Abb Eqdam | Karolinska Institutet (original) (raw)

Papers by Abb Eqdam

Mild acquired cognitive impairment (MACI) is a term used to describe a sub-group of persons with ... more Mild acquired cognitive impairment (MACI) is a term used to describe a sub-group of persons with mild cognitive impairment who are expected to reach a stable cognitive level over time. One strategy that can be considered for further developing treatment for this group is the use of information and communication technology and e-services. The purpose of this study is to investigate the current use of common e-services and social media by persons with mild cognitive impairment and to explore their opinions and experiences.

Studies in Health Technology and Informatics, 2011

This research work is an explorative study to measure efficiency, effectiveness and user satisfac... more This research work is an explorative study to measure efficiency, effectiveness and user satisfaction of a prototype called Infobiotika aiming to support antibiotic use in intensive care. The evaluation was performed by combining traditional usability testing with eye-tracking technology. The test was conducted with eight intensive care physicians whereof four specialists and four residents. During three test phases participants were asked to perform three types of tasks, namely navigational, clinical and tasks to measure the learning effect after 3-5 minutes free exploring time. A post-test questionnaire was used to explore user satisfaction. Based on the results and overall observations, Infobiotika seems to be effective and efficient in terms of supporting navigation and also a learnable product for intensive care physicians fulfilling their need to get an accurate overview of a patient status quickly. Applying eye-tracking technology during usability testing has shown to be a va...

Mild acquired cognitive impairment (MACI) is a term used to characterise persons who acquire a mi... more Mild acquired cognitive impairment (MACI) is a term used to characterise persons who acquire a minor, non-progressive decrease in cognitive functions due to some physical trauma, or medical conditions, such as benign tumour, cardiovascular diseases (stroke), or side effects of medical treatment. Persons with MACI might suffer from multiple cognitive and/or slight physical disabilities and need rehabilitation to recover and regain their skills. Information and communication technology (ICT) is one approach that can be considered for assisting persons with MACI to improve their skills, support their self-management, and cope with their condition. However, understanding how persons with MACI use and experience ICT tools is a challenging task. This thesis belongs to the field of consumer health informatics (CHI). The overall aim of this research was to understand how regular ICT tools are used by persons with MACI in their daily lives. In addition, the aim was to explore how to capture ...

Life

Despite the great advances in the field of electronic health records (EHRs) over the past 25 year... more Despite the great advances in the field of electronic health records (EHRs) over the past 25 years, implementation and adoption challenges persist, and the benefits realized remain below expectations. This scoping review aimed to present current knowledge about the effects of EHR implementation and the barriers to EHR adoption and use. A literature search was conducted in PubMed, Web of Science, IEEE Xplore Digital Library and ACM Digital Library for studies published between January 2005 and May 2020. In total, 7641 studies were identified of which 142 met the criteria and attained the consensus of all researchers on inclusion. Most studies (n = 91) were published between 2017 and 2019 and 81 studies had the United States as the country of origin. Both positive and negative effects of EHR implementation were identified, relating to clinical work, data and information, patient care and economic impact. Resource constraints, poor/insufficient training and technical/educational suppor...

Applied Clinical Informatics

Background Integration of electronic information is a challenge for multitasking emergency provid... more Background Integration of electronic information is a challenge for multitasking emergency providers, with implications for patient safety. Visual representations can assist sense-making of complex data sets; however, benefit and acceptability in emergency care is unproven. Objectives This article evaluates visually focused alternatives to lists or tabular formats, to better understand possible usability in Emergency Department Information System (EDIS). Methods A counterbalanced, repeated-measures experiment, satisfaction surveys, and narrative content analysis was conducted remotely by Web platform. Participants were 37 American emergency physicians; they completed 16 clinical cases comparing 4 visual designs to the control formats from a commercially available EDIS. They then evaluated two additional chart overview representations without controls. Results Visual designs provided benefit in several areas compared to controls. Task correctness (90% to 76%; p = 0.003) and completio...

