The Persian version of Neurofibromatosis type 1 Adult Health-Related Quality of Life (NF1-AdQOL) questionnaire in Iranians: A validity and reliability study (original) (raw)

Abstract

The quality of life of the neurofibromatosis community is evaluated with non-specialized tools in Iran. Generic QOL and skin HRQOL questionnaires do not measure the impact of disease-specific symptoms and/or concerns. What is new here? This study introduced a valid and reliable tool adapted to cultural differences to measure the QOL of NF1 patients in Persian.

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