joke wielenga - Academia.edu (original) (raw)
Papers by joke wielenga
Archives of Disease in Childhood, 2014
Method A neonatal research nurse was recruited in 2012. Measures were implemented to increase the... more Method A neonatal research nurse was recruited in 2012. Measures were implemented to increase the number and complexity of studies, and to be proactive in effective screening mechanisms, resulting in early identification of patients. Research was actively promoted, and teaching provided on a rolling programme. A close link was established with the Paediatric Research Nursing Team, to provide administrative support and cover in times of absence. Links were made with research colleagues both regionally and nationally, and attendance at study days and conferences were identified as effective networking strategies. Parental participation in research was encouraged, with the research nurse providing a link for the parents. Results The number of studies has increased from an average of 1 ongoing study to 7 current studies. These studies include a meningitis study, a vaccine study, a platelet transfusion study and a large cohort observational study. A Patient Participation Involvement study is planned for the near future, and a service evaluation of the research team is awaiting approval. Conclusions Effective neonatal research is dependent on a motivated and adequately resourced research team, including dedicated nursing research time. This has ensured that our LNNU will continue to provide excellent neonatal care, underpinned by research.
Archives of Disease in Childhood, 2014
Background and aims Respiratory incidents are a common problem in preterm infants. There is no un... more Background and aims Respiratory incidents are a common problem in preterm infants. There is no uniform and international accepted definition of the ways these incidents presents themselves nor of the ways infants are handled by nurses to recover from such an incident. Methods First a study of the literature was performed. Secondly a survey with open ended questions was conducted among Intensive Care Neonatal nurses and doctors of the NICU in the Emma Children’s’ Hospital/Academic Medical Centre. Respondents were asked to describe a respirator incident as well as duration (short or long) and intensity (mild or intense) of the handling of the incident and the presentation (isolated, cluster or prolonged) of incident. Thirdly descriptions were formulated and an attempt for consensus was executed. Results Response rate for the consensus part was 69 (94% female and 80% nurses). Thirty-five percent was attached to the NICU for less than five years, 30% between five and 15 years and 35% for more than 15 years. Consensus was reached on the description of a respirator incident (72.5%), on handling of an incident concerning duration; short- (73.9%), long- (79.7%), mild- (84.1%) and intense stimulation (84.0%) as well as on the presentation of an incident; isolated- (72.5%), clustered- (76.8%) or persistent incident (84.1%). Conclusions Implementation of the descriptions formulated in this study could lead to a more common language among professionals in the care of the preterm infant suffering from respiratory insufficiency. Professionals speaking the same language will result in a better quality of care.
Archives of Disease in Childhood, 2014
Parent participation in the nursing process significantly contributes to the overall wellbeing of... more Parent participation in the nursing process significantly contributes to the overall wellbeing of a newborn and the whole family. It is important to ensure that nurses, who take care of newborns and collaborate with their family members, are well-acquainted with the influence that an infant's illness and critical condition as well as the stress have on the functioning of a family unit The Aim To compare parents' and nurses' perceptions of parents needs in Neonatal Intensive Care Unit. The study was conducted in Kaunas University Hospital NICU. The sample consisted of 181 parents and 37 nurses. The NICU Family Needs Inventory was used for data collection. The instrument included five following subscales of needs: proximity, information, assurance, support and comfort. Reliability of the scale was identified as 0.94 using Cronbach's a. The parents' needs perceived by both groups were compared within the subscales. Using Mann'o-Whitney rank test the significant differences between the parents' and nurses' assessments of individual statements were identified. The majority of statistically significant differences between parents and nurses have been found in case of assessment of proximity (75.0%) and informational (72.7%) needs related to the possibility for parents to be close to their newborn and to receive timely and adequate information about their newborn's health condition. Parents, if compared to nurses, assessed these needs as more important. The assessment of support needs showed the lowest number of differences (38.9%). There was a statistically significant difference in case of the decision making needs related to the newborn care that parents identified as being more important. Nurses perceived as being more important the needs related to parent-toparent support and possibility to share feelings. The comparison of parents and nurses perceptions of parents needs in NICU showed that there are statistically significant differences of individual statements assessment within the all five subscales.
