Caregiving for patients with Alzheimer's disease or dementia and its association with psychiatric and clinical comorbidities and other health outcomes in Brazil (original) (raw)
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Dementia caregiver burden in a Brazilian sample: Association to neuropsychiatric symptoms
Dementia & Neuropsychologia, 2009
Taking care of elderly demented individuals, especially when they present behavioral changes, can be very exhaustive for both family and caregivers. Generally, this leads to changes in the family lifestyle, and the caregiver must deal with a range of problems. Information on this topic in Latin America, including Brazil, remains scarce. Objective: To investigate the relationship between the presence of neuropsychiatric symptoms and the level of caregiver burden in a group of Brazilian elderly with dementia. Methods: The Brazilian versions of the Zarit Caregiver Burden Interview (ZBI) and of the Neuropsychiatric Inventory (NPI) were administered to a total of 83 family-caregivers of patients with dementia followed at a university-affiliated outpatient clinic. Pearson's correlations were calculated to measure the level of association between the scores on both instruments. Results: Among the caregivers, 83.1% were women, and had a mean age of 55.6±12.8 years. The ZBI scores ranged...
International psychogeriatrics / IPA, 2016
Transcultural studies regarding the comparison of levels of burden in caregivers of patients with Alzheimer's disease (AD) from Europe and Latin America are rare. We designed this study to investigate the differentiating factors associated with burden in Brazilian and Spanish caregivers of patients with AD. This is a cross-sectional study composed by samples of outpatients with AD and their caregivers from Brazil (n = 128) and Spain (n = 146). Caregivers answered the Zarit Burden Interview (ZBI) and a Sociodemographic Questionnaire. Patients were assessed with the Mini-Mental State Examination (MMSE), Functional Activities Questionnaire (FAQ), Disability Assessment for Dementia (DAD), Neuropsychiatric Inventory (NPI), and Clinical Dementia Rating (CDR) Scale. In the multivariate regression analysis, high burden levels were reported in Brazil, when caregivers were female (p = 0.025) and when patients did not attend Day Care Center (p = 0.025). In Spain, high burden levels were as...
International Journal of Studies in Nursing, 2020
The aim of this research was to analyze the perceptions on the quality of life of caregivers who care for older adults with Alzheimer's disease. This study was conducted in the municipality of Betim, located in the metropolitan area of Belo Horizonte, Brazil. Thirty-two interviews were conducted with formal and informal caregivers. Data were organized into two empirical categories which affect the quality of life of caregivers: 1) older adult’s familial support, and 2) the burden of caregiver’s extensive workload. Results indicate that the quality of life of a caregiver can be elevated and improved through social support services provided by healthcare professionals, as well as health and social policies which allow a stronger support of caregivers through governmental programs.
Ciencia & saude coletiva, 2021
This is a review of the literature on family caregivers of patients with Alzheimer's disease from 2013 to 2017 available in the BVS, Scopus, and PubMed databases. The descriptors used (translated from Portuguese) were Alzheimer's disease, caregivers, elderly health, by combination. Of the 163 papers analyzed, after applying the relevance test, we selected 26 papers presented from five thematic units: 1- Literature reviews; 2- Prevalence profiles of AD caregivers; 3- Qualitative research that analyzes the feelings and sufferings of caregivers; 4- Comparative studies and objective tests; 5- Evaluation studies of intervention programs. The comprehensive and comparative analysis of the investigations highlighted differences and similarities, advantages, and disadvantages of the samples and methodologies adopted in Brazil and the US. The articles analyzed factors that influence family caregivers' impact with Alzheimer's disease, identifying the affective bonds involved, t...
Alzheimer disease and associated disorders, 2017
We investigated the factors associated with discrepancies between patients' and caregivers' ratings about patients' general quality of life (QoL) and about the domains of Quality of Life in Alzheimer's disease (QoL-AD) Scale at baseline and 12 months. This was a longitudinal study that comprised 114 outpatients with AD and their caregivers. Patients were assessed with the QoL-AD, Mini-mental State Examination, Assessment Scale of Psychosocial Impact of the Diagnosis of Dementia, Cornell Scale for Depression, Functional Activities Questionnaire, and Neuropsychiatric Inventory, and Clinical Dementia Rating Scale. Caregivers answered the QoL-AD, Zarit Burden Interview and Sociodemographic Questionnaire. Linear regression analyses indicated that the factors associated with discrepancies of patients' and caregivers' ratings of patients' QoL-AD were impaired awareness and caregiver burden at baseline and impaired awareness at 12 months. Moreover, the factor ass...
