Research Paper: Comparing Participation of Iranian Children With Cerebral Palsy in Life Activities With Participation of Typically Developing Children (original) (raw)

Paper : Comparing Participation of Iranian Children With Cerebral Palsy in Life Activities With Participation of Typically Developing Children

2019

Children with Cerebral Palsy (CP) like the normal peers have the right to participate in life activities, so we aimed to study and compare the participation of Iranian 6-12 years old children with CP with the participation of their normally developing peers. Materials and Methods: This was a cross-sectional study in which the parents of 274 children with CP and the parents of 274 of normal children completed the Children Participation Assessment Scale Parent-version. For data analysis, the Independent t test was performed in SPSS version 21. Results: The mean age of children with CP and normal children were respectively 9.64 and 9.45 years. The results indicate a significant difference between the two groups in life activities participations (P<0.05). Conclusion: Participation of Iranian children with CP in life activities (activities of daily living, instrumental activities of daily living, play, leisure, social participation, education, and sleep/ rest) are lower than those normal peers, so the occupational therapists should pay attention to this and try to promote the participation of children with CP.

Participation of Iranian Cerebral Palsy Children in Life Areas: A Systematic Review Article

Iranian journal of child neurology, 2017

Cerebral palsy (CP) is the most common cause of chronic disability that restricts participation in areas of occupations for children. The main aim of rehabilitation is enhancement of their clients for participation in occupations. The aim of this study was to overview of the factors influencing the participations of children with CP in Iran. A systematic, evidence-based process (Duffy 2005) was used. For data gathering electronic databases including Google scholar and Iranian and foreigner famous journals in the fields of pediatrics, were used. The main key words for search were Activity of Daily Living (ADL), Instrumental Activity of Daily Living (IADL), play, leisure, work, rest/sleep, social participation, and education. All the papers of this study were about the factors influencing the participation of Iranian CP children during 2000-2016. Totally, 156 articles were found eligible as for Iranian CP children study, of which 100 articles were discarded. Because of repetitive and ...

The Comparison of Participation in School-Aged Cerebral Palsy Children and Normal Peers: A Preliminary Study

Iranian Journal of Pediatrics, 2016

Background: Participation in daily activities during childhood is an important aspect for health and social development. Objectives: This study was designed to investigate the participation of children with cerebral palsy aged 8 to 14 years, and their normal peers. Patients and Methods: In this cross-sectional study, 30 children with cerebral palsy, and 30 normal children were selected via the non-probability convenience sampling. Their participation was evaluated with children's assessment of participation and enjoyment (CAPE) through interviews. Results: Significant differences were found between the means of the two groups regarding the diversity, intensity, overall participation (P = 0.000) and all types of the activities except the recreational activities. The children with cerebral palsy took part in the skill-based activities and overall activities individually compared to the normal peers. The children with cerebral palsy, in comparison with their normal peers, often performed most of the activities inside the house. The main effect of gender and the interaction between gender and groups were not statistically significant in any of the variables of the CAPE test. Conclusions: Physical disability can influence the children's daily activities and socialization. Understanding the participation of physically disabled children can help health care professionals in designing and introducing appropriate treatment according to their needs.

Evaluation of Participation Level of Adolescents with Cerebral Palsy

Pakistan Journal of Medical and Health Sciences

Background: Adolescence is a time of rapid development in many facets of an individual’s physiological, cognitive, and interpersonal traits, but it also comes with some complexities. Aim: To evaluate the level of participation in different domains of life situations in adolescents with Cerebral Palsy. Study design: Cross-sectional study. Methodology: Study conducted in adolescents with Cerebral Palsy between age 10 – 19, with motor impairment level I, II and level III on GMFCS. Sample size was 84 participants. Questionnaire of Young People’s Participation (QYPP) was used to evaluate participation in different activities and domains of life. Statistical analysis: Analysis of data was done by SPSS v.26. Results: The highest percentage score was observed for Autonomy followed by Getting on with other people, Home life, Reception and Leisure and School or College life. The least percentage score was seen for two domains i.e., Work life and Preparing for the future. It was observed that ...