PLOS ONE

Data Availability Statement: We are legally restricted from sharing the data underlying our study... more Data Availability Statement: We are legally restricted from sharing the data underlying our study due to the ethical approval that has been obtained for all persons who have access to the anonymised data set. The original data set is in Swedish language and has been archived in the Department of Learning, Informatics, Management and ethics at Karolinska Institutet and it is available for researchers who meet the criteria to access the confidential data by the Regional Ethics Committee. The contact person for requesting the data would be the Health Informatics Centre's administrator Conclusions This study indicated that social media and in this case Facebook is used for communication and social support by persons with potential MACI, and revealed that their communication behavior is similar to the healthy population. Further studies relating specific cognitive problems of the participants to the use of social media would provide more reliable results for this specific group.

Studies in health technology and informatics, 2017

This study was conducted as a social network analysis of a Facebook group for Swedish speaking pe... more This study was conducted as a social network analysis of a Facebook group for Swedish speaking persons (1310 members) with perceived brain fatigue after an illness or injury to the brain to address the lack of research examining social media and the potential value of on-line support for persons with mild acquired cognitive impairment.

PloS one, 2018

Social media has the potential to increase social participation and support for the well-being of... more Social media has the potential to increase social participation and support for the well-being of individuals with chronic medical conditions. To date, Facebook is the most popular social medium for different types of communication. However, there is a lack of knowledge about the potential use of Facebook as a means of communication for persons with potential Mild Acquired Cognitive Impairment (MACI), a non-progressive mild cognitive impairment after an acquired brain injury. The aim of this study was to explore how persons with potential MACI, specifically persons with perceived brain fatigue after brain injury, communicate through Facebook, to classify the content of the communication and to visualize the frequency and types of interactions. A social network analysis of the interactions between members' and a qualitative content analysis of a whole year's communication of a public Facebook group for Swedish speaking persons (1310 members) with perceived brain fatigue after...

Studies in Health Technology and Informatics, 2011

This research work is an explorative study to measure efficiency, effectiveness and user satisfac... more This research work is an explorative study to measure efficiency, effectiveness and user satisfaction of a prototype called Infobiotika aiming to support antibiotic use in intensive care. The evaluation was performed by combining traditional usability testing with eye-tracking technology. The test was conducted with eight intensive care physicians whereof four specialists and four residents. During three test phases participants were asked to perform three types of tasks, namely navigational, clinical and tasks to measure the learning effect after 3-5 minutes free exploring time. A post-test questionnaire was used to explore user satisfaction. Based on the results and overall observations, Infobiotika seems to be effective and efficient in terms of supporting navigation and also a learnable product for intensive care physicians fulfilling their need to get an accurate overview of a patient status quickly. Applying eye-tracking technology during usability testing has shown to be a valuable complement to traditional methods that revealed many unexpected issues in terms of navigation and contributed a supplementary understanding about design problems and user performance.

PLOS ONE, 2016

Mild acquired cognitive impairment is a term used to describe a sub-group of persons with mild co... more Mild acquired cognitive impairment is a term used to describe a sub-group of persons with mild cognitive impairment who are expected to reach a stable cognitive level over time. One tactic that can be considered for further developing treatment for this group is the use of information and communication technology and e-services. The purpose of this study was to investigate the current use of regular e-services and social media by this group as well as their user experiences. Data were collected through a self-administered survey and analyzed using quantitative methods. The questionnaire included questions regarding the participants' use of and experience with e-services. Categorization of e-services was based on and cross-validated with the International Classification of Functioning, Disability and Health (ICF). To estimate participants' degree and type of impairment, the Cognitive Failure Questionnaire (CFQ), measuring cognitive difficulties in performing everyday tasks, was added. In total, 282 persons with acquired brain injury participated in the survey. The participants' CFQ scores showed that they were suffering from mild to moderate cognitive impairments, most often acquired from traumatic brain injuries (40%). The majority (89%) used e-services in different categories whereof the most popular and essential ones were communication services (59%) and banking (39%) services. Participants with higher total CFQ scores (>58) used more e-services in most of the categories compared to participants with lower scores (<31). Although participants were interested in social media, they were annoyed by advertisements and the Internet speed in general. Some participants reported privacy concerns and addictive behavior. However, they mostly considered e-services to be trustworthy and supportive in different contexts. The usage of electronic devices decreased by age with the exception of electronic tablets that were used by older participants approximately as frequently as by other age groups. Although persons with mild to moderate acquired brain injury used various e-services that are not customized for them, very few participants used self-care health services (apps) and readers (e-readers). Further studies are needed on utilizing these identified aspects for this group to support them with their chronic condition.

