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Papers by Aline Bogossian

Journal of Child Health Care

Children and adolescents are a population at particular risk of experiencing adverse mental healt... more Children and adolescents are a population at particular risk of experiencing adverse mental health repercussions related to pandemics. To understand vulnerability factors and repercussions of pandemics and related sanitary measures on children and adolescents’ mental health, we performed a scoping review to examine and synthesize literature. In total, 66 articles were included. Results present: (1) factors that increase vulnerability to adverse mental health repercussions (e.g., having a pre-existing mental health condition, social isolation, low socio-economic status, parental distress, and overexposure to media content) and (2) specific mental health repercussions (e.g., anxiety, fear, depression, and externalizing behaviors). Addressing concerns underlined in this review could contribute to preventing further negative mental health repercussions of pandemics for children and adolescents and better prepare governments and professionals to address these highly challenging situation...

Supplemental Material, sj-pdf-1-ijq-10.1177_1609406920987962 for A Review of Approaches, Strategi... more Supplemental Material, sj-pdf-1-ijq-10.1177_1609406920987962 for A Review of Approaches, Strategies and Ethical Considerations in Participatory Research With Children by Marjorie Montreuil, Aline Bogossian, Emilie Laberge-Perrault and Eric Racine in International Journal of Qualitative Methods

Background Moral questions are vital questions because they concern what is esteemed to be the be... more Background Moral questions are vital questions because they concern what is esteemed to be the best action, the best choice and, ultimately, the best life to live. Health ethics which aims to address these moral questions has contributed to moving ethics toward more experience-based and user-oriented ethics theory and methodology. Despite this, current approaches remain an incomplete lever for human development and flourishing. This context led us to imagine and develop the stance of a “living ethics”, a radically participatory and situated form of ethics which we describe in this inaugural collective and programmatic paper. Methods We followed a participatory discussion and writing process known as instrumentalist concept analysis. Initial informal local consultations were undertaken about pragmatic ethics, and from these conversations emerged the current project. An exploratory literature review was undertaken, and a diverse working group of 21 co-authors was assembled. The workin...

Humanities and Social Sciences Communications, 2021

Across societies, cultures, and political ideologies, autonomy is a deeply valued attribute for b... more Across societies, cultures, and political ideologies, autonomy is a deeply valued attribute for both flourishing individuals and communities. However, it is also the object of different visions, including among those considering autonomy a highly valued individual ability, and those emphasizing its relational nature but its sometimes-questionable value. A pragmatist orientation suggests that the concept of autonomy should be further specified (i.e., instrumentalized) beyond theory in terms of its real-world implications and usability for moral agents. Accordingly, this latter orientation leads us to present autonomy as an ability; and then to unpack it as a broader than usual composite ability constituted of the component-abilities of voluntariness, self-control, information, deliberation, authenticity, and enactment. Given that particular abilities of an agent can only be exercised in a given set of circumstances (i.e., within a situation), including relationships as well as other ...

Journal of Child Neurology, 2020

Youth with neurologic conditions experience multiple life transitions. The transfer from pediatri... more Youth with neurologic conditions experience multiple life transitions. The transfer from pediatric to adult health care systems exemplifies one such complex and multifaceted transition that occurs in parallel with developmental, legal, and social changes that may influence the roles and responsibilities of youth and their caregivers. As a result, ethical situations, questions, and challenges may surface in transition care to which pediatric neurologists may be confronted. In this article, we focus on the topic of autonomy and situations that may arise in transition care in the context of pediatric neurology. Building from a clinical case, we present the concept of contextualized autonomy to work through the questions that arise in the case and propose ways of thinking through those challenging situations in transition care.

International Social Work, 2018

There is little research that explores how fathers protect their children in the context of polit... more There is little research that explores how fathers protect their children in the context of political violence. Drawing upon exploratory qualitative research with 18 Palestinian families, this article proposes a model of paternal protection composed of three dimensions: (1) method of protection (how fathers protect their children), (2) focus of protection (what fathers protect their children from), and (3) locus of protection (where fathers locate the mechanisms of protection). The model contributes to a greater awareness and understanding of the daily challenges facing fathers and suggests ways that social work practice and policy can support fathers in settings of adversity.

