Susan Magasi | University of Illinois at Chicago (original) (raw)

Papers by Susan Magasi

Rehabilitation Psychology, Nov 1, 2017

Quality of Life Research, May 20, 2016

To develop a measure of natural environment and human-made change features (Chapter 2 of the inte... more To develop a measure of natural environment and human-made change features (Chapter 2 of the international classification of functioning, disability, and health) and evaluate the influence of perceived barriers on health-related quality of life. A sample of 570 adults with stroke, spinal cord injury, and traumatic brain injury residing in community settings reported their functioning in home, outdoor, and community settings (mean age = 47.0 years, SD = 16.1). They rated 18 items with a 5-point rating scale to describe the influence of barriers to moving around, seeing objects, hearing sounds, hearing conversations, feeling safe, and regulating temperature and indicated whether any difficulties were due to environmental features. We used Rasch analysis to identify misfitting items and evaluate differential item functioning (DIF) across impairment groups. We computed correlations between barriers and patient-reported outcomes measurement information system (PROMIS) social domain measures and community participation indicators (CPI) measures. The 18 items demonstrated person reliability of .70, discriminating nearly three levels of barriers. All items fit the Rasch model; impairment-related DIF was negligible. Ceiling effects were negligible, but 25 % of the respondents were at the floor, indicating that they did not experience barriers that they attributed to the built and natural environment. As anticipated, barriers correlated moderately with PROMIS and CPI variables, suggesting that although this new item bank measures a construct that is related to participation and health-related quality of life, it also captures something unique. Known-groups validity was supported by wheelchair users reporting a higher level of barriers than did ambulatory respondents. Preliminary evidence supports the reliability and validity of this new measure of barriers to the built and natural environment. This measure allows investigators and clinicians to measure perceptions of the natural environment and human-made changes, providing information that can guide interventions to reduce barriers. Moderate relationships between barriers and PROMIS and CPI variables provide support for the measurement and theory of environmental influences on social health and participation.

Archives of Physical Medicine and Rehabilitation, 2018

To test the effect that indicators of mobility device quality have on participation outcomes amon... more To test the effect that indicators of mobility device quality have on participation outcomes among community dwelling adults with spinal cord injuries (SCI), traumatic brain injuries (TBI) and stroke using structural equation modeling. Survey, cross-sectional study, and model testing. Clinical research space at 2 academic medical centers and one free-standing rehabilitation hospital in the Midwestern United States (St. Louis, Ann Arbor, Chicago). Community-dwelling adults (mean age= 48 years(SD 14.3)) with SCI, TBI and Stroke (n=250). Not applicable MAIN OUTCOMES MEASURES: The Mobility Device Impact Scale, PROMIS Social Health (v2.0) questionnaires, including Ability to Participate in Social Roles and Activities and Satisfaction with Social Roles and Activities questionnaires and the 2 Community Participation Indicators' Enfranchisement Scales. Details about device quality (reparability, reliability, ease of maintenance) and device type were also collected. Respondents used ambulation aids (30%), manual (34%), and power wheelchairs (30%). Indicators of device quality had a moderating association with participation outcomes, with three device quality variables, ease of repairs and maintenance, and device reliability accounting for 20% of the variance in participation. Wheelchair users reported lower participation enfranchisement than persons using ambulation aids. Mobility device quality plays an important role in participation outcomes. It is critical that people have access to mobility devices and that these devices be reliable.

Mayo Clinic Proceedings, Aug 1, 2016

To identify factors underlying heart failure hospitalization. Between January 1, 2012, and May 31... more To identify factors underlying heart failure hospitalization. Between January 1, 2012, and May 31, 2012, we combined medical record reviews and cross-sectional qualitative interviews of multiple patients with heart failure, their clinicians, and their caregivers from a large academic medical center in the Midwestern United States. The interview data were analyzed using a 3-step grounded theory-informed process and constant comparative methods. Qualitative data were compared and contrasted with results from the medical record review. Patient nonadherence to the care plan was the most important contributor to hospital admission; however, reasons for nonadherence were complex and multifactorial. The data highlight the importance of patient education for the purposes of condition management, timeliness of care, and effective communication between providers and patients. To improve the consistency and quality of care for patients with heart failure, more effective relationships among patients, providers, and caregivers are needed. Providers must be pragmatic when educating patients and their caregivers about heart failure, its treatment, and its prognosis.

Journal of Heart and Lung Transplantation, Oct 1, 2015

Archives of Physical Medicine and Rehabilitation, Sep 1, 2010

Isokinetics and Exercise Science, Aug 15, 2011

Given the functional and epidemiological significance of lower extremity strength, portable, low-... more Given the functional and epidemiological significance of lower extremity strength, portable, low-cost measures of lower extremity strength with robust psychometric properties are needed for clinical practice and research. The purpose of this study was to compare ...

