Living with Huntington’s Chorea: The Social Perspective (original) (raw)
Abstract
The psychosocial implications of Huntington’s chorea are extremely important and largely unexplored. With no readily available cure, the major task in the management of this disease is to improve the quality of care. The purpose of this chapter is to provide a greater understanding of the social consequences of Huntington’s chorea in the hope that this may highlight the unmet needs of the patient and his family. By so doing, efforts can then be concentrated on the particularly neglected areas in the management of this disorder.
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References
- Aguilera DC, Messick JM (1978) Crisis intervention: theory and methodology, 3rd edn. CV Mosby, St. Louis
Google Scholar - Bolt JM (1970) Huntington’s chorea in the West of Scotland. Br J Psychiatry 116: 259–270
Article PubMed CAS Google Scholar - Cain A (1977) In: Report to the Commission for the Control of Huntington’s Disease and its Consequences, vol II, Technical Report, US Government Printing Office, Washington, DC, pp 473–497
Google Scholar - Caro A, Haines S (1973) Crime and psychiatry. Justice of the Peace: 621–622
Google Scholar - Dewhurst K, Oliver JE, McKnight AC (1970) Socio–psychiatric consequences of Huntington’s disease. Br J Psychiatry 116: 255–258
Article PubMed CAS Google Scholar - Falek A (1979a) Observations on patient and family coping with Huntington’s disease. Omega 10 (1): 35–42
Article Google Scholar - Falek A (1979b) Communication to Eighth International Workshop on Huntington’s Chorea, Oxford, England
Google Scholar - Hans MB, Koeppen AH (1980) Huntington’s chorea: its impact on the spouse. J Nerv Ment Dis 168: 209–214
Article PubMed CAS Google Scholar - Harper PS, Tyler A, Walker DA, Newcombe RG, Davies K (1979) Huntington’s chorea: The basis for long–term prevention. Lancet II, 346–349
Article PubMed CAS Google Scholar - Hayden MR, Ehrlich R, Parker H, Ferera SJ (1980) Social perspectives in Huntington’s chorea. S Afr Med J 58: 201–203
PubMed CAS Google Scholar - Huntington G (1872) On chorea. Med Surg Rep 26: 317–321
Google Scholar - Kübler–Ross E (1970) On death and dying. Tavistock, London
Google Scholar - Kurtzke J, Beebe G, Nagler B, Nefzger MD, Auth T, Kurland T (1970) Studies on the natural history of multiple sclerosis. V. Long–term survival in young men. Arch Neurol 22: 215–225
PubMed CAS Google Scholar - Office of Health Economics (1980) Huntington’s chorea. OHE Paper 67. OHE, London
Google Scholar - Oliver JE (1970) Huntington’s chorea in Northamptonshire. Br J Psychiatry 116: 241–253
Article PubMed CAS Google Scholar - Parker N (1958) Observations on Huntington’s chorea based on a Queensland survey. Med J Aust 45: 351–359
PubMed CAS Google Scholar - Pines M (1977) Living with a time bomb. In: Commission for the Control of Huntington’s Disease and its Consequences, vol II, Technical report. US Government Printing Office, Washington, DC, pp 383–397
Google Scholar - Reed TE, Chandler JH, Hughes E, Davidson RT (1958) Huntington’s chorea in Michigan: demography and genetics. Am J Hum Genet 10: 201–225
PubMed CAS Google Scholar - Stern R, Eldridge R (1975) Attitudes of patients and their relatives to Huntington’s chorea. J Med Genet 12: 217–223
Article PubMed CAS Google Scholar - Vessie PR (1932) On the transmission of Huntington’s chorea for 300 years. The Bures family group. J Nerv Ment Dis 76: 553–573
Article Google Scholar - Wexler NS (1977) In: Commission for the Control of Huntington’s Disease and its Consequences, vol IV. Government Printing Office, Washington, DC, p 71
Google Scholar - Wexler NS (1979) Genetic ‘Russian roulette’: the experience of being ‘at risk’ for Huntington’s disease. In: Kessler S (ed) Genetic counselling: psychological dimensions. Academic Press, New York London, pp 190–220
Google Scholar - Wilson RS, Garrón DC (1979) Cognitive and affective aspects of Huntington’s disease. In: Chase TN, Wexler NS, Barbeau A (eds) Advances in neurology, vol 23. Raven Press, New York, pp 93–203
Google Scholar
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Authors and Affiliations
- Division of Clinical Genetics, Children’s Hospital Medical Center, 300 Longwood Avenue, 02115, Boston, MA., USA
Michael R. Hayden MB, ChB, PhD, DCH(SA)
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- Michael R. Hayden MB, ChB, PhD, DCH(SA)
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© 1981 Springer-Verlag Berlin Heidelberg
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Hayden, M.R. (1981). Living with Huntington’s Chorea: The Social Perspective. In: Huntington’s Chorea. Springer, London. https://doi.org/10.1007/978-1-4471-1308-9\_8
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- DOI: https://doi.org/10.1007/978-1-4471-1308-9\_8
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