A Charles Sabine video for you all to watch. (original) (raw)
HDA Message Board > Message Board Categories > General HD topicsA Charles Sabine video for you all to watch. User Name Remember Me? Password RegisterHelp PagesMembers ListSocial GroupsCalendarSearchToday's PostsMark Forums ReadGeneral HD topics Open forum for all other issues concerning Huntington�s disease Thread ToolsDisplay Modes 15-12-09, 06:38 PM #1just1moreperson Approved Member Join Date: Sep 2007 Location: England Posts: 3,508 A Charles Sabine video for you all to watch.http://www.youtube.com/watch?v=e7Ub8DcJxygEnjoy __________________ The Huntington's Disease Youth Organisation (HDYO) 15-12-09, 07:43 PM #2waz1980 Approved Member Join Date: Oct 2009 Location: Crawley Posts: 101 Re: A Charles Sabine video for you all to watch. Quote: Originally Posted by just1morepersonhttp://www.youtube.com/watch?v=e7Ub8DcJxygEnjoy Just watched the clip Matt, not nice to watch. With all the talk about Memantine, why are we not in the last clinical trials. It has halted the disease in people taking it and even undone some of the damage caused by HD.People like Sabine may well be able to see their children grow up if they take this drug to treat HD. 15-12-09, 08:16 PM #3jaq Approved Member Join Date: Oct 2006 Location: West Yorks Posts: 629 Re: A Charles Sabine video for you all to watch. Thanks Matt It is a good thing that Charles is so open and honest and I thiinkk he really is a powerful voice for all of us.Jaq 15-12-09, 09:08 PM #4just1moreperson Approved Member Join Date: Sep 2007 Location: England Posts: 3,508 Re: A Charles Sabine video for you all to watch. Quote: Originally Posted by waz1980 Just watched the clip Matt, not nice to watch. With all the talk about Memantine, why are we not in the last clinical trials. It has halted the disease in people taking it and even undone some of the damage caused by HD.People like Sabine may well be able to see their children grow up if they take this drug to treat HD. Memantine probably gives you some extra time coping with symptoms, I don't know if it's going to do more than that.But Charles is always on about how we need to help the researchers by joining trials etc. __________________ The Huntington's Disease Youth Organisation (HDYO) 16-12-09, 05:09 PM #5pasnthru Approved Member Join Date: Feb 2009 Posts: 75 Re: A Charles Sabine video for you all to watch. Quote: Originally Posted by just1morepersonhttp://www.youtube.com/watch?v=e7Ub8DcJxygEnjoy Thank you Matt for this link..This is powerful when he talks about his daughter not being able to remember him in an able body..I absolutely hate to hear when people decide to throw to the wind or god or whomever, whatever..the fate of their innocent loved ones..the children that make them whole.it just seems to me that this struggle with HD should only be fought by those of us who have already been afflicted by it not the ones who are not here as of yet. 16-12-09, 05:33 PM #6just1moreperson Approved Member Join Date: Sep 2007 Location: England Posts: 3,508 Re: A Charles Sabine video for you all to watch. I think there's no way near enough awareness and understanding about HD to expect people not to have children at risk. Lots to work on to change that __________________ The Huntington's Disease Youth Organisation (HDYO) 16-12-09, 09:33 PM #7Stardust Approved Member Join Date: Dec 2009 Location: South West Posts: 58 Re: A Charles Sabine video for you all to watch. Made me cry x 16-12-09, 10:00 PM #8just1moreperson Approved Member Join Date: Sep 2007 Location: England Posts: 3,508 Re: A Charles Sabine video for you all to watch. Plenty of HD videos that have that effect on us Stardust! __________________ The Huntington's Disease Youth Organisation (HDYO) 21-12-09, 07:42 PM #9Felinefriend Approved Member Join Date: Nov 2009 Location: England Posts: 68 Re: A Charles Sabine video for you all to watch. Its a very sad film to watch. It made me cry as well.... 21-12-09, 08:41 PM #10Scarlett D. Approved Member Join Date: Sep 2009 Location: London Posts: 813 Re: A Charles Sabine video for you all to watch. Thanks for posting this Matt.And I cried too! Take Care,Scarlett «Previous Thread |Next Thread» Thread Tools Show Printable VersionEmail this Page Display Modes Linear ModeSwitch to Hybrid ModeSwitch to Threaded Mode Posting Rules You may not post new threads You may not post replies You may not post attachments You may not edit your posts BB code is OnSmilies are On[IMG] code is Off HTML code is OffForum RulesForum Jump All times are GMT +1. The time now is 04:15 PM.
About the HDA Message Board A UK-based forum for people whose lives are affected by Huntington's disease and wish to share their experiences with others. Moderated by Regional Care Advisers from the HDA, a UK registered charity. Please Remember The HDA Message Board is not a substitute for professional advice. Consult a relevant professional before making decisions that could affect you or others.