Carolina Digital Repository (University of North Carolina at Chapel Hill), 2016

Quality of Life Research, Apr 25, 2017

American Journal of Occupational Therapy, Nov 1, 2018

Date Presented 4/20/2018 This ethnography explored the collaborative process of a community-based... more Date Presented 4/20/2018 This ethnography explored the collaborative process of a community-based participatory research (CBPR) team, which was shaped by team members’ various occupational identities. Dual identities, although at times challenging to navigate, may serve as a bridge, facilitating collaboration in CBPR teams. Primary Author and Speaker: Amber Angell Additional Authors and Speakers: Alli Ferlin, Christina Papadimitriou, Susan Magasi Contributing Authors: Judy Panko Reis, Tom Wilson, Jennifer Thomas

Journal of Heart and Lung Transplantation, Apr 1, 2014

Otjr-occupation Participation and Health, 2012

Independent living and community participation are long-term rehabilitation goals. Disability sch... more Independent living and community participation are long-term rehabilitation goals. Disability scholars and activists have highlighted that access to social services is vital to the ability of people with disabilities to live and participate in the community as full and equal citizens. The field of occupational therapy has paid relatively little attention to how people with disabilities negotiate these systems. This article examines the vital but often invisible occupation of negotiating the social service systems using data from a 16-month ethnographic study of women with disabilities who were transitioning to independent living. Findings revealed that material, social, and attitudinal barriers in the service delivery systems restricted the women's access to resources and forced them to be highly resourceful to find, secure, and manage the social services they needed to maintain independent living. Theoretical and clinical implications for occupational therapy are discussed.

Journal of Spinal Cord Medicine, 2008

American Journal of Occupational Therapy, Aug 1, 2021

Date Presented Accepted for AOTA INSPIRE 2021 but unable to be presented due to online event limi... more Date Presented Accepted for AOTA INSPIRE 2021 but unable to be presented due to online event limitations. Latinx cancer survivors experience worse physical and mental health during survivorship. This group's occupational participation during survivorship is a product of cultural values, environmental influences, and occupational gains and losses. To promote occupational justice, the OT profession is called to deliver culturally tailored care to capitalize on this group's strengths and prepare them for daily participation. Primary Author and Speaker: Ricardo Daniel Ramirez Additional Authors and Speakers: Susan Magasi

Archives of Physical Medicine and Rehabilitation, Oct 1, 2021

Objective(s) To investigate the state of the science around availability and appropriate use of a... more Objective(s) To investigate the state of the science around availability and appropriate use of accessible medical diagnostic equipment (AMDE) for patients with disabilities (PWD). Data Sources Bibliographic databases PubMed, CINAHL, Embase were searched (January 2000- February 2021). Terms included diagnostic equipment, examination table, weight scale, imaging equipment, mammography, wheelchair, disabled persons, and health services accessibility. Study Selection English-language research of any design, conducted in the US, focused on adults with physical disabilities, and describing/evaluating AMDE was included. Two researchers independently evaluated studies. Initial search yielded 813 results; 29 studies were included. All methods were in accordance with the WHO's guidelines for rapid reviews. Data Extraction Key study characteristics of included articles were extracted by one researcher and reviewed for accuracy by another. The quality of included studies was assessed independently by two researchers using the Mixed Methods Appraisal Tool. Data Synthesis Both quantitative (n=18) and qualitative (n=11) research revealed that PWD identify lack of access to AMDE as a barrier to safe and equitable primary and specialty healthcare. Providers and PWD report that the presence of AMDE doesn't translate into use of equipment by providers. Additionally, Facilities typically rated themselves higher on accessibility surveys than third party auditors. Conclusions Although access to MDE has improved slightly in recent decades, the presence and use of accessible equipment remains infrequent, creating barriers for PWD. Existing studies on AMDE are largely descriptive, establishing the scope of the issue. Future research should focus on evaluating impact, outcomes, and cost in order to facilitate greater adoption of AMDE in accordance with the US Access Board's 2017 standards and ADA. Author(s) Disclosures This rapid review was partially funded by a cooperative agreement with the National Council on Disability.

