14, 2021

Recorded usage rates of open e-learning platforms are often low, with many users discontinuing th... more Recorded usage rates of open e-learning platforms are often low, with many users discontinuing their use after initial acceptance. One often cited reason for this acceptance-discontinuance anomaly is the design-reality gap between users' diverse needs and the designed features of an open e-learning platform. To explore the challenges of user continuance behaviour we adopt the lens of 'functional affordances', the possibilities for action that an open IT artefact provides users for achieving individual and collective goals. We investigate the design implications of user-perceived affordances based on findings from an EU sustainability project which developed an open e-learning platform for citizens to improve household energy efficiency. Findings showcase how open e-learning users and designers perceive seven interrelated affordances differently: Informing, Assessment, Synthesis, Emphasis, Accessibility, Navigation, and Goal-planning. We put forward recommendations on how designers of open IT artefacts can bridge design-reality gaps by exploring affordance personalisation for diverse user groups.

Research paper thumbnail of How can IS researchers adopt Open Science practices into their research workflows?

As part of the "Open Science Practices in Information Systems Research" minitrack at HI... more As part of the "Open Science Practices in Information Systems Research" minitrack at HICSS 54, a synchronous workshop was created to answer the following question: how can IS researchers adopt Open Science practices into their research workflows?

Research paper thumbnail of Blended Stakeholder Participation for Responsible Information Systems Research

Communications of the Association for Information Systems, 2020

Information Systems (IS) research is often conducted under the assumption that technology use lea... more Information Systems (IS) research is often conducted under the assumption that technology use leads to positive outcomes for different stakeholders. However, many IS studies demonstrate limited evidence of having engaged with the stakeholders that they claim benefit and speak on behalf of. It is therefore not surprising that examples abound of where technology use has failed ‘to make the world a better place’, or worse still has contributed towards unintended negative outcomes. In light of these concerns, calls have recently emerged for responsible research and innovation (RRI) studies in IS to understand how different stakeholder groups can have a voice in complex socio-technical issues. In this paper, we take steps towards addressing this call by presenting case study findings from a responsible IS research project which combined ‘blended’ face-to-face and online participatory techniques. The case study relates to a large-scale consultation undertaken in a 24-month European project involving 30 countries. The project engaged over 1,500 stakeholders in the co-creation of future research agendas for the European Union. We discuss case study findings using Stilgoe, Owen, & Macnaghten’s (2013) RRI framework (Anticipation, Reflexivity, Inclusion, Deliberation, Responsiveness) and reflect on lessons learned for responsible IS research going forward.

Research paper thumbnail of Open e-learning platforms and the design–reality gap: an affordance theory perspective

Information Technology & People

PurposeThe dropout rates of open e-learning platforms are often cited as high as 97%, with many u... more PurposeThe dropout rates of open e-learning platforms are often cited as high as 97%, with many users discontinuing their use after initial acceptance. This study aims to explore this anomaly through the lens of affordances theory, revealing design–reality gaps between users' diverse goals and the possibilities for action provided by an open IT artefact.Design/methodology/approachA six-month case study was undertaken to investigate the design implications of user-perceived affordances in an EU sustainability project which developed an open e-learning platform for citizens to improve their household energy efficiency. Thematic analysis was used to reveal the challenges of user continuance behaviour based on how an open IT artefact supports users in achieving individual goals (e.g. reducing energy consumption in the home) and collective goals (lessening the carbon footprint of society).FindingsBased on the findings, the authors inductively reveal seven affordances related to open ...

Research paper thumbnail of Hear our Voice! Exploring Citizens' Perspectives on the Digitalization of Life

Hear our voice! The digitalization of life has transformed what we believe, how we think, feel an... more Hear our voice! The digitalization of life has transformed what we believe, how we think, feel and act. Much of this digitalization of life has been brought to citizens by large companies focused on connecting us via internet platforms. But, what do citizens need or wish for from the internet? Questions have been raised around the privacy, security, and integrity of information provided over the web. However, if the voice of citizens is missing, we cannot make an imprint for change. 'We, the Internet' is a global consultation project which aims to redress this imbalance by asking citizens their thoughts and feelings on the internet. Their input will help to shape this technology for a better future. The citizen participation events and forecasting methods, aim to question ideas on the digitalization of life – what are citizen's views on the internet, its opportunities, and risks? How do citizens feel about the prevalence of disinformation? What is the role of artificial ...

