International Collaboration on Palliative Care Development Between ASCO and the Land of Hornbills (original) (raw)
Related papers
BMC Research Notes
Objective: In Indonesia, palliative care has not been uniformly implemented at all levels of healthcare facilities. Healthcare personnel play an important role in providing that care. This study aimed to explore the current conditions and expectations regarding palliative care from the perspective of healthcare personnel. Results: A qualitative study was conducted with 12 physicians and five nurses from December 2017 to June 2018. In-depth interviews of these professionals were conducted. The responses were subjected to inductive thematic analysis, generating five themes and 24 subthemes. The themes were (1) family and environment, including barriers and contributions to palliative care; (2) numbers and competence of healthcare providers; (3) accessibility of palliative care; (4) case management of patient's and family's problems by healthcare personnel; and (5) barriers or enabling factors from the healthcare system. Patients, family members, and healthcare personnel contribute to case management. Attention must be paid to improving access and the healthcare system for thorough implementation of palliative care.
Inter Collegas
In most countries of the world, palliative care is an integral part of quality medical care, which includes comprehensive medical, social, psychological, and spiritual support for critically ill patients and their relatives. According to the WHO, every year about 20 million people worldwide need palliative care at the end of their lives. There are many more who need palliative care until the last year of their lives. Thus, the total number of people who need palliative care annually is about 40 million. It is estimated that of the 20 million people in need of end-of-life palliative care, 78% live in low- and middle-income countries; about 67% are elderly and about 6% are children. However, only 14% of people who need end-of-life palliative care receive it. Palliative care considers the principle of respect for patients' decisions and aims to provide practical support to their family members during illness and in the event of a patient's death to overcome grief over the loss ...
BMJ supportive & palliative care, 2014
Although palliative care is an important public healthcare issue worldwide, the current situation in the Asia-Pacific region has not been systematically evaluated. This survey aimed to clarify the current status of palliative care in the Asia-Pacific region. Questionnaires were sent to a representative physician of each member country/region of the Asia Pacific Hospice Palliative Care Network (APHN). The questionnaire examined palliative care service provision, information regarding physician certification in palliative care, the availability of essential drugs for palliative care listed by the International Association for Hospice and Palliative Care (IAHPC) and the regulation of opioid-prescribing practice. Of the 14 member countries/regions of the APHN, 12 (86%) responded. Some form of specialist palliative care services had developed in all the responding countries/regions. Eight member countries/regions had physician certifications for palliative care. Most essential drugs for ...
Palliative Care Services from Past to Present
Palliative Care [Working Title]
Palliative care (PC) refers to all services provided to make the remaining life of a patient meaningful and valuable. It is recommended that palliative care that is applied to improve the life quality of the patients should not be based only on the diagnosis and prognosis of the disease but also on the need of the patients. Even, palliative care was administered only in the late stages of diseases in the past, but these days it is recommended to be administered in addition to therapies starting from the diagnosis of life-threatening diseases. Palliative care requires a multidisciplinary team approach consisting of professionals who serve for a common purpose.
Current status of palliative care services in Indonesia: a literature review
International Nursing Review, 2016
Aim: To review healthcare literature in relation to the provision of palliative care in Indonesia and to identify factors that may impact on palliative care development. Background: People living with life-limiting illness benefit from access to palliative care services to optimize quality of life. Palliative care services are being expanded in developing countries but in Indonesia such services are in their infancy with many patients with life-limiting illnesses having access to appropriate health care compromised. Methods: Relevant healthcare databases including CINAHL, PubMed, Science Direct and Scopus were searched using the combinations of search terms: palliative care, terminal care, end-of-life care, Indonesia and nursing. A search of grey literature including Internet sites was also carried out. Results: Nine articles were included in the review. Facilitating factors supporting the provision of palliative care included: a culture of strong familial support, government policy support, volunteering and support from regional organizations. Identified barriers to palliative care provision were a limited understanding of palliative care among healthcare professionals, the challenging geography of Indonesia and limited access to opioid medications. Conclusions: There are facilitators and barriers that currently impact on the development of palliative care in Indonesia. Strategies that can be implemented to improve palliative care include training of nurses and doctors in the primary care sector, integrating palliative care in undergraduate medical and nursing curriculum and educating family and community about basic care. Nurses and doctors who work in primary care can potentially play a role in supporting and educating family members providing direct care to patients with palliative needs.
A new international framework for palliative care
European Journal of …, 2004
In spite of recent advances in anti-cancer treatments, most adult cancer patients still ultimately die from their disease. There should therefore be free access to palliative care around the clock and seven days a week, for all cancer patients, as a fundamental human right.
Refers to the relative or friend, who takes care of the patient. It may also refer to the paramedical professional who is involved in the program. Multidisciplinary Care Multidisciplinary care occurs when professionals from a range of disciplines with different and complementary skills, knowledge and experience work together to deliver the most appropriate healthcare. Here, physiotherapist, social worker, psychologist, nutritionist etc. have significant roles to play along with doctors & nurses. This approach aims at best possible outcome based on the physical and psychosocial needs of a patient and family. As needs of the patients change with time, the composition of the team may also change to meet these needs. Suffering It is the distress associated with events that threaten the wellbeing or wholeness of the person. Spiritual Pain Spirituality is that special dimension in human beings that gives a purpose to life. It includes searching and finding meaning in life and death, reason for suffering, and the need for love, acceptance and forgiveness. Faith in God, prayers, religious faith and its relevance may be a path chosen by some. A person may be spiritual without being religious. Spiritual pain is when these dimensions get disturbed or questioned leading to suffering. E.g. I did not drink, smoke, was kind and good throughout my life. Why did this happen to me? Psychosocial Pain It includes anxiety, fear, apprehension, depression, loss of dignity, loneliness, a sense of being a burden on others and no longer being valued as a person. Dying with Dignity Refers to the humanitarian concept that a terminally ill patient should be allowed to have peaceful, natural and comfortable death, rather than being subjected to aggressive, isolating, distressful, costly and invasive interventions.an example for an undignified death would be a patient with multisystem failure being kept "alive" with long term mechanical ventilation and regular dialysis in an ICU setting. Bereavement Support When a person dies, we say that their family is bereaved. This means they have lost someone precious and close to them and are grieving. Support given to the family to go through this period and get back to regular productive life is called bereavement support. Terminal Illness An irreversible or incurable disease condition from which death is expected in the foreseeable future. Actively Dying The hours or days preceding imminent death during which time the patient's physiological functions wane. DEFINITION/CLARIFICATION OF TERMS DEFINITION/CLARIFICATION OF TERMS vii Life Sustaining Treatment Life sustaining treatment comprises of any medical treatment that artificially supports or replaces, a bodily function essential to the life of the person. C CHAPTER 1 • Like in most low or middle-income countries, the need for palliative care is greater in India than in the west simply because disease-specific treatment does not reach patients adequately or early enough. • Socially and culturally marginalised groups-women, children, the LGBTQI community, people with mental health conditions, migrant populations, prisoners, geographically isolated groups-are often forgotten. Equitable care must reach people whoever they are, wherever they are, whenever they need it.