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Research paper thumbnail of Hough Bigby Brookes Direcct Pathways Public+Report+Director+Pathways+Project+Final

Research paper thumbnail of Hough Bigby Brookes Direcct Pathways Public+Report+Director+Pathways+Project+Final

Research paper thumbnail of More-than-care: people with intellectual disability and emerging vulnerability during pandemic lockdown

Transactions of the Institute of British Geographers, 2022

This article offers more-than-care as a framework for analysing how vulnerability emerges in the ... more This article offers more-than-care as a framework for analysing how vulnerability emerges in the lives of people with intellectual disability beyond relations of care. More-than-care detaches vulnerability from the identity category of disability. It provides a framework for conceptualising vulnerability in an unequal, neoliberalising and ableist world and sheds new light on the everevolving constitution of vulnerability and disability. This intervention breaks with conceptions of vulnerability centred on care needs that leave other circumstances that inform vulnerabilities unexamined. Importantly, the framework shifts responsibility for managing vulnerabilities away from carers alone. The more-than-care framework is grounded in socio-material conceptualisations of disability and advances a tripartite framing of vulnerability. First, it grounds studies of vulnerability in histories of spatially uneven investment in infrastructure and resources that shape how care and other practices can assemble to produce, challenge and manage vulnerability. Second, it recalibrates dominant conceptions of the temporality of vulnerability to ensure sensitivity to the unpredictability of emergent vulnerabilities. Third, in following a sociomaterial conceptualisation of intellectual disability, more-than-care expands discussions about agency in the context of vulnerability. These concepts are empirically examined through an analysis of how vulnerability emerges in the lives of four self-advocates with intellectual disability during Melbourne's first and second COVID-19 lockdowns. The analysis shows that vulnerability was highly dynamic and unpredictable as it emerged in complex socio-material assemblages that included care arrangements, embodied experiences and agencies, and past instances of neglect and exploitation.

Research paper thumbnail of After-school jobs for students with intellectual disabilities

Ticket to Work is an initiative of National Disability Services (NDS) that works to improve emplo... more Ticket to Work is an initiative of National Disability Services (NDS) that works to improve employment opportunities and outcomes for young people with disability. Over three years, from 2018 Ticket to Work implemented the After School Jobs project which aimed to facilitate young people with significant disabilities to transition from school to the labour market by offering work experience whilst they were at school and explore the experiences and long-term effects for students of participating in after school jobs. This type of employment is rite of passage, yet there is limited support for young people with intellectual disabilities to have these experiences. Funding from philanthropic sources and the Victorian State Government enabled local networks of secondary schools, employment support organisations, families and employers across Australia to support individual students to reach their after school job goals. This study reported here is in two parts. First a literature review ...

Research paper thumbnail of Strategies to Support People with Intellectual Disabilities to Participate in Voting: Final Report

Research paper thumbnail of Programs and Practices to Support Community Participation of People with Intellectual Disabilities

Handbook of Social Inclusion, 2021

Research paper thumbnail of Empowering People with Intellectual Disabilities to Challenge Stigma

Intellectual Disability and Stigma, 2016

Empowering people with intellectual disabilities to challenge stigma is complex. In many countrie... more Empowering people with intellectual disabilities to challenge stigma is complex. In many countries, decades of social policy designed to promote equal rights and enhance social inclusion have failed to generate the social conditions or the types of support arrangements necessary for people with intellectual disabilities to lead self-determined lives. Their deeply stigmatised social identities are difficult to manage and the disability rights movement has often not welcomed their participation, leaving individuals with few options to challenge negative perceptions. Self-advocacy groups offer distinct social spaces that enable people with intellectual disability to develop more positive social identities and engage in 'subtle radicalism' that challenges stigma. Many people with intellectual disabilities remain on the social and economic margins of society, in our country Australia as much as elsewhere; living in a 'distinct social space' made up of family, paid staff and other people with disabilities, without employment or engagement in meaningful activities or social relationships (Clement & Bigby, 2010; Productivity Commission, 2012). More than three decades of social policies promoting equal rights and social inclusion have failed to generate the social conditions or deliver the individual support necessary to enable people with intellectual disabilities to lead full lives of their own design. Disability discrimination legislation, for example, has achieved far more for people with physical and sensory disabilities than those with intellectual disability. Having an

Research paper thumbnail of Making life good in the community. Implementing a keyworking system in a group home for people with intellectual disabilities