Research paper thumbnail of The Pragmatic School of Thought in Open Science: A Case Study of Multi-stakeholder Participation in Shaping the Future of Internet Governance

The internet is a disruptive technology that continues to define our modern world. However, numer... more The internet is a disruptive technology that continues to define our modern world. However, numerous ethical challenges remain for internet governance going forward, e.g. surveillance capitalism, terrorism and radicalisation. The 'pragmatic' school of thought in open science advocates for collaboration between diverse stakeholder groups (e.g. citizens, academics, practitioners, policymakers) to ensure an informed, and positive imprint for change. However, our understanding of how open science can be used for assimilating knowledge on complex socio-political issues remains nascent. To address this gap, we present findings from 'We, the Internet', a global consultation project which utilised open science practices such as stakeholder-led evaluations and open access publications to engage stakeholders in dialogue around the future of internet governance. Our findings discuss emergent themes on the future of internet governance, and highlight the potential of open scienc...

Research paper thumbnail of Beyond a “Take It” or “Leave It” Approach to eConsent Design on Health Social Networks

International Journal of Patient-Centered Healthcare, 2020

With the proliferation of eHealth resources promoting health data storage, analysis, and dissemin... more With the proliferation of eHealth resources promoting health data storage, analysis, and dissemination, it is important for individuals to understand the implications of sharing their highly sensitive personal health information (PHI) online. However, uncertainty remains about the level of individual awareness and understanding when sharing PHI on health social networks (HSN). This article explores individuals' emotion and cognition in the provision of eConsent for PHI on a HSN focusing on individual engagement of emotion pre- and post-registration. Prior to participants reading the HSN's privacy policy (PP) and terms and conditions (T&Cs), a ‘just click' behavior was widely observed. This article shows that educating users about the implications of T&Cs and PPs changes their attitudes toward giving eConsent. By exploring individual emotion and cognition, this study proposes guidelines for software developers designing eConsent for HSNs.

Research paper thumbnail of The Pragmatic School of Thought in Open Science Practice: A Case Study of Multi-stakeholder Participation in Shaping the Future of Internet Governance

Proceedings of the Annual Hawaii International Conference on System Sciences, 2021

Research paper thumbnail of The Dark Side of Risk Homeostasis when joining Health Social Networks

Social networking sites capture, store, analyse and exploit personal data resulting in heightened... more Social networking sites capture, store, analyse and exploit personal data resulting in heightened uncertainty and perceived risk around protecting our personal data. When this data involves personal health information (PHI) the risk factors increase. These risks can be discovered in both the design and presentation of Health Social Networking (HSN) services, as well as the actions of users when providing electronic consent (eConsent). How do users interact with technology and determine the potential risks to their PHI data? This paper seeks to explore users’ behaviours and reflections on risk taking when registering onto a HSN. Examining users’ registration behaviours, it is possible to explore users’ risk homeostasis when providing eConsent on a HSN. This paper focuses on understanding the users’ decision making process to the reading and comprehension of the Terms and Conditions (T&Cs), and Privacy Policy (PP) statements. A two-step approach was taken to collecting data, with 1) t...

Research paper thumbnail of Blended Stakeholder Participation for Responsible Information Systems Research

Commun. Assoc. Inf. Syst., 2020

Information Systems (IS) research is often conducted under the assumption that technology use lea... more Information Systems (IS) research is often conducted under the assumption that technology use leads to positive outcomes for different stakeholders. However, many IS studies demonstrate limited evidence of having engaged with the stakeholders that they claim benefit and speak on behalf of. It is therefore not surprising that examples abound of where technology use has failed ‘to make the world a better place’, or worse still has contributed towards unintended negative outcomes. In light of these concerns, calls have recently emerged for responsible research and innovation (RRI) studies in IS to understand how different stakeholder groups can have a voice in complex socio-technical issues. In this paper, we take steps towards addressing this call by presenting case study findings from a responsible IS research project which combined ‘blended’ face-to-face and online participatory techniques. The case study relates to a large-scale consultation undertaken in a 24-month European projec...

