A Comparative Study on Relationship between Quality of Life of Children with Autism Spectrum Disorder and Normal (original) (raw)

Quality of Life of Parents and Behavioral Aspects of Children with Autism Spectrum Disorders (ASD)

2020

Background: Parent quality of life refers to the degree to which parent of individuals of children with disabilities are able to meet their basic needs, enjoy time together, and pursue leisure interests and activities. Children with ASD causes stress in the family, most especially among parents, consequently affecting parental quality of life (QOL). Objective: Our objective was to identify the quality of life among the parents of children with autism spectrum disorder and behavioural aspects of children with autism spectrum disorder. Methods: This paper describes the QOL of parents and behavioural aspects of children with Autism Spectrum Disorders (ASD) by using a quantitative method design. The participants are parents of children with ASD (n=153) and were asked to answer the World Health Organization Quality of Life-Brief (WHOQOL-BREF) Questionnaire Bengali Version and The Nisonger Child Behavior Rating Form (NCBRF). The WHOQOL-BREF was used to assess parental QOL while the Nisong...

Assessment of the quality of life of children who are in the spectrum of autism

Journal of Nursing Ufpe Online, 2017

800x600 ABSTRACT Objective : to evaluate the quality of life of children who are on the spectrum of autism. Method : this is an evaluative, descriptive and exploratory study with the quantitative and qualitative approach. The scenarios of this research were the Association of Friends of the Autistic, the Association of Parents and Friends of the Exceptional and the Center for Child Psychosocial Care, in Caxias-MA. Structured observation and interview with caregivers of children on the autistic spectrum were carried out. Results : the quality of life of the children was satisfactory, with 74.2%. Caregivers have a concept about autism spectrum disorder and others define autism according to the experiences and traits developed by children. It has been found that tantrums, nervousness, self-harm, and hyperactivity are common to most interlocutors. Conclusion : parents or caregivers of these children believe that they can have a good quality of life and develop behaviors common to all ch...

Assessment of Quality of Life for Parents of Autistic Child

Iraqi National Journal of Nursing Specialties, 2016

The study aims to assess the QOL for parents of a child with autism Methodology: A descriptive study was conducted on parents of autistic child in Baghdad city. A purposive (non-probability) sample of (156) parents, (78) mothers and (78) fathers of (78) autistic children who are clients and receive care in the private specialization centers for autism were selected to participated in the current study. The study used a self-administrative questionnaire for data collection. Results: The findings indicated that both parents (mothers and fathers) were participated in this study, and they comprised an equal number (78). Both parents reported a moderate level of QOL. Mothers were reported a lowest levels of psychological well-being, physical well-being and environmental comfort than fathers. There is a significant difference between mothers and fathers in psychological and physical domains of QOL level. Recommendations: Parents with autistic child especially mothers need more attention and support in all aspects of their lives that have been correlated with their QOL.

Quality of Life among Parents of Children with Autism Spectrum Disorder in Riyadh

International research in education, 2016

The current study aimed to identify the level of quality of life among parents of children with autism spectrum disorder and the differences according to the relationship with the autistic child, gender, severity of disability. The sample consisted of (100) parents of children with autism spectrum disorder, enrolled in the program of autism, intentionally selected in Riyadh, Saudi Arabia. Quality of life scale prepared and utilized by the author after verification of validity and reliability. The results showed that the level of quality of life among the participants was medium, and the results showed statistically significant differences in the level of quality of life among the participants due to the impact of the relationship with autistic children, where differences were in favor of the parents, and the variable of gender of the autistic child, where differences were in favor of the males, and severity of the disability, where the differences were in favor of the mild group. The study recommended the need to draw the attention of officials in the care and service centers for children with autism spectrum to provide training programs and activities for parents of autistic children to raise the level of quality of life, especially mothers.

A review of quality of life issues and people with autism spectrum disorders

British Journal of Learning Disabilities, 2007

Identify the significant predictors of a life of quality and evaluate the impact of targeting resources to maximize their positive effect(s)" (Schalock, 2000, p. 125). This is No. 7 of Schalock's ten fundamental QoL (quality of life) guidelines. By stressing the words "significant predictors", one comes to the question: Is there an appropriate instrument referred to people with autism? This paper will describe the creation of an assessment instrument for those people. The measurement we are developing will collect data with regards to the QoL of people with ASD (autism spectrum disorders), it will be designed by and for people with ASD. The instrument will be useful to practitioners and parents in inclusive settings and beyond. First of all, it could be a help for the people with autism because it will dependably measure the QoL of the affected people. In this paper, the first steps up to the construction sample will be described.

