Cancer patients´ information seeking behaviour related to online electronic healthcare records (original) (raw)
Related papers
2021
This research focuses on examining the use and non-use of information resources among cancer patients. Non-seekers' information-seeking behavior is analyzed in this research to determine the causes and symptoms of their non-seeking of health knowledge. Cancer patients use a variety of information resources such as the Internet, social media, and medical databases, in order to satisfy their needs. Studies showed that patients' knowledge of their cancer stage might help them in making their care and treatment choices. Focus groups are commonly used in health research to explore the perspectives of patients or health care professionals; relatively few studies consider methodological aspects in this specific context. The purpose of this research is to investigate the information needs of cancer patients, and to find out reasons for the lack of cancer stage knowledge and desire for information after diagnosis. Expected findings include personal, situational, and psychological reasons, such as: low health literacy, low usage of health information, health instructions and the ways to increase patient awareness of the benefits and ways of seeking information.
Patients' characteristics and rate of Internet use to obtain cancer information
Journal of Public Health, 2006
The aim of this study was to present baseline data on the access to Internet by French breast cancer patients attending genetic clinics and to examine factors affecting Internet health-related use. Twenty-four percent of participants used Internet to obtain information about the disease. This rate was higher among patients with health occupations [adjusted odds ratio (adjOR) 2.6; 95% confidence interval (CI) 1.3-5.1], the most highly educated (adjOR 2.1; 95% CI 1.1-4.0) and those under 41 years of age (adjOR 7.3; 95% CI 2.1-26.2). Almost one of every three women was dissatisfied of this source of information.
Influencing Factors of Online Health Information Seeking in Selected European Countries
European Journal of Health Communication
Patients’ participation in healthcare requires comprehensive health knowledge and can benefit from online health information seeking behaviours (O-HISB). The internet is a particularly vital source for seeking health-related information in many regions of the world. Therefore, we take a European cross-country comparative perspective on O-HISB. We aim to compare the importance of personal, health(care)-related, and cognitive determinants of using the internet for health-related purposes in four European countries. We conducted online surveys among the German, Swiss, Dutch, and Austrian public and described patterns of health information seeking online. The internet seemed to be a widely used source of health information in the four selected European countries. The explanation patterns of personal, health(care)-related, and cognitive factors differ by country and between selecting the internet as a source of health information and the frequency of online use. Using online media appear...
Journal of Computer-Mediated Communication, 2010
In order to provide insights about cancer patients' online information seeking behaviors, the present study analyzes individuals' transaction log data and reports on how demographics, disease-related factors, and psychosocial needs predict patterns of service use within a particular Interactive Cancer Communication System (ICCS). Study sample included 294 recently diagnosed breast cancer patients. Data included pretest survey scores of demographic, disease-related, and psychosocial factors and automatically collected ICCS use data over the 4-month intervention. Statistical analyses correlated pre-test survey scores with subsequent, specific types of ICCS service usage. Patterns of online cancer information seeking differed according to the patients' characteristics, suggesting that lower income, less educated women and those lacking in information-seeking competence use the computer and online services to the same or a greater degree if those services are made available to them. Results of this study can inform more effective resource development for future eHealth applications.
Patients’ use of health-related information from the Internet is increasing at an exponential rate. Although we have some information about how health professionals use the Internet (Roscoe, 1998; Wilson, 1999) we know little about how patients utilise this information. Some patients may actively seek information to assume more responsibility for their health. However, others may feel forced into doing so because of failing confidence in health care provision. Health professionals have the potential to assist patients to make sense of health information from the Internet; however, they may not necessarily welcome this role (Wilson, 1999; Eberhart-Phillips et al., 2000). This study aims to evaluate patient use of such information in primary care and to establish how this can be directed in the future. 851 adult patients from general practice were surveyed about the health information they use, including the Internet. 50 patients from the survey were then randomly selected for interview. Abstracts 242 International Journal of Consumer Studies, 27, 3, June 2003, pp218–251 © 2003 Blackwell Publishing Ltd 12 health care professionals were also interviewed about how patients use the Internet and the impact this has on consultations. The majority of patients (80%) prefer to use their GP as a source of health information. The remaining sources of information received significantly lower ratings. However, the Internet was the second most preferred source of information (7%). Of those using the Internet about two thirds felt more prepared and able to participate in decision-making about treatments. The majority of patients rely on their doctor for health information. However, many patients actively use the Internet as an information source. The use of Internet information during consultations is on the increase, and although patients are positive about such use, doctors do not necessarily welcome Internet informed patients. It is now necessary to identify the training needs of health care professionals for dealing appropriately with Internet informed patients.
Consumer use of the internet for health information:
An increasing number of patients use the internet to obtain information about health. Although some information is available about how health professionals use the internet, little is known about how patients utilize this information. Some patients may actively seek information to assume more responsibility for their health. However, others may feel obliged to do so because of failing confidence in health care provision. Health professionals have the potential to assist patients to make sense of health information from the internet; however, they may not necessarily welcome this role. This study aims to evaluate patients’ use of such information in a primary care setting. The sample consisted of adult patients ( n = 851) from two general practice populations at different levels of the socio-economic spectrum in South Wales (UK). Patients were surveyed by questionnaire about the health information they use, including the internet. The majority of patients preferred to use their general practitioner as the main source of health information. The internet was jointly the second preferred source for information about an illness (6%). Just over half (51%) of patients in this study had access to the internet, of which about half use it to access health information. Just under a quarter (24%, n = 55) of health internet users had discussed information accessed from the internet during a subsequent consultation with a health professional. Of these, three-quarters felt more prepared and able to participate in decision-making about treatments. This study provides a greater understanding of how patients are making use of health-related information from the internet. These findings can be used to help prepare health care professionals for dealing appropriately with internet-informed patients.
Exploring patients’ perceptions of accessing electronic health records: Innovation in healthcare
Health Informatics Journal
The more widespread implementation of electronic health records has led to new ways of providing access to healthcare information, allowing patients to view their medical notes, test results, medicines and so on. In this article, we explore how patients perceive the possibility to access their electronic health record online and whether this influences patient involvement. The study includes interviews with nine patients and a survey answered by 56 patients. Our results show that patients perceive healthcare information to be more accessible and that electronic health record accessibility improves recall, understanding and patient involvement. However, to achieve the goal of involving patients as active decision-makers in their own treatment, electronic health records need to be fully available and test results, referrals and information on drug interactions need to be offered. As patient access to electronic health records spreads, it is important to gain a deeper understanding of ...