Research paper thumbnail of The Evil Side of Sharing Personal Health Information Online

When joining a social network users are typically asked to register and supply their personal/pri... more When joining a social network users are typically asked to register and supply their personal/private information. As part of the registration process, users must confirm that they have read the terms and conditions of site use, as well as the privacy policy for that particular social network. Do people actually read these documents, and do they really understand what they are consenting to? When it comes to sharing personal health conditions with others online, it is worth considering who will have access to this valuable, sensitive data and how it will be used in the future. This research aims to improve the form and accessibility of contractual information presented to users of Health Social Networks (HSNs), by looking at alternative ways to engage and communicate these details on registration. Taking a mixed methods approach, this research observes registration behaviours and questions users on their engagement with eConsent through HSNs. Our aim is to elucidate the challenges, ...

Research paper thumbnail of Comprehension, Perception, and Projection

Journal of Organizational and End User Computing, 2021

Health social networks (HSNs) allow individuals with health information needs to connect and disc... more Health social networks (HSNs) allow individuals with health information needs to connect and discuss health-related issues online. Political-technology intertwinement (e.g. GDPR and Digital Technology) highlights that users need to be aware, understand, and willing to provide electronic consent (eConsent) when sharing personal information online. The objective of this study is to explore the ‘As-Is’ factors which impact individuals’ decisional autonomy when consenting to the privacy policy (PP) and Terms and Conditions (T&Cs) on a HSN. We use a Situational Awareness (SA) lens to examine decision autonomy when providing eConsent. A mixed-methods approach reveals that technical and privacy comprehension, user perceptions, and projection of future consequences impact participants’ decision autonomy in providing eConsent. Without dealing with the privacy paradox at the outset, decision awareness and latterly decision satisfaction is negatively impacted. Movement away from clickwrap onli...

Research paper thumbnail of Exploring User Behaviours when Providing Electronic Consent on Health Social Networks: A ‘Just Tick Agree’ Approach

Procedia Computer Science, 2017

Access to the full text of the published version may require a subscription.

Research paper thumbnail of Vision and Voice in eConsent: Future Trends for Health Social Networks

Procedia Computer Science, 2018

Research paper thumbnail of Privacy by Design: Informed Consent and Internet of Things for Smart Health

Procedia Computer Science, 2017

Access to the full text of the published version may require a subscription.

Research paper thumbnail of Exploring The Situational Approach To Decision Making: User Econsent On A Health Social Network

Situation Awareness can offer the potential for conscious dynamic reflection. In an era of online... more Situation Awareness can offer the potential for conscious dynamic reflection. In an era of online health data sharing, it is becoming increasingly important that users of health social networks (HSNs) have the information necessary to make informed decisions as part of the registration process and in the provision of eConsent. This research aims to leverage an adapted Situation Awareness (SA) model to explore users' decision making processes in the provision of eConsent. PatientsLikeMe - HSN platform was used to investigate these behaviours. A mixed methods approach was taken. This involved the observation of registration behaviours followed by a questionnaire and focus group/s. Early results suggest that users are apt to automatically accept eConsent, and only later consider the long-term implications of sharing their personal health information. Further steps are required to continue developing knowledge and understanding of this important eConsent process. The next step in th...

Research paper thumbnail of The role of digital leaders’ emotional intelligence in mitigating employee technostress

Business horizons, Mar 1, 2024

Research paper thumbnail of The dark side of digitalization and social media platform governance: a citizen engagement study

Internet Research

PurposeSocial media platforms are a pervasive technology that continues to define the modern worl... more PurposeSocial media platforms are a pervasive technology that continues to define the modern world. While social media has brought many benefits to society in terms of connection and content sharing, numerous concerns remain for the governance of social media platforms going forward, including (but not limited to) the spread of misinformation, hate speech and online surveillance. However, the voice of citizens and other non-experts is often missing from such conversations in information systems literature, which has led to an alleged gap between research and the everyday life of citizens.Design/methodology/approachThe authors address this gap by presenting findings from 16 h of online dialog with 25 citizens on social media platform governance. The online dialog was undertaken as part of a worldwide consultation project called “We, the internet”, which sought to provide citizens with a voice on a range of topics such as “Digitalization and Me,” “My Data, Your Data, Our Data” and “A ...