Activities and participation of 9- to 13-year-old children with cerebral palsy

Clinical Rehabilitation, 2006

Objective: To describe the activities and participation of children with cerebral palsy and to examine the relationship with personal factors and disease characteristics.Design: Cross-sectional study.Setting: Department of Rehabilitation Medicine of a University Medical Center in The Netherlands.Subjects: One hundred and ten children: 70 boys, 40 girls, mean (SD) age 11 years and 3 months (20 months).Outcome measures: Activities and participation,

The Impact of Manual Ability Level on Participation of Children with Cerebral Palsy in Life Areas: A Cross-Sectional Study

2019

Objectives Participation is a complex and context-dependent concept, which several factors can influence it. The aim of this study was assessing the relationship between the upper extremity function level of children with cerebral palsy (all type of cerebral palsy and severity) and their participation in different life areas. Materials & Methods This cross-sectional study assessed the relationship between the level of upper extremity function of cerebral palsy children and their participation in different life areas. Participants were 274 parents of children with cerebral palsy of the schools of children with special needs and occupational therapy clinics in Tehran, Iran in 2018. They completed the Manual Ability Classification System (MACS) to determine the level of upper extremity function of children with cerebral palsy and Children Participation Assessment Scale-Parent version (CPAS-P) (to determine the participation level of children with cerebral palsy) questionnaires separate...

Effect Of Environment Factors On Participation Of Children With Cerebral Palsy – Literature Review

2018

Introduction: "Developmental Disabilities" is one of the commonest conditions in India due to brain injury in the earlier stage of life. (1) (2). In 1980s, Cerebral Palsy was described William Little, and it is one among the commonest conditions in developmental disabilities (2). Cerebral Palsy prevalence rate ranges from 1.5 to 2.5 per 1000 (1). Cerebral palsy is the chronic disability and makes postural and tonal issues in children due to nonprogressive brain lesion. This lesion may occur perinatal, natal or postal period and it often results with cognitive, motor, sensory, communicative, and behavioural disorders as well as epilepsy is common co-morbid issues which all leads to limitation of functional activities, restricted social participation (3). Based on biopsychosocial model (ICF frame work), cerebral palsy makes impact on individual"s body structure and functioning, activities and participation, these makes participatory restriction and activity limitation (4) (5). Many factors like physical capacity, environmental factors are commonly determine individual"s functional abilities (6). In many studies, it is highlighted that environmental factors make much impact of participation level and functional ability (7). Along with physical disabilities, if there are any other Health conditions, it limits their participation level and independency level of their ADL skills (6) (7) (8). Further to these, it also affects their quality of life and self-esteem (6). The severity of Cerebral Palsy obstructs children to utilise their functional capacity at different environments. Afsoon et al mentioned that normal children participation level was comparatively higher than cerebral palsy children participation, at the same time, in adapted environment their participation level were greater than normal peers (9). Studies suggested that customised environment and contest facilitates independency level, comprising personal factors and environmental factors (4) (5). According to ICF classification, Participation as "a person"s involvement in life situations" (10) (11) (12), is also considered as an important outcome of rehabilitation interventions and as a human right (10). According to OTPF, Participation areas are classified as: Activity Daily of Living (ADL), Instrumental Activity Daily of Living (IADL), work, play, leisure, education, rest/sleep/ social participation (13). Based on conceptual model of leisure, physical, social, attitudinal and institutional based environments are the key factors of determining children"s participation level (10). In some studies, to emphasizing the importance of participation, authors mentioned participation as social participation (11). Existing evidences show that participation at various contexts facilitates cognitive skills, peer group interaction, working capacity, quality of life, self-confidence, sense of competence, development, and social interaction and minimize emotional and behavioural issues. In addition to these, it facilitates health status and weight reduction for children and adults (9) (10) (11) (15). Due to environmental barriers for persons with disabilities, their level participation is comparatively lesser than normal population. Hence, their low level physical activity or inactiveness leads to secondary deformities and being a hindrance for their participation (14). Physical inactivity can lead to increased body weight, depression and other medical complications among persons with disabilities (15). Studies demonstrate that intrinsic factors (e.g., age and gender) and extrinsic factors (family situation, culture, and the living place) can have impact on the children"s level of Participation (9). Persons with disabilities experience many barriers to engage in regular physical activity especially physical barriers and attitudinal barriers. There are several studies focused on finding barriers and facilitators for persons with disabilities in regarding their participation level. There results highlighted that transportation and physical environment were the major barriers (15). Based on ICF frame work, environmental factors were organized based on five environmental domains of the ICF:  Natural Environment (e.g. residency, climate, landforms)  Products and Technology (e.g. accessibility of buildings)  Support and relationships (e.g. parental involvement)  Attitudes (e.g. perception towards disability)  Services, Systems and Policies (e.g. community programs) Usually, landforms and climates and accessibility of buildings are merged as a single component for assessment (10) (7).

