Developing a user-generated measure of continuity of care: brief report - PubMed (original) (raw)
Developing a user-generated measure of continuity of care: brief report
D Rose et al. Acta Psychiatr Scand. 2009 Apr.
Abstract
Objective: This paper describes a measure of continuity of care, establishes its reliability and tests it in a field trial sample for evidence of its validity. In contrast to others, this measure has been generated from the perspectives of service users. As continuity of care is a concern particularly for those with severe mental illness, we have confined our work to this population group.
Method: Service users in focus groups and expert panels generated the measure. The researchers were themselves service users. Test-retest reliability was assessed with an independent sample. The measure was administered to a final independent field trial sample to determine their experiences of continuity of care and for further psychometric testing.
Results: The measure generated by service users has satisfactory psychometric properties. Service users in the field trial sample were more satisfied when continuity, as assessed by this measure, was in place.
Conclusion: It is possible and valid to construct outcome measures in mental health entirely from the user perspective. This has not been done before.
Similar articles
- Understanding service user-defined continuity of care and its relationship to health and social measures: a cross-sectional study.
Sweeney A, Rose D, Clement S, Jichi F, Jones IR, Burns T, Catty J, Mclaren S, Wykes T. Sweeney A, et al. BMC Health Serv Res. 2012 Jun 8;12:145. doi: 10.1186/1472-6963-12-145. BMC Health Serv Res. 2012. PMID: 22682145 Free PMC article. - VOICE: developing a new measure of service users' perceptions of inpatient care, using a participatory methodology.
Evans J, Rose D, Flach C, Csipke E, Glossop H, McCrone P, Craig T, Wykes T. Evans J, et al. J Ment Health. 2012 Feb;21(1):57-71. doi: 10.3109/09638237.2011.629240. J Ment Health. 2012. PMID: 22257131 Free PMC article. - A model for developing outcome measures from the perspectives of mental health service users.
Rose D, Evans J, Sweeney A, Wykes T. Rose D, et al. Int Rev Psychiatry. 2011;23(1):41-6. doi: 10.3109/09540261.2010.545990. Int Rev Psychiatry. 2011. PMID: 21338297 - Continuity of care in mental health services: toward clarifying the construct.
Joyce AS, Wild TC, Adair CE, McDougall GM, Gordon A, Costigan N, Beckie A, Kowalsky L, Pasmeny G, Barnes F. Joyce AS, et al. Can J Psychiatry. 2004 Aug;49(8):539-50. doi: 10.1177/070674370404900805. Can J Psychiatry. 2004. PMID: 15453103 Review. - Continuity of care for the severely mentally ill: concepts and measures.
Johnson S, Prosser D, Bindman J, Szmukler G. Johnson S, et al. Soc Psychiatry Psychiatr Epidemiol. 1997 Apr;32(3):137-42. doi: 10.1007/BF00794612. Soc Psychiatry Psychiatr Epidemiol. 1997. PMID: 9130865 Review.
Cited by
- Content validity of patient-reported measures evaluating experiences of the quality of transitions in healthcare settings-a scoping review.
Walløe S, Roikjær SG, Hansen SM, Zangger G, Mortensen SR, Korfitsen CB, Simonÿ C, Lauridsen HH, Morsø L. Walløe S, et al. BMC Health Serv Res. 2024 Jul 22;24(1):828. doi: 10.1186/s12913-024-11298-0. BMC Health Serv Res. 2024. PMID: 39039533 Free PMC article. Review. - Relational continuity may give better clinical outcomes in patients with serious mental illness - a systematic review.
Engström I, Hansson L, Ali L, Berg J, Ekstedt M, Engström S, Fredriksson MK, Liliemark J, Lytsy P. Engström I, et al. BMC Psychiatry. 2023 Dec 18;23(1):952. doi: 10.1186/s12888-023-05440-1. BMC Psychiatry. 2023. PMID: 38110889 Free PMC article. - Predicting Continuity of Asthma Care Using a Machine Learning Model: Retrospective Cohort Study.
Tong Y, Lin B, Chen G, Zhang Z. Tong Y, et al. Int J Environ Res Public Health. 2022 Jan 22;19(3):1237. doi: 10.3390/ijerph19031237. Int J Environ Res Public Health. 2022. PMID: 35162261 Free PMC article. - Needs and Experiences in Psychiatric Treatment (NEPT)- Piloting a Collaboratively Generated, Initial Research Tool to Evaluate Cross-Sectoral Mental Health Services.
von Peter S, Krispin H, Kato Glück R, Ziegenhagen J, Göppert L, Jänchen P, Schmid C, Neumann A, Baum F, Soltmann B, Heinze M, Schwarz J, Beeker T, Ignatyev Y. von Peter S, et al. Front Psychiatry. 2022 Jan 27;13:781726. doi: 10.3389/fpsyt.2022.781726. eCollection 2022. Front Psychiatry. 2022. PMID: 35153874 Free PMC article. - Designed to Clash? Reflecting on the Practical, Personal, and Structural Challenges of Collaborative Research in Psychiatry.
Beeker T, Glück RK, Ziegenhagen J, Göppert L, Jänchen P, Krispin H, Schwarz J, von Peter S. Beeker T, et al. Front Psychiatry. 2021 Jul 7;12:701312. doi: 10.3389/fpsyt.2021.701312. eCollection 2021. Front Psychiatry. 2021. PMID: 34305686 Free PMC article. Review.
Publication types
MeSH terms
LinkOut - more resources
Full Text Sources
Medical
Research Materials