[Cancer diagnosis: do we want to know the truth?] - PubMed (original) (raw)

[Cancer diagnosis: do we want to know the truth?]

[Article in Spanish]

V Rubio Arribas et al. Aten Primaria. 2004.

Abstract

in English, Spanish

Objective: To find people's desire for information and their other attitudes when faced with a cancer diagnosis.

Design: Transversal, descriptive study.

Setting: Irun, Oñati and Asteasu Health Centres, Gipuzkoa, Spain.

Participants: From the appointments for 19 clinics in March-May 2002, a randomised, prospective and systematic sample, stratified by lists, was extracted (n=725). A modified Fernández Díaz questionnaire was administered. It had personal details and 8 questions with closed replies on aspects of communication (5) and attitudes to death (3).

Results: 81.3% (95% CI, 78.4-84.1) wanted to know their diagnosis. 68.9% (95% CI, 65.5-72.2) chose the doctor to tell them. Of these, 36.6% chose the specialist and 26.6%, the general practitioner. If the person affected was a family member, 46.6% (95% CI, 42.9-50.2) would always tell the person; 38.6% (95% CI, 35-42.1), only if the person asked; and 9.6%, never (95% CI, 7.4-11.7). 49.3% (95% CI, 45.6-52.9) would prefer to die at home. The greatest fear for 44% (95% CI, 40.3-47.6) was pain.

Conclusions: Most people want to be informed of their diagnosis. Neither an urban or rural environment nor having had family members with cancer affects their view. If the person affected by cancer is a family member, very few people favour not telling him/her at all. Sufferers want the doctor to tell them the information, prefer to die at home and pain is what worries them most.

Objetivo: Conocer los deseos de información y otras actitudes ante el diagnóstico de cáncer

Diseño: Estudio descriptivo transversa

Emplazamiento: Centros de Salud de Irún, Oñati y Asteasu en Gipuzkoa

Participantes: De las citaciones a las 19 consultas durante marzo-mayo del 2002 se obtuvo una muestra aleatoria, prospectiva y sistemática, estratificada por cupos (n = 725). Se administró una encuestamodificada de Fernández Díaz en la que se recogieron los datos personales y 8preguntas con respuestas cerradas: aspectos de comunicación (5 ítems) y actitudes relacionadas con la muerte (3 ítems)

Resultados: El 81,3% (IC del 95%, 78,4- 84,1) quiere conocer su diagnóstico. El 68,9% (IC del 95%, 65,5–72,2) elige al médico para comunicarlo. De éstos, el 36,6%, al especialista, y el 26,6%, al médicode familia. Si el afectado es un familiar, el 46,6% (IC del 95%, 42,9–50,2) se lo dirían siempre, sólo si él lo pregunta el 38,6% (ICdel 95%, 35–42,1) y nunca el 9,6% (IC del 95%, 7,4–11,7). El 49,3% (IC del 95%,45,6–52,9) preferiría morir en casa. Para el 44% (IC del 95%, 40,3–47,6) el dolor es el mayor temor

Conclusiones: La mayoría de la población quiere que se le informe de su diagnóstico, sin que el hábitat urbano o rural o la experiencia de haber tenido familiares con cáncer modifique la opinión. Si el afectadode cáncer es un familiar, son muy pocos los partidarios de no decírselo nunca. Eligen almédico para transmitir la información,prefieren morir en casa y el dolor es lamayor preocupación

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