PLOS ONE, 2016

Mild acquired cognitive impairment is a term used to describe a sub-group of persons with mild co... more Mild acquired cognitive impairment is a term used to describe a sub-group of persons with mild cognitive impairment who are expected to reach a stable cognitive level over time. One tactic that can be considered for further developing treatment for this group is the use of information and communication technology and e-services. The purpose of this study was to investigate the current use of regular e-services and social media by this group as well as their user experiences. Data were collected through a self-administered survey and analyzed using quantitative methods. The questionnaire included questions regarding the participants' use of and experience with e-services. Categorization of e-services was based on and cross-validated with the International Classification of Functioning, Disability and Health (ICF). To estimate participants' degree and type of impairment, the Cognitive Failure Questionnaire (CFQ), measuring cognitive difficulties in performing everyday tasks, was added. In total, 282 persons with acquired brain injury participated in the survey. The participants' CFQ scores showed that they were suffering from mild to moderate cognitive impairments, most often acquired from traumatic brain injuries (40%). The majority (89%) used e-services in different categories whereof the most popular and essential ones were communication services (59%) and banking (39%) services. Participants with higher total CFQ scores (>58) used more e-services in most of the categories compared to participants with lower scores (<31). Although participants were interested in social media, they were annoyed by advertisements and the Internet speed in general. Some participants reported privacy concerns and addictive behavior. However, they mostly considered e-services to be trustworthy and supportive in different contexts. The usage of electronic devices decreased by age with the exception of electronic tablets that were used by older participants approximately as frequently as by other age groups. Although persons with mild to moderate acquired brain injury used various e-services that are not customized for them, very few participants used self-care health services (apps) and readers (e-readers). Further studies are needed on utilizing these identified aspects for this group to support them with their chronic condition.

2015 International Conference on Healthcare Informatics, 2015

Studies in health …, 2011

This research work is an explorative study to measure efficiency, effectiveness and user satisfac... more This research work is an explorative study to measure efficiency, effectiveness and user satisfaction of a prototype called Infobiotika aiming to support antibiotic use in intensive care. The evaluation was performed by combining traditional usability testing with eye-tracking technology. The test was conducted with eight intensive care physicians whereof four specialists and four residents. During three test phases participants were asked to perform three types of tasks, namely navigational, clinical and tasks to measure the learning effect after 3-5 minutes free exploring time. A post-test questionnaire was used to explore user satisfaction. Based on the results and overall observations, Infobiotika seems to be effective and efficient in terms of supporting navigation and also a learnable product for intensive care physicians fulfilling their need to get an accurate overview of a patient status quickly. Applying eye-tracking technology during usability testing has shown to be a valuable complement to traditional methods that revealed many unexpected issues in terms of navigation and contributed a supplementary understanding about design problems and user performance.

