The Comparison of Quality of Life in Children with Type 1 Diabetes Mellitus Based on Parents and Children Report (original) (raw)
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Research Square (Research Square), 2022
Background: Living with type-I diabetes mellitus (T1DM) presents children and adolescents with various daily challenges associated with disease management, including signi cant lifestyle changes due to intensive therapeutic exogenous insulin regimes, the need for dietary restrictions, regular exercise, and frequent biochemical marker monitoring. This study aimed at determining diabetes related quality of life (DRQoL) and factors in uencing quality of life in Indian children and adolescents with T1DM. Methods: Three hundred seventy-nine randomly selected children and adolescents with T1DM were assessed using Pediatric quality of life inventory 3.2 diabetes module. Mean scores of DRQoL according to sociodemographic factors, and clinical variables were assessed by an independent sample t test, or ANOVA according to the characteristics of analyzed variables. Paired sample t-test was used to compare children's and adolescents' self-report with caregivers' report. Multivariable linear regression was used to identify the signi cant predictors of DRQoL. Result: The total score of the PedsQL Diabetes Module self-report were found to be 83.77±11.11 for the 5-12 years old and 80.27±13.52 for the 13-18 years old. Patients who attended education (β =-0.134, p= 0.013) and mothers of the patients being educated (β=0.300, p<0.001), and having insulin injection by primary care givers (β = 0.136, p=0.050) were positive determinants of DRQoL; while not attending diabetic education (β =-0.129, p=0.014) and an increase in the mean fasting blood sugar (FBS) (β =-0.130, p=0.016) were found to be negative determinants that explain 20.3% of the variability of total DRQoL scores of children and adolescents (R 2 =0.203, F(20,312)= 5.225, p<0.001). Conclusions: the quality-of-life score for children and adolescents with T1DM in Ethiopia was not su ciently good. The educational status of patients, mothers' educational status, fathers' occupation, type of individual administering insulin medication, attending diabetes health education and mean fasting blood sugar were found to be determinants of DRQoL.
Quality of Life Among Children With Type 1 Diabetes Mellitus in Alahsa: A Cross-Sectional Study
Cureus
Background: Diabetes mellitus (DM) is the most common endocrine disease in children, and its annual prevalence is increasing worldwide. Health-related quality of life (HRQoL) is a crucial indicator of chronic illnesses such as DM. This study aimed to assess the HRQoL and determine the associated factors among children and adolescents with type 1 DM in Alahsa region in 2022. Methods: An analytical cross-sectional study was conducted in the DiabeterSA center using the Arabic version of the Pediatric Quality of Life Inventory (PedsQl 3.2). All patients aged 5-16 years and diagnosed with type 1 DM were included in the study. Face-to-face interviews were conducted during the patients' routine visits to the outpatient clinic from September 2022 to January 2023. Result: A total of 254 children aged 5-16 years (mean age: 10.87 ± 2.89 years) were recruited. The mean HRQoL total score reported by the children and adolescents was 72.61 ± 15.36. Older age, higher family socioeconomic status, excellent school performance, and higher parental education level, particularly in mothers, were significantly associated with higher total HRQoL scores. In the regression analysis, male sex (β =-0.157, P = 0.018), older age (β = 0.246, P < 0.001), and excellent school performance (β =-0.290, P < 0.001) were identified as independent predictors of the HRQoL total score. Nearly 19% of the participants achieved glycemic control. Conclusion: The quality of life of children and adolescents with type 1 DM in Alahsa region was relatively good. Increased age, good family economic status, and higher parent education levels positively influenced the participants' quality of life. Therefore, regular evaluation of HRQoL is recommended for children and adolescents with type 1 DM to identify problems and initiate an appropriate intervention for improving child health and the health care system.
Multidimensional study on quality of life in children with type 1 diabetes
European review for medical and pharmacological sciences
To study the Health Related Quality of Life (HRQoL) and metabolic assessment in 33 children affected with type 1 diabetes (18 males, 15 females; mean age 10.3 years). We used the Child Health Questionnaire-Parental Form 50 items (CHQ-PF50), measurements of metabolic control and we related them to patient management and family status. Quality of life (QoL) in diabetic children was worse than in the healthy sample. Interestingly, mean and last glycosylated hemoglobin (mean HbAlc r: -.4410 p < .01 and last HbAlc r: -.4012 p < .01), age of patients (r: -.4428; p < .009) and number of glycaemia controls (r: -.37, p < .03) were the most important parameters related to HRQoL parameters. This multidimensional study stressed that HRQoL is influenced by the metabolic assessment. Moreover, the report examined the parental perception of QoL in children with chronic diseases. Higher number of glycaemia controls/day, better metabolic control, lower age of children and earlier onset of...
