How do parents perceive their adolescent's diabetes: a qualitative study (original) (raw)
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Parent Perceptions of Caring for Adolescents With Type 2 Diabetes
Diabetes Care, 2006
OBJECTIVE—No studies have been performed to examine parent perceptions of caring for adolescents with type 2 diabetes. In this qualitative study, we examined parent perceptions of barriers and strategies to address barriers to self-care in adolescents with type 2 diabetes. RESEARCH DESIGN AND METHODS—Families of adolescents with type 2 diabetes were recruited from a pediatric diabetes clinic. Focus groups were used to elicit parent experiences and perceptions of diabetes management of their adolescents with type 2 diabetes. Questions concerning barriers to self-care behaviors were asked by trained group facilitators. Transcripts were coded into themes by three reviewers. Qualitative analyses were conducted using NVIVO software. RESULTS—Between 2003 and 2005, six focus groups were conducted with a total of 27 parents or guardians. Parents identified many barriers to and practical strategies for positive adolescent self-management. Five domains that influence self-management were iden...
Parental Experience of Living with a Type 1 Diabetic Adolescent
2016
There are several chronic childhood medical disorders amongst which Juvenile Diabetes is becoming the commonest of them all. In this condition the body's Pancreatic Beta Cells are unable to produce Insulin that is needed to absorb Sugars into the cells of an individual. It requires a lot of metabolic regularity for the child and as a result has a huge psychological impact on the development of the Adolescent and also their parents. Juvenile Diabetes is also called Type 1 Diabetes or Insulin Dependent Diabetes. It is important for such children to take insulin from an external source all their life. Parents play an important role in the monitoring and treatment management of their Diabetes. The aim of the current study was to understand the experiences of parents of adolescents with Type 1 Diabetes. The study involved interviewing parents of adolescents (n=5) with Type 1 Diabetes. The sessions with the parents were tape recorded (each session was for about 30-40 minutes) and tran...
Adolescents' perceptions of parental roles and involvement in diabetes management
Journal of pediatric nursing, 2005
This descriptive qualitative study compared how 18 teens (aged 14-16 years) with higher (n = 11; HiA(1c)) versus those with lower (n = 7; LoA(1c)) hemoglobin (Hb) A(1c) levels who met the standard of care viewed parental roles and involvement in diabetes management. Content analysis of the verbatim interview transcripts yielded five major themes. Teens in the LoA(1c) group (average HbA(1c) levels < or =8%) described their parents' monitoring roles more positively, whereas teens in the HiA(1c) group (average HbA(1c) levels >8%) were annoyed with reminders and described more conflict with their parents related to lack of adherence to their diabetes protocol. Clinicians need to assess the quality of parent-teen relationships and provide developmentally appropriate interventions to help teens and their parents effectively negotiate role transitions related to diabetes management during middle adolescence.
CHALLENGES OF LIVING WITH TYPE 1 DIABETES: CHILDREN/ADOLESCENT PERSPECTIVES
2012
Purpose: The purpose of this qualitative descriptive study was to discover challenges identified by children/adolescents with diabetes (CWD) during focus group sessions. Background: Type 1 diabetes requires lifestyle changes involving diet modification, blood glucose monitoring, carbohydrate counting, and insulin administration. When children are young, parents manage their diet, glucose monitoring, and insuling administration, However, as children grow older, self-management skills become important.
