‘Adolescents are reckless’: Representations at stake in the construction of the relationship of trust in paediatric diabetology (original) (raw)

Abstract

A total of 10 focus groups were held with adolescents living with diabetes, their parents and health professionals in order to explore their needs in therapeutic education. The analysis showed that the relationship of trust was a central concern for a number of participants. Several adults were divided between a feeling of confidence inspired by the need to empower adolescents to cope with the chronic condition and a sense of distrust inspired by the idea of carelessness and irresponsibility thought to characterize adolescence. Adolescents, for their part, seemed relatively clear-sighted about how they can be perceived, and blamed adults for not trusting them. These findings emphasize the importance of considering the representations at stake in the dynamics of the therapeutic relationship in order to better understand the construction of the relational climate.

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References (51)

  1. Anderson BJ and Wolpert HA (2004) A developmental perspective on the challenges of diabetes education and care during the young adult period. Patient Education and Counseling 53(3): 347-352.
  2. Arnett JJ (2006) What does it mean to be an adult? Young people's conceptions of adulthood. In: Batler L and Tamis-LeMonda CS (eds) Child psychology: A handbook of contemporary issues. New York: Psychology Press, pp. 471-489.
  3. Berrios-Rivera JP, Street RL, Garcia Popa-Lisseanu MG, et al. (2006) Trust in physicians and elements of the medical interaction in pa- tients with rheumatoid arthritis and systemic lupus erythematosus. Arthritis and Rheumatism 55(3): 385-393.
  4. Caillaud S and Kalampalikis N (2013) Focus groups and ecological practices: A psychosocial approach. Research in Psychology 10(4): 382-401.
  5. Cameron FJ, Amin R, de Beaufort C, et al. (2014) Diabetes in adoles- cence. Pediatric Diabetes 15(S20): 245-256.
  6. Chao A, Minges KE, Park C, et al. (2016) General life and diabetes- related stressors in early adolescents with Type 1 diabetes. Journal of Pediatric Health Care 30(2): 133-142.
  7. Claes M (1992) L'image de l'adolescence dans la presse écrite [The image of adolescence in the written press]. Revue Québéquoise de Psychologie 13: 37-50.
  8. Colson S, Cote J, Gentile S, et al. (2016b) An integrative review of the quality and outcomes of diabetes education programs for children and adolescents. The Diabetes Educator 42(5): 549-584.
  9. Colson S, Fonte D, Côté J, et al. (2016a) Évolution du profil socio- cognitif et clinique d'adolescents diabétiques de type 1 ayant suivi un programme d'éducation thérapeutique : une étude pilote [Evolu- tion of the socio-cognitive and clinical profile of adolescents with Type 1 diabetes who follow a therapeutic education program: a pi- lot study]. Therapeutic Patient Education 8(1): 10102.
  10. Dany L (2016) Analyse qualitative du contenu des représentations sociales [Qualitative analysis of the content of social representa- tions]. In: Lo Monaco G, Delouvée S and Rateau P (eds) Les représentations sociales Bruxelles: de Boeck, pp. 85-102.
  11. Dasen PR (2000) Rapid Social Change and the Turmoil of Adoles- cence: A Cross-Cultural Perspective. International Journal of Group Tensions 29(1-2): 17-49.
  12. Flick U (2014) An introduction to qualitative research. London: Sage.
  13. Fonte D, Apostolidis T and Lagouanelle-Simeoni MC (2014) Compé- tences psychosociales et éducation thérapeutique du patient diabétique de type 1 : une revue de littérature [Psychosocial skills and therapeutic education of patients with type 1 diabetes: a sys- tematic review].
  14. Santé Publique 26(6): 763-777.
  15. Fonte D, Colson S, Côté J, et al. (2017a) Representations and experi- ences of well-being amongst diabetic adolescents: Relational, normative, and identity tensions in diabetes self-management. Journal of Health Psychology. Advance online publication. https://doi.org/10.1177/1359105317712575
  16. Fonte D, Colson S, Lagouanelle-Simeoni MC, et al. (2018b) Psycho- logie sociale de la santé et compétences psychosociales en éducation thérapeutique : des enjeux pour la recherche et pour la pratique [Health social psychology and psychosocial skills in the- rapeutic education: Issues for research and practice]. Pratiques Psychologiques. Advance online publication. https://doi.org/10.1016/j.prps.2018.06.001
  17. Fonte D, Lagouanelle-Simeoni MC and Apostolidis T (2018a) "Be- have like a responsible adult" -Relation between social identity and psychosocial skills at stake in self-management of a chronic disease. Self and Identity 17(2): 194-210.
  18. Fonte D, Lagouanelle-Simeoni MC and Apostolidis T (2017b) Les compétences psychosociales en éducation thérapeutique du pa- tient : des enjeux pour la pratique du psychologue [Psychosocial skills in therapeutic patient education: Issues for psychologists' practice]. Pratiques Psychologiques. Advance online publication. https://doi.org/10.1016/j.prps.2017.01.005
  19. Foucault M (1979) The history of sexuality: An introduction. London: Allen Lane.
  20. Glaser B and Strauss A (1967) The discovery of grounded theory. New York: Adline.
