Opening the black box of participation in medicine and healthcare (original) (raw)

Opening the black box of participation in medicine and healthcare (ITA manu:script 16-01)

Barbara Prainsack

2016

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Patient and public involvement in health research: Ethical imperative and/or radical challenge?

Diana Rose

Journal of Health Psychology, 2014

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Disentangling Public Participation In Science and Biomedicine

Aaron Panofsky

Genome Medicine, 2014

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“Ordinary people only”: knowledge, representativeness, and the publics of public participation in healthcare

Graham Martin

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Public Participation: More than a Method?; Comment on “Harnessing the Potential to Quantify Public Preferences for Healthcare Priorities through Citizens’ Juries”

International Journal of Health Policy and Management IJHPM

2014

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Version – Pre-Proofs------------------------------------------------------------------------------------ Governing researchers through patient and public involvement

Aris Komporozos-Athanasiou

2021

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Citizen Participation as Political Ritual: Towards a Sociological Theorizing of ‘Health Citizenship’

Nina Fudge

Sociology, 2016

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Public and Patient Involvement and the Right to Health: Reflections from England

Therese Boulle

Frontiers in Sociology

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The public shaping of medical research: patient associations, health movements and biomedicine

Rebecca Dimond

New Genetics and Society, 2016

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Patient Participation in Health Care: how can we do it better?

Lucy Frith

American Journal of Bioethics, 2014

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Patient and Public Involvement in Health Care: ethca imperative and/or radical knowldge

Diana Rose

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Representativeness, legitimacy and power in public involvement in healthcare management

Graham Martin

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Disentangling patient and public involvement in healthcare decisions: why the difference matters

Jonathan Tritter

Sociology of Health and Illness, 2016

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The impact of public involvement in health research: what are we measuring? Why are we measuring it? Should we stop measuring it?

Nina Fudge

Research Involvement and Engagement

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Public involvement in health research: a case study of one NHS project over 5 years

Jacqueline Romero

Primary Health Care Research & Development, 2010

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Trading participation for access to health-care: A morally relevant feature of participation in clinical research

Dr Silvia Camporesi

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Professionals and the public: power or partnership in health research?

Pamela Dawson

Journal of Evaluation in Clinical Practice, 2012

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The Democratic Potential of Public Participation: Healthcare Governance in England

Peter Vincent-Jones

Social & Legal Studies, 2011

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Patient and public involvement in research: from tokenistic box ticking to valued team members

Tracy Jackson

BMC Medicine

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Public Participation in the New NHS: No Closer to Citizen Control?

Michael Shepherd

Social Policy & Administration, 2002

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Editorial: Public Participation in Health Care: Exploring the Co-production of Knowledge

Maria Stuttaford

Frontiers in Sociology, 2019

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What is the point of citizen participation in health care?

Ellen Stewart

Journal of Health Services Research & Policy, 2013

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Clinician-led evidence-based activism: a critical analysis

Piyush Pushkar

Critical Public Health, 2021

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Public Engagements with Health and Medicine

Lisa Keranen

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Moving beyond project-specific patient and public involvement in research

Grace Turner

Journal of the Royal Society of Medicine

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Searching for the Impact of Participation in Health and Health Research: Challenges and Methods

Nina Wallerstein

BioMed research international, 2018

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Evaluating patient and public involvement in health research: from theoretical model to practical workshop

Andy Gibson

Health expectations : an international journal of public participation in health care and health policy, 2017

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The entanglement of scientific and political claims: towards a new form of patients’ activism, 2013, CSI WORKING PAPERS SERIES 035

orla o'donovan, Madeleine Akrich

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Which Champions, Which People? Public and User Involvement in Health Care as a Technology of Legitimation

Maggie Mort

Social Policy & Administration, 1998

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Taking patient involvement seriously: a critical ethical analysis of participatory approaches in data-intensive medical research (together with Katharina Beier and Silke Schicktanz)

Mark Schweda

BMC Medical Informatics and Decision Making, 2019

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The rights (and responsibilities) of the public to advance health through research

Fabrice Jotterand

Archives of Public Health

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Meeting the needs of underserved populations: setting the agenda for more inclusive citizen science of medicine

Amelia Fiske, Barbara Prainsack

Journal of Medical Ethics, 2019

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