Assessing health-related quality of life in chronically ill children with the German KINDL: first psychometric and content analytical results - PubMed (original) (raw)
Comparative Study
Assessing health-related quality of life in chronically ill children with the German KINDL: first psychometric and content analytical results
U Ravens-Sieberer et al. Qual Life Res. 1998 Jul.
Abstract
Health-related quality of life is increasingly being considered as a relevant end-point and outcome criterion in evaluating the effects of medical treatment. While in adults quality of life instruments have been developed in terms of generic as well as disease-specific measures, quality of life assessment and children is a relatively new area. The current paper describes the application of a German generic quality of life instrument for children (the KINDL) in a group of 45 chronically ill children suffering from diabetes or asthma in comparison to 45 age- and gender-matched healthy children. The results of psychometric testing in these populations showed that the German KINDL is a reliable, valid and practical instrument to assess the health-related quality of life of children which should be supplemented by disease-specific modules and needs to be further tested in clinical populations.
Similar articles
- Validity and reliability of the Turkish translation of the Pediatric Asthma Quality of Life Questionnaire.
Yüksel H, Yilmaz O, Kirmaz C, Eser E. Yüksel H, et al. Turk J Pediatr. 2009 Mar-Apr;51(2):154-60. Turk J Pediatr. 2009. PMID: 19480327 - Validation of the Arabic and Tunisian Arabic version of the KINDL questionnaires for children with diabetes type 1.
Essaddam L, Ben Mansour A, Ben Amor A, Ravens-Sieberer U, Klein TM, Ben Becher S. Essaddam L, et al. Libyan J Med. 2019 Dec;14(1):1537457. doi: 10.1080/19932820.2018.1537457. Libyan J Med. 2019. PMID: 30481145 Free PMC article. - [Quality of life and chronic conditions: the perspective of children and adolescents in rehabilitation].
Bullinger M, Ravens-Sieberer U. Bullinger M, et al. Prax Kinderpsychol Kinderpsychiatr. 2006;55(1):23-35. Prax Kinderpsychol Kinderpsychiatr. 2006. PMID: 16471412 German. - [Illness specific data collection on quality of life of patients with asthma and chronic obstructive bronchitis].
Mühlig S, Petermann F. Mühlig S, et al. Rehabilitation (Stuttg). 1998 Aug;37(3):XXV-XXXVIII. Rehabilitation (Stuttg). 1998. PMID: 9789318 Review. German. - Generic health-related quality-of-life assessment in children and adolescents: methodological considerations.
Ravens-Sieberer U, Erhart M, Wille N, Wetzel R, Nickel J, Bullinger M. Ravens-Sieberer U, et al. Pharmacoeconomics. 2006;24(12):1199-220. doi: 10.2165/00019053-200624120-00005. Pharmacoeconomics. 2006. PMID: 17129075 Review.
Cited by
- Measuring the impact of burn injury on the parent-reported health outcomes of children 1-to-5 years: Item pool development for the Preschool1-5 Life Impact Burn Recovery Evaluation (LIBRE) Profile.
Grant GG, Brady KJS, Stoddard FJ, Meyer WJ, Romanowski KS, Chang PH, Painting LE, Fowler LA, Nelson JK, Patel KF, Sheldrick RC, Carter A, Sheridan RL, Slavin MD, Warner P, Palmieri TL, Schneider JC, Kazis LE, Ryan CM. Grant GG, et al. Burns. 2021 Nov;47(7):1511-1524. doi: 10.1016/j.burns.2021.02.010. Epub 2021 Feb 25. Burns. 2021. PMID: 33832799 Free PMC article. - Is central obesity associated with poorer health and health-related quality of life in primary school children? Cross-sectional results from the Baden-Württemberg Study.
Kesztyüs D, Wirt T, Kobel S, Schreiber A, Kettner S, Dreyhaupt J, Kilian R, Steinacker JM; “Komm mit in das gesunde Boot - Grundschule” - Research Group. Kesztyüs D, et al. BMC Public Health. 2013 Mar 22;13:260. doi: 10.1186/1471-2458-13-260. BMC Public Health. 2013. PMID: 23521780 Free PMC article. - Health-related quality of life among German youths with early-onset and long-duration type 1 diabetes.
Stahl A, Straßburger K, Lange K, Bächle C, Holl RW, Giani G, Rosenbauer J. Stahl A, et al. Diabetes Care. 2012 Aug;35(8):1736-42. doi: 10.2337/dc11-2438. Epub 2012 May 18. Diabetes Care. 2012. PMID: 22611065 Free PMC article. - Psychometric Properties of the Turkish Version of the Epilepsy Module of the KINDL Quality of Life Scale.
Ergin D, Demirbağ S, Eser E, Polat M, Baydur H. Ergin D, et al. Noro Psikiyatr Ars. 2021 Nov 2;59(3):210-217. doi: 10.29399/npa.27916. eCollection 2022. Noro Psikiyatr Ars. 2021. PMID: 36160078 Free PMC article. - ImaginYouth-A Therapist-Guided Internet-Based Cognitive-Behavioral Program for Adolescents and Young Adults With Body Dysmorphic Disorder: Study Protocol for a Two-Arm Randomized Controlled Trial.
Hartmann AS, Schmidt M, Staufenbiel T, Ebert DD, Martin A, Schoenenberg K. Hartmann AS, et al. Front Psychiatry. 2021 May 25;12:682965. doi: 10.3389/fpsyt.2021.682965. eCollection 2021. Front Psychiatry. 2021. PMID: 34113273 Free PMC article.
References
- Int J Oncol. 1994 Mar;4(3):639-48 - PubMed
- Med Care. 1992 Jun;30(6):473-83 - PubMed
- Psychosom Med. 1993 Nov-Dec;55(6):541-8 - PubMed
- J Clin Oncol. 1992 Jun;10(6):923-8 - PubMed
- Psychopharmacol Bull. 1985;21(4):995-8 - PubMed
Publication types
MeSH terms
LinkOut - more resources
Full Text Sources
Medical