Journal of Medical Internet …, 2012

BackgroundMild acquired cognitive impairment (MACI) is a new term used to describe a subgroup of ... more BackgroundMild acquired cognitive impairment (MACI) is a new term used to describe a subgroup of patients with mild cognitive impairment (MCI) who are expected to reach a stable cognitive level over time. This patient group is generally young and have acquired MCI from a head injury or mild stroke. Although the past decade has seen a large amount of research on how to use information and communication technology (ICT) to support self-management of patients with chronic diseases, MACI has not received much attention. Therefore, there is a lack of information about what tools have been created and evaluated that are suitable for self-management of MACI patients, and a lack of clear direction on how best to proceed with ICT tools to support self-management of MACI patients.ObjectiveThis paper aims to provide direction for further research and development of tools that can support health care professionals in assisting MACI patients with self-management. An overview of studies reporting on the design and/or evaluation of ICT tools for assisting MACI patients in self-management is presented. We also analyze the evidence of benefit provided by these tools, and how their functionality matches MACI patients’ needs to determine areas of interest for further research and development.MethodsA review of the existing literature about available assistive ICT tools for MACI patients was conducted using 8 different medical, scientific, engineering, and physiotherapy library databases. The functionality of tools was analyzed using an analytical framework based on the International Classification of Functioning, Disability and Health (ICF) and a subset of common and important problems for patients with MACI created by MACI experts in Sweden.ResultsA total of 55 search phrases applied in the 8 databases returned 5969 articles. After review, 7 articles met the inclusion criteria. Most articles reported case reports and exploratory research. Out of the 7 articles, 4 (57%) studies had less than 10 participants, 5 (71%) technologies were memory aids, and 6 studies were mobile technologies. All 7 studies fit the profile for patients with MACI as described by our analytical framework. However, several areas in the framework important for meeting patient needs were not covered by the functionality in any of the ICT tools.ConclusionsThis study shows a lack of ICT tools developed and evaluated for supporting self-management of MACI patients. Our analytical framework was a valuable tool for providing an overview of how the functionality of these tools matched patient needs. There are a number of important areas for MACI patients that are not covered by the functionality of existing tools, such as support for interpersonal interactions and relationships. Further research on ICT tools to support self-management for patients with MACI is needed.

Mild acquired cognitive impairment (MACI) is a term used to describe a sub-group of persons with ... more Mild acquired cognitive impairment (MACI) is a term used to describe a sub-group of persons with mild cognitive impairment who are expected to reach a stable cognitive level over time. One strategy that can be considered for further developing treatment for this group is the use of information and communication technology and e-services. The purpose of this study is to investigate the current use of common e-services and social media by persons with mild cognitive impairment and to explore their opinions and experiences.

Studies in Health Technology and Informatics, 2011

This research work is an explorative study to measure efficiency, effectiveness and user satisfac... more This research work is an explorative study to measure efficiency, effectiveness and user satisfaction of a prototype called Infobiotika aiming to support antibiotic use in intensive care. The evaluation was performed by combining traditional usability testing with eye-tracking technology. The test was conducted with eight intensive care physicians whereof four specialists and four residents. During three test phases participants were asked to perform three types of tasks, namely navigational, clinical and tasks to measure the learning effect after 3-5 minutes free exploring time. A post-test questionnaire was used to explore user satisfaction. Based on the results and overall observations, Infobiotika seems to be effective and efficient in terms of supporting navigation and also a learnable product for intensive care physicians fulfilling their need to get an accurate overview of a patient status quickly. Applying eye-tracking technology during usability testing has shown to be a va...

Mild acquired cognitive impairment (MACI) is a term used to characterise persons who acquire a mi... more Mild acquired cognitive impairment (MACI) is a term used to characterise persons who acquire a minor, non-progressive decrease in cognitive functions due to some physical trauma, or medical conditions, such as benign tumour, cardiovascular diseases (stroke), or side effects of medical treatment. Persons with MACI might suffer from multiple cognitive and/or slight physical disabilities and need rehabilitation to recover and regain their skills. Information and communication technology (ICT) is one approach that can be considered for assisting persons with MACI to improve their skills, support their self-management, and cope with their condition. However, understanding how persons with MACI use and experience ICT tools is a challenging task. This thesis belongs to the field of consumer health informatics (CHI). The overall aim of this research was to understand how regular ICT tools are used by persons with MACI in their daily lives. In addition, the aim was to explore how to capture ...

