Ellen Rubenstein | University of Oklahoma (original) (raw)
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Papers by Ellen Rubenstein
Abstract In a medical climate where doctors are usually pressed for time, patients commonly leave... more Abstract In a medical climate where doctors are usually pressed for time, patients commonly leave their appointments feeling confused, unable to recall what was discussed, or simply missing information. These communication difficulties result in gaps in patients' knowledge about their conditions and their potential treatments. One response to this problem has been that patients join online health communities as a way to access more information and obtain social support.
Proceedings of the American …, Jan 1, 2010
This panel focuses on expanding concepts of health literacy by exploring how the acquisition and ... more This panel focuses on expanding concepts of health literacy by exploring how the acquisition and use of health information through the context of people's daily lives significantly enhances their understanding and implementation of both acute and chronic health treatment and management. Prevalent health literacy initiatives emphasize core information literacy skills and concerns by addressing issues such as readability, clarity in communication, and appropriate vetting of online health information sources; however, these measures do not address the intricate ways in which people interact with and use information when making decisions about their health.
Proceedings of the American Society for …, Jan 1, 2009
ideals.illinois.edu
This poster presents an analysis of some of the challenges in gaining access and building trust i... more This poster presents an analysis of some of the challenges in gaining access and building trust in an online breast cancer support group. Although the group itself is not a closed group and is freely available on the Internet, divergent participant beliefs about privacy and public access to this website, as well as conceptions of research methods and ethical concerns, offer provocative insights into the perceptions online participants have about research, the role of researchers, and the juxtaposition of researchers and subjects within the context of this particular online community.
alise.org
This study seeks to conceptualize two aspects of an archival model that can serve contemporary us... more This study seeks to conceptualize two aspects of an archival model that can serve contemporary users and institutions in preserving web-born new media objects. There are two central questions: how will such an archive work, and what form will the the objects and collections within them take? That is, what is the place/product that would be built to house objects we would like to save in a manner that reflects what we (as information scientists, knowledge organization specialists, archival thinkers) know about storing, accessing and ...
The Journal of academic librarianship, Jan 1, 2007
Proceedings of the American Society for …, Jan 1, 2008
Few studies have examined the intersection of information behavior and coping of women during the... more Few studies have examined the intersection of information behavior and coping of women during the time period between the discovery of a breast lump and receiving a diagnosis. Those that do look at particular segments of this time without taking the full period into consideration, leaving a gap as to the range of behaviors that may occur throughout the waiting period. This study sought to understand how information behavior interacts with the coping strategies of women who undergo the potentially stressful experience of waiting for a breast lump diagnosis.
Abstract In a medical climate where doctors are usually pressed for time, patients commonly leave... more Abstract In a medical climate where doctors are usually pressed for time, patients commonly leave their appointments feeling confused, unable to recall what was discussed, or simply missing information. These communication difficulties result in gaps in patients' knowledge about their conditions and their potential treatments. One response to this problem has been that patients join online health communities as a way to access more information and obtain social support.
Proceedings of the American …, Jan 1, 2010
This panel focuses on expanding concepts of health literacy by exploring how the acquisition and ... more This panel focuses on expanding concepts of health literacy by exploring how the acquisition and use of health information through the context of people's daily lives significantly enhances their understanding and implementation of both acute and chronic health treatment and management. Prevalent health literacy initiatives emphasize core information literacy skills and concerns by addressing issues such as readability, clarity in communication, and appropriate vetting of online health information sources; however, these measures do not address the intricate ways in which people interact with and use information when making decisions about their health.
Proceedings of the American Society for …, Jan 1, 2009
ideals.illinois.edu
This poster presents an analysis of some of the challenges in gaining access and building trust i... more This poster presents an analysis of some of the challenges in gaining access and building trust in an online breast cancer support group. Although the group itself is not a closed group and is freely available on the Internet, divergent participant beliefs about privacy and public access to this website, as well as conceptions of research methods and ethical concerns, offer provocative insights into the perceptions online participants have about research, the role of researchers, and the juxtaposition of researchers and subjects within the context of this particular online community.
alise.org
This study seeks to conceptualize two aspects of an archival model that can serve contemporary us... more This study seeks to conceptualize two aspects of an archival model that can serve contemporary users and institutions in preserving web-born new media objects. There are two central questions: how will such an archive work, and what form will the the objects and collections within them take? That is, what is the place/product that would be built to house objects we would like to save in a manner that reflects what we (as information scientists, knowledge organization specialists, archival thinkers) know about storing, accessing and ...
The Journal of academic librarianship, Jan 1, 2007
Proceedings of the American Society for …, Jan 1, 2008
Few studies have examined the intersection of information behavior and coping of women during the... more Few studies have examined the intersection of information behavior and coping of women during the time period between the discovery of a breast lump and receiving a diagnosis. Those that do look at particular segments of this time without taking the full period into consideration, leaving a gap as to the range of behaviors that may occur throughout the waiting period. This study sought to understand how information behavior interacts with the coping strategies of women who undergo the potentially stressful experience of waiting for a breast lump diagnosis.