International Journal of Environmental Research and Public Health, Mar 6, 2022

The American Journal of Occupational Therapy

Date Presented 04/21/2023 Supports are needed to address the preparedness and mutuality of patien... more Date Presented 04/21/2023 Supports are needed to address the preparedness and mutuality of patients with mechanical circulatory support and their caregivers. OT interventions can promote daily participation as well as physical and mental health for dyads. Primary Author and Speaker: Ricardo Daniel Ramirez Additional Authors and Speakers: Susan Magasi Contributing Authors: Kathleen L. Grady

Occupational Therapy In Health Care

Rehabilitation Psychology, Nov 1, 2017

Quality of Life Research, May 20, 2016

To develop a measure of natural environment and human-made change features (Chapter 2 of the inte... more To develop a measure of natural environment and human-made change features (Chapter 2 of the international classification of functioning, disability, and health) and evaluate the influence of perceived barriers on health-related quality of life. A sample of 570 adults with stroke, spinal cord injury, and traumatic brain injury residing in community settings reported their functioning in home, outdoor, and community settings (mean age = 47.0 years, SD = 16.1). They rated 18 items with a 5-point rating scale to describe the influence of barriers to moving around, seeing objects, hearing sounds, hearing conversations, feeling safe, and regulating temperature and indicated whether any difficulties were due to environmental features. We used Rasch analysis to identify misfitting items and evaluate differential item functioning (DIF) across impairment groups. We computed correlations between barriers and patient-reported outcomes measurement information system (PROMIS) social domain measures and community participation indicators (CPI) measures. The 18 items demonstrated person reliability of .70, discriminating nearly three levels of barriers. All items fit the Rasch model; impairment-related DIF was negligible. Ceiling effects were negligible, but 25 % of the respondents were at the floor, indicating that they did not experience barriers that they attributed to the built and natural environment. As anticipated, barriers correlated moderately with PROMIS and CPI variables, suggesting that although this new item bank measures a construct that is related to participation and health-related quality of life, it also captures something unique. Known-groups validity was supported by wheelchair users reporting a higher level of barriers than did ambulatory respondents. Preliminary evidence supports the reliability and validity of this new measure of barriers to the built and natural environment. This measure allows investigators and clinicians to measure perceptions of the natural environment and human-made changes, providing information that can guide interventions to reduce barriers. Moderate relationships between barriers and PROMIS and CPI variables provide support for the measurement and theory of environmental influences on social health and participation.

Archives of Physical Medicine and Rehabilitation, 2018

To test the effect that indicators of mobility device quality have on participation outcomes amon... more To test the effect that indicators of mobility device quality have on participation outcomes among community dwelling adults with spinal cord injuries (SCI), traumatic brain injuries (TBI) and stroke using structural equation modeling. Survey, cross-sectional study, and model testing. Clinical research space at 2 academic medical centers and one free-standing rehabilitation hospital in the Midwestern United States (St. Louis, Ann Arbor, Chicago). Community-dwelling adults (mean age= 48 years(SD 14.3)) with SCI, TBI and Stroke (n=250). Not applicable MAIN OUTCOMES MEASURES: The Mobility Device Impact Scale, PROMIS Social Health (v2.0) questionnaires, including Ability to Participate in Social Roles and Activities and Satisfaction with Social Roles and Activities questionnaires and the 2 Community Participation Indicators' Enfranchisement Scales. Details about device quality (reparability, reliability, ease of maintenance) and device type were also collected. Respondents used ambulation aids (30%), manual (34%), and power wheelchairs (30%). Indicators of device quality had a moderating association with participation outcomes, with three device quality variables, ease of repairs and maintenance, and device reliability accounting for 20% of the variance in participation. Wheelchair users reported lower participation enfranchisement than persons using ambulation aids. Mobility device quality plays an important role in participation outcomes. It is critical that people have access to mobility devices and that these devices be reliable.

Mayo Clinic Proceedings, Aug 1, 2016

To identify factors underlying heart failure hospitalization. Between January 1, 2012, and May 31... more To identify factors underlying heart failure hospitalization. Between January 1, 2012, and May 31, 2012, we combined medical record reviews and cross-sectional qualitative interviews of multiple patients with heart failure, their clinicians, and their caregivers from a large academic medical center in the Midwestern United States. The interview data were analyzed using a 3-step grounded theory-informed process and constant comparative methods. Qualitative data were compared and contrasted with results from the medical record review. Patient nonadherence to the care plan was the most important contributor to hospital admission; however, reasons for nonadherence were complex and multifactorial. The data highlight the importance of patient education for the purposes of condition management, timeliness of care, and effective communication between providers and patients. To improve the consistency and quality of care for patients with heart failure, more effective relationships among patients, providers, and caregivers are needed. Providers must be pragmatic when educating patients and their caregivers about heart failure, its treatment, and its prognosis.

Journal of Heart and Lung Transplantation, Oct 1, 2015

Archives of Physical Medicine and Rehabilitation, Sep 1, 2010

Isokinetics and Exercise Science, Aug 15, 2011

Given the functional and epidemiological significance of lower extremity strength, portable, low-... more Given the functional and epidemiological significance of lower extremity strength, portable, low-cost measures of lower extremity strength with robust psychometric properties are needed for clinical practice and research. The purpose of this study was to compare ...