Life

Despite the great advances in the field of electronic health records (EHRs) over the past 25 year... more Despite the great advances in the field of electronic health records (EHRs) over the past 25 years, implementation and adoption challenges persist, and the benefits realized remain below expectations. This scoping review aimed to present current knowledge about the effects of EHR implementation and the barriers to EHR adoption and use. A literature search was conducted in PubMed, Web of Science, IEEE Xplore Digital Library and ACM Digital Library for studies published between January 2005 and May 2020. In total, 7641 studies were identified of which 142 met the criteria and attained the consensus of all researchers on inclusion. Most studies (n = 91) were published between 2017 and 2019 and 81 studies had the United States as the country of origin. Both positive and negative effects of EHR implementation were identified, relating to clinical work, data and information, patient care and economic impact. Resource constraints, poor/insufficient training and technical/educational suppor...

Applied Clinical Informatics

Background Integration of electronic information is a challenge for multitasking emergency provid... more Background Integration of electronic information is a challenge for multitasking emergency providers, with implications for patient safety. Visual representations can assist sense-making of complex data sets; however, benefit and acceptability in emergency care is unproven. Objectives This article evaluates visually focused alternatives to lists or tabular formats, to better understand possible usability in Emergency Department Information System (EDIS). Methods A counterbalanced, repeated-measures experiment, satisfaction surveys, and narrative content analysis was conducted remotely by Web platform. Participants were 37 American emergency physicians; they completed 16 clinical cases comparing 4 visual designs to the control formats from a commercially available EDIS. They then evaluated two additional chart overview representations without controls. Results Visual designs provided benefit in several areas compared to controls. Task correctness (90% to 76%; p = 0.003) and completio...

PLOS ONE

Data Availability Statement: We are legally restricted from sharing the data underlying our study... more Data Availability Statement: We are legally restricted from sharing the data underlying our study due to the ethical approval that has been obtained for all persons who have access to the anonymised data set. The original data set is in Swedish language and has been archived in the Department of Learning, Informatics, Management and ethics at Karolinska Institutet and it is available for researchers who meet the criteria to access the confidential data by the Regional Ethics Committee. The contact person for requesting the data would be the Health Informatics Centre's administrator Conclusions This study indicated that social media and in this case Facebook is used for communication and social support by persons with potential MACI, and revealed that their communication behavior is similar to the healthy population. Further studies relating specific cognitive problems of the participants to the use of social media would provide more reliable results for this specific group.

Studies in health technology and informatics, 2017

This study was conducted as a social network analysis of a Facebook group for Swedish speaking pe... more This study was conducted as a social network analysis of a Facebook group for Swedish speaking persons (1310 members) with perceived brain fatigue after an illness or injury to the brain to address the lack of research examining social media and the potential value of on-line support for persons with mild acquired cognitive impairment.

PloS one, 2018

Social media has the potential to increase social participation and support for the well-being of... more Social media has the potential to increase social participation and support for the well-being of individuals with chronic medical conditions. To date, Facebook is the most popular social medium for different types of communication. However, there is a lack of knowledge about the potential use of Facebook as a means of communication for persons with potential Mild Acquired Cognitive Impairment (MACI), a non-progressive mild cognitive impairment after an acquired brain injury. The aim of this study was to explore how persons with potential MACI, specifically persons with perceived brain fatigue after brain injury, communicate through Facebook, to classify the content of the communication and to visualize the frequency and types of interactions. A social network analysis of the interactions between members' and a qualitative content analysis of a whole year's communication of a public Facebook group for Swedish speaking persons (1310 members) with perceived brain fatigue after...

