Need for Telecare for Home Residents with Dementia: Potential Solutions - Based on the Experiences of Close Relatives and Healthcare Professionals (original) (raw)
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The use of Telecare to support people with dementia to remain living in their own homes
2018
There are currently 820,000 people in the United Kingdom living with dementia and around 670,000 partners, family members, and friends providing them with support. The behavioural disturbances and memory loss that typify dementia can make the role of caregiver extremely challenging. The consequent burden that many carers experience is closely associated with the care receiver’s admission into institutional care. Due to the UK’s ageing population, the number of people with dementia is set to rise to over one million by 2021. Consequently, the UK government is keen to explore different options to support carers, and to meet the increasing demand on care services. One such option is telecare, which uses information and communication technology to help manage the risks of community living for people with dementia, and to support care delivery. This thesis presents a hybrid simulation model, TeleDem, which explores the influence of telecare on the number of people with dementia able to r...
JBI Database of Systematic Reviews and Implementation Reports, 2017
Review question/objective: The objective of this systematic review is to identify and synthesize the best evidence on the home-dwelling elderly's experiences with the use of telecare in home care services. Furthermore, the study will identify experiences with telecare devices and examine what beliefs the home-dwelling elderly hold regarding the impact of telecare on the ability to age in place. Review question 1: How do the home-dwelling elderly experience the use of telecare in the context of home care services? Review question 2: How do the home-dwelling elderly experience telecare devices? Review question 3: What beliefs do the home-dwelling elderly hold regarding the impact of telecare on the ability to age in place?
Journal of Clinical Nursing, 2018
Caring by Telecare? A Hermeneutic Study of Experiences among Older Adults and Their Family Caregivers What does this paper contribute to the wider global clinical community? This study provides new insights into the longitudinal use of telecare in home care services from the perspectives of community-dwelling older adults and their family caregivers. Telecare does improve the care offered by home care services through increasing safety and security, and through allowing older adults' more independence, in a number of cases, if adjusted to the persons` needs. Family caregivers are important for the continual use of telecare; it benefits them but may also add responsibility to their care burden. Aims and objectives: The purpose of this study was to obtain a deeper understanding of the persistent use of telecare for older adults and their family caregivers. Background: Telecare is seen as part of the solution in home care services for ageing in place. Previous studies have shown that telecare is a complex intervention, and there is still a poor understanding of older adults' and their family caregivers' experience with the use of telecare. Design: This study used a qualitative hermeneutic research approach. Method: Interviews were conducted with 18 older adults and follow-up interviews were conducted with 15 participants after five to six months of use. In addition, interviews were conducted with seven close family caregivers. The COREQ checklist was used.
JBI Database of Systematic Reviews and Implementation Reports, 2017
Background: The aging population will lead to a rise in the number of people with age-related diseases, and increasing demand for home care services. Telecare is seen as a solution to this challenge by promoting aging in place. Nevertheless, there is still a poor understanding of older adults' experiences with the actual use of telecare. Objective: The aim of this review was to identify and synthesize the best available qualitative evidence of community-dwelling older adults' experience with the use of telecare in home care services. Inclusion criteria: This review considered studies that focused on qualitative data, examining older adults' experiences with the use of active and passive technology devices, such as personal alarms and sensor technology, in the context of home care services.
Health Technology Assessment
Background Assistive technology and telecare have been promoted to manage the risks associated with independent living for people with dementia, but there is limited evidence of their effectiveness. Objectives This trial aimed to establish whether or not assistive technology and telecare assessments and interventions extend the time that people with dementia can continue to live independently at home and whether or not they are cost-effective. Caregiver burden, the quality of life of caregivers and of people with dementia and whether or not assistive technology and telecare reduce safety risks were also investigated. Design This was a pragmatic, randomised controlled trial. Blinding was not undertaken as it was not feasible to do so. All consenting participants were included in an intention-to-treat analysis. Setting This trial was set in 12 councils in England with adult social services responsibilities. Participants Participants were people with dementia living in the community wh...
BMC Medical Informatics and Decision Making
Background There is a knowledge gap regarding factors that may influence the access to different devices for home-dwelling people with dementia (PwD). The aim of this study was to identify different assistive technology and telecare (ATT) devices installed in the home and key factors associated with access to such technology. Methods The baseline data came from the LIVE@Home.Path trial, a 24-month multi-component intervention including PwDs and their informal caregivers (dyads) and were collected through semi-quantitative questionnaires in three Norwegian municipalities between May and November of 2019. Regression models were applied to detect demographic and clinical factors associated with access to ATT. Results Of 438 screened dyads, 276 were included at baseline. The mean ages of the PwDs and caregivers were 82 ± 7.0 and 66 ± 12 years, respectively, and 62.8% of the PwD were female and 73.5% had access to any type of ATT. The majority had traditional equipment such as stove guar...
Background: Policy makers and care providers see assistive technology and telecare as potential products to support people with dementia to live independently and safely in their homes and communities. Little research has examined how people with dementia and their caregivers actually use these technologies. The study aimed to examine how and why people with dementia and their caregivers used assistive technology and telecare in their own homes. Methods: This study used an ethnographic design embedded within the NIHR-funded Assistive Technology and Telecare to maintain Independent Living At home for people with dementia (ATTILA) randomized controlled trial. We collected 208 hours of observational data on situated practices of ten people with dementia and their ten caregivers. We used this data to construct extended cases to explain how technologies supported people with dementia in home and community settings. Results: We identified three themes: placing technology in care, which il...
The perceptions of cognitively impaired patients and their caregivers of a home telecare system
Medical Devices: Evidence and Research, 2014
Assistive and telecare technologies have been developed to support older adults with cognitive impairments, as well as their caregivers, from their homes. The way potential users perceive telecare and smart home systems plays a key role in their acceptance of this new technology. We evaluate the acceptance of home telecare technologies among patients suffering from cognitive impairment and their caregivers. Prototypes of telecare devices were developed to demonstrate their features and capabilities and to train patients, families, and health care professionals in their use. We conducted semistructured interviews to elicit the perceptions of 30 patients with mild cognitive impairment, 32 patients with Alzheimer's disease, and 30 caregivers, regarding the risks and advantages of home telecare and smart houses. Survey results reflected participants' largely positive reactions to these technologies. Regarding home telecare, the cognitive stimulation program earned the highest proportion of positive responses, followed by the devices' care of emergencies. The participants generally agreed that home telecare and smart houses could significantly improve their quality of life. However, some technical and ethical concerns, such as the way of provision, installation, and monitoring of the systems, were reported to be in need of addressing before implementation of this system.