TVZ - Verpleegkunde in praktijk en wetenschap
The Journal of Perinatal & Neonatal Nursing
Journal of Neonatal Nursing
Archives of Disease in Childhood
Children Clinic/Academic Medical Center in Amsterdam the Netherlands was a complicated process. M... more Children Clinic/Academic Medical Center in Amsterdam the Netherlands was a complicated process. Methods A multidisciplinary workgroup, 5 nurses, 5 neonatologists and a pharmacist composed a phased implementation procedure which consisted of the following activities: A multidisciplinary meeting before and 10 months after implementation; Existing protocols were made evidence based; Working visits were made; A centre of expertise was established; A group of experienced nurses and doctors were steered as leaders in the care; Clinics and workshops for leading nurses; Clinics for all professionals concerned; Sessions for nurses to reflect and learn from each other; Evaluation of the implementation; and an Inventory to readjust existing guideline. Results Due to media attention, an early start was forced. Protocols were not ready, material and equipment not available. The number of infants was higher than expected. The decision to perform the care for these infants by leading nurses resulted in agitation amongst other nurses. Their opinion was that complex nursing care should be performed by all experienced nurses. New rules resulted in a lack of clarity. Conclusions Well-considered choices were made, however it appeared that nurses were in need of training on the job instead of planned theoretical training in advance.
Het Nederlands Tijdschrift Voor Evidence Based Practice, 2007
An electronic delphi study to establish pediatric intensive care nursing research priorities in t... more An electronic delphi study to establish pediatric intensive care nursing research priorities in twenty European countries*.
Intensive care medicine, 2016
This position statement provides clinical recommendations for the assessment of pain, level of se... more This position statement provides clinical recommendations for the assessment of pain, level of sedation, iatrogenic withdrawal syndrome and delirium in critically ill infants and children. Admission to a neonatal or paediatric intensive care unit (NICU, PICU) exposes a child to a series of painful and stressful events. Accurate assessment of the presence of pain and non-pain-related distress (adequacy of sedation, iatrogenic withdrawal syndrome and delirium) is essential to good clinical management and to monitoring the effectiveness of interventions to relieve or prevent pain and distress in the individual patient. A multidisciplinary group of experts was recruited from the members of the European Society of Paediatric and Neonatal Intensive Care (ESPNIC). The group formulated clinical questions regarding assessment of pain and non-pain-related distress in critically ill and nonverbal children, and searched the PubMed/Medline, CINAHL and Embase databases for studies describing the ...
Tijdschrift voor kindergeneeskunde
Nursing in Critical Care, 2015
Archives of Disease in Childhood, 2012
Tijdschrift voor kindergeneeskunde, 2002
Summary Design. Sample of an open population. Setting. Neonatology department (Neonatal Intensi... more Summary Design. Sample of an open population. Setting. Neonatology department (Neonatal Intensive Care Unit), Academic Medical Centre/Emma Children's Hospital, Amsterdam. Method. One clinical expert and nine observers observed ventilated premature born babies simultaneously. Criterion validity was assessed by correlating the comfort scale with the clinical judgement regarding the amount of stress. Inter observer reliability was assessed on the clinical judgement
Nederlands Tijdschrift voor Evidence Based Practice, 2012
Family-centered care has become the new trend in the health care field that involves honoring the... more Family-centered care has become the new trend in the health care field that involves honoring the patient and families' perspectives and choices and supporting them in participating in care and decision making at whatever level they choose. Family presence on rounds is one of the guidelines instituted for evidence-based best practices for support of family in the delivery of patient-centered care in the intensive care unit (ICU) but identified as the least studied among all the other aspects of family-centered care in the ICU. From 1988 to 2010, only 1 research study on family presence was conducted in an adult ICU. The purpose of this article was to review research studies related to family presence on medical rounds; reviews that focus on both adults and pediatric patients in the critical and noncritical care settings are also included.
