Psychological Changes in Patients With Multiple Sclerosis (original) (raw)
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The first year after diagnosis: psychological impact on people with multiple sclerosis
Psychology Health & Medicine, 2017
The impact of multiple sclerosis (MS) diagnosis on newly diagnosed individuals remains so far little explored. Our aim is to outline affective, personality and quality of life (QoL) correlates of MS patients shortly after MS diagnosis. Thirty-eight (22 F and 16 M) newly-diagnosed MS patients (mean interval from diagnosis communication 4.7 ± 3.8 months, range 1-12 months) underwent the Montgomery-Åsberg Depression Rating Scale and a comprehensive psychological evaluation:
Journal of the Neurological Sciences, 2006
Background: Studies assessing psychosocial consequences of multiple sclerosis (MS) in the community are scarce; it appears that there are no longitudinal surveys in this area. Objectives: We prospectively assessed changes in self-perceived health status over 5 years in a community cohort of MS adults. Methods: The 251 people who participated in a 1999 postal survey were re-assessed in 2004, being sent the Multiple Sclerosis Quality-of-Life-54 (MSQOL-54), the Chicago Multiscale Depression Inventory (CMDI), and a demographic/clinical questionnaire. Health-related quality of life (Short Form-36) and CMDI were also assessed in participants' significant others. Results: A total of 205 people participated: 14 (5.6%) of the original cohort MS had died and 32 (13%) did not return the questionnaires. A significant other was available for 74% of responders. The proportion requiring constant bilateral walking assistance increased from 16% to 33%. The proportion using housing adaptations increased from 17% to 27%, and the use of daily home care increased from 19% to 28%. Impaired CMDI mood affected 27% of MS and 19% of significant others. Changes in MSQOL-54 were not unidirectional: the domains change in health, physical function, and general health worsened; while social function, mental health, and health distress improved significantly.
Multiple Sclerosis, 2007
KV, et al. Deterioration in health-related quality of life of persons with MS: the possible warning signs. Mult Scler. 2007;13:1038-1045. Phillips LJ, Stuifbergen A. Influence of positive experiences on depression and quality of life in persons with MS. J Holist Nurs. 2008;26:41-48. Rossen EK. Commentary [on the study of Phillips and Stuifbergen]. J Holist Nurs. 2008;26:49. Buhse M. Assessment of caregiver burden in families with MS.
2014
This study attempts to assess the healthcare management and psychological well-being of both the patients and their primary caregivers. Study is a descriptive in nature, conducted on 200 Multiple Sclerosis (MS) patients and 200 primary caregiver's in 2013. For data collection, the Reef questionnaire was used to determine psychological well-being of these individuals. Data were analysed using SPSS, according to the obtained results the mean duration of MS was estimated 6.37 years. There was significant difference between final score of Psychological well-being in people with MS and in their caregivers (P<0.05). Subscales of psychological wellbeing in people with MS and their primary caregivers were more than average, comparison of mean score in psychological well-being subscales in people with MS and their primary caregivers had significant difference. Autonomy subscale in people with MS was less than average. There was no significant difference in "positive relationship" and "personal growth" between people involved with MS and their primary caregivers; as a matter of fact the primary caregivers had higher score in other psychological well-being subscales, than MS involved people.
A review of psychological correlates of adjustment in patients with multiple sclerosis
Clinical Psychology Review, 2009
Multiple Sclerosis (MS) is a chronic neurological disease which poses significant psychological adjustment challenges. The purpose of this systematic review was to identify factors that are related to adjustment in people with MS and may be modifiable through psychological intervention. It aimed to gain an overview of the strength of evidence for relationships between psychological factors and adjustment and identify limitations to existing studies and directions for future research. Seventy two studies met inclusion criteria and were included in the review and a narrative synthesis was conducted. A wide range of psychological factors have been studied in relation to adjustment outcomes. The strongest and most consistent finding was that perceived stress and certain emotion-focussed coping strategies are related to worse adjustment in MS. Uncertainty was fairly robustly associated with worse adjustment. There was also more tentative evidence available for relationships between adjustment outcomes and a range of other factors including social support and interactions with others, cognitive errors and biases, illness and symptom cognitions, control perceptions, positive psychology factors, and health behaviours. Implications for therapeutic interventions are discussed and a preliminary model of adjustment to MS is outlined. In light of the shortcomings of extant studies, suggestions for future research are offered.