Implementing a keyworking system in a group home for people with intelletual disabilities Acknowl... more Implementing a keyworking system in a group home for people with intelletual disabilities Acknowledgements 1 Introduction 2 The research context 6 3 The keyworker role: Clarifying and informing 4 Implementing keyworking at 96 High Street 23 5 Accounting for the weak implementation of the keyworking system at 96 High Street 5.1 The relationship between the keyworker and the service-user 5.2 The practice of the keyworker 36 5.3 The systems and structures that support keyworking 5.4 Implementing keyworking at 96 High Street: Final comments

Research paper thumbnail of Making mainstream services accessible and responsive to people with intellectual disability : what is the equivalent of lifts and Labradors? Proceedings of the Seventh Annual Roundtable on Intellectual Disability Policy

Research paper thumbnail of Not as connected with people as they want to be' - Optimising outcomes in supported living for people with intellectual disability

Research paper thumbnail of Disability advocacy resource unit model development report

Research paper thumbnail of Transition to retirement : an effective program design to support older workers with intellectual disability participate individually in community groups

Journal of Policy and Practice in Intellectual Disabilities, Jun 1, 2014

Research paper thumbnail of Moving On Without Parents: Planning, Transitions and Sources of Support for Older Adults with Intellectual Disabilities

Research paper thumbnail of Is the National Disability Insurance Scheme Taking Account of People with Intellectual Disabilities?

Research and Practice in Intellectual and Developmental Disabilities, 2014

Research paper thumbnail of ‘I Hope He Dies Before Me’

Routledge Handbook of Disability Studies, 2013

Research paper thumbnail of Social Roles and Informal Support Networks in Mid Life and Beyond

Health of Women with Intellectual Disabilities, 2008

ABSTRACT

Research paper thumbnail of Achieving their own lives: the implementation of individualised funding for people with intellectual disability

Proceedings of the Third Annual Roundtable on …, 2009

... Dr Erin Wilson, & Dr Robert Campain..... 46 Self advocates views on individualise... more ... Dr Erin Wilson, & Dr Robert Campain..... 46 Self advocates views on individualised funding. Reinforce with Dr Patsie Frawley..... 55 Self administration ad direct payments? ...

Research paper thumbnail of More than community presence : social inclusion for people with intellectual disability. Proceedings of the Fourth Annual Roundtable on Intellectual Disability Policy

clinical-academic networks in Nottingham and Glasgow who have provided such responsive sounding-b... more clinical-academic networks in Nottingham and Glasgow who have provided such responsive sounding-boards. I can no longer be sure who first crystallised what idea, so draw on ideas and publications from both projects. Responsibility for the way these are deployed to address the roundtable's interest in participation, and for the concluding implications, lies with me.

Research paper thumbnail of Creating opportunities for convivial encounters for people with intellectual disabilities: “It looks like an accident”

Journal of Intellectual & Developmental Disability, 2020

Background: "Convivial encounter" provides a new lens for understanding social inclusion of peopl... more Background: "Convivial encounter" provides a new lens for understanding social inclusion of people with intellectual disabilities, characterised by shared activity and friendly interactions with strangers without intellectual disabilities. Places, props and support practices facilitate incidental convivial encounters. This study explored processes for deliberately creating opportunities for such encounters. Methods: A case study design used mixed methods to collect data from two disability organisations about convivial encounters the people they supported experienced and staff practices that created these. Results: Most commonly convivial encounters created involved repeated moments of shared activity through which people became known by name by others without disabilities. Eight approaches and five processes were used to create these opportunities for encounter. Conclusions: The study provides a blueprint for scaling up or creating interventions to create opportunities for convivial encounters, and opens lines of enquiry about staff competences needed and parameters for costing this type of intervention.

Research paper thumbnail of Parental strategies that support adults with intellectual disabilities to explore decision preferences, constraints and consequences

Journal of Intellectual & Developmental Disability, 2021

Background: Supporting participation in decision making is complex, dynamic and multifactorial. T... more Background: Supporting participation in decision making is complex, dynamic and multifactorial. The aim of this study was to understand more about the difficulties parents of adults with intellectual disabilities experienced in providing decision support and their strategies for resolving them. Method: Participants were 23 parents who regularly provided decision support for their adult with intellectual disabilities. Most of the adults (19) lived at home. Parents participated in semi-structured interviews at least three times during the study. We applied a social-constructionist theoretical perspective and a template approach for analysis. Results: Findings fell into three core categories, making the right decision, factors that made decision support difficult, and strategies to manage uncertainty, which included controlling, influencing, expanding the adult's horizons and enabling risk. Conclusions: The knowledge gained will help in building the capacity of parents to provide decision support that better understands and respects the will and preferences of the person they support.