Theoretical Medicine and Bioethics, 2019

Bioethics has made a compelling case for the role of experience and empirical research in ethics.... more Bioethics has made a compelling case for the role of experience and empirical research in ethics. This may explain why the movement for empirical ethics has such a firm grounding in bioethics. However, the theoretical framework according to which empirical research contributes to ethics-and the specific role(s) it can or should play-remains manifold and unclear. In this paper, we build from pragmatic theory stressing the importance of experience and outcomes in establishing the meaning of ethics concepts. We then propose three methodological steps according to which the meaning of ethics concepts can be refined based on experience and empirical research: (1) function identification, (2) function enrichment, and (3) function testing. These steps are explained and situated within the broader commitment of pragmatic ethics to a perspective of moral growth and human flourishing (eudaimonia). We hope that this proposal will give specific direction to the bridging of theoretical and empirical research in ethics and thus support stronger actualization of ethics concepts.

BMJ open, Jan 17, 2018

As adolescents with neurodisabilities near adulthood, they and their caregivers will face the cha... more As adolescents with neurodisabilities near adulthood, they and their caregivers will face the challenge of transferring from paediatric to adult healthcare systems. Despite the growing number of programmes designed to support healthcare transitions, little is known about practices that result in positive outcomes or how ethical issues are addressed. The objective of this review is to identify and document the ethical principles that may be embedded in the vision of transitional care programmes and to map ethical issues encountered in transitional care as well as the strategies employed to recognise and address these ethical issues. We will document hidden and explicit ethical principles and issues from empirical studies on transition programmes for youth with neurodisabilities. An initial framework developed through a content extraction strategy will serve as a point of departure for data analysis and will be iteratively refined through our analytic process and with feedback from ou...

The American journal of bioethics : AJOB, 2017

Disability and rehabilitation, Jan 30, 2017

In the past thirty years, theoretical and empirical scholarship on father involvement has emerged... more In the past thirty years, theoretical and empirical scholarship on father involvement has emerged and firmly established itself. Efforts to define, measure, and explore outcomes related to father involvement in the context of childhood neurodisability are evident but less well established. The purpose of this study was to systematically map empirical studies on father involvement in the context of childhood neurodisability in order to delineate the current state of research and to highlight profitable directions for future research. A rigorous scoping review method was used to select and analyze empirical studies published between the years 1988 and 2016 in order to systematically map research findings about fathers' affective, behavioral, and cognitive involvement. Fifty-four (n = 54) studies (quantitative n = 47 and qualitative n = 7) met inclusion criteria associated with three levels of review. Four main trends emerged: (a) paternal "stress" is a main concept of in...

Transformations: The Journal of Inclusive Scholarship and Pedagogy, 2016

Starting Where We're At Developing a Student-Led Doctoral Teaching Group Abstr act The necessity ... more Starting Where We're At Developing a Student-Led Doctoral Teaching Group Abstr act The necessity and utility of standardized or formalized teacher training in doctoral programs has been debated, documented, and problematized across a range of academic disciplines. If doctoral education is the site of preparation for future university faculty, what are the teaching expectations of newly minted faculty in the applied disciplines, and what are the supports available to them to help them prepare for this role? The lack of formal courses on teaching in social work PhD programs encouraged the authors to create a doctoral pedagogy group aimed to support student educators' development for current and future roles as social work educators. This paper chronicles the group's development and structure, discusses the challenges and opportunities faced, and suggests a future agenda to support doctoral students in their role as educators. S a c h a N. B a i l e y, A l i n e B o g ossi a n, a n d Br e e A ke ss o n

