From genetic privacy to open consent - PubMed (original) (raw)
Review
doi: 10.1038/nrg2360.
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- PMID: 18379574
- DOI: 10.1038/nrg2360
Review
From genetic privacy to open consent
Jeantine E Lunshof et al. Nat Rev Genet. 2008 May.
Abstract
Recent advances in high-throughput genomic technologies are showing concrete results in the form of an increasing number of genome-wide association studies and in the publication of comprehensive individual genome-phenome data sets. As a consequence of this flood of information the established concepts of research ethics are stretched to their limits, and issues of privacy, confidentiality and consent for research are being re-examined. Here, we show the feasibility of the co-development of scientific innovation and ethics, using the open-consent framework that was implemented in the Personal Genome Project as an example.
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