Design of an individualised questionnaire to measure the impact of cancer on quality of life: The cancer dependent quality of life (CancerDQoL) questionnaire (original) (raw)

AimTo design an individualised questionnaire to measure the impact of cancer and its treatments on quality of life (QoL).Materials & MethodsDesign of the Cancer‐Dependent Quality of Life (CancerDQoL) questionnaire was based on the Audit of Diabetes Dependent QoL (ADDQoL) questionnaire and related –DQoLs for other conditions. Item selection, face validity and content validity were established through clinician and patient ratings of the importance and relevance of 60 domains from the –DQoL Item Library, and semi‐structured interviews with 25 English‐speaking participants with a range of cancers attending a cancer centre in Zimbabwe (age range: 25‐78 years; 16 women, 9 men). Ten interviews were subsequently conducted with UK English‐speaking participants with a range of cancers attending Maggie’s Centres in London and Dundee (age range: 40‐76; 5 women, 5 men) to adapt the CancerDQoL for UK use.ResultsThe first draft of the CancerDQoL contained 25 domain‐specific items from the ‐DQoL I...