Research paper thumbnail of Hough Bigby Brookes Direcct Pathways Public+Report+Director+Pathways+Project+Final

Research paper thumbnail of Hough Bigby Brookes Direcct Pathways Public+Report+Director+Pathways+Project+Final

Research paper thumbnail of More-than-care: people with intellectual disability and emerging vulnerability during pandemic lockdown

Transactions of the Institute of British Geographers, 2022

This article offers more-than-care as a framework for analysing how vulnerability emerges in the ... more This article offers more-than-care as a framework for analysing how vulnerability emerges in the lives of people with intellectual disability beyond relations of care. More-than-care detaches vulnerability from the identity category of disability. It provides a framework for conceptualising vulnerability in an unequal, neoliberalising and ableist world and sheds new light on the everevolving constitution of vulnerability and disability. This intervention breaks with conceptions of vulnerability centred on care needs that leave other circumstances that inform vulnerabilities unexamined. Importantly, the framework shifts responsibility for managing vulnerabilities away from carers alone. The more-than-care framework is grounded in socio-material conceptualisations of disability and advances a tripartite framing of vulnerability. First, it grounds studies of vulnerability in histories of spatially uneven investment in infrastructure and resources that shape how care and other practices can assemble to produce, challenge and manage vulnerability. Second, it recalibrates dominant conceptions of the temporality of vulnerability to ensure sensitivity to the unpredictability of emergent vulnerabilities. Third, in following a sociomaterial conceptualisation of intellectual disability, more-than-care expands discussions about agency in the context of vulnerability. These concepts are empirically examined through an analysis of how vulnerability emerges in the lives of four self-advocates with intellectual disability during Melbourne's first and second COVID-19 lockdowns. The analysis shows that vulnerability was highly dynamic and unpredictable as it emerged in complex socio-material assemblages that included care arrangements, embodied experiences and agencies, and past instances of neglect and exploitation.

Research paper thumbnail of After-school jobs for students with intellectual disabilities

Ticket to Work is an initiative of National Disability Services (NDS) that works to improve emplo... more Ticket to Work is an initiative of National Disability Services (NDS) that works to improve employment opportunities and outcomes for young people with disability. Over three years, from 2018 Ticket to Work implemented the After School Jobs project which aimed to facilitate young people with significant disabilities to transition from school to the labour market by offering work experience whilst they were at school and explore the experiences and long-term effects for students of participating in after school jobs. This type of employment is rite of passage, yet there is limited support for young people with intellectual disabilities to have these experiences. Funding from philanthropic sources and the Victorian State Government enabled local networks of secondary schools, employment support organisations, families and employers across Australia to support individual students to reach their after school job goals. This study reported here is in two parts. First a literature review ...

Research paper thumbnail of Strategies to Support People with Intellectual Disabilities to Participate in Voting: Final Report

Research paper thumbnail of Programs and Practices to Support Community Participation of People with Intellectual Disabilities

Handbook of Social Inclusion, 2021

Research paper thumbnail of Empowering People with Intellectual Disabilities to Challenge Stigma

Intellectual Disability and Stigma, 2016

Empowering people with intellectual disabilities to challenge stigma is complex. In many countrie... more Empowering people with intellectual disabilities to challenge stigma is complex. In many countries, decades of social policy designed to promote equal rights and enhance social inclusion have failed to generate the social conditions or the types of support arrangements necessary for people with intellectual disabilities to lead self-determined lives. Their deeply stigmatised social identities are difficult to manage and the disability rights movement has often not welcomed their participation, leaving individuals with few options to challenge negative perceptions. Self-advocacy groups offer distinct social spaces that enable people with intellectual disability to develop more positive social identities and engage in 'subtle radicalism' that challenges stigma. Many people with intellectual disabilities remain on the social and economic margins of society, in our country Australia as much as elsewhere; living in a 'distinct social space' made up of family, paid staff and other people with disabilities, without employment or engagement in meaningful activities or social relationships (Clement & Bigby, 2010; Productivity Commission, 2012). More than three decades of social policies promoting equal rights and social inclusion have failed to generate the social conditions or deliver the individual support necessary to enable people with intellectual disabilities to lead full lives of their own design. Disability discrimination legislation, for example, has achieved far more for people with physical and sensory disabilities than those with intellectual disability. Having an

Research paper thumbnail of Making life good in the community. Implementing a keyworking system in a group home for people with intellectual disabilities