Archives of Disease in Childhood, 2014
Method A neonatal research nurse was recruited in 2012. Measures were implemented to increase the... more Method A neonatal research nurse was recruited in 2012. Measures were implemented to increase the number and complexity of studies, and to be proactive in effective screening mechanisms, resulting in early identification of patients. Research was actively promoted, and teaching provided on a rolling programme. A close link was established with the Paediatric Research Nursing Team, to provide administrative support and cover in times of absence. Links were made with research colleagues both regionally and nationally, and attendance at study days and conferences were identified as effective networking strategies. Parental participation in research was encouraged, with the research nurse providing a link for the parents. Results The number of studies has increased from an average of 1 ongoing study to 7 current studies. These studies include a meningitis study, a vaccine study, a platelet transfusion study and a large cohort observational study. A Patient Participation Involvement study is planned for the near future, and a service evaluation of the research team is awaiting approval. Conclusions Effective neonatal research is dependent on a motivated and adequately resourced research team, including dedicated nursing research time. This has ensured that our LNNU will continue to provide excellent neonatal care, underpinned by research.
Archives of Disease in Childhood, 2014
Background and aims Respiratory incidents are a common problem in preterm infants. There is no un... more Background and aims Respiratory incidents are a common problem in preterm infants. There is no uniform and international accepted definition of the ways these incidents presents themselves nor of the ways infants are handled by nurses to recover from such an incident. Methods First a study of the literature was performed. Secondly a survey with open ended questions was conducted among Intensive Care Neonatal nurses and doctors of the NICU in the Emma Children’s’ Hospital/Academic Medical Centre. Respondents were asked to describe a respirator incident as well as duration (short or long) and intensity (mild or intense) of the handling of the incident and the presentation (isolated, cluster or prolonged) of incident. Thirdly descriptions were formulated and an attempt for consensus was executed. Results Response rate for the consensus part was 69 (94% female and 80% nurses). Thirty-five percent was attached to the NICU for less than five years, 30% between five and 15 years and 35% for more than 15 years. Consensus was reached on the description of a respirator incident (72.5%), on handling of an incident concerning duration; short- (73.9%), long- (79.7%), mild- (84.1%) and intense stimulation (84.0%) as well as on the presentation of an incident; isolated- (72.5%), clustered- (76.8%) or persistent incident (84.1%). Conclusions Implementation of the descriptions formulated in this study could lead to a more common language among professionals in the care of the preterm infant suffering from respiratory insufficiency. Professionals speaking the same language will result in a better quality of care.
Archives of Disease in Childhood, 2014
Parent participation in the nursing process significantly contributes to the overall wellbeing of... more Parent participation in the nursing process significantly contributes to the overall wellbeing of a newborn and the whole family. It is important to ensure that nurses, who take care of newborns and collaborate with their family members, are well-acquainted with the influence that an infant's illness and critical condition as well as the stress have on the functioning of a family unit The Aim To compare parents' and nurses' perceptions of parents needs in Neonatal Intensive Care Unit. The study was conducted in Kaunas University Hospital NICU. The sample consisted of 181 parents and 37 nurses. The NICU Family Needs Inventory was used for data collection. The instrument included five following subscales of needs: proximity, information, assurance, support and comfort. Reliability of the scale was identified as 0.94 using Cronbach's a. The parents' needs perceived by both groups were compared within the subscales. Using Mann'o-Whitney rank test the significant differences between the parents' and nurses' assessments of individual statements were identified. The majority of statistically significant differences between parents and nurses have been found in case of assessment of proximity (75.0%) and informational (72.7%) needs related to the possibility for parents to be close to their newborn and to receive timely and adequate information about their newborn's health condition. Parents, if compared to nurses, assessed these needs as more important. The assessment of support needs showed the lowest number of differences (38.9%). There was a statistically significant difference in case of the decision making needs related to the newborn care that parents identified as being more important. Nurses perceived as being more important the needs related to parent-toparent support and possibility to share feelings. The comparison of parents and nurses perceptions of parents needs in NICU showed that there are statistically significant differences of individual statements assessment within the all five subscales.
