‘Patient participation’ in everyday activities in special care units for persons with dementia in Norwegian nursing homes (original) (raw)
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Aim. To explore patient participation in everyday life in special care units for persons with dementia. Background. Studies about how patient participation appears in this context are lacking. Design. The study had an explorative design. Method. Grounded Theory. Data collection was carried out by means of observations and additional conversations. Findings. Patient participation concerned ‘A matter of presence’ which was the core category. The other categories described as ‘presence of personnel’ and ‘presence of residents’, were strongly connected to the core category as well as to each other. Presence of personnel comprised three levels; being there in body, being there in mind and being there in morality which was understood as being fully present. Presence of residents comprised ability and wish and adaptation. Conclusions and implications. The study highlighted the great impact of the personnel’s presence in body, mind and morality on the participation capacity of the residents...
Journal of Clinical Nursing, 2017
Aims and objectives. The aim of this study is to clarify the concept of nursing presence through patients' perception. Background. The holistic caring process at the bedside must incorporate the concept of nursing presence. Most of the research about nursing presence is based on nurses' experiences and research into patients' experiences is minimal. According to goals of patientcenteredness, the association between the patient satisfaction and nursing presence, and patients' ability to understand this concept, it is important to explore this concept from the patients' perspective. Design. A qualitative approach. Methods. Based on purposive sampling technique, 12 patients were recruited. After participant observation, 15 interviews were carried out with participants. Data were transcribed verbatim and analyzed using conventional qualitative content analysis. Results. Five main categories were drawn from the data including informed concentration, task-centered/patient-centered relationship, clarification of meanings, comprehensive Accepted Article This article is protected by copyright. All rights reserved. participation, and accountable encounter. Data analysis alongside the authors' reflections resulted in the emergence of one overarching theme, 'co-constructed interaction', which shows the notion that effective nurse-patient interaction enhances cooperation, coordination, and collaboration in caring and improves nursing outcomes. Conclusions. Accordingly, the nursing presence would be ideal for patient-centered caring. Relevance to clinical practice. Knowing the perspectives of patients is important as the evaluation of nursing care quality should rely on outcome indicators that are sensitive to patients. For instance, client satisfaction, and health status acceptance especially as it relates to coping, comfort level, hope, and participation in decision-making, are included in the nursing outcomes' classification system. Thus, the findings of this study may facilitate improvement in the quality of care by continuous improvement in knowledge, attitudes, and abilities of nurses. It is therefore recommended that managers and clinical nurses, by relying on these findings, design the caring activities so that nurses' presence can act as a facilitating factor for improving quality assurance.
Patient participation in hospital care: Nursing staffs' point of view
International Journal of Nursing Practice, 2014
The aim was to investigate nursing staff’s perceptions related to patient participation and the parameters affecting it during nursing care. A cross-sectional study with both a quantitative and qualitative orientation was conducted. The sample consisted of all nursing staff working in medical and surgical wards in three Greek hospitals. A questionnaire was developed and the data were analysed with exploratory factor analysis, whereas content analysis was used for qualitative data. Nursing staff perceived participation as the process of information giving to patients, communication of symptoms by patients and compliance with the staff’s orders. ‘Information providing’ and ‘ability to influence and responsibility’ were significant aspects of the content of participation, whereas the parameters affecting participation were related to patients, nursing staff and the care context. These results support patient engagement in dialogue and shared decisionmaking, while highlighting the need to implement participation systematically and stimulate changes in nursing care organization.
Patient participation in nursing care from a patient perspective: a Grounded Theory study
Scandinavian Journal of Caring Sciences, 2007
Patient participation in nursing care from a patient perspective: a Grounded Theory study The study's rationale: Patients' active participation in their own care is expected to contribute to increased motivation to improve their own condition, better treatment results and greater satisfaction with received care. Knowledge of patients' understanding of participation is of great importance for nurses in their efforts to meet patient expectations and for quality of nursing care. Aim: The aim was to explore the meaning of patient participation in nursing care from a patient point of view. Methodological design and justification: Six tape-recorded focus group interviews with 26 Swedish informants described opinions on and experiences of patient participation. The informants consisted of patients in somatic inpatient care as well as discharged patients from such a setting. The Grounded Theory method was used and the data were analysed using constant comparative analysis. Ethical issues and approval: The ethics of scientific work was followed. Each study participant gave informed consent after verbal and written information. The Ethics Committee of Gö teborg University approved the study. Findings: The patients emphasised the importance of collaboration to improve participation. The core category, Insight through consideration, was generated from four inter-related categories: (i) Obliging atmosphere; (ii) Emotional response; (iii) Concordance; and (iv) Rights and their 15 subcategories. Conclusions: The meaning structures of patient participation in nursing care revealed from a patient point of view, seemed to mainly consist of not only external factors presented by the institutions -by the professionals -but also internal patient factors. The patients' view of participation should be considered to a greater degree in nursing practice and education, as should also further development of nursing care policy programmes, evaluation and quality assurance criteria. For further development, studies are needed in similar and other settings.
