A qualitative evaluation of an adolescent cancer unit (original) (raw)
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A Practical Approach to the Care of Adolescents and Young Adults with Cancer
2018
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Psycho-Oncology, 2019
Objective: Dedicated adolescent and young adult (AYA) cancer units have emerged from the early 90s to address multiple challenges faced by AYA patients with cancer. Specific needs of AYA patients have been considered in an increasing number of studies. However, few describe how the healthcare professionals (HCPs) perceive their patients' needs and how they actually adjust their day-today practices to meet such needs. The purpose of this study is to identify and describe the practical methods of care and teamwork implemented by HCPs in response to what they perceive as essential to support psychosocial development of AYA patients. Methods: Qualitative research was conducted between 2012 and 2014 with 31 HCPs from a recently created hematology AYA unit in France. The transcripts of open-ended interviews were subject to inductive analysis using constant comparison as recommended by the Grounded Theory methods.
‘Being in the same boat’: ethnographic insights into an adolescent cancer unit
International Journal of Nursing Studies, 2004
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The care of adolescents and young adults with cancer: results of the ESMO/SIOPE survey
ESMO Open
What is already known about this subject? ► Little is known about the training, practice and needs of European healthcare providers in relation to care of adolescents and young adults (AYA) with cancer. What does this study add? ► This survey revealed important underprovision and inequity of specialised AYA cancer care across Europe. This was particularly evident in Eastern and SouthEastern Europe. How might this impact on clinical practice? ► AYA with cancer require particular clinical management and care in relation to fertility preservation and other treatment sequelae. Improving care through education and research focused on AYA should be a priority for both European Society for Medical Oncology and European Society for Paediatric Oncology.
The Lived Experiences of Adolescents with Cancer the Lived Experiences of Adolescents with Cancer
2009
People often do not want to hear, talk or read about cancer. Cancer is arguably one of the most feared illnesses and maybe rightly so for it is usually associated with pain, fear, uncertainty, anxiety, long uncomfortable treatments and death. To receive a diagnosis of cancer must be absolutely devastating especially when you are in a developmental stage where you are already battling with issues such as self-esteem, body image, independence and career choices. The current study explored the lived experiences of adolescents who have or had cancer and how this experience impacted on their lives. Six adolescent cancer patients from the cancer unit in a public hospital were interviewed. The sample was purposively drawn and the majority of the interviews were conducted at the homes of the participants. Phenomenology was used both as a theoretical framework as well as a means of analysing data. Using the descriptive phenomenological method employed by Giorgi, four essential themes emerged from the data. The themes included (1) Unexpected change of everyday life means experiencing the unfamiliar (2) Experiencing a changed body, (3) Experiencing the support of significant others and (4) Anticipating a future. The themes were explained in terms of the four existentials of Van Manen which is lived space, lived body, lived other and lived time. The study revealed that although the initial diagnosis of cancer came as a shock to the participants and their families, they were able to deal with the iv inevitable changes that accompanied the diagnosis mainly as a result of the support they received from family and friends. Their initial fear of death were replaced with an ardent pursue of their dreams for the future. November 2009 v DECLARATION I declare that The lived experiences of adolescents with cancer is my own work, that it has not been submitted before for any degree or examination in any other university, and that all the sources I have used or quoted have been indicated and acknowledged as complete references.
Adolescent cancer survivors' experiences of supportive care needs: A qualitative content analysis
Nursing & Health Sciences, 2019
Supportive care is an important strategy that can help cancer survivors manage changes and problems during their follow‐up care. Identifying patients' care needs is one of the primary steps of the nursing process to plan effective nursing interventions. The aim of this study was to explore adolescent cancer survivors' supportive care needs. Purposeful sampling was adopted to select 49 participants from hospitals to participate in face‐to‐face, semistructured interviews. The qualitative content analysis method was conducted for data analysis. Ten subcategories and four main categories – empathetic care, information about survival period, instrumental support, and cooperation in care – were extracted from the data. These four categories formed a major theme, “supportive care”, as the primary healthcare need. This study highlights that supportive care should be developed collaboratively by family and healthcare providers to meet the needs of adolescent cancer survivors. Survivo...
The lived experiences of adolescents with cancer
2010
People often do not want to hear, talk or read about cancer. Cancer is arguably one of the most feared illnesses and maybe rightly so for it is usually associated with pain, fear, uncertainty, anxiety, long uncomfortable treatments and death. To receive a diagnosis of cancer must be absolutely devastating especially when you are in a developmental stage where you are already battling with issues such as self-esteem, body image, independence and career choices. The current study explored the lived experiences of adolescents who have or had cancer and how this experience impacted on their lives. Six adolescent cancer patients from the cancer unit in a public hospital were interviewed. The sample was purposively drawn and the majority of the interviews were conducted at the homes of the participants. Phenomenology was used both as a theoretical framework as well as a means of analysing data. Using the descriptive phenomenological method employed by Giorgi, four essential themes emerged from the data. The themes included (1) Unexpected change of everyday life means experiencing the unfamiliar (2) Experiencing a changed body, (3) Experiencing the support of significant others and (4) Anticipating a future. The themes were explained in terms of the four existentials of Van Manen which is lived space, lived body, lived other and lived time. The study revealed that although the initial diagnosis of cancer came as a shock to the participants and their families, they were able to deal with the iv inevitable changes that accompanied the diagnosis mainly as a result of the support they received from family and friends. Their initial fear of death were replaced with an ardent pursue of their dreams for the future. November 2009 v DECLARATION I declare that The lived experiences of adolescents with cancer is my own work, that it has not been submitted before for any degree or examination in any other university, and that all the sources I have used or quoted have been indicated and acknowledged as complete references.