BMC Neurology
Background This study was conducted with the aim of identifying the burden of psychosocial factors on the worsening symptoms of multiple sclerosis. Methods This as conducted with a qualitative approach and conventional content analysis among patients with Multiple sclerosis in Mashhad. Data were collected through semi-structured interviews with patients with Multiple sclerosis. Twenty-one patients with Multiple sclerosis were selected through purposive sampling and snowball sampling. The data were analyzed using Graneheim and Lundman method. Guba and Lincoln's criteria were used for evaluating research transferability. The data collection and management was performed by using the MAXQADA 10 software. Results In explanation of the psychosocial factors of patients with Multiple sclerosis, one category (psychosocial tensions) and three subcategories of stress (physical symptoms, emotional symptoms, and behavioral symptoms), agitation (family disorder, treatment-related concerns, an...
Objective: The current study aimed to explore posttraumatic growth and its relationship with cognitive emotion regulation strategies among a group of multiple sclerosis (MS) patients in Shiraz. Methods: Ninety-two patients diagnosed with MS were recruited from the multiple sclerosis society in Shiraz in 2014 using convenience sampling method. The participants completed two research questionnaires including Posttraumatic Growth Inventory (PTGI) and Cognitive Emotion Regulation Questionnaire (CERQ). Mean, standard deviation, correlation coefficient, and multiple regression analysis were applied to analyze the data using SPSS version 16. Results: The data showed that a majority of patients with MS experienced some degree of posttraumatic growth. The participants scored high on the appreciation of life followed by spiritual change and personal strength. With regard to cognitive emotion regulation variables, only reappraisal (P<0.002) and positive refocusing (P<0.001) significantly predicted posttraumatic growth. Conclusion: Patients who used positive refocusing and reappraisal were more likely to experience posttraumatic growth.
A study of psychological well-being in people with multiple sclerosis and their primary caregivers
Advanced Biomedical Research, 2015
Background: Multiple sclerosis (MS) is the most common disabling disease of the central nervous system. In these patients, fatigue is the most common symptom that causes disorder in the work, social activities and daily functions of the patients. Given the assumption that MS reduces the patients' psychological well-being, this study aimed at assessing the psychological well-being of both the patients and their primary caregivers. Materials and Methods: Current research as a descriptive study was conducted on 200 MS patients and 200 primary caregivers. For data collection, the Reef questionnaire was used to determine psychological well-being of these individuals. Data were analyzed using SPSS software. Results: According to the obtained results, the mean duration of MS was estimated 6.37 years. The psychological well-being score of the people with MS and their primary caregivers was slightly higher than average. The total score of psychological well-being in primary caregivers was higher than the patients. Conclusion: The mean score of psychological well-being subscales was significantly different in patients and their caregivers. Regarding the autonomy subscale, there was a significant different in patients with MS, that is, it was lower than average. In terms of two subscales of "positive relationship with others" and "personal growth," there was no difference between people with MS and the primary caregivers, and for other subscales, the mean score of caregivers was higher than the patients.
Open journal of therapy and rehabilitation, 2016
Purpose: The purpose of the current research was to review the lived experiences of patients with multiple sclerosis (MS) in order to extrapolate the psychological process of adaptation. Methods: A thematic synthesis was undertaken within 3 phases: systematic search for literature, critical appraisal of included studies and synthesis of research. Results: A total of 47 studies were included in this review, this included 1146 (812 females, 265 males, and 69 unknown) unique patients with MS (aggregated mean age: 49.3 years [30/47 studies], aggregated time with illness: 12.3 years [28/47 studies]). The critical appraisal of research illustrated that the design of the studies and the reference to reflexivity in studies were not well considered. The synthesis was able to identify a primary response of psychological adaptation as well as distinct coping strategies. A model of emotion, hope, and adjustment was identified. Conclusion: Simple processes of adaptation for people with MS can be considered by clinicians and utilised to promote mental well-being in patients. Clinicians and researchers also need to be aware of the important psychological needs of patients during interactions. Discussion and clinical implications are provided.