Holly Symonds-Brown | University of Alberta (original) (raw)

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Papers by Holly Symonds-Brown

Sociology of Health & Illness

Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine

Globally, day programs are increasingly proposed in policy as one way to address the support need... more Globally, day programs are increasingly proposed in policy as one way to address the support needs of people living at home with dementia and their families. Day programs represent a kind of space that can meet multiple interests and ideologies concerned with sustaining care at home for people living with dementia. In this paper, we draw on findings from an ethnographic study of how day programs work as care in the community for people living with dementia to argue that day programs’ ontological status in research as a “simple location” of care contributes to the ambiguous outcomes and limited evidence available for improving their design and delivery. Using one program as an illustrative case, we demonstrate the multiplicity of a day program and the ontological politics through which the potentialities for care emerge. Robert Cooper’s proximal analysis of organizing’s and Annemarie Mol’s work on ontological politics inform this analysis. Of note in this analysis are the different e...

INYI Journal

The Coronavirus (COVID-19) pandemic has caused disruption. Responsibilities increased especially ... more The Coronavirus (COVID-19) pandemic has caused disruption. Responsibilities increased especially for people who identify as mothers needing to balance work and caring for their child(ren). Through the use of personal narratives, we explored our experiences as mothers who work in academia. The purpose of this commentary is to explore the commonalities of our experiences of trying to maintain the multiple roles and responsibilities demanded from us as mothers and academics during the COVID-19 pandemic. Two themes emerged: multiple roles and responsibilities and embracing the ‘messiness’. The need to take on multiple roles simultaneously such as working from home and parenting was challenging. Embracing the ‘messiness’ demonstrated that caring for our children while working from home caused their needs and our time to focus on them to be compromised. Our work and productivity were impacted with minimal available support but this was not acknowledged within the business as usual practic...

Societies

Seeking to support qualitative researchers in the artful development of feminist care scholarship... more Seeking to support qualitative researchers in the artful development of feminist care scholarship, our goal here is to ‘look back’ on how we have conceptualized the problems of care and developed research that illuminates the social organization of care in distinct ways. As part of a ‘feminist care scholar retrospective’, we present five condensed ‘reverse research proposals’, which are retrospective accounts of past research or scholarly activity. From there, we discuss how each project begins with a particular problematic for investigation and a particular conception of care (e.g., as practices, as work, as a concept) to illuminate facets of the social organization of care shaping paid and unpaid care work and its interpretations. These approaches reveal multiple and overlapping ways that care is embodied, understood and organized, as well as ways care can be transformed.

Supplemental material for Rethinking the assumptions of intervention research concerned with care... more Supplemental material for Rethinking the assumptions of intervention research concerned with care at home for people with dementia by Christine Ceci, Holly Symonds Brown and Harkeert Judge in Dementia

Supplemental material, DEM884429 Supplemetal Material for Re-thinking the nature of day programs ... more Supplemental material, DEM884429 Supplemetal Material for Re-thinking the nature of day programs for people with dementia: Implications for research by Holly Symonds-Brown, Christine Ceci, Wendy Duggleby and Mary Ellen Purkis in Dementia

Ageing and Society, 2018

ABSTRACTWith the predicted growth in the number of people with dementia living at home across the... more ABSTRACTWith the predicted growth in the number of people with dementia living at home across the globe, the need for home-based care is expected to increase. As such, it will be primarily family carers who will provide this crucial support to family members. Designing appropriate support for family carers is thus essential to minimise risks to their health, to prevent premature institutionalisation or poor care for persons with dementia, as well as to sustain the effective functioning of health and social care systems. To date, the high volume of research related to care at home and acknowledged low impact of interventions suggests that a re-examination of the nature of care at home, and how we come to know about it, is necessary if we are to advance strategies that will contribute to better outcomes for families. This paper describes findings from an ethnographic study that was designed to support an analysis of the complexity and materiality of family care arrangements – that is,...

Dementia, 2019

Day programs are commonly identified in dementia strategies as a solution for keeping people with... more Day programs are commonly identified in dementia strategies as a solution for keeping people with dementia home for as long as possible. Limited research evidence is available to support these policy approaches, and much of what exists demonstrates equivocal results. While key day program researchers have called for improvements in methodological and theoretical efforts, we argue that basic assumptions concerning what a day program is, and how the effects of day programs should be studied, also require reconsideration. Problematization is a systematic review strategy used to identify and critique assumptions guiding research practices and knowledge development in a field of study. The approach entails a broad overview of a field of research alongside a close reading of key texts to identify prevailing assumptions about the object of study and how it can be known. The intent is to discern how these assumptions are influencing research practices and thus knowledge development. A revie...

Quality Advancement in Nursing Education - Avancées en formation infirmière, 2015

Dementia, 2018

Aging populations have been positioned as a challenge to health and social service planning aroun... more Aging populations have been positioned as a challenge to health and social service planning around the world, a situation even more pronounced in the case of persons with a diagnosis of dementia. While policy responses emphasize that care be provided for persons with dementia in home settings for as long as possible and that family carers be supported in the provision of this care, finding good ways to support families as they do the work of ‘delaying institutionalization’ has been challenging despite decades of intervention research intended to develop and evaluate interventions to support families. In this context of limited effectiveness it is useful to examine the assumptions informing research practices. Problematization is a method of literature analysis useful for clarifying and challenging assumptions informing a field of research in order to generate new approaches to research or new research questions. Our analysis suggests that although community-based intervention resear...