Quality of Life of Women with Urinary Incontinence: Cross-cultural Performance of 15 Language Versions of the I-QOL (original) (raw)
Related papers
ICIQ: A brief and robust measure for evaluating the symptoms and impact of urinary incontinence
Neurourology and Urodynamics, 2004
Aims: To develop and evaluate the International Consultation on Incontinence Questionnaire (ICIQ), a new questionnaire to assess urinary incontinence and its impact on quality of life (QoL). Methods: A developmental version of the questionnaire was produced following systematic literature review and views of an expert committee and patients. Several studies were undertaken to evaluate the psychometric properties of the questionnaire, including content, construct and convergent validity, reliability and sensitivity to change. Results: The ICIQ was easily completed, with low levels of missing data (mean 1.6%). It was able to discriminate among di¡erent groups of individuals, indicating good construct validity. Convergent validity was acceptable, with most items demonstrating 'moderate' to 'strong' agreement with other questionnaires. Reliability was good, with 'moderate' to 'very good' stability in test-retest analysis and a Cronbach's alpha of 0.95. Items identi¢ed statistically signi¢cant reductions in symptoms from baseline following surgical and conservative treatment. Item reduction techniques were used to determine the ¢nal version and scoring scheme, which also demonstrated good psychometric properties. Conclusions: The ¢nal ICIQ comprises three scored items and an unscored self-diagnostic item. It allows the assessment of the prevalence, frequency, and perceived cause of urinary incontinence, and its impact on everyday life. The ICIQ is a brief and robust questionnaire that will be of use in outcomes and epidemiological research as well as routine clinical practice.
Quality of Life Research, 2008
Objectives To evaluate the measurement properties of the EuroQoL EQ-5D and two condition-specific patientreported outcome measures-the Symptom Severity Index (SSI) and the Urinary Incontinence-Specific Quality of Life instrument (I-QoL)-in women with urinary incontinence. Methods A questionnaire comprising all instruments was completed by women taking part in a clinical trial of physiotherapy for urinary incontinence. Follow-up questionnaires were at 6 weeks and 5 months. Data quality, internal consistency reliability, validity and responsiveness were assessed. Results One hundred and seventy-four patients taking part in the clinical trial completed the questionnaire. Instruments had low levels of missing data. The EQ-5D had a large ceiling effect and poor responsiveness. The SSI had poor validity and responsiveness. The I-QoL had levels of reliability that supported application in group assessment, and in some cases, individual assessment, and good evidence of validity. The I-QoL was the most responsive instrument at both 6 weeks and 5 months. Conclusion The I-QoL was the best performing instrument and is recommended as a continence-specific measure of quality of life in a clinical trial setting. The SSI and EQ-5D are not recommended. Alternative generic instruments, which support economic evaluation, require further evaluation in trials of female urinary incontinence.
Symptom severity and QOL scales for urinary incontinence
Gastroenterology, 2004
Symptoms of incontinence are common, particularly among older people, and incontinence can have a severe effect on the quality of life of some individuals at any age. A number of treatments are available, most of which aim to reduce the occurrence of incontinent episodes or to limit the effects of the disorder on everyday life. In research and clinical practice, it is essential that the symptoms and effects of incontinence be properly assessed and recorded. The only valid means of measuring patients' perspectives is through the use of psychometrically robust self-report questionnaires. Incontinence may be experienced as part of the symptom complex of a range of conditions (e.g., benign prostatic diseases or fistulas), and the effect of incontinence on quality of life varies depending on the severity of the condition and other psychosocial and medical factors. Questionnaires with acceptable levels of psychometric testing are identified and recommended for use in clinical practice and research investigations according to the following categories: (1) questionnaires to assess symptoms of incontinence, (2) generic health-related quality-of-life questionnaires to assess the effect of incontinence on quality of life, and (3) incontinence-specific measures to assess the effect and bothersomeness of incontinence on quality of life.
Ferrans and Powers’ Quality of life index applied in urinary incontinence research - a pilot study
Scandinavian Journal of Caring Sciences, 2010
Ferrans and Powers' Quality of life index applied in urinary incontinence research-a pilot study Background: The aim of this study was to explore the usefulness of applying a global, evaluation-based quality of life (QoL) questionnaire in assessing the impact of urinary incontinence (UI) on women's lives. Methods: The study population comprised long-term gynaecological cancer survivors (n = 160) and controls from the general population (n = 493). The presence of UI was assessed by the question 'Do you leak urine?' while UI perceived as a problem was assessed on a five-point scale from 'No problem' to 'A very large problem'. QoL was measured by Ferrans & Powers' QoL index (QLI), generic version II. Results: UI was distributed equally among women with a history of gynaecological cancer and among women from the general population (34%). UI has a negative impact on overall QLI as well as a wide range of items. Approximately 20% of the incontinent women defined UI as no problem, with QLI scores similar to continent women. Only 5% experienced UI as a large/very large problem; with exceptionally low QLI scores. The psychometric testing of QLI (acceptability, internal consistency reliability and known-group validity) supports the use of QLI in UI-studies. Conclusions: The Ferrans & Powers' QLI is considered an acceptable tool for UI research, but further psychometric testing is required.
