Measuring participation of children with disabilities: Issues and challenges (original) (raw)
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Developmental medicine and child neurology, 2016
This review outlines a conceptual approach to inform research and practice aimed at supporting children whose lives are complicated by impairment and/or chronic medical conditions, and their families. 'Participation' in meaningful life activities should be an essential intervention goal, to meet the challenges of healthy growth and development, and to provide opportunities to help ensure that young people with impairments reach their full potential across their lifespan. Intervention activities and research can focus on participation as either an independent or dependent variable. The proposed framework and associated hypotheses are applicable to children and young people with a wide variety of conditions, and to their families. In taking a fresh 'non-categorical' perspective to health for children and young people, asking new questions, and exploring issues in innovative ways, we expect to learn lessons and to develop creative solutions that will ultimately benefit ...
Differentiating Activity and Participation of Children and Youth with Disability in Sweden
American Journal of Physical Medicine & Rehabilitation, 2012
Granlund M, Arvidsson P, Niia A, Bjö rck-Åkesson E, Simeonsson R, Maxwell G, Adolfsson M, Eriksson-Augustine L, Pless M: Differentiating activity and participation of children and youth with disability in Sweden: a third qualifier in the International Classification of Functioning, Disability, and Health for Children and Youth?. Am J Phys Med Rehabil 2012;91(suppl):S84YS96.
African Journal of Disability, 2021
Background Picture My Participation (PMP) intended to measure participation, defined as attendance and involvement in everyday situations, of children with disabilities, particularly in low- and middle-income settings. Objectives To explore structural validity of PMP by identifying possible subcomponents in the attendance scale and examining internal consistency of the total score and each subcomponent. Method A picture-supported interview was conducted with 182 children, 7–18 years, with and without intellectual disability (ID). Frequency of attendance in 20 activities was rated on a four-point Likert scale (never, seldom, sometimes and always). Results An exploratory principal component analysis extracted four subcomponents: (1) organised activities, (2) social activities and taking care of others, (3) family life activities and 4) personal care and development activities. Internal consistency for the total scale (alpha = 0.85) and the first two subcomponents (alpha = 0.72 and 0.7...
International Journal of Environmental Research and Public Health
Participation has significant impact on children’s health and well-being. Knowledge is limited on how children with disabilities perceive their participation and whether their perceptions differ from their parents. This pilot study aimed to explore whether self-reported frequency of participation and prioritized activities differ between children with disabilities and their parents. Thirty children with disabilities eligible for special education in elementary school and their parents were included. Each of them were interviewed with the Chinese version of Picture My Participation (PMP), separately, to identify the child’s participation frequency in 21 activities at home, school, and community, desire-to-change activities, and the level of involvement in these activities. The results indicated that children’s ratings of participation frequency were significantly lower than parents’ ratings in home activities but not in school and community activities, as analyzed by the Wilcoxon Sig...
Community Participation, Supports, and Barriers of School-Age Children With and Without Disabilities
Archives of Physical Medicine and Rehabilitation, 2013
Objective: To examine patterns of community participation and environmental factors that affect community participation for school-age children with and without disabilities. Design: Cross-sectional, descriptive, and exploratory study. Setting: Parents from the United States and Canada completed the main outcome measure online in their homes or communities. Participants: Parents (NZ576) reported on their children aged 5 to 17 years with disabilities (nZ282) and without disabilities (nZ294). Interventions: Not applicable. Main Outcome Measure: Participation and Environment Measure for Children and Youth. Results: Group differences in summary scores and many items were significant (P<.001). Children with disabilities participated less frequently, were less involved, and had less environmental support in the community than children without disabilities. Parents of children with disabilities desired more change in their child's participation than parents of children without disabilities. Effect sizes for summary scores were moderate to very large (n 2 p from .11e.40), with the largest group difference found in environment scores. Overall, the largest group differences in participation were in "unstructured physical activities" and "getting together with other children"dalso the 2 areas where parents of children with disabilities most frequently desired change. The largest differences in environmental impact were in physical, social, and cognitive activity demands and availability/adequacy of programs and services. Conclusions: Results provide insights about where greater efforts are needed to support community participation of school-age children with disabilities. Further study with a more diverse sample in terms of race/ethnicity, family income/education levels, and geographic region is needed to determine the extent to which results may be generalized. Archives of Physical Medicine and Rehabilitation 2013;94:315-23 ª 2013 by the American Congress of Rehabilitation Medicine Participation in activities that provide a sense of accomplishment and enjoyment during childhood and youth helps to foster positive development into adulthood. 1-5 Participation has been shown to be an indicator of overall health and well-being across the lifespan and has been described as a key rehabilitation outcome. 5-8
American Journal of Physical Medicine Rehabilitation Association of Academic Physiatrists, 2011
Granlund M, Arvidsson P, Niia A, Bjö rck-Åkesson E, Simeonsson R, Maxwell G, Adolfsson M, Eriksson-Augustine L, Pless M: Differentiating activity and participation of children and youth with disability in Sweden: a third qualifier in the International Classification of Functioning, Disability, and Health for Children and Youth?. Am J Phys Med Rehabil 2012;91(suppl):S84YS96.