Research paper thumbnail of Promoting active citizen engagement in sustainable energy transitions: a co-creation approach

Journal of decision systems, Apr 24, 2024

Research paper thumbnail of Open e-learning platforms and the design-reality gap: exploring the impact of user-perceived functional affordances

European Conference on Information Systems, Jun 14, 2021

Recorded usage rates of open e-learning platforms are often low, with many users discontinuing th... more Recorded usage rates of open e-learning platforms are often low, with many users discontinuing their use after initial acceptance. One often cited reason for this acceptance-discontinuance anomaly is the design-reality gap between users' diverse needs and the designed features of an open e-learning platform. To explore the challenges of user continuance behaviour we adopt the lens of 'functional affordances', the possibilities for action that an open IT artefact provides users for achieving individual and collective goals. We investigate the design implications of user-perceived affordances based on findings from an EU sustainability project which developed an open e-learning platform for citizens to improve household energy efficiency. Findings showcase how open e-learning users and designers perceive seven interrelated affordances differently: Informing, Assessment, Synthesis, Emphasis, Accessibility, Navigation, and Goal-planning. We put forward recommendations on how designers of open IT artefacts can bridge design-reality gaps by exploring affordance personalisation for diverse user groups.

Research paper thumbnail of How can IS researchers adopt Open Science practices into their research workflows?

As part of the "Open Science Practices in Information Systems Research" minitrack at HI... more As part of the "Open Science Practices in Information Systems Research" minitrack at HICSS 54, a synchronous workshop was created to answer the following question: how can IS researchers adopt Open Science practices into their research workflows?

Research paper thumbnail of Blended Stakeholder Participation for Responsible Information Systems Research

Communications of the Association for Information Systems, 2020

Information Systems (IS) research is often conducted under the assumption that technology use lea... more Information Systems (IS) research is often conducted under the assumption that technology use leads to positive outcomes for different stakeholders. However, many IS studies demonstrate limited evidence of having engaged with the stakeholders that they claim benefit and speak on behalf of. It is therefore not surprising that examples abound of where technology use has failed ‘to make the world a better place’, or worse still has contributed towards unintended negative outcomes. In light of these concerns, calls have recently emerged for responsible research and innovation (RRI) studies in IS to understand how different stakeholder groups can have a voice in complex socio-technical issues. In this paper, we take steps towards addressing this call by presenting case study findings from a responsible IS research project which combined ‘blended’ face-to-face and online participatory techniques. The case study relates to a large-scale consultation undertaken in a 24-month European project involving 30 countries. The project engaged over 1,500 stakeholders in the co-creation of future research agendas for the European Union. We discuss case study findings using Stilgoe, Owen, & Macnaghten’s (2013) RRI framework (Anticipation, Reflexivity, Inclusion, Deliberation, Responsiveness) and reflect on lessons learned for responsible IS research going forward.

Research paper thumbnail of Open e-learning platforms and the design–reality gap: an affordance theory perspective

Information Technology & People

PurposeThe dropout rates of open e-learning platforms are often cited as high as 97%, with many u... more PurposeThe dropout rates of open e-learning platforms are often cited as high as 97%, with many users discontinuing their use after initial acceptance. This study aims to explore this anomaly through the lens of affordances theory, revealing design–reality gaps between users' diverse goals and the possibilities for action provided by an open IT artefact.Design/methodology/approachA six-month case study was undertaken to investigate the design implications of user-perceived affordances in an EU sustainability project which developed an open e-learning platform for citizens to improve their household energy efficiency. Thematic analysis was used to reveal the challenges of user continuance behaviour based on how an open IT artefact supports users in achieving individual goals (e.g. reducing energy consumption in the home) and collective goals (lessening the carbon footprint of society).FindingsBased on the findings, the authors inductively reveal seven affordances related to open ...