2000
Bocchi SCM, Silva L, Juliani CMCM, Spiri WC. Family visitors and companions of hospitalized elderly and adults: analysis of the experience from the perspective of the nursing working process. Rev Latino-am Enfermagem 2007 março-abril; 15(2):304-10. This is a qualitative study using Grounded Theory as the methodological reference and the Process of Work in Nursing as the theoretical reference in order to understand the role assumed by nurses regarding hospital norms and routines applied to family visitors and companions of adult and elderly patients in a teaching hospital. Data analysis identified the theme: defining the modality of family support during hospitalization. This theme aggregates two main categories: becoming the family visitor and becoming the family companion. Through the analysis, it could be observed how established rules, which aims at disciplining and developing an efficient work in the hospital, can expose the lack of autonomy in the work process to modify relations in this context and how the familiar appropriation, as part of the health team, is far from being considered in the institutions.
Revista Latino-Americana de Enfermagem, 2007
Bocchi SCM, Silva L, Juliani CMCM, Spiri WC. Family visitors and companions of hospitalized elderly and adults: analysis of the experience from the perspective of the nursing working process. Rev Latino-am Enfermagem 2007 março-abril; 15(2):304-10. This is a qualitative study using Grounded Theory as the methodological reference and the Process of Work in Nursing as the theoretical reference in order to understand the role assumed by nurses regarding hospital norms and routines applied to family visitors and companions of adult and elderly patients in a teaching hospital. Data analysis identified the theme: defining the modality of family support during hospitalization. This theme aggregates two main categories: becoming the family visitor and becoming the family companion. Through the analysis, it could be observed how established rules, which aims at disciplining and developing an efficient work in the hospital, can expose the lack of autonomy in the work process to modify relations in this context and how the familiar appropriation, as part of the health team, is far from being considered in the institutions.
Experiences of Swedish Patients being Cared for in Multiple-Bed Hospital Rooms
https://www.ijhsr.org/IJHSR\_Vol.7\_Issue.6\_June2017/IJHSR\_Abstract.07.html, 2017
Background: Most hospitals today are built to specific standards of light and appearance, sound, ambience, fresh air, greenery and nature, ergonomics and nutrition, with more multiple-bed rooms (MBR) than single-bed rooms (SBR) and between two and four patients in one rom. Long hospital corridors are painted in soft colors and decorated with art. Aim: To illuminate and describe patients' experiences of being hospitalized and cared for in a hospital with a multiple-bed hospital room design. Material and Methods: Eight woman and seven men, undergoing treatment in multiple-bed hospital rooms, were interviewed in three focus group interviews (FGI). A qualitative, descriptive approach, incorporating a critical incident technique (CIT), was used. Results: One theme: Treatment in a multiple-bed room, a complex issue and two categories were identified based on the participants' interviews. The categories were: Positive and negative aspects of care in multiple-bed rooms. Sharing experiences with others, having the support of others and contact with health-care professionals were the aspects that participants described as positive. As negative aspects, the participants emphasized the following areas: needing a private area, needing confidentiality and privacy and experiences of noise and loud sounds. When treated and hospitalized in a multiple-bed hospital room, the majority of participants felt as though they were "in a vicious cycle". Conclusion: The findings of the present study may help health-care professionals to enhance the positive experiences of caring for patients in an MBR, to do more to reduce their negative experiences and help participants not to get into "a vicious cycle." Health-care professionals must be more aware of and careful about the positive and negative experiences of providing care in an MBR and their effect on the participants.