jo brett | Oxford Brookes University (original) (raw)

Papers by jo brett

Objectives/purpose: Cancer follow-up care is moving away from routine, consultant-led models to p... more Objectives/purpose: Cancer follow-up care is moving away from routine, consultant-led models to patient-initiated models of care incorporating supported self-management. A qualitative evaluation of a nurse-led supported early discharge follow-up service for breast cancer patients was conducted to explore how services could be optimised. Methods: 150 women with breast cancer on a supported early discharge follow-up regimen were recruited as part of a mixed methods study from two UK hospitals. Telephone interviews were conducted with a maximum variation subsample (n=20). Thematic analysis was conducted. Results: The majority described positive views towards being on supported early discharge follow-up. A significant proportion, however, reported unmet needs and struggled with navigating uncertainties, related to accessing ongoing care and support, performing breast self-examination, managing ongoing side-effects, future care pathways and recurrence risk. Seven themes emerged relating ...

An online survey was mailed to all researchers and service users (N=38) in 2018 at the end of thi... more An online survey was mailed to all researchers and service users (N=38) in 2018 at the end of this three year study, followed by semi-structured interviews (n=30). Analysis of survey and interview data was informed by realist evaluation principles. Results were reported using the GRIPP2 guidelines. Results: Strong contextual factors and robust processes for PPI facilitated positive impacts on the LAPCD study. Contextual factors included strong leadership of the service user group, commitment and expertise of the service users, clear roles, a positive attitude to involvement from researchers, and sufficient funding for PPI. Processes included a strong collaboration between the service users and the other research team members developed by embedding the PPI into a work-stream that ran alongside all the other 5 work-streams in the study. PPI impacts are reported on the design of the study, sense checking of patient information, at team meetings, analysis of qualitative data, paper writing, developing lay summaries, and dissemination of results. The study size and geographical distance sometimes created challenges for both service users and researchers. More formal feedback channels were suggested for future PPI. Conclusion: Well-resourced, carefully planned PPI ensured effective involvement and positive impacts on the LAPCD study.

Objectives: The aim of this review was to identify the cultural, social, structural and behaviour... more Objectives: The aim of this review was to identify the cultural, social, structural and behavioural factors that influence asymptomatic breast and cervical cancer screening attendance in South Asian populations, in order to improve uptake and propose priorities for further research. Design: A systematic review of the literature for inductive, comparative, prospective and intervention studies. We searched the following databases: MEDLINE/In-Process; Web of Science; EMBASE; SCOPUS; CENTRAL; CDSR; CINAHL; PsycINFO and PsycARTICLES from database inception to 23 January 2018. The review included studies on the cultural, social, structural and behavioural factors that influence asymptomatic breast and cervical cancer screening attendance and cervical smear testing (Papanicolaou test) in South Asian populations and those published in the English language. The Framework Analytic method was used and themes were drawn out following the Thematic Analysis method. Settings: Asymptomatic breast o...

European Journal of Public Health, 2020

Background Bowel cancer is common and accounts for 10% of all cancer mortality. Early detection s... more Background Bowel cancer is common and accounts for 10% of all cancer mortality. Early detection significantly reduces mortality. In the UK, the NHS Bowel Cancer Screening Programme invites adults aged 60-74 years to carry out a home screening test biennially. The national target for test completion is 60%; completion is substantially lower (∼30%) amongst South Asian populations. Our aim was to develop a community-based intervention to increase completion of the home bowel screening test in South Asians. Methods Multi-methods comprising two stages: 1) group and individual interviews with South Asians aged 50-74 years purposively sampled from community groups for maximum variation. Semi-structured interviews based on the Theoretical Domains Framework (TDF) investigated determinants of bowel screening completion. Interviews were recorded, transcribed, and analysed using framework analysis and findings mapped onto the COM-B Behaviour Change Wheel; 2) Co-production of intervention during...

$Research paper thumbnail of Patient-reported outcome measures in older people with hip fracture: a systematic review of quality and acceptability$

Quality of Life Research, 2016

Patient-reported outcome measures in older people with hip fracture: a systematic review of quali... more Patient-reported outcome measures in older people with hip fracture: a systematic review of quality and acceptability.

Journal of Medical Screening, 1997

Background— It was the original intention of the UK National Health Service Breast Screening Prog... more Background— It was the original intention of the UK National Health Service Breast Screening Programme (NHSBSP) to place women who were not diagnosed with cancer on three yearly routine recall (RR). In 1994–5 approximately 16 500 women, aged SO to 64, were placed on early recall (ER) at a shorter time interval, of which about 98% will have a normal result. This large number exceeds the expectations of the NHSBSP. Objective— To establish the adverse psychological consequences (PCs) for women one month after placement on ER because of a diagnostic uncertainty, and if detected, to suggest practical solutions to reduce them. Methods— Thirteen breast screening centres throughout the UK participated in the study. From March to October 199S all women who were placed on ER because of a diagnostic uncertainty were identified and compared with groups of women placed on RR (after mammography, assessment, fine needle aspiration, and a benign biopsy). These women were invited to complete a posta...