Carolina Digital Repository (University of North Carolina at Chapel Hill), 2016

Quality of Life Research, Apr 25, 2017

American Journal of Occupational Therapy, Nov 1, 2018

Date Presented 4/20/2018 This ethnography explored the collaborative process of a community-based... more Date Presented 4/20/2018 This ethnography explored the collaborative process of a community-based participatory research (CBPR) team, which was shaped by team members’ various occupational identities. Dual identities, although at times challenging to navigate, may serve as a bridge, facilitating collaboration in CBPR teams. Primary Author and Speaker: Amber Angell Additional Authors and Speakers: Alli Ferlin, Christina Papadimitriou, Susan Magasi Contributing Authors: Judy Panko Reis, Tom Wilson, Jennifer Thomas

Journal of Heart and Lung Transplantation, Apr 1, 2014

Otjr-occupation Participation and Health, 2012

Independent living and community participation are long-term rehabilitation goals. Disability sch... more Independent living and community participation are long-term rehabilitation goals. Disability scholars and activists have highlighted that access to social services is vital to the ability of people with disabilities to live and participate in the community as full and equal citizens. The field of occupational therapy has paid relatively little attention to how people with disabilities negotiate these systems. This article examines the vital but often invisible occupation of negotiating the social service systems using data from a 16-month ethnographic study of women with disabilities who were transitioning to independent living. Findings revealed that material, social, and attitudinal barriers in the service delivery systems restricted the women's access to resources and forced them to be highly resourceful to find, secure, and manage the social services they needed to maintain independent living. Theoretical and clinical implications for occupational therapy are discussed.

Journal of Spinal Cord Medicine, 2008

American Journal of Occupational Therapy, Aug 1, 2021

Date Presented Accepted for AOTA INSPIRE 2021 but unable to be presented due to online event limi... more Date Presented Accepted for AOTA INSPIRE 2021 but unable to be presented due to online event limitations. Latinx cancer survivors experience worse physical and mental health during survivorship. This group's occupational participation during survivorship is a product of cultural values, environmental influences, and occupational gains and losses. To promote occupational justice, the OT profession is called to deliver culturally tailored care to capitalize on this group's strengths and prepare them for daily participation. Primary Author and Speaker: Ricardo Daniel Ramirez Additional Authors and Speakers: Susan Magasi

Archives of Physical Medicine and Rehabilitation, Oct 1, 2021

Objective(s) To investigate the state of the science around availability and appropriate use of a... more Objective(s) To investigate the state of the science around availability and appropriate use of accessible medical diagnostic equipment (AMDE) for patients with disabilities (PWD). Data Sources Bibliographic databases PubMed, CINAHL, Embase were searched (January 2000- February 2021). Terms included diagnostic equipment, examination table, weight scale, imaging equipment, mammography, wheelchair, disabled persons, and health services accessibility. Study Selection English-language research of any design, conducted in the US, focused on adults with physical disabilities, and describing/evaluating AMDE was included. Two researchers independently evaluated studies. Initial search yielded 813 results; 29 studies were included. All methods were in accordance with the WHO's guidelines for rapid reviews. Data Extraction Key study characteristics of included articles were extracted by one researcher and reviewed for accuracy by another. The quality of included studies was assessed independently by two researchers using the Mixed Methods Appraisal Tool. Data Synthesis Both quantitative (n=18) and qualitative (n=11) research revealed that PWD identify lack of access to AMDE as a barrier to safe and equitable primary and specialty healthcare. Providers and PWD report that the presence of AMDE doesn't translate into use of equipment by providers. Additionally, Facilities typically rated themselves higher on accessibility surveys than third party auditors. Conclusions Although access to MDE has improved slightly in recent decades, the presence and use of accessible equipment remains infrequent, creating barriers for PWD. Existing studies on AMDE are largely descriptive, establishing the scope of the issue. Future research should focus on evaluating impact, outcomes, and cost in order to facilitate greater adoption of AMDE in accordance with the US Access Board's 2017 standards and ADA. Author(s) Disclosures This rapid review was partially funded by a cooperative agreement with the National Council on Disability.

International Journal of Environmental Research and Public Health, Mar 6, 2022

The American Journal of Occupational Therapy

Date Presented 04/21/2023 Supports are needed to address the preparedness and mutuality of patien... more Date Presented 04/21/2023 Supports are needed to address the preparedness and mutuality of patients with mechanical circulatory support and their caregivers. OT interventions can promote daily participation as well as physical and mental health for dyads. Primary Author and Speaker: Ricardo Daniel Ramirez Additional Authors and Speakers: Susan Magasi Contributing Authors: Kathleen L. Grady

Occupational Therapy In Health Care