Studies in Health Technology and Informatics, 2011

This research work is an explorative study to measure efficiency, effectiveness and user satisfac... more This research work is an explorative study to measure efficiency, effectiveness and user satisfaction of a prototype called Infobiotika aiming to support antibiotic use in intensive care. The evaluation was performed by combining traditional usability testing with eye-tracking technology. The test was conducted with eight intensive care physicians whereof four specialists and four residents. During three test phases participants were asked to perform three types of tasks, namely navigational, clinical and tasks to measure the learning effect after 3-5 minutes free exploring time. A post-test questionnaire was used to explore user satisfaction. Based on the results and overall observations, Infobiotika seems to be effective and efficient in terms of supporting navigation and also a learnable product for intensive care physicians fulfilling their need to get an accurate overview of a patient status quickly. Applying eye-tracking technology during usability testing has shown to be a valuable complement to traditional methods that revealed many unexpected issues in terms of navigation and contributed a supplementary understanding about design problems and user performance.

PLOS ONE, 2016

Mild acquired cognitive impairment is a term used to describe a sub-group of persons with mild co... more Mild acquired cognitive impairment is a term used to describe a sub-group of persons with mild cognitive impairment who are expected to reach a stable cognitive level over time. One tactic that can be considered for further developing treatment for this group is the use of information and communication technology and e-services. The purpose of this study was to investigate the current use of regular e-services and social media by this group as well as their user experiences. Data were collected through a self-administered survey and analyzed using quantitative methods. The questionnaire included questions regarding the participants' use of and experience with e-services. Categorization of e-services was based on and cross-validated with the International Classification of Functioning, Disability and Health (ICF). To estimate participants' degree and type of impairment, the Cognitive Failure Questionnaire (CFQ), measuring cognitive difficulties in performing everyday tasks, was added. In total, 282 persons with acquired brain injury participated in the survey. The participants' CFQ scores showed that they were suffering from mild to moderate cognitive impairments, most often acquired from traumatic brain injuries (40%). The majority (89%) used e-services in different categories whereof the most popular and essential ones were communication services (59%) and banking (39%) services. Participants with higher total CFQ scores (>58) used more e-services in most of the categories compared to participants with lower scores (<31). Although participants were interested in social media, they were annoyed by advertisements and the Internet speed in general. Some participants reported privacy concerns and addictive behavior. However, they mostly considered e-services to be trustworthy and supportive in different contexts. The usage of electronic devices decreased by age with the exception of electronic tablets that were used by older participants approximately as frequently as by other age groups. Although persons with mild to moderate acquired brain injury used various e-services that are not customized for them, very few participants used self-care health services (apps) and readers (e-readers). Further studies are needed on utilizing these identified aspects for this group to support them with their chronic condition.

PLOS ONE, 2016

Mild acquired cognitive impairment is a term used to describe a sub-group of persons with mild co... more Mild acquired cognitive impairment is a term used to describe a sub-group of persons with mild cognitive impairment who are expected to reach a stable cognitive level over time. One tactic that can be considered for further developing treatment for this group is the use of information and communication technology and e-services. The purpose of this study was to investigate the current use of regular e-services and social media by this group as well as their user experiences. Data were collected through a self-administered survey and analyzed using quantitative methods. The questionnaire included questions regarding the participants' use of and experience with e-services. Categorization of e-services was based on and cross-validated with the International Classification of Functioning, Disability and Health (ICF). To estimate participants' degree and type of impairment, the Cognitive Failure Questionnaire (CFQ), measuring cognitive difficulties in performing everyday tasks, was added. In total, 282 persons with acquired brain injury participated in the survey. The participants' CFQ scores showed that they were suffering from mild to moderate cognitive impairments, most often acquired from traumatic brain injuries (40%). The majority (89%) used e-services in different categories whereof the most popular and essential ones were communication services (59%) and banking (39%) services. Participants with higher total CFQ scores (>58) used more e-services in most of the categories compared to participants with lower scores (<31). Although participants were interested in social media, they were annoyed by advertisements and the Internet speed in general. Some participants reported privacy concerns and addictive behavior. However, they mostly considered e-services to be trustworthy and supportive in different contexts. The usage of electronic devices decreased by age with the exception of electronic tablets that were used by older participants approximately as frequently as by other age groups. Although persons with mild to moderate acquired brain injury used various e-services that are not customized for them, very few participants used self-care health services (apps) and readers (e-readers). Further studies are needed on utilizing these identified aspects for this group to support them with their chronic condition.

