Development and validation of juvenile autoinflammatory disease multidimensional assessment report (JAIMAR) (original) (raw)

The study focuses on the development and validation of the Juvenile Autoinflammatory Disease Multidimensional Assessment Report (JAIMAR), a new questionnaire aimed at evaluating children with autoinflammatory diseases. It includes 16 measures assessing functional status, pain, therapy compliance, and health-related quality of life, specifically tailored for the age group 8-18 years. Conducted in seven pediatric rheumatology centers in Turkey, the study demonstrated that JAIMAR is feasible, valid, and reliable, offering a significant improvement in the assessment tools available for pediatric patients with these conditions.