2012
Este estudo descreve a sobrecarga de cuidadores de idosos demenciados no Brasil por meio de uma revisão integrativa da literatura, no período de 1999 a 2009, publicado em português e em inglês. Os dados foram coletados pelas bases de dados eletrônicas Pubmed, Cinahl e Lilacs. As palavras-chave usadas na CINAHL e na Pubmed foram: dementia ou cognitive impairment, aged ou older people, Brazil, caregiver burden ou caregiver stress ou caregiver strain. Foram encontradas 14 pesquisas. As palavras-chave usadas nos LILACS na categoria DeCS foram idosos", "cuidadores" e "demência" foram combinados com "e", que conduziram a 25 estudos. Aproximadamente 39 estudos foram selecionados, os quais foram reduzidos então a vinte, após temas não relacionados, a língua espanhola, pesquisas repetidas, teses/dissertações e livros. As pesquisas foram organizadas em três temas: doze(60%) focalizaram na correlação entre a sobrecarga e as características dos cuidadores e dos idosos; seis (30%) reportaram as experiências e sentimentos dos cuidadores e dois (10%) discutiram a defi nição de sobrecarga. Há necessidade de que os serviços sanitários governamentais brasileiros, as universidades, as organizações não governamentais e outras agências e redes planejem propostas formais e informais de intervenção dirigidas aos cuidadores informais.
Advances in Research, 2020
Alzheimer’s disease is the most common dementia among the elderly, but unfortunately, the early symptoms are mistaken for natural aspects of age. Thus, knowledge is an excellent tool to get a diagnosis still in the early stage. Aims: Therefore, this article addresses the psychological reactions of family caregivers of individuals with that disorder and coping conditions experienced by them. Methods: To this end, an exploratory descriptive study of qualitative approach with semi-structured interviews with primary caregivers of individuals with Alzheimer took place, and some of the participants were appointed by indicated Regional Tocantinense Association Brasilian Alzheimer’s - ABRAZ, not exceeding the expected number, the researchers received help in the indication of caregivers who were already part of this research. Results: Regarding the coping conditions, there was family resilience, some resorted even psychological aid, since the change in routine was essential for the welfare ...
Cadernos De Saude Publica, 2004
The object of this article is to examine the reliability of the Brazilian version of the Zarit Caregiver Burden Interview (ZBI). The instrument is a 22-item scale assessing the extent to which caregivers view their responsibilities as having an adverse impact on their social life, health, emotional well-being, and finances. We assessed 50 primary informal caregivers of demented patients coming from 3 different health care centers, using the test-retest method. Analysis of the results showed an intraclass reliability coefficient of 0.88, while Cronbach's coefficient alpha was 0.77 for the test and 0.80 for the retest items. The Brazilian version of ZBI shows sufficient reliability, comparable to the original version.
The CUIDEME Study: Determinants of Burden in Chilean Primary Caregivers of Patients with Dementia
Journal of Alzheimer's Disease, 2013
Background: Caring for a person with dementia is associated with well-documented increases in burden and distress and decreases in mental health and wellbeing. Studies assessing burden in caregivers of patients with dementia and its determinants are scarce in Latin America. Objective: The main objective of this study was to assess the extent and the determinants of burden in informal primary caregivers of patients with dementia in Chile. Methods: A descriptive study was conducted using clinically validated scales to assess dementia characteristics and to measure caregiver variables. Family socio-demographic characteristics and functional status, patient functional dependency and behavioral disturbances, and caregiver psychiatric morbidity were analyzed as independent variables to determine caregiver burden. Results: Two hundred and ninety-two informal caregivers were included. There were more female (80%) than male caregivers, consisting mainly of daughters and spouses of the patients. Severe burden was reported in 63% of the caregivers, and 47% exhibited psychiatric morbidity. Burden was associated with caregiver psychiatric distress, family dysfunction, severity of neuropsychiatric symptoms and functional disability, but neither patient age, gender, nor socioeconomic status impacted burden. Conclusion: Our results underscore the importance of assessing the consequences of dementia in both caregivers and patients in order to evaluate the real biopsychosocial impact of dementia, as well as the importance of planning appropriate and effective
Advanced dementia in a sample of Brazilian elderly: Sociodemographic and morbidity analysis
Revista da Associacao Medica Brasileira (1992), 2016
To investigate the sociodemographic and morbidity profile of advanced dementia patients and sociodemographic data of their primary caregivers. Data was obtained from 67 elderly recruited for an observational prospective study, through interviews performed with primary caregivers. For statistical analysis, the Statistical Package for the Social Sciences (SPSS(r)) for Windowsr, version 19.0. was employed. Advanced dementia patients were mostly women, widows, and non-institutionalized, with low-income. An elevated rate of stroke, sarcopenia, and pressure ulcers in this population is noted. Caregivers were mostly women, married, children of the studied patients, and unemployed. Only one third of caregivers were hired for the task. Patients with advanced dementia present a high morbidity profile, low income, and depend on the care given by family members, mostly unemployed daughters.