Journal of Adolescent Health, 2014
Purpose: Current guidance about adolescent-friendly health care emphasizes the benefits of seeing young people alone for confidential consultations. Yet in young people with Type 1 diabetes mellitus (T1DM), parental involvement has been shown to contribute to better diabetes control. This study aimed to better understand how these apparent tensions are reconciled in clinical practice by identifying how frequently adolescents with T1DM are seen alone and exploring parents' opinions about this. Methods: A convenience sample of consecutive parents of adolescents (aged 12e21 years) with T1DM was recruited from the outpatient clinic of a specialist diabetes service and asked to complete a 30-item written survey. Results: A total of 137 surveys were returned from 146 eligible parents (94%) of whom 106 had complete data. Thirteen percent of adolescents with T1DM had ever been seen alone for a confidential consultation with their doctor. The most common concern for parents about confidential care was not being informed about important information, not just about T1DM, but also about common adolescent risk behaviors and mental health states. Discussion: These findings suggest that young people with T1DM are not being routinely seen alone for confidential care. This could be attributed to: parents or adolescents declining confidential care; clinicians being time-poor and/or lacking the necessary skills; or a culture of uncertainty about the value of confidential care. A discussion is now required about how best to enact adolescent-friendly care in the chronic-illness outpatient setting, where parental involvement is understood to be important for effective chronic illness management.
BMC Pediatrics
Background The incidence of type 2 diabetes (T2D) in adolescents is increasing, affecting the overall health and quality of life of adolescents and their families. Despite the serious health consequences of T2D, few studies have explored the role of parents in the prevention of prediabetes and T2D in adolescents. Thus, the purpose was to better understand parents’ insights into strategies needed for the development of interventions to prevent prediabetes and T2D in their adolescents and families. Methods Thorne’s Interpretive Description approach was used to guide this second phase of a two-phase study. Using purposeful sampling, parents (n = 12) of adolescents at high risk for developing T2D were interviewed. This study was conducted in accordance with the standards for reporting qualitative research. Results Two themes and multiple subthemes emerged: Parents’ Understanding of T2D (High Blood Sugar, Severe Health Impacts, and Managing Your Diet) and It Takes a Village (The Onus is ...
Health expectations : an international journal of public participation in health care and health policy, 2018
While pre-adolescent children with type 1 diabetes receive most support from their parents/caregivers, others also contribute to their care. This study explored pre-adolescent children's experiences of receiving diabetes-related support from friends and peers. The objective was to identify how children could be better supported by their friends and peers to undertake diabetes self-management. In-depth interviews with 24 children (aged 9-12 years) with type 1 diabetes. Data were analysed using an inductive, thematic approach. Children gave mixed accounts of their experiences of speaking to their school/class about diabetes with some indicating that this had resulted in unwanted attention. Most individuals reported that other children had a limited understanding of diabetes and sometimes acted in insensitive ways or said things they found upsetting. Virtually all children described having a small number of close friends who were interested in learning about diabetes and provided t...
Friends can provide encouragement and support during stressful times. Friends are even more important for children coping with chronic illness such as adolescents managing insulin dependent diabetes mellitus (IDDM). Nurses need to recognize that the knowledge and care of both the children coping with diabetes and friends can be critical. This study explored perceptions of adolescents managing diabetes and their peers. The non-affected peers and adolescents with IDDM ranged in age between 15-18 were studied using an exploratory qualitative method. A sample of 6 subjects, 2 with diabetes and 4 peers, were interviewed. Subjects with IDDM reported manageable stress but frustration with friends' lack of knowledge. The peers reported different views of managing diabetes than those with IDDM. Adolescents with IDDM also reported positive family support. The study revealed that peers need additional education on the illness. In summary, adolescents coping with diabetes had overall positive perceptions and accurate knowledge, but limited support from peers.
Managing diabetes in adolescence : an exploration of the relevant literature and lived experiences
2016
This thesis explores the roles of family and healthcare professionals in type 1 diabetes (T1D) in adolescence. The first paper is a systematic review of literature regarding family-based interventions for adolescents with T1D. Adolescence is known to be a particularly challenging time, associated with deterioration in diabetes management and increased family conflict. A systematic search of three electronic databases plus hand-searches of relevant papers, identified 26 papers reporting on 16 intervention studies that met the inclusion and exclusion criteria. Interventions varied considerably in their content and duration. A narrative synthesis considers the effectiveness of these interventions on health, family-related and adolescent psychosocial outcomes. The most intensive interventions had the most support, however there is also promising evidence regarding less intense, quarterly psychoeducational and problem-solving interventions. The empirical paper explored the lived experien...