Dovepress, 2022
Background: Type 1 diabetes mellitus (T1DM) is one of the most common chronic diseases during childhood and adolescence. It threatens the health and endangers life with consequences for the physical and emotional development of the child and adolescent. Our study aimed at determining the health-related quality-of-life (HRQoL) and factors affecting it in children and adolescents with T1DM. Methods: A hospital-based cross-sectional study was conducted among 379 randomly selected children and adolescents, 5-18 years of age, with T1DM on follow-up at endocrine clinics from 25 August to 25 September 2021. PedsQLTM 4.0 generic core scales were used to collect the data. Paired sample t-test was used to compare children's and adolescents' self-reports and caregiver's reports. Bivariable and multivariable linear regression is used to explore to identify significant predictor factors of HRQoL. Results: Total mean score of HRQoL was 88.42±10.82 as reported by the children and adolescents and 82.17±12.65 reported by their primary caregivers. According to self-reports, age (β=−0.197, p=0.028), mothers' educational status (β=0.242, p<0.001), fathers' educational status (β=0.259, p<0.001), fathers' occupation (β=0.170, p=0.038), frequency of insulin administration (β=−0.132, p=0.007), diabetes duration (β=−0.101, p=0.050), and frequency of monitoring of blood glucose (β=0.165, p=0.006) were statistically significant predictors of HRQoL, explaining 21.6% of the variability of total HRQoL scores of children and adolescents (R 2 =0.216, F (21,357)=5.968, p<0.001). Conclusion: Children and adolescents with T1DM in Ethiopia have relatively good HRQoL. Increased age, longer diabetes duration, and insulin administrations of three times per day were associated with decreased HRQoL scores. Educated parents, having an employed father, and frequent blood glucose monitoring were associated with higher HRQoL scores.
Medical review, 2020
Introduction. Diabetes mellitus is a chronic disease that affects all aspects of life of pediatric patients, especially the psychological aspect, and hence the health-related quality of life. The aim of the study was to evaluate the effects of sociodemographic and clinical factors of pediatric patients with type 1 diabetes mellitus on self-assessment of health-related quality of life. Material and Methods. The research was conducted as a cross-sectional study. The sample included 37 pediatric patients aged 8 to 18 years, who were diagnosed with the type 1 diabetes mellitus six months or longer before enrollment into the study. The research instruments used in the study were the Serbian version of child-friendly EuroQol-5D-Y youth questionnaire and medical history data (gender, age, time since diagnosis - in years, glycosylated hemoglobin values, type of insulin therapy). Results. The total score of general health on the visual analogue scale was 80.54 on average (standard deviation ...
Quality of Life of Type 1 Diabetic Indian Children and Adolescents -Cross Sectional Study
https://www.ijhsr.org/IJHSR\_Vol.10\_Issue.2\_Feb2020/IJHSR\_Abstract.01.html, 2020
Background and objectives: Quality of life in Individuals with Type 1 diabetes mellitus (T1DM) especially children and adolescents is affected by multiple factors. Aims and Objectives: To ascertain the factors influencing quality of life in Indian children and adolescents with Type1 Diabetes. Materials and Methods: Forty-six children and young people with T1DM, aged 6−18 years were assessed using Down Quality of Life for young, WHO-5 well-being index, Diabetes treatment satisfaction Questionnaire (DTSQ), Diabetes specific Quality of Life scale, strength and difficulty questionnaire (SDQ). Results: Four of study participants were found to be 16.6±0.6 years, 70% of the study participants belonged to age group of 10-19 years. Mean age at onset of diabetes was 9.9±2.8 years. 83% of patients belonged to upper middle income group and none of the participant belonged to lower socio economic status. Good education levels found in our study participants (65.2% of the patients had studied till high school) and their parents (52% had studied till graduation level). Vitamin D deficiency and Hypothyroidism was reported by 4% of the total patients. It was found that 17% of the study participants were obese. 8% were anaemic and 21% had Vitamin D deficiency. Mean (SE) SDQ Parent Proxy scores were 17.75 (0.8) for total difficulties, 4.97 (0.3) for emotional symptoms, 4.04 (0.3) for conduct problems, 4.84 (0.3) for hyperactivity-inattention symptoms, 3.65 (0.3) for peer relationship problems and 5.96 (0.4) for prosocial behaviours. WHO-5 well-being index indicated presence of Poor well-being (raw score <13) in 17% of patients. Low mood was found in 26 % of the subjects. The mean score of the DTSQ was 32.5±13.8 All the patients reported satisfaction with treatment. Hyperglycemia was perceived by 48% of the participants most of the times. Similarly Perceived frequency of hypoglycaemia was reported to be 30.4%. Interpretation of the score. The mean DAWN QoL score was 35. Almost 50% of patients reported adverse impact on the overall quality of life, as well as individual sub-domains of the scale. Conclusion: Children with recent diagnosis, older age at onset, elevated HbA1c, were identified to have higher prevalence of various psychological and cognitive problems. Hence children and adolescents should be prioritized for behavioral and cognitive evaluation.
