Development of Education Material for Health Literacy and Education Needs of Patients Who Receive Chemotherapy in Turkey (original) (raw)
Related papers
2021
Objecives: The aim of the study was to determine the health literacy levels of patients receiving chemotherapy, to develop written educational material considering the health literacy level and to evaluate the appropriateness. Methods 360 patients who received chemotherapy at the Istanbul University Cerrahpaşa Medical Faculty Medical Oncology Outpatient Clinic. Descriptive and methodological research method was used. The data were collected using the DISCERN, Patient Data Form, Turkish Health Literacy Scale-32, Evaluation of the Conformity of Written Materials Form. "Chemotherapy Patient Education Guide" has developed. Results 72.2% of the patients receiving chemotherapy have a poor health literacy level and 6.1% are excellent. The developed “Chemotherapy Patient Education Guide” was found to be high in reliability and information quality by experts and patients. Conclusion/Implications for Practice: Nurses should plan educational activities that will increase the health l...
Development and validation manual education for patients submitted to chemotherapy
Hospice and Palliative Medicine International Journal
Objective: To describe the process of construction and validation of a manual of guidelines for cancer care to patients undergoing chemotherapy. Method: Descriptive research carried out from 2016 to 2017 from the stages: situational diagnosis; collection of information; summary and selection of content; text elaboration; creation of illustrations; consultation with specialists; public consultation with target group; adequacy of the manual; and evaluation of the Flesch Readability Index (FLI). The Delph Technique was used for the validation process, which was performed by 10 experts in the thematic area of the manual. The concordance index of at least 80% was considered to guarantee the validation of the material. Results: the items covered in the manual evaluation instrument were divided into three blocks: objectives, structure and presentation, and relevance that obtained the Concordance Index (CI) of 93.75%. Conclusion: the manual was considered valid for content and appearance. Patients undergoing chemotherapy and without professional follow-up and information can make them more sufferers, which contradicts the philosophy of palliative care to prevent human suffering in all dimensions of care, including spiritual, psychosocial.
Importance of health literacy in oncology
Asia-Pacific Journal of Clinical Oncology, 2012
Health literacy refers to one's ability to obtain, process and understand health information and services to enable sound health decision-making. This is an area of increasing importance due to the complexity of the health system, especially in the cancer setting. A certain level of health literacy is required for patients to fully understand health information and services to make sound decisions about their health care, including decisions about screening and treatment. Previous research has suggested that a significant proportion of the population may have limited health literacy. Suboptimal health literacy is an independent risk factor for poor health outcomes, including increased risk of hospitalization. Cancer patients with poor health literacy may have misconceptions about their disease and ineffective communication with their health professionals, leading to unnecessary interventions, under-treatment or poor adherence to their treatment plans. In addition, cancer patients who have a poor understanding of their disease may experience greater anxiety and be more dissatisfied with their care. Various strategies have been suggested to assist cancer patients with low health literacy. However, more work needs to be done to support all cancer patients with varying levels of health literacy, thus enhancing health experiences and health outcomes.
Clinical journal of oncology nursing, 2016
Health literacy is an important construct in health care that affects patient outcomes and overall health. The impact of limited health literacy in cancer care is wide, and it can affect patients' ability to make treatment decisions, follow directions on a prescription label, or adhere to neutropenic precautions. This article describes strategies and tools for nurses to use when developing written patient education resources in their daily practice.
Literacy Demands and Information to Cancer Patients
This study examines language complexity of written health information materials for patients undergoing colorectal cancer surgery. Written and printed patient information from 28 Swedish clinics are automatically analyzed by means of language technology. The analysis reveals different problematic issues that might have impact on readability. The study is a first step, and part of a larger project about patients' health information seeking behavior in relation to written information material. Our study aims to provide support for producing more individualized, person centered information materials according to preferences for complex and detailed or legible texts and thus enhance a movement from receiving information and instructions to participating in knowing. In the near future the study will continue by integrating focus groups with patients that may provide valuable feedback and enhance our knowledge about patients' use and preferences of different information material.
Cancer, 2017
Cancer information is of critical interest to the public. The National Comprehensive Cancer Network (NCCN) offers a series of comprehensive patient guidelines on the management of the most common cancer diagnoses. This study was aimed at assessing the health literacy demands of NCCN patient guidelines for the most common malignancies in the United States. The American Cancer Society's most common malignancies by annual incidence in the United States and their corresponding NCCN patient guidelines were identified. Four validated tools were used to evaluate literacy levels: 1) the Simple Measure of Gobbledygook, 2) the Peter Mosenthal and Irwin Kirsch readability formula (PMOSE/IKIRSCH), 3) the Patient Education Materials Assessment Tool (PEMAT), and 4) the Clear Communication Index from the Centers for Disease Control and Prevention (CDC). The average reading grade level was 10.3, which was higher than the recommended 6th-grade level. The average PMOSE/IKIRSCH score was 11; this ...