TVZ - Verpleegkunde in praktijk en wetenschap
The Journal of Perinatal & Neonatal Nursing
Journal of Neonatal Nursing
Archives of Disease in Childhood
Children Clinic/Academic Medical Center in Amsterdam the Netherlands was a complicated process. M... more Children Clinic/Academic Medical Center in Amsterdam the Netherlands was a complicated process. Methods A multidisciplinary workgroup, 5 nurses, 5 neonatologists and a pharmacist composed a phased implementation procedure which consisted of the following activities: A multidisciplinary meeting before and 10 months after implementation; Existing protocols were made evidence based; Working visits were made; A centre of expertise was established; A group of experienced nurses and doctors were steered as leaders in the care; Clinics and workshops for leading nurses; Clinics for all professionals concerned; Sessions for nurses to reflect and learn from each other; Evaluation of the implementation; and an Inventory to readjust existing guideline. Results Due to media attention, an early start was forced. Protocols were not ready, material and equipment not available. The number of infants was higher than expected. The decision to perform the care for these infants by leading nurses resulted in agitation amongst other nurses. Their opinion was that complex nursing care should be performed by all experienced nurses. New rules resulted in a lack of clarity. Conclusions Well-considered choices were made, however it appeared that nurses were in need of training on the job instead of planned theoretical training in advance.
Het Nederlands Tijdschrift Voor Evidence Based Practice, 2007
An electronic delphi study to establish pediatric intensive care nursing research priorities in t... more An electronic delphi study to establish pediatric intensive care nursing research priorities in twenty European countries*.
Intensive care medicine, 2016
This position statement provides clinical recommendations for the assessment of pain, level of se... more This position statement provides clinical recommendations for the assessment of pain, level of sedation, iatrogenic withdrawal syndrome and delirium in critically ill infants and children. Admission to a neonatal or paediatric intensive care unit (NICU, PICU) exposes a child to a series of painful and stressful events. Accurate assessment of the presence of pain and non-pain-related distress (adequacy of sedation, iatrogenic withdrawal syndrome and delirium) is essential to good clinical management and to monitoring the effectiveness of interventions to relieve or prevent pain and distress in the individual patient. A multidisciplinary group of experts was recruited from the members of the European Society of Paediatric and Neonatal Intensive Care (ESPNIC). The group formulated clinical questions regarding assessment of pain and non-pain-related distress in critically ill and nonverbal children, and searched the PubMed/Medline, CINAHL and Embase databases for studies describing the ...
Tijdschrift voor kindergeneeskunde
Nursing in Critical Care, 2015
Archives of Disease in Childhood, 2012
Tijdschrift voor kindergeneeskunde, 2002
Summary Design. Sample of an open population. Setting. Neonatology department (Neonatal Intensi... more Summary Design. Sample of an open population. Setting. Neonatology department (Neonatal Intensive Care Unit), Academic Medical Centre/Emma Children's Hospital, Amsterdam. Method. One clinical expert and nine observers observed ventilated premature born babies simultaneously. Criterion validity was assessed by correlating the comfort scale with the clinical judgement regarding the amount of stress. Inter observer reliability was assessed on the clinical judgement
Nederlands Tijdschrift voor Evidence Based Practice, 2012
Family-centered care has become the new trend in the health care field that involves honoring the... more Family-centered care has become the new trend in the health care field that involves honoring the patient and families' perspectives and choices and supporting them in participating in care and decision making at whatever level they choose. Family presence on rounds is one of the guidelines instituted for evidence-based best practices for support of family in the delivery of patient-centered care in the intensive care unit (ICU) but identified as the least studied among all the other aspects of family-centered care in the ICU. From 1988 to 2010, only 1 research study on family presence was conducted in an adult ICU. The purpose of this article was to review research studies related to family presence on medical rounds; reviews that focus on both adults and pediatric patients in the critical and noncritical care settings are also included.