Identifying conceptualizations and theories of change embedded in interventions to facilitate community participation for people with intellectual disability: A scoping review (original) (raw)
Journal of Policy and Practice in …, 2011
This article explores issues associated with impaired decision-making capacity for Indigenous Australians. There is very little published on the subject of impaired decision-making capacity in Australia, particularly in relation to Indigenous people. To gain some insight into this subject, this article looks at some indicators of impaired decision-making capacity for Indigenous Australians such as rates of intellectual disability and mental illness. The Australian state-based Guardianship and Administration system -the legislative framework designed to provide for decision-making for people with impaired capacity-is briefly described before looking at the cultural relevance of this Western system and its constructs for Indigenous Australians. Future investigation should be directed at exploring existing and alternative strategies to support Indigenous Australians with impaired capacity and their carers.
Scandinavian Journal of Disability Research
People with intellectual disabilities are often regarded as subjects of care and support, rather than citizens with the same rights as others. This article aims to describe how young adults experience and perceive attitudes, treatment and participation in terms of the application process for daily activity/sheltered employment, as well as their transition into this activity and their first years' experience of it. The study was carried out in a middle-sized municipality in Sweden. Data were collected from 14 people with mild to moderate intellectual disabilities, aged between 21 and 23 years. The interviews were supported by the use of pictograms. Qualitative content analysis was used to analyse the data. The participants stated that they wished to be listened to as adults, and to participate in decisions about daily activity/sheltered employment. They wished to be treated and accepted as individuals, not according to their disabilities. They wanted to participate, and the opportunity to do so would require an accepting environment.
2021
Background People with intellectual disabilities have been historically excluded from decision-making processes. Previous literature indicates that increasing social participation may be an effective way to address this exclusion, but no systematic review of interventions designed to increase social participation of people with intellectual disabilities have been conducted. This study aims to identify and organize the factors associated with interventions that increase the social participation of people with intellectual disabilities and to provide a set of best of practices for future interventions. Methods/design The databases Web of Science, Scopus, LILACS, and PubMed will be searched for articles from January 2004 onwards; grey literature search will be identified through searching additional databases (such as Google Scholar and EBSCO databases). Randomized controlled trials, nonrandomized controlled trials, and controlled pre–post studies will be included. Noncontrolled pre–po...
Journal of Intellectual Disability Research, 2000
A growing body of literature has shed light into the process of conducting research with people with intellectual disabilities (ID). However, there is limited research on the feasibility of conducting research projects including various groups of people with ID, their supporters, and researchers. This paper reviews three studies conducted with these three groups of people in light of their feasibility, the knowledge generated, and their impact on individual and social change. This study used a reflective analysis focused on the main findings from the three studies, focus groups with people with ID and supporters who conducted the research, and interviews with people to whom the findings were disseminated. The analysis suggested that a team approach including active supporters and experienced researchers was critical to their feasibility. The studies generated knowledge particularly on the perspectives of people with ID on their rights. As a result of participation in these studies, some changes at the individual and social levels occurred, but these were relatively limited. The implications of this analysis for future research are discussed in the context of the implementation of the United Nations Convention on the Rights of Persons with Disabilities.
University of Melbourne, 2014
This report is funded with assistance from a funding grant offered under the National Disability Research and Development Agenda, jointly implemented by disability representatives from Commonwealth, State and Territory governments. However, the information and views contained in this research, are not intended as a statement of Australian Government, or any jurisdictional policy, and do not necessarily, or at all, reflect the views held by the Australian Government or jurisdictional government departments. Recruitment of key informants Key issues identified via key informant consultations Stage 2: Preliminary version of the questionnaire Stage 3: Focus Groups with people with disabilities Recruitment of focus group participants Focus group findings
Disability and Social Inclusion 'Down Under': A Systematic Literature Review
Journal of Social Inclusion, 2017
The rates of social and economic inequality facing Australians with disability compared to their fellow citizens, are among the highest in the world (PricewaterhouseCoopers, 2011). The concept of 'social inclusion' therefore holds promise, at the level of policy and practice, for creating a more inclusive and equal society. This paper presents a systematic literature review concerning the 'social inclusion' of adults with disabilities in Australia. It focuses primarily on research in scholarly publications concerned with achieving social inclusion in policy and practice. Although we acknowledge that there is much on this topic published in the grey literature (that is, documents produced by government, advocates, business, and industry that are not published in research journals), this article will focus on the scholarly literature. In summary, the literature review revealed a surprisingly small amount of formal literature about creating social inclusion in policy and practice for people with disabilities (nine in total), and most of it concerned people with intellectual and cognitive disabilities. The concluding section will summarise key themes, and recommend several avenues for future research, policy development and practice initiatives. Abstract This article provides a systematic literature review investigating how the social inclusion of adults with disability is conceptualised in research concerned with policy and service provision in Australia. The review will summarise this literature, and clarify its relative strengths and weaknesses. The findings from the literature review are grouped into recurring themes, namely: deinstitutionalisation; the changing nature of paid support; different forms of 'community engagement'; and socially valued roles, particularly in the realms of employment, volunteering, and consumer transactions. The literature mostly concerns people with intellectual and cognitive disability, more so than persons with sensory, psychosocial (mental health) and physical disabilities. Several gaps emerge in the literature, such as the experiences of Indigenous people with disabilities, both in terms of exclusion they may face, and solutions being developed by Indigenous communities; ambiguous understandings of social inclusion; and a lack of acknowledgement of prominent critiques of social inclusion. The review builds on these findings to make recommendations for policy, practice, and further research.
Journal of Policy and Practice in Intellectual Disabilities, 2011
Gaps in policy and service systems exist for people with intellectual disability (ID). The areas of policy and services research that are required to address this situation are vast, complicated, and often interrelated. Strategically developed research agendas underpinned by a strict adherence to human rights principles can optimally inform policy and service development and reform. A framework to facilitate the conceptualization of a comprehensive and structured research agenda for ID that can underpin policy has been developed. It is informed by templates developed in mental health and health and consists of external parameters and internal domains and elements. It is overarched by human rights principles and takes into account other contextual factors including government policies and resources. The framework is applicable in a range of settings and can be used to prioritize and optimize research efforts and resources in the area of ID. The development, dissemination, and implementation of a comprehensive research agenda for ID requires the involvement of a range of key stakeholders, including consumers and carers, clinicians, researchers, and policymakers.
Community Participation in People with Disabilities
Occupational Therapy - Occupation Focused Holistic Practice in Rehabilitation, 2017
Despite the fact that participation is an important building and a valuable target, the conceptualization, identification and measurement methods vary widely. This chapter tried to gain an insider's perspective from the obstacles that summarize what meaning participation means, how to characterize it, and what prevents and supports participation. Participation is seen as a right and a responsibility attributed to and attributed to both the person and the community. Participation does not take place in a vacuum; the environment dynamically influences participation. The effects of this conceptual framework are discussed for change at the level of evaluation, research and systems to support the participation of the people with disability.
Participation and Intellectual Disability: A Review of the Literature
Intellectual and Developmental Disabilities, 2016
Participation is a central aspect of human functioning and a key focus of research and practice in the intellectual disability field. However, there is not an accepted definition of participation that guides research and practice. To inform the development of a definition, a scoping review of the intellectual disability literature from 2001−2015 was conducted. Findings suggest that existing research rarely uses definitions of participation, but does examine participation across multiple domains and addresses issues of access and inclusion. Less focus was placed on individual aspects of participation such as meaning, responsibility, and choice. Based on the findings, implications for future research and practice are provided.