Experiences and Outcomes of Attending a Facial Pain Management Program: A Qualitative Study (original) (raw)
Related papers
Journal of Oral & Facial Pain and Headache, 2022
Aims: To evaluate About Face, a pain management program aimed at increasing quality of life in adults living with persistent facial pain through psychology-and physiotherapy-based skill development. Methods: A total of 90 patients attended a six-session program with a 1-month follow-up between 2015 and 2019. Patients filled out self-reported outcome measures preprogram, postprogram, and at a 1-month follow-up visit. Results: There was a significant reduction in pain catastrophizing and a significant increase in engagement in meaningful activity, as well as a reduction in pain-related interference. Conclusion: This evaluation adds to the small amount of existing literature on interventions aimed at increasing quality of life in patients living with persistent facial pain and provides suggestions for future research.
British Dental Journal, 2011
that recognises and manages pain, optimises function and quality of care, and thus should be evaluated by patients. 4-6 There is evidence that chronic pain patients can be highly satisfied with their treatment despite receiving little symptom relief. 7 This suggests that in this group, factors associated with the patient-provider relationship may be more influential in determining patients' satisfaction, and ultimately their clinical outcome. The initial consultation visit must have adequate time for attaining a thorough history so that the physical, social, psychological and spiritual (ie religious traditions and beliefs, prayer, meditation) aspects of a patient's pain and health profile are ascertained. 6 This allows the provider to determine a wide range of factors that influence the degree of pain, and how patients experience and interpret pain. However, time is one of the factors most conspicuously absent in primary care consultations. The British Pain Society and British Society of Oral Medicine recommends that a consultation visit of at least 45 minutes per complex patient is required to attain a proper diagnosis, build rapport with the patient and allow time for education and counselling for patients. 8
Patient-centered outcome criteria for successful treatment of facial pain and fibromyalgia
Journal of orofacial pain, 2009
To define treatment success from the facial pain and fibromyalgia pain patient perspective across four domains (pain, fatigue, emotional distress, interference with daily activities) through the use of the Patient-Centered Outcomes (PCO) Questionnaire. Participants included 53 facial pain (46 women, seven men) and 52 fibromyalgia (49 women, three men) patients who completed the PCO Questionnaire. The PCO assesses four relevant domains of chronic pain: pain, fatigue, distress, and interference in daily activities. Participants rated their usual levels, expected levels, levels they considered successful improvements, and how important improvements were in each of the four domains following treatment. Repeated-measures analyses of variance were performed to determine whether differences existed across domains and across pain groups. Both groups of participants defined treatment success as a substantial decrease in their pain, fatigue, distress, and interference ratings (all approximate...
Prospective three-year follow up of a cohort study of 240 patients with chronic facial pain
The Journal of Laryngology & Otology, 2014
Background:Patients often present with facial pain ascribed to sinusitis, despite normal nasal endoscopy and sinus computed tomography. Facial pain is increasingly recognised to be of neurological origin.Method:A cohort of 240 patients with chronic facial pain was followed up for 36 months at an otolaryngological practice in Malta. The types of facial pain were classified according to International Headache Classification criteria. The body mass index, occupation and educational level of patients were compared with the general population.Results:Tension-type mid-facial pain and facial migraine without aura were the most common types of chronic facial pain. The sites of pain, symptoms, treatment and outcomes for these principal pain types are discussed. Patients with mid-facial pain were treated with low-dose amitriptyline for eight weeks. After three years, nearly half of the patients were symptom free, and in a third the pain changed from being chronic to being episodic. The treatm...
Exploring supportive care needs and experiences of facial surgery patients
British journal of nursing (Mark Allen Publishing)
Research suggests that an important determinant of psychosocial outcomes following disfiguring surgery is social support. Healthcare professionals are in a position to offer emotional support to patients undergoing surgery, but evidence regarding the experience of supportive care among facial surgery patients is sparse. This study explored the experiences of facial surgery patients and their friends or family with regard to support from healthcare professionals. Twenty-nine facial surgery patients and nine significant others (eight marital partners and one close family member) participated in indepth interviews and focus groups, and the data were analysed using a grounded theory form of coding. Analysis identified three main categories of support: informational, practical and emotional. Findings also showed discrepancies between patients' need for emotional support and provision by healthcare staff.
