Big and open data privacy risks in health sector: developing a trend or establishing the future? (original) (raw)
The amount of medical data is growing rapidly in the current technological and social environment. Big data analytics are considered a highly powerful tool in assisting health service providers, researchers and patients to accelerate scientific discovery, enabling personalized medicine and improving the quality of healthcare. It is being underpinned that in order to achieve these objectives an open data strategy should be followed by public authorities allowing third parties to access medical data. This process though raises severe concerns over privacy issues relating to the use of medical information by both private and public entities. European Union trying to modernise its approach concerning personal data in general has introduced a proposal for a General Data Protection Regulation that specifically refers to and regulates health related information by introducing an enriched right to consent and the right to be forgotten. This paper conglomerates the privacy problems arising from the emergence of big data sets in medical sector as they are depicted in literature, and tries to examine to what extent the proposed Data Protection Regulation can address these issues so as to create a modern and updated legal framework by introducing new rules that will provide greater legal certainty, enhance citizens' trust in the use of their medical data, and ultimately achieve the goal of delivering efficient health services.
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