Objectives: The study aimed to evaluate the levels of health literacy amongst patients admitted to the ENT department of Eskisehir Osmangazi University in June 2018. Methods: 200 patients (comprising 107 males and 93 females), selected at random, consented to the study. They were supplied with the Health Literacy Questionnaire, which was used to evaluate health literacy. Results: The majority of respondents indicated that they were unsure about whether particular symptoms related to disease or not, lack confidence in being able to read and fully comprehend a text about their disease and have difficulty comprehending and trusting doctors' advice. They experienced difficulty in weighing advantages and disadvantages of treatment options, finding information relating to symptomatology and particular diseases and being aware when a second opinion would be appropriate. There were deficits apparent in understanding both positive and negative influences of the environment, lifestyle and nutrition. Nutritional advice was poorly comprehended. By contrast, no difficulties were apparent in obtaining medical appointments, making contact with doctors or using medication as directed. Respondents were confident about how to act in an emergency and when to call an ambulance, when to go for checkups and how to locate information on the management and prevention of obesity, hypertension or hypercholesterolaemia. Conclusion: Health literacy is of prime importance in public health. Bolstering health literacy, especially where levels are low, is necessary. Healthcare staff need to work on being more easily understood in the interests of promoting effective communication across the entire social spectrum.
Mosul Journal of Nursing, 2023
Objectives: To assess the effectiveness of the instructional program on knowledge for breast cancer patients undergoing chemotherapy. Methods: A quantitative/Quasi-experimental study was conducted among 118 breast cancer patients, (59 study group, 59 control group) the 59 study group has been exposed to the instructional program while the 59 control group has not been exposed to the instructional program. The instrument used in this study Breast Cancer and Chemotherapy Questionnaire (BCCQ). Results: The study finding shows, a deficit of knowledge among breast cancer patients in the pre-test before the instructional program about breast cancer and chemotherapy, but after the program in the post-test, the knowledge improved, which means that the effectiveness of the instructional program in increasing patients' knowledge about breast cancer and chemotherapy. Conclusions: The majority of the sample in both the study and control group were answered incorrectly for most items, which means had poor knowledge about breast cancer and chemotherapy for both groups at this point in a pretest. The patients who were exposed to the instructional program noticed improved knowledge, unlike the patients who were not exposed to the program and still have no information about breast cancer and chemotherapy. Recommendations: The study recommended conducting continuous educational workshops by the Ministry of Health and health institutions to increase women's knowledge about breast cancer and chemotherapy, as well as encourage them to early detection of breast cancer.
Patients' Degree of Health Literacy: A Cross-Sectional Survey from Eskisehir, Turkey
ENT Updates, 2018
Objectives: The study aimed to evaluate the levels of health literacy amongst patients admitted to the ENT department of Eskisehir Osmangazi University in June 2018. Methods: 200 patients (comprising 107 males and 93 females), selected at random, consented to the study. They were supplied with the Health Literacy Questionnaire, which was used to evaluate health literacy. Results: The majority of respondents indicated that they were unsure about whether particular symptoms related to disease or not, lack confidence in being able to read and fully comprehend a text about their disease and have difficulty comprehending and trusting doctors' advice. They experienced difficulty in weighing advantages and disadvantages of treatment options, finding information relating to symptomatology and particular diseases and being aware when a second opinion would be appropriate. There were deficits apparent in understanding both positive and negative influences of the environment, lifestyle and nutrition. Nutritional advice was poorly comprehended. By contrast, no difficulties were apparent in obtaining medical appointments, making contact with doctors or using medication as directed. Respondents were confident about how to act in an emergency and when to call an ambulance, when to go for checkups and how to locate information on the management and prevention of obesity, hypertension or hypercholesterolaemia. Conclusion: Health literacy is of prime importance in public health. Bolstering health literacy, especially where levels are low, is necessary. Healthcare staff need to work on being more easily understood in the interests of promoting effective communication across the entire social spectrum.
Addressing low literacy and health literacy in clinical oncology practice
The Journal of Supportive Oncology, 2010
Low functional literacy and low health literacy continue to be under-recognized and are associated with poorer patient health outcomes. Health literacy is a dynamic state influenced by how well a healthcare system delivers information and services that match patients' abilities, needs and preferences. Oncology care poses considerable health literacy demands on patients who are expected to process high stakes information about complex multidisciplinary treatment over lengths of time. Much of the information provided to patients in clinical care and research is beyond their literacy levels. In this paper, we provide an overview of currently available guidelines and resources to improve how the needs of patients with diverse literacy skills are met by cancer care providers and clinics. We present recommendations for health literacy assessment in clinical practice and ways to enhance the usability of health information and services by improving written materials and verbal communication, incorporating multimedia and culturally appropriate approaches, and promoting health literacy in cancer care settings. The paper also includes a list of additional resources that can be used to develop and implement health literacy initiatives in cancer care clinics. The National Assessment of Adult Literacy (NAAL) reported that approximately 30 million Americans were functionally illiterate in 2003, meaning they could not perform basic reading tasks necessary to function fully in society. 1 Literacy is strongly correlated with health literacy-the ability to obtain, process, and understand health information to make appropriate decisions-with the latter involving content-specific demands. 2-4 The NAAL found that an estimated 36% of US adults had only Basic or Below Basic health literacy skills and that vulnerable populations (racial/ethnic minorities, older adults, and those with low income) had lower health literacy. These findings are concerning given the complex demands placed on patients to read, write, compute, solve problems, and understand novel information in order to navigate healthcare systems and achieve good health.