NORMA, 2015

Under occupation, Palestinians face a range of challenges such as poverty, lack of mobility, decr... more Under occupation, Palestinians face a range of challenges such as poverty, lack of mobility, decreased access to social and health services, and violence. Fathers in Palestine have had to raise children in such a context, yet little is understood about their experiences. We conducted research with 18 families in the occupied West Bank and annexed East Jerusalem in order to understand the experiences of fathers in the face of occupation and violence. Applying theories of masculinity and fatherhood, our analysis suggests that occupation has challenged or obstructed the performance of three quintessentially masculine acts inherent to fatherhood: provision, protection, and modeling. The first refers to the role of the father as 'breadwinner;' the second to the role of father as 'protector;' and the third to the role of the father as masculine 'model' from whom children can learn masculine traits. We conclude by providing suggestions for future practice and research.

Background: In the past thirty years, theoretical and empirical scholarship on father involvement... more Background: In the past thirty years, theoretical and empirical scholarship on father involvement has emerged and firmly established itself. Efforts to define, measure, and explore outcomes related to father involvement in the context of childhood neurodisability are evident but less well established. The purpose of this study was to systematically map empirical studies on father involvement in the context of childhood neurodisability in order to delineate the current state of research and to highlight profitable directions for future research. Methods: A rigorous scoping review method was used to select and analyze empirical studies published between the years 1988 and 2016 in order to systematically map research findings about fathers’ affective, behavioral, and cognitive involvement. Results: Fifty-four (n = 54) studies (quantitative n = 47 and qualitative n = 7) met inclusion criteria associated with three levels of review. Four main trends emerged: (a) paternal “stress” is a ma...

Background: Being a parent of a child with a developmental disability (DD; e. g., cerebral palsy,... more Background: Being a parent of a child with a developmental disability (DD; e. g., cerebral palsy, autism) comes with great challenges and apprehensions. Mothers and fathers of children with DD are experiencing heightened levels of psychological distress, physical health problems, financial difficulties, social isolation, and struggles with respect to traditional parenting roles. In relation to the latter, the involvement of fathers in caregiving in today's society is increasing and is highlighted by its importance and positive contribution to the development of their children. However, fathers of children with DD report feeling excluded and marginalized by healthcare providers (HCPs) when arranging for and getting involved in healthcare services for their children. Currently, there is limited evidence as to what factors influence those experiences. We aimed to explore barriers to and facilitators of positive and empowering healthcare experiences, from the perspectives of fathers...

Participatory research can change the view of children from research subjects to active partners.... more Participatory research can change the view of children from research subjects to active partners. As active partners, children can be recognized as agents who can contribute to different steps of t...

Comprehensive child and adolescent nursing, 2017

Children with complex health care needs are an emerging population that commonly requires long-te... more Children with complex health care needs are an emerging population that commonly requires long-term supportive services. A growing body of evidence has highlighted that these children and their families experience significant challenges. Many of these challenges involve ethical concerns that have been under-recognized. In this article, we (a) outline ethical concerns that arise in clinical practice with children with complex health care needs and their families (e.g.: exclusion of children's voices in discussions and decisions that affect them; difficulties in defining their best interests; clashes across the array of social roles that parents manage; limited recognition of the ethical significance of parents' and other family members' interests) and (b) propose a relational ethics framework for addressing these concerns. Our framework draws on hermeneutical interpretation and moral experience as foundational orientations, recognizing children with complex health care ne...

Social scientists have been interested in studying families of children with neurodevelopmental d... more Social scientists have been interested in studying families of children with neurodevelopmental disorders (NDD) for decades. Theoretically, parenting occurs in a family context. Yet, little is known about this relationship from an empirical standpoint among parents of children with NDD. ...

Journal of Child Health Care

Humanities and Social Sciences Communications, 2021

Journal of Child Neurology, 2020

International Social Work, 2018

Theoretical Medicine and Bioethics, 2019

BMJ open, Jan 17, 2018

The American journal of bioethics : AJOB, 2017

Disability and rehabilitation, Jan 30, 2017

Transformations: The Journal of Inclusive Scholarship and Pedagogy, 2016

NORMA, 2015

Comprehensive child and adolescent nursing, 2017

Methods: A rigorous scoping review method was used to select and analyze empirical studies published between the years 1988 and 2016 in order to systematically map research findings about fathers’ affective, behavioral, and cognitive involvement.