Global Journal of Health Science
BACKGROUND: Diabetes is a chronic disease that has a negative impact on the quality of life of children. Family should be a support system to help optimize the quality of life of children with type 1 diabetes mellitus (T1DM). PURPOSE: The study aims to analyze the influence of family conflict, number of children in the family, and depression in children on the quality of life of children with T1DM. METHOD: The study employed a cross-sectional analytic design with a sample of 51 T1DM children with inclusion criteria being aged 4–18 years and currently undergoing outpatient care at the hospital. The measurement of quality of life used the KINDLR instrument, which consists of versions for children and parents. Depression was measured using the Children's Depression Inventory and diabetes-specific family conflict using the Revised Diabetes Family Conflict Scale. Multivariate analysis with multiple linear regression was performed to obtain a prediction model for the quality of life o...
Malaysian family physician : the official journal of the Academy of Family Physicians of Malaysia, 2013
Many studies reported poorer quality of life (QoL) in youth with diabetes compared to healthy peers. One of the tools used is the Diabetes Quality of Life for Youth (DQoLY) questionnaire in English. A validated instrument in Malay is needed to assess the perception of QoL among youth with diabetes in Malaysia. To translate the modified version, i.e., the DQoLY questionnaire,into Malay and determine its reliability and validity. Translation and back-translation were used. An expert panel reviewed the translated version for conceptual and content equivalence. The final version was then administered to youths with type 1 diabetes mellitus from the universities and Ministry of Health hospitals between August 2006 and September 2007. Reliability was analysed using Cronbach's alpha, while validity was confirmed using concurrent validity (HbA1c and self-rated health score). A total of 82 youths with type 1 diabetes (38 males) aged 10-18 years were enrolled from eight hospitals. The rel...
Health Practices and Quality of Life among Children with Type 1 Diabetes Mellitus
https://www.ijrrjournal.com/IJRR\_Vol.9\_Issue.4\_April2022/IJRR-Abstract05.html, 2022
Type I diabetes mellitus is a common chronic disorder in children. The present study was aimed to assess the health practices and determine the quality of life among children with Type I diabetes mellitus, to find out the correlation between their health practices and quality of life and the association between quality of life and selected sociodemographic and clinical variables. Health promotion model was adopted for the study. This cross sectional study was conducted among 80 children with Type I diabetes mellitus who belonged to the age group of 6 to 18 years and their caregivers who were selected consecutively from the Mittayi clinic of a tertiary care centre in Alappuzha. Health practices were good in 82.5% children. The practice scores were lowest in dietary practices (79.3 %) and highest in follow up (98.1 %). Quality of life was good among 57.5% children with type I diabetes mellitus. A significant positive correlation was found between the health practices and quality of life of children with type I diabetes mellitus (r=0.306, p=0.006). Health practices were positively correlated with the domains of quality of life such as role limitation, treatment satisfaction, emotional satisfaction, diet satisfaction and physical endurance. A significant association was found between the quality of life of children with type I diabetes mellitus and family history of diabetes mellitus and duration of illness. Quality of life of children with type I diabetes mellitus can be enhanced by improving the health practices among them.
The Quality of Life of Adolescents with Type 1 Diabetes in Malang
Type 1 diabetes is a disease that can't be cured but the quality of life of the patients can be maintained as much as possible. This study aimed to analyze the quality of life of adolescents with type 1 diabetes in Malang. This study used cross sectional design. The sampling technique used total sampling by taking all adolescents (10-19 years) with type 1 diabetes who are still active in IKADAR Malang which were 24 adolescents. The quality of life of adolescents with type 1 diabetes was measured by the quality of life for youth questionnaire. The result showed that the total score of the quality of life of adolescents with type 1 diabetes was 74.4±11.4 with the highest score was the impact on activities (92.3±12.4) and the lowest score was the parent issues (57.3±29.2). Higher score quality of life was in boys (75.5±12.9), age 10-14 years (75.3±11.7), disease duration 1-5 years (83.0±3.5) and last HbA1c was <7.5% (83.3±4.2). Healthcare providers especially nurse are expected to keep monitoring and improving the quality of life of adolescents with type 1 diabetes.