Social media and the future of medicine EDITORIAL (original) (raw)
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Design for Care: Innovating Healthcare Experience
Design for Care: Innovating Healthcare Experience Foreword by Dr. John Halamka Design for Care brings methods and practices found effective across healthcare contexts to designers in all situations, illustrated by current cases & design research. We aim to inform information, service, & system designers to make a positive difference in healthcare. Healthcare and self-care practices are changing, rapidly. Each health sector has a different view of patient or user activity, but in so many cases there is no “user” to design for. Instead, we are all health seekers. The personal journey and spectrum of care may be unique to each health seeker. Designers must understand the whole health seeker – our upstream activities, defining moments, and downstream effects, and the services that we touch along the way. Design has an emerging role as a care provider – we have a responsibility to research, redesign, and remediate the touchpoints of care, informed by our understanding and designing for t...
futurecomm.tssg.org
The paper aims to reflect on the future role of design of interactive technologies in the Health Care domain. By drawing on the socio-technical notion of dispositif by Foucault and by focusing on knowledge and power issues, this work shows how the actual Health Care system creates a series of knowledge asymmetries and structures of dominance and exclusions that are produced and reproduced to the detriment of patient point of view. Given the growing importance of technologically mediate self-care practices and patient empowerment, this work supports a more patient-centric perspective and discusses challenges toward a design for the reconciliation of different practices and perspectives.
The duality of health technology in chronic illness: how designers envision our future
Chronic Illness, 2008
This essay critically explores the role of technological innovation in the constitution of chronic states and illness. Drawing on the co-construction of technology and society perspective, it focuses more specifically on the way in which innovation designers envisage the enhancement of the chronically ill and build certain kinds of socio-technical configuration to deal with chronic illness. Using the case of 'intelligent distance patient monitoring' as an illustration, the paper argues that technology creates as much as it solves the problem of chronic illness. Technology is recursively embedded in chronic illness and it generates dual effects: it constrains and sustains users' daily practices. Only by recognizing technology's duality and eventually transcending it will research and policy initiatives be able to deal creatively and responsibly with the design of our future health experiences.
Empathy in a Technology-Driven Design Process: Designing for users without a voice of their own
2019
Smart textiles are often developed in sports- oriented contexts through technology-driven processes. In the medical context, practitioners themselves also invent and develop technological aids in response to needs that emerge in practice. In these cases, novel technology may be the first driver for design to secure functionality and reliability, but our study shows that these processes benefit from human-centric and empathic design approaches. The project develops smart textiles for infants with medical adversities, such as preterm birth, neonatal infections, or birth asphyxia, collaboratively with medical researchers. Our pilot research illuminates the need to use the interest group’s empathic understanding as a starting point for design, as the user of the garments does not yet have a voice of their own. In this paper, we develop the argument for empathic design in a technology-driven design process in the medical context.
2010
The National Health Service in the UK, like many other public health services worldwide, is facing a number of key challenges. Among them are an ageing population and a rising incidence of chronic health conditions. In this position paper we describe the User-Centred Healthcare Design (UCHD) project, a 5-year collaboration between universities and health Service Trusts in South Yorkshire, UK. We suggest that new models of healthcare that re-define the institutional and social context of care are required if we are to meet the challenge of chronic illness. We argue that user-centred design is a timely and necessary way of bringing about not only service improvement but also innovation and strategic change to healthcare provision in the UK. We describe our progress to date on the UCHD project, our commitment to placing patient experience at the centre of design, and our initial experiences of using an experience-based co-design method to improve outpatient services in a Sheffield hospital.
Book review. Design for Care: Innovating Healthcare Experience
FORMakademisk, 2014
Adapted from a review on the same book published by The Design Observer Group on April 4th, 2014. You can access the original publication online at http://designobserver.com/feature/design-for-care/38382/ Peter Jones´ recently published book represents a timely and comprehensive view of the value design brings to healthcare innovation. The book uses an empathic user story that conveys emotions and life to a structure that embraces the different meanings of Design for Care: Spanning from caring at the personal level to large-scale caring systems. The author has a main objective for each of its three main target audiences: Designers, companies and healthcare teams. Firstly, it allows designers to understand healthcare in a holistic and patient-centered way, breaking down specialized silos. Secondly, it shows how to design better care experiences across care continuums. Consequently, for companies serving the healthcare sector, the book presents how to humanize information technology (...
From Designing for the Patient to Designing for a Person
Inclusive Designing, 2014
Research on inclusive design stresses the value of user experience as a resource to design with respect for the diversity in human abilities and conditions. So far, however, relatively little research has been conducted on how exactly user experience benefits design processes and their outcome. How is it introduced into the design process, what kind of knowledge do designers get from it and how does it inform and direct their design process? The study reported here addresses these questions in the context of a design studio in which student architects designed a Maggies Cancer Caring Centre. After briefly discussing the role of (user) experience in design processes, we sketch the context of the Maggies Centres and introduce the assignment and procedure of the design studio. In order to analyse how different sources of information about user experience feature in students design process and outcome, we rely on documents students handed in, notes taken and audio recordings made during conversations with patients and care givers and students presentations. Four sources of information about user experience were addressed explicitly or implicitly by various students: direct communication with cancer patients and with people working at a day care centre; the person of Maggie Keswick; the architectural brief and exemplary projects of user-sensitive buildings. Despite its limitations, participation in this studio clearly increased students' knowledge on specific users. Many students mentioned the fact that a Maggie's M. Annemans
Enabling Empathy in Health and Care: Design Methods and Challenges
Extended Abstracts of ACM CHI 2014, 2014
The role of empathy has come to prominence in HCI as the community increasingly engages with issues in medical, health and emotionally charged contexts. In such settings empathizing with others is crucial in understanding the experience of living with specific conditions, or in being sensitive to the concerns and emotions of potentially vulnerable participants. Researchers in these areas become implicated in designing new tools and technologies that support empathic relations. This workshop therefore aims to build an interdisciplinary community of researchers, designers and practitioners to share and discuss their work and the challenges they encountered when establishing empathic relationships within health or care contexts. We will work towards developing a richer conceptual and practical understanding of empathic engagement and design methods in this context to support and shape an agenda for future research.
EAI Endorsed Transactions on Pervasive Health and Technology, 2017
The benefits provided by health-related technologies are often counterbalanced by the societal, legal and ethical challenges connected with the pervasive monitoring of people, as necessitated by such technological interventions. Through the ProtoPolicy research project we explored the co-creation and use of design fictions as a tool for open debate of pervasive health systems. Design fictions were co-created and tested in a series of design workshops with community groups in the UK. A thematic analysis of a debate among older people on a smart home and assisted living design fiction highlighted societal and ethical issues relevant to personal and pervasive health system design. We conclude that ethics, like 'usability', may be usefully based on engagement with directly or indirectly implicated publics and should not be designed into innovation by experts alone.