Research paper thumbnail of Hear our Voice! Exploring Citizens' Perspectives on the Digitalization of Life

Hear our voice! The digitalization of life has transformed what we believe, how we think, feel an... more Hear our voice! The digitalization of life has transformed what we believe, how we think, feel and act. Much of this digitalization of life has been brought to citizens by large companies focused on connecting us via internet platforms. But, what do citizens need or wish for from the internet? Questions have been raised around the privacy, security, and integrity of information provided over the web. However, if the voice of citizens is missing, we cannot make an imprint for change. 'We, the Internet' is a global consultation project which aims to redress this imbalance by asking citizens their thoughts and feelings on the internet. Their input will help to shape this technology for a better future. The citizen participation events and forecasting methods, aim to question ideas on the digitalization of life – what are citizen's views on the internet, its opportunities, and risks? How do citizens feel about the prevalence of disinformation? What is the role of artificial ...

Research paper thumbnail of The Pragmatic School of Thought in Open Science: A Case Study of Multi-stakeholder Participation in Shaping the Future of Internet Governance

The internet is a disruptive technology that continues to define our modern world. However, numer... more The internet is a disruptive technology that continues to define our modern world. However, numerous ethical challenges remain for internet governance going forward, e.g. surveillance capitalism, terrorism and radicalisation. The 'pragmatic' school of thought in open science advocates for collaboration between diverse stakeholder groups (e.g. citizens, academics, practitioners, policymakers) to ensure an informed, and positive imprint for change. However, our understanding of how open science can be used for assimilating knowledge on complex socio-political issues remains nascent. To address this gap, we present findings from 'We, the Internet', a global consultation project which utilised open science practices such as stakeholder-led evaluations and open access publications to engage stakeholders in dialogue around the future of internet governance. Our findings discuss emergent themes on the future of internet governance, and highlight the potential of open scienc...

Research paper thumbnail of Beyond a “Take It” or “Leave It” Approach to eConsent Design on Health Social Networks

International Journal of Patient-Centered Healthcare, 2020

With the proliferation of eHealth resources promoting health data storage, analysis, and dissemin... more With the proliferation of eHealth resources promoting health data storage, analysis, and dissemination, it is important for individuals to understand the implications of sharing their highly sensitive personal health information (PHI) online. However, uncertainty remains about the level of individual awareness and understanding when sharing PHI on health social networks (HSN). This article explores individuals' emotion and cognition in the provision of eConsent for PHI on a HSN focusing on individual engagement of emotion pre- and post-registration. Prior to participants reading the HSN's privacy policy (PP) and terms and conditions (T&Cs), a ‘just click' behavior was widely observed. This article shows that educating users about the implications of T&Cs and PPs changes their attitudes toward giving eConsent. By exploring individual emotion and cognition, this study proposes guidelines for software developers designing eConsent for HSNs.

Research paper thumbnail of The Pragmatic School of Thought in Open Science Practice: A Case Study of Multi-stakeholder Participation in Shaping the Future of Internet Governance

Proceedings of the Annual Hawaii International Conference on System Sciences, 2021

Research paper thumbnail of The Dark Side of Risk Homeostasis when joining Health Social Networks

Social networking sites capture, store, analyse and exploit personal data resulting in heightened... more Social networking sites capture, store, analyse and exploit personal data resulting in heightened uncertainty and perceived risk around protecting our personal data. When this data involves personal health information (PHI) the risk factors increase. These risks can be discovered in both the design and presentation of Health Social Networking (HSN) services, as well as the actions of users when providing electronic consent (eConsent). How do users interact with technology and determine the potential risks to their PHI data? This paper seeks to explore users’ behaviours and reflections on risk taking when registering onto a HSN. Examining users’ registration behaviours, it is possible to explore users’ risk homeostasis when providing eConsent on a HSN. This paper focuses on understanding the users’ decision making process to the reading and comprehension of the Terms and Conditions (T&Cs), and Privacy Policy (PP) statements. A two-step approach was taken to collecting data, with 1) t...