Emotional aspects of chronic orofacial pain and surgical treatment
International Journal of Surgery, 2009
The aim of this pilot study was to investigate the psychological factors of chronic orofacial pain patients regarding hospitalization for surgical treatment. We evaluated 30 patients (15 with temporomandibular disorder and 15 with trigeminal neuralgia) of three groups: 10 were hospitalized for surgery, 10 were newly diagnosed, and 10 had been clinically treated. Data were collected using a semi-structured interview and the Hospital Anxiety Depression Scale. Eighty percent reported lack of family support, 90% had important limitations in daily activities, and social aspects were the most affected (34%). Patients who were hospitalized for surgery had the highest degree of anxiety and expectation (90%; p<0.05). Surgery for chronic pain generates great expectations especially because it is considered a hope of cure. Clinically treated patients also might understand the factors associated to surgery choices and participate at the process of choosing. In general, chronic treatment for facial pain needs psychological support to cope with it.
Losing face: Sources of stigma as perceived by chronic facial pain patients
Journal of Behavioral Medicine, 1990
The purpose of this paper is to identify potential sources of estrangement and feeling psychologically flawed as perceived by temporomandibular pain and dysfunction syndrome (TMPDS) patients. It is our hypothesis that a primary source of patients' perceived stigma results from pejorative labeling by clinicians. The data come from a study of 151 women TMPDS patients. The results show that the lack of a known etiology or pathogenesis for the condition allows the possibility of pejorative labeling by influential others such as physicians and dentists that in turn causes TMPDS sufferers to feel stigmatized. Stigmatization is not the result of clinical factors per seor personality problems. Perceived stigma associated with TMPDS leads to the same sorts of strained interactions and feeling estranged that have been shown to be typical of people with other stigmatized conditions. These strains and feelings in turn may contribute to ill health.
The Journal of Pain, 2012
This dual-site study sought to identify the appropriate role for traditional Chinese medicine (TCM; acupuncture and herbs) in conjunction with a validated psychosocial self-care (SC) intervention for treating chronic temporomandibular disorders (TMD)-associated pain. Participants with Research Diagnostic Criteria for Temporomandibular Disorders-confirmed TMD (n = 168) entered a stepped-care protocol that began with a basic TMD class. At weeks 2 and 10, patients receiving SC whose worst facial pain was above predetermined levels were reallocated by minimization to SC or TCM with experienced practitioners. Characteristic facial pain (CFP: mean of worst pain, average pain when having pain, and current pain; each visual analog scale [VAS] 0-10) was the primary outcome. Social activity interference (VAS 0-10) was a secondary outcome. Patients were monitored for safety. TCM provided significantly greater short-term (8-week) relief than SC (CFP reduction difference, À.60 [standard deviation of the estimate .26], P = .020) and greater reduction in interference with social activities (À.81 [standard deviation of the estimate .33], P = .016). In 2 of 5 treatment trajectory groups, more than two thirds of participants demonstrated clinically meaningful responses ($30% improvement) in pain interference over 16 weeks. This study provides evidence that TMD patients referred for TCM in a community-based model will receive safe treatment that is likely to provide some short-term pain relief and improved quality of life. Similar designs may also apply to evaluations of other kinds of chronic pain. (ClinicalTrials.gov number NCT00856167).
British journal of health psychology, 2015
Persistent pain in the face, mouth, and jaws is a common presentation to dental and medical services. The aetiology remains unclear, but a growing evidence base recognizes the effectiveness of psychological rather than biomedical interventions. To understand how this approach might be implemented into clinical practice, knowledge is needed of patients' and clinicians' experience of chronic orofacial pain (COFP). The aim of this study was to explore the experience and understanding of COFP by patients and primary and secondary care medical and dental practitioners. Qualitative interview study. Audio-recorded semi-structured interviews with a purposive sample of 12 dentists, 11 general practitioners, and seven patients were thematically analysed. Clinicians and patients recognized the role that psychological factors could play in the development and maintenance of COFP, yet management and self-management strategies were largely limited to biomedical interventions. Achieving a ...
The Aetiology And Management Of ChronicIdiopathic Facial Pain: A Review
Annals of Dentistry, 1998
Chronic idiopathic facial pain is the diagnosis given to a group of orofacial pain of psychogenic origin which includes atypical facial pain, facial-arthromyalgia, atypical odontalgia and oral dysaesthesia. Despite various biochemical findings, the condition remains poorly understood, but we have begun to understand the nature of these patients. This review discusses the possible aetiology of the disease through various biochemical and clinical findings. The contribution of behavioural and psychological factors to the clinical course of the disease are described. The type of adverse life events that predispose people to the disease and their potency are briefly mentioned. The current diagnostic approach for the disease is also mentioned. Treatment includes antidepressant medication, physiotherapy, bite-guards and analgesics. The problems encountered in the long-term management and outcome studies of these patients include drop-outs, non-compliance and denial.