Internet interventions for long-term conditions: patient and caregiver quality criteria - PubMed (original) (raw)
Internet interventions for long-term conditions: patient and caregiver quality criteria
Cicely Kerr et al. J Med Internet Res. 2006.
Abstract
Background: Interactive health communication applications (IHCAs) that combine high-quality health information with interactive components, such as self-assessment tools, behavior change support, peer support, or decision support, are likely to benefit people with long-term conditions. IHCAs are now largely Web-based and are becoming known as "Internet interventions." Although there are numerous professionally generated criteria to assess health-related websites, to date there has been scant exploration of patient-generated assessment criteria even though patients and professionals use different criteria for assessing the quality of traditional sources of health information.
Objective: We aimed to determine patients' and caregivers' requirements of IHCAs for long-term conditions as well as their criteria for assessing the quality of different programs.
Methods: This was a qualitative study with focus groups. Patients and caregivers managing long-term conditions used three (predominantly Web-based) IHCAs relevant to their condition and subsequently discussed the strengths and weaknesses of the different IHCAs in focus groups. Participants in any one focus group all shared the same long-term condition and viewed the same three IHCAs. Patient and caregiver criteria for IHCAs emerged from the data.
Results: There were 40 patients and caregivers who participated in 10 focus groups. Participants welcomed the potential of Internet interventions but felt that many were not achieving their full potential. Participants generated detailed and specific quality criteria relating to information content, presentation, interactivity, and trustworthiness, which can be used by developers and purchasers of Internet interventions.
Conclusions: The user-generated quality criteria reported in this paper should help developers and purchasers provide Internet interventions that better meet user needs.
Conflict of interest statement
None declared.
Comment in
- Internet interventions or patient education web sites?
Ritterband LM, Thorndike F. Ritterband LM, et al. J Med Internet Res. 2006 Sep 29;8(3):e18; author reply e19. doi: 10.2196/jmir.8.3.e18. J Med Internet Res. 2006. PMID: 17032634 Free PMC article. No abstract available.
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References
- Pagliari Claudia, Sloan David, Gregor Peter, Sullivan Frank, Detmer Don, Kahan James P, Oortwijn Wija, Macgillivray Steve. What is eHealth (4): a scoping exercise to map the field. J Med Internet Res. 2005 Mar 31;7(1):e9. doi: 10.2196/jmir.7.1.e9. http://www.jmir.org/2005/1/e9/v7e9 - DOI - PMC - PubMed
- Ritterband L, Gonder-Frederick LA, Cox DJ, Clifton AD, West RW, Borowitz S. Internet interventions: In review, in use, and into the future. Prof Psychol: Res Pract. 2003;34(5):527–534. doi: 10.1037/0735-7028.34.5.527. - DOI
- Department of Health, authors. Supporting People with Long Term Conditions. Leeds, UK: Department of Health; 2005.
- Demiris George. Disease management and the Internet. J Med Internet Res http://www.jmir.org/2004/3/e33/. 2004 Sep 29;6(3):e33. doi: 10.2196/jmir.6.3.e33.v6e33 - DOI - PMC - PubMed
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