British Journal of Ophthalmology, 2013

To determine the feasibility of Ultra wide-field intravenous fundus fluorescein angiography (UWF-... more To determine the feasibility of Ultra wide-field intravenous fundus fluorescein angiography (UWF-IV-FFA) in infants. A retrospective review of infants who underwent UWF-IV-FFA with the Optos P200MA was performed. The ability to capture different phases of the angiogram, the total image acquisition time and the presence of image artefacts were analysed. Twelve infants with a variety of proliferative retinopathies underwent UWF-IV-FFA over a 7-month period. The mean age was 3.4 months (range 2-6 months) and the mean image acquisition time was 4 min (range 3-5). Pseudocolour fundus images and the venous, recirculation and late phases of UWF-IV-FFA were captured successfully in all infants (100%). Choroidal and arterial phases were captured in one (8.3%) and 10 (83.3%) infants, respectively. Image artefacts due to eyelashes and corneal desiccation occurred in nine (75%) and six (50%) infants, respectively. No adverse medical problems were noted. We have shown that UWF-IV-FFA can be successfully and safely performed in infants using the Optos P200MA system. It is a feasible new alternative to RetCam for obtaining an IV-FFA in the outpatients setting.

Kate Seers, Sandy Herron-Marx and Helen Bayliss 5.6 The importance of context and process 5.7 Cap... more Kate Seers, Sandy Herron-Marx and Helen Bayliss 5.6 The importance of context and process 5.7 Capture or measurement of impact of PPI 5.8 The impact of PPI in health and social care research 5.9 Impacts on research and the research process 5.10 Negative impacts 5.11 Impacts on users 5.12 Whose negative impact? 5.13 Impact on researchers 5.14 Impact on research participants 5.15 Impact on community 5.16 Impact on funders and policy makers 5.17 Understanding the nature of impact 5.18 Outcomes of PPI in health and social care research 5.19 Summary 6. PIRICOM Recommendations 7. PIRICOM Guidelines for reporting PPI Impact User Version of PIRICOM Guidelines for reporting PPI Impact References Appendix 1 Search strategy Appendix 2 Quality Assessment Appendix 3 Data extraction and quality assessment Appendix 4 Excluded papers

Journal of Public Health, 1998

Background In 1995-1996 about 53 500 women aged 50-64 attending for routine breast screening were... more Background In 1995-1996 about 53 500 women aged 50-64 attending for routine breast screening were called back for further investigation after an initial mammogram. Even when women were found to be clear after further investigation, significant adverse psychological consequences (PCs) can remain one month later. This follow-up study investigates whether residual emotional effects persisted five months after women received a clear result. Methods Women who had previously completed a questionnaire one month after their last breast screening appointment, at which they had a clear result, were invited to complete a further postal questionnaire four months later (five months after their last appointment). We compare women who received a clear result after assessment without fine needle aspiration cytology (FNAC), after assessment with FNAC, after a benign biopsy, and those who had been placed on early recall, with those who received a clear result after mammography (reference group). Results The response rate was 76 per cent (215/284). All groups of women who went on for further investigation suffered significantly greater adverse psychological consequences (PCs) at five months than women who were given a clear result after mammography. Compared with 10 per cent (5/52) of women who received a clear result after a basic mammogram, adverse psychological consequences were experienced by 59 per cent (27/46, p < 0.00001) of the women who were placed on six month early recall, 61 per cent (14/23, p< 0.0001) of women who had benign surgical biopsy, 44 per cent (18/41, p < 0.0001) of women who received a clear result after assessment (with FNAC), and 45 per cent (23/51, p< 0.0001) of women who received a clear result after assessment (without FNAC). Whereas all groups who had gone on for further investigations had experienced a significant decrease in PCs between one month and five months, those who were placed on six month early recall showed no significant difference in PCs between these two time periods. Other factors relating to adverse experiences as a result of breast screening are reported. Conclusion Despite receiving a clear final result, women who undergo further investigation suffer significantly greater adverse psychological consequences five months after their last screening appointment than women who receive a clear result after mammography.

Journal of Public Health, 2004

This short report describes the systematic development and validation of the EBS (Experiences of ... more This short report describes the systematic development and validation of the EBS (Experiences of Breast Screening) measure to assess women's experience of the breast screening process. For the NHS Breast Screening Programme to be successful attendance must be high and remain high at subsequent rounds. The aim of the EBS is to identify areas of the screening process that can be improved to achieve greater adherence to subsequent screening rounds. The EBS was developed using the available evidence, expertise of health professionals, pilot interviews and a pilot postal survey. The validity, reliability and acceptability were demonstrated from the results of a multi-centre postal survey, resulting in a final 21-item measure.

BMJ Open, 2011

Background and objective: The birth of a preterm infant can be an overwhelming experience of guil... more Background and objective: The birth of a preterm infant can be an overwhelming experience of guilt, fear and helplessness for parents. Provision of interventions to support and engage parents in the care of their infant may improve outcomes for both the parents and the infant. The objective of this systematic review is to identify and map out effective interventions for communication with, supporting and providing information for parents of preterm infants.