Research paper thumbnail of Blended Stakeholder Participation for Responsible Information Systems Research

Commun. Assoc. Inf. Syst., 2020

Information Systems (IS) research is often conducted under the assumption that technology use lea... more Information Systems (IS) research is often conducted under the assumption that technology use leads to positive outcomes for different stakeholders. However, many IS studies demonstrate limited evidence of having engaged with the stakeholders that they claim benefit and speak on behalf of. It is therefore not surprising that examples abound of where technology use has failed ‘to make the world a better place’, or worse still has contributed towards unintended negative outcomes. In light of these concerns, calls have recently emerged for responsible research and innovation (RRI) studies in IS to understand how different stakeholder groups can have a voice in complex socio-technical issues. In this paper, we take steps towards addressing this call by presenting case study findings from a responsible IS research project which combined ‘blended’ face-to-face and online participatory techniques. The case study relates to a large-scale consultation undertaken in a 24-month European projec...

Research paper thumbnail of The Evil Side of Sharing Personal Health Information Online

When joining a social network users are typically asked to register and supply their personal/pri... more When joining a social network users are typically asked to register and supply their personal/private information. As part of the registration process, users must confirm that they have read the terms and conditions of site use, as well as the privacy policy for that particular social network. Do people actually read these documents, and do they really understand what they are consenting to? When it comes to sharing personal health conditions with others online, it is worth considering who will have access to this valuable, sensitive data and how it will be used in the future. This research aims to improve the form and accessibility of contractual information presented to users of Health Social Networks (HSNs), by looking at alternative ways to engage and communicate these details on registration. Taking a mixed methods approach, this research observes registration behaviours and questions users on their engagement with eConsent through HSNs. Our aim is to elucidate the challenges, ...

Research paper thumbnail of Comprehension, Perception, and Projection

Journal of Organizational and End User Computing, 2021

Health social networks (HSNs) allow individuals with health information needs to connect and disc... more Health social networks (HSNs) allow individuals with health information needs to connect and discuss health-related issues online. Political-technology intertwinement (e.g. GDPR and Digital Technology) highlights that users need to be aware, understand, and willing to provide electronic consent (eConsent) when sharing personal information online. The objective of this study is to explore the ‘As-Is’ factors which impact individuals’ decisional autonomy when consenting to the privacy policy (PP) and Terms and Conditions (T&Cs) on a HSN. We use a Situational Awareness (SA) lens to examine decision autonomy when providing eConsent. A mixed-methods approach reveals that technical and privacy comprehension, user perceptions, and projection of future consequences impact participants’ decision autonomy in providing eConsent. Without dealing with the privacy paradox at the outset, decision awareness and latterly decision satisfaction is negatively impacted. Movement away from clickwrap onli...

Research paper thumbnail of Exploring User Behaviours when Providing Electronic Consent on Health Social Networks: A ‘Just Tick Agree’ Approach

Procedia Computer Science, 2017

Access to the full text of the published version may require a subscription.

Research paper thumbnail of Vision and Voice in eConsent: Future Trends for Health Social Networks

Procedia Computer Science, 2018

Research paper thumbnail of Privacy by Design: Informed Consent and Internet of Things for Smart Health

Procedia Computer Science, 2017

Access to the full text of the published version may require a subscription.

Research paper thumbnail of Exploring The Situational Approach To Decision Making: User Econsent On A Health Social Network

Situation Awareness can offer the potential for conscious dynamic reflection. In an era of online... more Situation Awareness can offer the potential for conscious dynamic reflection. In an era of online health data sharing, it is becoming increasingly important that users of health social networks (HSNs) have the information necessary to make informed decisions as part of the registration process and in the provision of eConsent. This research aims to leverage an adapted Situation Awareness (SA) model to explore users' decision making processes in the provision of eConsent. PatientsLikeMe - HSN platform was used to investigate these behaviours. A mixed methods approach was taken. This involved the observation of registration behaviours followed by a questionnaire and focus group/s. Early results suggest that users are apt to automatically accept eConsent, and only later consider the long-term implications of sharing their personal health information. Further steps are required to continue developing knowledge and understanding of this important eConsent process. The next step in th...