Results: Fifty-four (n = 54) studies (quantitative n = 47 and qualitative n = 7) met inclusion criteria associated with three levels of review. Four main trends emerged: (a) paternal “stress” is a main concept of interest; (b) comparison of mothers and fathers on affective and cognitive involvement; (c) lack of a focus on fathers’ behavioral involvement, and (d) the absence of research designs that allow for examination of fathers’ unique perspectives.

Conclusions: Fathers are generally underrepresented in research in the context of childhood neurodisability. While there is a lack of depth in this area of research, granular analyses revealed important and unique differences about fathers’ parenting experiences. Recommendations for research and practice are provided.

Implications for rehabilitation
Fathers are underrepresented in the parenting in childhood neurodisability literature.

Fathers who report feeling competent in parenting and connected to their child also report less parenting distress and more satisfaction in their couple relationship and family environment.

Rehabilitation and allied health professionals should include fathers in parenting/family assessments.

Manifestation of distress may differ among family members. Rehabilitation and allied health professionals should offer individualized care that is attuned to the needs of all family members.

The necessity and utility of standardized or formalized teacher training in doctoral programs has... more The necessity and utility of standardized or formalized teacher training in doctoral programs has been debated, documented, and problematized across a range of academic disciplines. If doctoral education is the site of preparation for future university faculty, what are the teaching expectations of newly minted faculty in the applied disciplines, and what are the supports available to them to help them prepare for this role? The lack of formal courses on teaching in social work PhD programs encouraged the authors to create a doctoral pedagogy group aimed to support student educators’ development for current and future roles as social work educators. This paper chronicles the group’s development and structure, discusses the challenges and opportunities faced, and suggests a future agenda to support doctoral students in their role as educators.

Humanities & Social Sciences Communications, 2021

AUTHORS: Eric Racine, Sarah Kusch, M. Ariel Cascio, and Aline Bogossian Across societies, cultur... more AUTHORS: Eric Racine, Sarah Kusch, M. Ariel Cascio, and Aline Bogossian

Across societies, cultures, and political ideologies, autonomy is a deeply valued attribute for both flourishing individuals and communities. However, it is also the object of different visions, including among those considering autonomy a highly valued individual ability, and those emphasizing its relational nature but its sometimes-questionable value. A pragmatist orientation suggests that the concept of autonomy should be further specified (i.e., instrumentalized) beyond theory in terms of its real-world implications and usability for moral agents. Accordingly, this latter orientation leads us to present autonomy as an ability; and then to unpack it as a broader than usual composite ability constituted of the component-abilities of voluntariness, self-control, information, deliberation, authenticity, and enactment.Given that particular abilities of an agent can only be exercised in a given set of circumstances (i.e., within a situation), including relationships as well as other important contextual characteristics, the exercise of one’s autonomy is inherently contextual and should be understood as being transactional in nature. This programmatic paper presents a situated account of autonomy inspired by Dewey’s pragmatism and instrumentalism against the backdrop of more individual and relational accounts of autonomy. Using examples from health ethics, the paper then demonstrates how this thinking supports a strategy of synergetic enrichment of the concept of autonomy by which experiential and empirical knowledg eabout autonomy and the exercise of autonomy enriches our understanding of some of its component-abilities and thus promises to make agents more autonomous.

Theoretical Medicine and Bioethics, 2019

**SharedIt link: https://rdcu.be/bThEj **AUTHORS: Eric Racine, M. Ariel Cascio, Marjorie Montreu... more **SharedIt link: https://rdcu.be/bThEj
**AUTHORS: Eric Racine, M. Ariel Cascio, Marjorie Montreuil, and Aline Bogossian