$Research paper thumbnail of Exploring the lived experience of having a hip fracture : identifying patients' perspectives on their health care needs$

Hip fracture is one of the most common, serious injuries in old people in England, and with a gro... more Hip fracture is one of the most common, serious injuries in old people in England, and with a growing older population it is increasingly important to understand the impact of hip fracture from the patient perspective in order to develop relevant and appropriate healthcare services. The aim of this study was to explore the lived experience of hip fracture in older people in England to inform service development. A scoping review of the literature highlighted the lack of current evidence for hip fracture experience in England, with a particular dearth of evidence concerning the lived experience of hip fracture following discharge from hospital. However, the reviewed highlighted some international evidence around the lived experience of hip fracture while in hospital, and during initial rehabilitation. A meta-synthesis of the data was therefore conducted providing a more interpretive approach to analysing this data, and establishing a better understanding of the current literature on ...

Background: The adverse effects of smoking continue after a diagnosis of cancer, increasing risk ... more Background: The adverse effects of smoking continue after a diagnosis of cancer, increasing risk of treatment-related complications, recurrence, development of second primary cancer, and mortality. E-cigarettes have become increasingly popular, and there is growing evidence of a significant reduction in harm compared to tobacco smoking, providing an alternative approach for smoking cessation in cancer patients. However, while Public Health England and the Royal College of Physicians support the use of e-cigarettes for smoking cessation, their use remains controversial.

Proceedings of the Nutrition Society

A cancer diagnosis serves as a 'teachable moment' for many patients to consider health behaviours... more A cancer diagnosis serves as a 'teachable moment' for many patients to consider health behaviours, such as diet (1). Patients diagnosed with a pelvic malignancy (prostate, bladder, rectum or gynaecology) may be interested in changing their dietary habits (2). Improved dietary habits may reduce the risk of disease progression in these cancer groups (3). However, lack of access to information from healthcare professionals may prompt them to seek advice from online sources (4). To the authors' knowledge, the quality of patient information from online sources has not been assessed. The aim of the study is to evaluate the content and readability of the available online patient information materials (PIMs) in relation to diet and nutrition specifically for pelvic cancer patients. PIMs relating to diet and nutrition following a cancer diagnosis were identified by searching in Public Sector organisations, Cancer Centres and registered charities throughout the UK. Searches included key terms related to cancer in the pelvic area or generic cancer and related to provision of information about a healthy diet after diagnosis, nutritional management of treatment-related symptoms or weight management. Content was assessed with an evidence-based checklist developed by the Picker Institute (5). Readability was assessed with the Flesch Reading Ease score (FRE), Flesch-Kincaid Grade Level (FKGL) and the Simplified Measure of Gobbledygook (SMOG) Grade. Few cancer centres (5/14) and charities (8/196) had online information on diet and nutrition. A total of 18 PIMs were identified; 17 were leaflets/booklets and one source (Cancer Research UK) had online information only. Four PIMs were pelvic cancer-specific (prostate, bladder and bowel cancer) and 14 were generic cancer. The NHS Choices website had no online information specifically on diet and cancer but provided a link to other sources for information. Content scores ranged from 22-36/40. PIMs from charities scored higher than the ones from cancer centres (n 11; 30•6 ± 3•7 Vs n 7; 27•0 ± 4•1, P = 0•068). The average readability level was 8 th grade-level, which corresponds to the reading ability of 13-14 year-olds. One third of the materials scored higher than the upper acceptable reading level.

European Journal of Cancer Care

Adherence to adjuvant endocrine therapy (AET) following breast cancer is known to be suboptimal d... more Adherence to adjuvant endocrine therapy (AET) following breast cancer is known to be suboptimal despite its known efficacy in reducing recurrence and mortality. This study aims to investigate factors associated with non-adherence and inform the development of interventions to support women and promote adherence. A questionnaire survey to measure level of adherence, side effects experienced, beliefs about medicine, support received and socio-demographic details was sent to 292 women 2-4 years post breast cancer diagnosis. Differences between non-adherers and adherers to AET were explored, and factors associated with intentional and unintentional non-adherence are reported. Approximately one quarter of respondents, 46 (22%), were non-adherers, comprising 29 (14%) intentional non-adherers and 17 (8%) unintentional non-adherers. Factors significantly associated with intentional non-adherence were: the presence of side effects (p<0.03), greater concerns about AET (p<0.001), and a lower perceived necessity to take AET (p<0.001). Half of the sample (105/211) reported that side effects had a moderate or high impact on their quality of life. Factors associated with unintentional non-adherence were: younger age (<65), (p<0.001), post-secondary education (p=0.046), and paid employment (p=0.031). There are distinct differences between intentional non-adherence and unintentional non-adherence. Differentiation between the two types of non-adherence may help tailor support and advice interventions