Implementing a keyworking system in a group home for people with intelletual disabilities Acknowl... more Implementing a keyworking system in a group home for people with intelletual disabilities Acknowledgements 1 Introduction 2 The research context 6 3 The keyworker role: Clarifying and informing 4 Implementing keyworking at 96 High Street 23 5 Accounting for the weak implementation of the keyworking system at 96 High Street 5.1 The relationship between the keyworker and the service-user 5.2 The practice of the keyworker 36 5.3 The systems and structures that support keyworking 5.4 Implementing keyworking at 96 High Street: Final comments

Research paper thumbnail of Making mainstream services accessible and responsive to people with intellectual disability : what is the equivalent of lifts and Labradors? Proceedings of the Seventh Annual Roundtable on Intellectual Disability Policy

Research paper thumbnail of Not as connected with people as they want to be' - Optimising outcomes in supported living for people with intellectual disability

Research paper thumbnail of Disability advocacy resource unit model development report

Research paper thumbnail of Transition to retirement : an effective program design to support older workers with intellectual disability participate individually in community groups

Journal of Policy and Practice in Intellectual Disabilities, Jun 1, 2014

Research paper thumbnail of Moving On Without Parents: Planning, Transitions and Sources of Support for Older Adults with Intellectual Disabilities

Research paper thumbnail of Is the National Disability Insurance Scheme Taking Account of People with Intellectual Disabilities?

Research and Practice in Intellectual and Developmental Disabilities, 2014

Research paper thumbnail of ‘I Hope He Dies Before Me’

Routledge Handbook of Disability Studies, 2013

Research paper thumbnail of Social Roles and Informal Support Networks in Mid Life and Beyond

Health of Women with Intellectual Disabilities, 2008

ABSTRACT

Research paper thumbnail of Achieving their own lives: the implementation of individualised funding for people with intellectual disability

Proceedings of the Third Annual Roundtable on …, 2009

... Dr Erin Wilson, & Dr Robert Campain..... 46 Self advocates views on individualise... more ... Dr Erin Wilson, & Dr Robert Campain..... 46 Self advocates views on individualised funding. Reinforce with Dr Patsie Frawley..... 55 Self administration ad direct payments? ...

Research paper thumbnail of More than community presence : social inclusion for people with intellectual disability. Proceedings of the Fourth Annual Roundtable on Intellectual Disability Policy

clinical-academic networks in Nottingham and Glasgow who have provided such responsive sounding-b... more clinical-academic networks in Nottingham and Glasgow who have provided such responsive sounding-boards. I can no longer be sure who first crystallised what idea, so draw on ideas and publications from both projects. Responsibility for the way these are deployed to address the roundtable's interest in participation, and for the concluding implications, lies with me.

Research paper thumbnail of Creating opportunities for convivial encounters for people with intellectual disabilities: “It looks like an accident”

Journal of Intellectual & Developmental Disability, 2020

Background: "Convivial encounter" provides a new lens for understanding social inclusion of peopl... more Background: "Convivial encounter" provides a new lens for understanding social inclusion of people with intellectual disabilities, characterised by shared activity and friendly interactions with strangers without intellectual disabilities. Places, props and support practices facilitate incidental convivial encounters. This study explored processes for deliberately creating opportunities for such encounters. Methods: A case study design used mixed methods to collect data from two disability organisations about convivial encounters the people they supported experienced and staff practices that created these. Results: Most commonly convivial encounters created involved repeated moments of shared activity through which people became known by name by others without disabilities. Eight approaches and five processes were used to create these opportunities for encounter. Conclusions: The study provides a blueprint for scaling up or creating interventions to create opportunities for convivial encounters, and opens lines of enquiry about staff competences needed and parameters for costing this type of intervention.

Research paper thumbnail of Parental strategies that support adults with intellectual disabilities to explore decision preferences, constraints and consequences

Journal of Intellectual & Developmental Disability, 2021

Background: Supporting participation in decision making is complex, dynamic and multifactorial. T... more Background: Supporting participation in decision making is complex, dynamic and multifactorial. The aim of this study was to understand more about the difficulties parents of adults with intellectual disabilities experienced in providing decision support and their strategies for resolving them. Method: Participants were 23 parents who regularly provided decision support for their adult with intellectual disabilities. Most of the adults (19) lived at home. Parents participated in semi-structured interviews at least three times during the study. We applied a social-constructionist theoretical perspective and a template approach for analysis. Results: Findings fell into three core categories, making the right decision, factors that made decision support difficult, and strategies to manage uncertainty, which included controlling, influencing, expanding the adult's horizons and enabling risk. Conclusions: The knowledge gained will help in building the capacity of parents to provide decision support that better understands and respects the will and preferences of the person they support.