Prevalence, Affecting Factors, and Impact of Urinary Incontinence on Quality of Life
Journal of Education and Research in Nursing, 2023
Background: Urinary incontinence is an important problem that is frequently seen in women and affects women's health physically, psychologically, and socially and reduces women's quality of life. Aim: This study was carried out to determine the incidence of urinary incontinence in women, its affecting factors, and its effect on quality of life. Methods: This study was conducted descriptively and cross-sectionally in the gynecology polyclinic of a university hospital in Izmir. The sample of the study consisted of 304 volunteer women living with urinary incontinence. The data were collected with urinary incontinence form, individual description form, and urinary incontinence quality of life scale. The number and percentage distributions, means, standard deviation, t-test, and one-way analysis of variance were used to analyze the data. Results: The mean age of the women was 47.61 ± 11.43, 27% of them had stress, 35.2% of urgency, and 37.8% of mixed urinary incontinence. The majority of women experience urinary incontinence 1-2 times a day (42.4%) and for 1-2 years (33.2%). The mean total score of women urinary incontinence quality of life scale was 79.57 ± 15.05 and the mean of the total scores obtained from the subscales was as follows: behavioral restriction was 27.03 ± 5.86, psychological effect was 36.14 ± 6.50, and restriction of social life was 16.39 ± 3.97. A statistically significant difference was found between urinary incontinence quality of life scale total score means of women and some factors affecting women's urinary incontinence (urgency and mixed urinary incontinence, duration, and frequency of urinary incontinence and such) (P < .05). Conclusion: In the study, it was determined that all types of urinary incontinence are seen in one-third of women, are affected by many factors, and cause deterioration in the quality of life. Nurses should inquire urinary incontinence, which is frequently seen in women, know the factors affecting urinary incontinence, and screen women of all age groups. Thus, nurses will be able to take preventive measures regarding urinary incontinence, determine the factors affecting urinary incontinence, and provide necessary training and counseling by identifying risky women.
2009
Aims: To compare the International Consultation on Incontinence Questionnaire-Urinary Incontinence Short Form (ICIQ-UI SF) with the Incontinence Severity Index (ISI), and to propose intervals for four severity levels of ICIQ-UI SF. Methods: Cross-sectional, Internet-based study of 1,812 women responding to a general health questionnaire. Four severity levels for the ICIQ-UI SF scores were constructed by iteratively adjusting the ranges for these levels until maximum Kappa scores were obtained when cross-tabulated with the ISI in a random sample of half of the women with urinary incontinence. Using these intervals, weighted Kappa was calculated for the remaining women as a validation process. Results: Three hundred forty-three women had urinary incontinence, and completed the ISI and the ICIQ-UI SF. A high correlation between the ISI and ICIQ-UI SF scores with versus without the QoL item was found (Spearman's rho ¼ 0.62, P < 0.01 vs. rho ¼ 0.71, P < 0.01, respectively). Maximum Kappa with quadratic weighting was obtained for the following scale for the ICIQ-UI SF: slight (1-5), moderate (6-12), severe (13-18) and very severe (19-21) (Kappa ¼ 0.61), and without the QoL item: slight (1-3), moderate (4-5), severe (6-9) and very severe (10-11) (Kappa ¼ 0.71) in the development sample. Correspondingly, for the validating sample, maximum Kappa with quadratic weighting was 0.61 and 0.74. Conclusions: A high correlation between the ICIQ-UI SF and the ISI was found. The ICIQ-UI SF may be divided into the following four severity categories: slight (1-5), moderate (6-12), severe (13-18) and very severe (19-21). Neurourol. Urodynam. 28:411-415, 2009.
Urology journal, 2012
PURPOSE To validate the Persian version of the International Consultation on Incontinence Questionnaire-Urinary Incontinence Short Form (ICIQ-UI SF) as a standard questionnaire for assessment of urinary incontinence (UI). MATERIALS AND METHODS After translation and back translation of the questionnaire, the harmonized translation was pre-tested in a pilot study on 28 patients. The final Persian version of the ICIQ-UI SF was administered to 123 consecutive patients aged ≥ 16 years complaining of UI. The psychometric aspects of the questionnaire, such as reliability and construct validity, were assessed and compared with full urodynamics study's findings as the gold standard diagnostic test. RESULTS Mean age of the participants was 46.30 ± 13.14 years (range, 16 to 72 years). Based on ICIQ-UI SF, the prevalence of mixed urinary incontinence, stress urinary incontinence and urgency urinary incontinence was 35%, 34.1%, and 30.9%, respectively. Cronbach's alpha coefficient was ca...
Portuguese validation of the Urinary Incontinence-Specific Quality-of-Life Instrument: I-QOL
International Urogynecology Journal, 2009
Introduction and hypothesis Our objective was to translate and validate a Portuguese version of the Urinary Incontinence-Specific Quality-of-Life Instrument (I-QOL), a questionnaire that is widely used in clinical trials. Methods Fifty patients completed the same questionnaire twice at a 2-week interval. During the first visit, we conducted a face-to-face interview and collected demographic data. The King's Health Questionnaire was completed during the same visit for comparisons.