Quality of life for parents of children with autism spectrum disorders

Research in Autism Spectrum Disorders, 2014

We examined data collected as a part of the Autism Treatment Network, a group of 15 autism centers across the United States and Canada. Mean Health-Related Quality of Life (HRQoL) scores of the 286 children assessed were significantly lower than those of healthy populations (according to published norms). When compared to normative data from children with chronic conditions, children with ASD demonstrated worse HRQoL for total, psychosocial, emotional and social functioning, but did not demonstrate differing scores for physical and school functioning. HRQoL was not consistently related to ASD diagnosis or intellectual ability. However, it was consistently related to internalizing and externalizing problems as well as repetitive behaviors, social responsiveness, and adaptive behaviors. Associations among HRQoL and behavioral characteristics suggest that treatments aimed at improvements in these behaviors may improve HRQoL.

Evaluation of the Quality of Life in Persons with Autism

2012

The search for quality of life and the trend towards continual improvement has today become a true reference which guides most social organizations. This achievement allows us to find coherence and to bring together practices based on an understanding and on the consideration of the person as the centre of all actions. The bodies which offer support to persons with Autistic Spectrom Disorder (referred to hereon as ASD) have not gone untouched by the influence of this concept of quality. The serious difficulties which are associated with this disorder affect the main areas of ones personal development: socialisation, communication, comprehension, and adaptation to ones environment, and they require that organizations promote integral networks of resources which guarantee a lifetime of quality services and support. (Barthélemy y cols., 2002:; Plimley, 2007, Cuesta y Hortiguela, 2007). We have moved away from the traditional organizational model where resources and services were consid...

Quality of Life and Autism The Quality of Life in Families of Children with Autism

Using a mixed-method, this study examined the quality of life in families of children with autism in comparison with families of children who do not have autism. Participants consisted of parents of 17 children with Autism aged 6 to 12 years old and parents of 17 children who did not have Autism. The former group was recruited through intervention programs for children with Autism and their families in British Columbia, as well as Ontario. Among the families of children with autism, the incidence ratio of male to female children (4:1 to 5:1, based on DSM-IV, APA, 2000) is reflected by the number of families had male versus female children with autism. The latter were recruited through letters sent home with children from their schools and local after-school care programs in Victoria, B.C. Participants completed a survey package consisting of: the Quality of Life Inventory (QofLI), Family Environment Scale (FES), Family Support Scale (FSS), Child Behavior Checklist and a demographics questionnaire. Parents of children with autism also completed a questionnaire detailing the interventions their child has received and their degree of satisfaction with these interventions. Qualitative open-ended responses were also completed by all participants. The quantitative results reflected few significant group differences. Families of children who do not have Autism reported statistically significant greater satisfaction with their neighbourhoods and communities and annual household income than did families of children with Autism. Within families of children with Autism, those with higher annual household incomes had access to more interventions and of longer durations.

Quality of Life of the Parents Raising Children with Autism Spectrum Disorder

2019

Background: Autism Spectrum Disorder (ASD) is an emerging public health issue in globally. Parenting children with ASD is associated with impaired mental and physical health of the parents. The present study aimed to assess Quality of Life (QoL) of the parents raising children with ASD. Methods: A cross sectional study was carried out from January to December 2016 among 190 parents of children with ASD. Data were collected by face-to-face interview with a semi-structured questionnaire. Medical Outcomes Study (MOS) 36-item was used to assess the QoL of the parents by eight subscales and two summaries Physical Component Summary (PCS) and Mental Component Summary (MCS). Parents personality traits and marital relationships were assessed with Five Factor Inventory (FFI) and Intimate Bond Measure (IBM) scales respectively. Both descriptive and inferential statistics were done. Results: Among 190 participants 44.7% were mothers and 55.3%were fathers. Most (97.9%) of the parents were living...

Effect of Behavioral Problems of Children with Autism on Their Mother’s Quality of Life

Pakistan Armed Forces Medical Journal

Object: The aim of the present study was to assess effect of behavioral problems of children with Autism on their mother’s quality of life. Study Design: Cross-sectional study design Place and Duration of Study: The sample was selected from different special education institutes of Islamabad and Rawalpindi. Duration of study was from March 2017 to September 2017. Participants and Methods: The Study was conducted on 100 participants (N=100, n= 50 mothers, n=50 diagnosed children with Autism). Convenient and snowball sampling technique was used to collect data. Two questionnaires were administered to assess Quality of life (WHO Quality of life scale -BREF) and behavior problems of children with Autism (Childhood Autism Rating Scale-CARS). Results: Results showed that quality of life of mothers has a significant negative relationship with their children’s autism related behavioral problems. Quality of life was found high in postgraduate mothers, while autism related behavioral problems...