Early onset ageing and service preparation in people with intellectual disabilities: Institutional managers’ perspective (original) (raw)
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Health, 2021
There remain challenges in understanding the aging lives of people with intellectual and developmental disabilities. Method: A cross-sectional comparison of people with and without I/DD was created using China Health and Retirement Longitudinal Study (CHARLS). A definition of I/DD was established, three samples were created: those with an assigned/described intellectual and developmental disability prior to age 22 years; those with similar impairments at and after age 22 years; and those in the population without an assigned/described impairment. Findings: Those with I/DD appeared to have greater health needs on initial analysis. People with an impairment similar to I/DD but occurring after age 22 years had the same or greater needs in subsequent analyses. Both groups had greater needs than those with no identified disability. Discussion: There must be greater efforts to discover those with I/DD who are already in existing datasets, greater attention to the full range of lives led by people with I/DD and inclusion of data from a broader range of countries.
People with intellectual disability who are ageing: Perceived needs assessment
International Journal of Clinical and Health Psychology, 2017
Background/Objective: Ageing and progressive increase in life expectancy in people with intellectual disability present significant challenges. The present study is to examine the needs that arise in the aging process of this population. To detect these needs is fundamental to ensure personal wellbeing; almost no psychometrically sound instruments have been developed. Method: A structured interview was developed and evaluated by a panel of 20 experts to obtain evidence of content validity. The interview was then applied to 1,173 people with intellectual disability. The ages ranged from 35 to 80 (M = 52.27; SD = 7.5). Results: The interview consisted of 93 items evaluating four areas: perceived needs, personal problems, future perspectives, and solutions required. The results demonstrated the proximity and relationship of the various needs evaluated. In addition it was observed that those with intellectual disability who were older, male and users of residential services tended to indicate more needs, problems, and required more solutions. Conclusions: The instrument has adequate evidence of validity, allowing the evaluation of specific needs of people with intellectual disability. The results advocate the design of transversal intervention policies in order to effectively meet the needs and requirements of this population.
2003
characteristics of and service use by persons with MR/DD living in their own homes or with family members. Here we reexamine employment services and status, personal supports used and needed, professional and mental health services, previous longterm care services, transportation services, preventative health care, and waiting for services. The new component in this Brief is an examination of how service use and needs vary by age (for persons 18-35 years versus persons 36 years and older), gender, and disability group (persons with intellectual and/or developmental disabilities [ID/DD] versus persons with one or more substantial functional limitations who do not meet the criteria of having ID/DD). This Brief uses a series of logistic regressions to examine how the services and support needs vary by age, gender, and disability group after controlling for overall health status, race, and economic status.
International Journal on Disability and Human Development, 2010
Background: The aim of this study was to compare the health status data of 4449 adults with intellectual disabilities (ID) aged 40 years and older, from three international sites and identify cross-cultural trends in the prevalence of ageassociated organ system morbidities. Study group: Data from samples of older adults with ID in Taiwan, Israel and New York State, United States, collected in three previous studies, were combined for analysis using multivariate logistic regression analyses. Methods: All data were collected using the Rochester Health Status Survey (RHSS), a survey instrument designed to collect data on demographics, morbidity, and health services usage of adults with ID through chart-review by a medical professional. Results: Irrespective of site, the likelihood of the presence of auditory problems, gastrointestinal, cardiovascular, infectious disease, eye, musculoskeletal, and respiratory conditions in people with ID increased with age and the likelihood of the presence of dermatological, endocrine, and psychiatric conditions did not increase with age. Conclusions: Prevalence of organ system diseases with increasing age in people with ID seems to be similar to expected patterns in reference population data for people without ID. The data suggest that it could be useful to increase vigilance, preventive measures, and appropriate screenings for people with ID, similar to efforts that have been incorporated in general practice guidelines. Such efforts may be useful in the delay of onset and/or reduction of the prevalence of some morbidities and secondary disability-related conditions in people with ID. Further studies are needed in these areas.
Journal of Policy and Practice in Intellectual Disabilities, 2004
With the increasing number of adults with intellectual disabilities (ID) surviving into old age governments, provider agencies, and practitioners are recognizing the insufficiencies of available information related to the interaction of the aging process with lifelong disability, the incidence of disease and secondary conditions with advancing age, and the means to provide quality medical and health care. These insufficiencies were noted by a World Health Organization report that identified a need for more research on the health of older adults with IDs and reports from two meetings held by United States Public Health Service and the United States Surgeon General that examined health disparities among adults with ID. This paper reports the process and results of the Tampa Scientific Conference on Intellectual Disabilities, Aging, and Health, a meeting held in 2002 specifically to examine health issues germane to older adults with ID. The meeting produced a long-term research agenda for determining more effective physical and mental health outcomes for aging and older persons with ID and recommendations for aging-related medical and health surveillance practices that would improve the overall health status of adults with ID.
Study healthy ageing and intellectual disabilities: Recruitment and design
Research in Developmental Disabilities, 2011
Problems encountered in epidemiologic health research in older adults with intellectual disabilities (ID) are how to recruit a large-scale sample of participants and how to measure a range of health variables in such a group. This cross-sectional study into healthy ageing started with founding a consort of three large care providers with a total client population of 2322 clients of
Quality of life of adults with intellectual disabilities who live with families in Taiwan
Journal of Intellectual Disability Research, 2007
Purpose of Review Quality of life can be measured both objectively, by frequencies and quantities, and subjectively through feelings. The subjective dimension is the most difficult to measure and the topic of this review. Recent Findings Subjective wellbeing is commonly measured by asking how "happy" or "satisfied" people feel on a standardized set of questions. One crucial requirement is that these questions are the same for everyone, whether they have a disability or not. This ensures equivalent standards for judging high and low life quality. The Personal Wellbeing Index meets these requirements. It contains seven items, three of which form the "Golden Domain Triangle" as satisfaction with money, relationships, and achieving in life. Summary These three "Golden Domains" represent the key resources supporting life quality for both disabled and non-disabled people. For service provision to be maximally effective in facilitating life quality, it should target sufficiency in these areas.