Participation into daily life of children with cerebral palsy with multidimensional perspectives: a study protocol

Journal of exercise therapy and rehabilitation, 2019

Purpose: This research study aimed to examine the relationship between participation and quality of life with impairment and environment (physical, social and attitudinal) aspects in children aged 2-18 years with cerebral palsy (CP) according to framework of International Classification of Functioning, Disability and Health. Methods: A population-based study of children with CP sampled from 9 different districts of metropolitan area in Ankara will participate. Children were visited in special education and rehabilitation centers and inclusive schools in Ankara and totally 450 children with CP and their parents will be included. The project has two stages: translation, adaptation, validity and reliability study of Life Habits Questionnaire (LIFE-H) and determination of quality of life and participation levels and familial status. In the second stage, beside the LIFE-H, Child Health Questionnaire Parent Form-50 (CHQ-PF 50),

Research Paper: The Relationship Between the Parent Report of Gross Motor Function of Children With Cerebral Palsy and Their Participation in Activities of Daily Livings

Introduction: This study aimed to assess the relationship between the parent reports of gross motor function of children with Cerebral Palsy in activities of daily living. Materials and Methods: Sixty mothers of children with Cerebral Palsy (CP) who were recruited by convenience sampling method were participated in this cross-sectional study. Children were between 6 to 12 years old. For assessing the participation of children with CP in life areas, the Children Participation Assessment Scale-Parent version (CPAS-P) was used and for assessing the gross motor function level of these children, the Gross Motor Function Classification System-family report was used. For data analysis, the Pearson correlation coefficient, and ANOVA tests were used. All statistical analyses were done by SPSS v.21. Results: The mean age of children was 8.92 years (age range: 6-12 years). A total of 22 of them were males and 30 were females. The relationship between the Gross Motor Function Classification System (GMFCS) of children with CP and their participation in all objective aspects of Activities of Daily Livings (ADL) and Instrumental Activities of Daily Livings (IADL) were moderate to good and this relationship was significant P<0.05. The difference of participation in ADL and IADL between levels of GMFCS was significant (P<0.05). Conclusion: The results of this study showed a good relationship between gross motor function level of CP children with their participation in ADL and IADL.

Participation patterns of children with cerebral palsy: A caregiver’s perspective

African Journal of Disability

Background: Participation in activities of daily living (ADL), education, leisure and play in children living with cerebral palsy (CP) may be affected by various factors, as outlined in the International Classification of Functioning, Disability and Health Framework (ICF). The aim of this study was to describe the participation patterns of a group of these children.Objectives: This study aimed to describe participation patterns in ADL, education, leisure and play activities of children living with CP in Modimolle.Method: An exploratory-descriptive qualitative (EDQ) study design was used. A researcher-constructed bio-demographic data sheet and a semi-structured interview schedule were used to collect data from the primary caregivers of children (5–17 years) living with CP in Modimolle. Interviews were transcribed verbatim, translated from Sepedi to English and analysed using the content analysis approach and NVivo software.Results: The findings of this study indicated that children l...