  21. Hall MA (2005) The importance of trust for ethics, law, and public policy. Cambridge Quarterly of Healthcare Ethics 14(2): 156-167.
  22. Jodelet D (1989) Les représentations sociales [Social representa- tions]. Paris: Presses Universitaires de France.
  23. Jodelet D. (2012) Interconnections between social representations and intervention. In: de Rosa A (ed) Social representations and the so- cial arena. London: Routledge, pp. 77-88.
  24. Jodelet D (2013) La place des représentations sociales dans l'éducation thérapeutique [Place of social representations in patient education]. Éducation Permanente 195(2): 37-46.
  25. Jones DE, Carson KA, Bleich SN, et al. (2012) Patient trust in physi- cians and adoption of lifestyle behaviors to control high blood pressure. Patient Education and Counseling 89(1): 57-62.
  26. Jovchelovitch S (2007) Trust and social representations: Understand- ing relations between self and other in the Brazilian public sphere. In: Marková I and Gillespie A (eds) Trust and distrust: Sociocul- tural perspectives. Greenwich, pp. 105-120.
  27. Krueger RA and Casey MA (2009) Focus groups: A practical guide for applied research. Thousand Oaks: Sage Publications.
  28. Lee YY and Lin JL (2009) The effects of trust in physician on self- efficacy, adherence and diabetes outcomes. Social Science & Med- icine 68(6): 1060-1068.
  29. Lee YY and Lin JL (2011) How much does trust really matter? A study of the longitudinal effects of trust and decision-making pref- erences on diabetic patient outcomes. Patient Education and Coun- seling 85(3): 406-412.
  30. Loriol M (2004) Être jeune est-il dangereux pour la santé ? [Is it dan- gerous to be young?]. In: Cichelli V (ed) Ce que nous savons des jeunes. Paris: Presses Universitaires de France, pp. 98-112.
  31. Maisonneuve J (1966) Psycho-sociologie des affinités [Psycho- sociology of affinities]. Paris: Presses Universitaires de France.
  32. Marková I and Gillespie A (2008) Trust and distrust: Sociocultural perspectives. Greenwich: Information Age Publishing.
  33. Markova I, Linell P, Grossen M, et al. (2007) Dialogue in focus groups: Exploring socially shared knowledge. London: Equinox.
  34. Morsa M, Gagnayre R, Deccache C, et al. (2017) Factors influencing the transition from pediatric to adult care: A scoping review of the literature to conceptualize a relevant education program. Patient Education and Counseling 100(10): 1796-1806.
  35. Moscovici S (2008) Psychoanalysis: Its image and its public. Cam- bridge: Polity Press.
  36. Naranjo D, Mulvaney S, McGrath M, et al. (2014) Predictors of self- management in pediatric Type 1 diabetes: Individual, family, sys- temic, and technologic influences. Current Diabetes Reports 14(11): 544.
  37. Neylon OM, O'Connell MA, Skinner TC, et al. (2013) Demographic and personal factors associated with metabolic control and self- care in youth with type 1 diabetes: a systematic review: Factors as- sociated with T1DM control. Diabetes/Metabolism Research and Reviews 29(4): 257-272.
  38. Perdriger A and Michinov E (2015) Therapeutic patient education: From infantilization to critical thinking. Joint Bone Spine 82(5): 299-301.
  39. Pereira A and Heringer R (1994) Brazil. In: Hurrelmann K (ed) Inter- national handbook of adolescence. Westport: Greenwood Press, pp. 65-76.
  40. Pirttilä-Backman AM, Menard RL, Verma J, et al. (2017) Social rep- resentations of trust among teachers and principals in Cameroonian, Indian, and Finnish schools. Journal of Social and Political Psychology 5(1): 29-57
  41. Platonova EA, Kennedy KN and Shewchuk RM (2008) Understanding patient satisfaction, trust, and loyalty to primary care physicians. Medical Care Research and Review 65(6): 696-712.
  42. Préau M, Leport C, Salmon-Ceron D, et al. (2004) Health-related quality of life and patient-provider relationships in HIV-infected patients during the first three years after starting PI-containing an- tiretroviral treatment. AIDS Care 16(5): 649-661.
  43. Rankin D, Heller S and Lawton J (2011) Understanding information and education gaps among people with type 1 diabetes: a qualita- tive investigation. Patient Education and Counseling 83(1): 87-91.
  44. Smith JA, Flowers P and Larkin M (2009) Interpretative phenomeno- logical analysis: Theory, method and research. London: Sage.
  45. Steinberg L and Lerner RM (2004) Handbook of adolescent psycholo- gy. New York: John Wiley and Sons.
  46. Thapa VJ, Raval S and Chakravarty S (1999) Young men. India Toady, 52-58.
  47. Thom DH, Kravitz RL, Bell RA, et al. (2002) Patient trust in the phy- sician: relationship to patient requests. Family Practice 19(5): 476- 483.
  48. Tully C, Shneider C, Monaghan M, et al. (2017) Peer coaching inter- ventions for parents of children with Type 1 diabetes. Current Diabetes Reports 17(6): 39.
  49. Whittemore R, Zincavage RM, Jaser SS, et al. (2018) Development of an eHealth program for parents of adolescents with Type 1 diabe- tes. The Diabetes Educator 44(1): 72-82.
  50. WHO (1998) Therapeutic patient education. Copenhaguen: World Health Organization.
  51. Wilson DP and Endres RK (1986) Compliance with blood glucose monitoring in children with Type 1 diabetes mellitus. The Journal of Pediatrics 108(6): 1022-1024.