2015 International Conference on Healthcare Informatics, 2015

Studies in health …, 2011

This research work is an explorative study to measure efficiency, effectiveness and user satisfac... more This research work is an explorative study to measure efficiency, effectiveness and user satisfaction of a prototype called Infobiotika aiming to support antibiotic use in intensive care. The evaluation was performed by combining traditional usability testing with eye-tracking technology. The test was conducted with eight intensive care physicians whereof four specialists and four residents. During three test phases participants were asked to perform three types of tasks, namely navigational, clinical and tasks to measure the learning effect after 3-5 minutes free exploring time. A post-test questionnaire was used to explore user satisfaction. Based on the results and overall observations, Infobiotika seems to be effective and efficient in terms of supporting navigation and also a learnable product for intensive care physicians fulfilling their need to get an accurate overview of a patient status quickly. Applying eye-tracking technology during usability testing has shown to be a valuable complement to traditional methods that revealed many unexpected issues in terms of navigation and contributed a supplementary understanding about design problems and user performance.

Journal of Medical Internet …, 2012

BackgroundMild acquired cognitive impairment (MACI) is a new term used to describe a subgroup of ... more BackgroundMild acquired cognitive impairment (MACI) is a new term used to describe a subgroup of patients with mild cognitive impairment (MCI) who are expected to reach a stable cognitive level over time. This patient group is generally young and have acquired MCI from a head injury or mild stroke. Although the past decade has seen a large amount of research on how to use information and communication technology (ICT) to support self-management of patients with chronic diseases, MACI has not received much attention. Therefore, there is a lack of information about what tools have been created and evaluated that are suitable for self-management of MACI patients, and a lack of clear direction on how best to proceed with ICT tools to support self-management of MACI patients.ObjectiveThis paper aims to provide direction for further research and development of tools that can support health care professionals in assisting MACI patients with self-management. An overview of studies reporting on the design and/or evaluation of ICT tools for assisting MACI patients in self-management is presented. We also analyze the evidence of benefit provided by these tools, and how their functionality matches MACI patients’ needs to determine areas of interest for further research and development.MethodsA review of the existing literature about available assistive ICT tools for MACI patients was conducted using 8 different medical, scientific, engineering, and physiotherapy library databases. The functionality of tools was analyzed using an analytical framework based on the International Classification of Functioning, Disability and Health (ICF) and a subset of common and important problems for patients with MACI created by MACI experts in Sweden.ResultsA total of 55 search phrases applied in the 8 databases returned 5969 articles. After review, 7 articles met the inclusion criteria. Most articles reported case reports and exploratory research. Out of the 7 articles, 4 (57%) studies had less than 10 participants, 5 (71%) technologies were memory aids, and 6 studies were mobile technologies. All 7 studies fit the profile for patients with MACI as described by our analytical framework. However, several areas in the framework important for meeting patient needs were not covered by the functionality in any of the ICT tools.ConclusionsThis study shows a lack of ICT tools developed and evaluated for supporting self-management of MACI patients. Our analytical framework was a valuable tool for providing an overview of how the functionality of these tools matched patient needs. There are a number of important areas for MACI patients that are not covered by the functionality of existing tools, such as support for interpersonal interactions and relationships. Further research on ICT tools to support self-management for patients with MACI is needed.