‘Adolescents are reckless’: Representations at stake in the construction of the relationship of trust in paediatric diabetology (original) (raw)
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OBJECTIVE—No studies have been performed to examine parent perceptions of caring for adolescents with type 2 diabetes. In this qualitative study, we examined parent perceptions of barriers and strategies to address barriers to self-care in adolescents with type 2 diabetes. RESEARCH DESIGN AND METHODS—Families of adolescents with type 2 diabetes were recruited from a pediatric diabetes clinic. Focus groups were used to elicit parent experiences and perceptions of diabetes management of their adolescents with type 2 diabetes. Questions concerning barriers to self-care behaviors were asked by trained group facilitators. Transcripts were coded into themes by three reviewers. Qualitative analyses were conducted using NVIVO software. RESULTS—Between 2003 and 2005, six focus groups were conducted with a total of 27 parents or guardians. Parents identified many barriers to and practical strategies for positive adolescent self-management. Five domains that influence self-management were iden...
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While pre-adolescent children with type 1 diabetes receive most support from their parents/caregivers, others also contribute to their care. This study explored pre-adolescent children's experiences of receiving diabetes-related support from friends and peers. The objective was to identify how children could be better supported by their friends and peers to undertake diabetes self-management. In-depth interviews with 24 children (aged 9-12 years) with type 1 diabetes. Data were analysed using an inductive, thematic approach. Children gave mixed accounts of their experiences of speaking to their school/class about diabetes with some indicating that this had resulted in unwanted attention. Most individuals reported that other children had a limited understanding of diabetes and sometimes acted in insensitive ways or said things they found upsetting. Virtually all children described having a small number of close friends who were interested in learning about diabetes and provided t...
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Journal of Pediatric Nursing, 2012
There is little research about what parents of children with diabetes want and need from their health-care providers as they negotiate life with diabetes. Sixty-three parents of children with type 1 diabetes were interviewed. Interviews were tape-recorded and transcribed verbatim, and a content analysis of text data was conducted. Three themes emerged describing what they wanted in their relationships with diabetes providers: laying the foundation, providing clinical care, and engaging families as partners. Collectively, these data provide vivid insights into the parent's perspective regarding their needs from diabetes providers as well as their perceptions of interactions that were unhelpful or worse, hurtful or undermining.
Damião EBC, Pinto CMM. "Being transformed by illness": adolescents' diabetes experience. Rev Latino-am Enfermagem 2007 julho-agosto; 15(4):568-74. This research aimed to understand the experience of adolescents to live with a chronic illness like diabetes mellitus type 1. Symbolic Interactionism and Grounded Theory were both used as theoretical and methodological frameworks respectively. The results allowed us to know the adolescents' perceptions about their experience in living with diabetes through three themes: Knowing the diabetes diagnosis; Being transformed by illness and Being a sharp life. The adolescents in this study were resilient people because they became stronger in spite of the illness, being transformed. In this way, the resilient adolescent is capable of healing his/ her wounds, being in charge of his/her own life and having a full life. El objetivo de esta investigación es comprender la experiencia del adolescente que sufre una enfermedad crónica como la diabetes. Utilizamos el Interaccionismo Simbólico y la Teoría Fundamentada en los Datos como referenciales teórico y metodológico respectivamente. Los resultados nos han permitido conocer la percepción del adolescente sobre su experiencia y vivencia con la diabetes a partir de tres temas: "Recibiendo el Diagnóstico de Diabetes", "Siendo transformado por la Enfermedad" y "Llevando una vida puntiaguda". Los adolescentes de este estudio son personas resilientes porque han logrado no solamente convivir con la diabetes sino convertirse en más fuertes: siendo transformadas. Así, el adolescente resiliente es capaz de curarse de sus propias heridas, dirigir su vida y vivir plenamente. Esta pesquisa objetivou compreender a experiência do adolescente em ter uma doença crônica como o diabetes tipo 1. Utilizou-se o Interacionismo Simbólico e a Teoria Fundamentada nos Dados como referenciais teórico e metodológico respectivamente. Os resultados permitiram conhecer a percepção do adolescente sobre a sua experiência e vivência com o diabetes a partir de três temas: "recebendo o diagnóstico de diabetes", "sendo transformado pela doença" e "sendo uma vida pontiaguda". Os adolescentes deste estudo são pessoas resilientes por conseguirem não só conviver com o diabetes, mas tornarem-se mais fortalecidas: sendo transformadas. Desse modo, o adolescente resiliente é capaz de curar-se de suas próprias feridas, dirigir sua vida e viver plenamente. DESCRITORES: adolescente; diabetes mellitus tipo 1; enfermagem pediátrica Disponible en castellano/Disponível em língua portuguesa SciELO Brasil www.scielo.br/rlae 1 RN, PhD, Professor, e-mail: buchhorn@usp.br; 2 Student in the eight semester of the undergraduate nursing course. University of São Paulo School of Nursing, Brasil Rev Latino-am Enfermagem 2007 julho-agosto; 15(4):568-74 www.eerp.usp.br/rlae Artigo Original
Friends can provide encouragement and support during stressful times. Friends are even more important for children coping with chronic illness such as adolescents managing insulin dependent diabetes mellitus (IDDM). Nurses need to recognize that the knowledge and care of both the children coping with diabetes and friends can be critical. This study explored perceptions of adolescents managing diabetes and their peers. The non-affected peers and adolescents with IDDM ranged in age between 15-18 were studied using an exploratory qualitative method. A sample of 6 subjects, 2 with diabetes and 4 peers, were interviewed. Subjects with IDDM reported manageable stress but frustration with friends' lack of knowledge. The peers reported different views of managing diabetes than those with IDDM. Adolescents with IDDM also reported positive family support. The study revealed that peers need additional education on the illness. In summary, adolescents coping with diabetes had overall positive perceptions and accurate knowledge, but limited support from peers.