Paediatric palliative care: a review of needs, obstacles and the future (original) (raw)

Palliative care: moving forward

Current Paediatrics, 2003

Childrenwithlife-limiting conditions cannot yetexpectthe same access to specialist palliative care services that is available to adults.On the other hand, the paediatric approach to the care of patients already embodies much of what specialist palliative medicine can offer. Paediatric palliative care must, of course, develop from within paediatrics if we are to meet the needs of children. At the same time, we have much to learn from our colleagues in adult medicine, both corporately and individually. Adolescent palliative care, in particular, is an opportunity for collaboration. Specialist palliative care in children needs to be delivered in many different clinical locations.To achieve this, the consultant musttake on an advisory and co-ordinatingrole as well as giving specialist advice.The exact role of the consultant in paediatric palliative care will depend more on the individual child than on the model.This article considers where we have reached, and where we are going in the development of this new subspecialty.

Pediatric Palliative Care: A Conceptual Analysis for Pediatric Nursing Practice

Journal of Pediatric Nursing, 2012

Although there have been significant advances in medical technology, thousands of children continue to die annually. Pediatric palliative care is a relatively new field and has not been well defined in the literature. Therefore, the purposes of this article were to provide a concept analysis of pediatric palliative care that presents pediatric nurses with fundamental information regarding this concept and to increase their ability to understand, identify, provide, and subsequently meet and enhance the needs of those children with a life-limiting illness and their families. With this enhanced understanding of pediatric palliative care, pediatric nurses will continue to improve and provide quality, safe nursing care for this vulnerable population of children with life-limiting illnesses.

Paediatric palliative care for the generalist

South African Family Practice

Palliative care has been defined as ‘the active holistic care of individuals across all ages with serious health-related suffering due to severe illness, and especially of those near the end of life’. Unfortunately, palliative care and especially paediatric palliative care remain a neglected area of medicine and are widely misunderstood, with few healthcare providers having any formal training in South Africa. To relieve health-related suffering, healthcare providers must understand that the field is not limited to end-of-life care for the terminally ill, and holistic care (physical, emotional, social and spiritual) should commence at the time of diagnosis of a serious illness. It is imperative that all healthcare providers develop the knowledge and skills to provide this essential care across all levels of care and disciplines. The article aims to raise awareness and show how to practically implement palliative care through case studies.

Evaluation of the children's palliative care programme (CPCP)

2016

A comprehensive needs assessment completed in 2005 identified that children’s palliative care services needed to be strengthened (Dept of Health/Irish Hospice Foundation). In 2009 the Department of Health published Palliative Care for Children with Life-limiting Conditions – A National Policy. The policy was a universally agreed vision for improving children’s palliative care in Ireland. The document included 19 recommendations (further subdivided into 31 individual recommendations) to be implemented on a phased basis. The first phase of implementation included the provision of education and training for staff, the appointment of a Consultant Paediatrician with special interest in Paediatric Palliative Medicine (Consultant PPPM), and the establishment of a national network of (initially) eight children’s outreach nurses based in key locations around Ireland. These priorities were put in place over the next three years under a partnership agreement between the HSE and the Irish Hospi...

Pediatric palliative care nursing

Annals of Palliative Medicine, 2019

Palliative care is patient-and family-centered care that enhances quality of life throughout the illness trajectory and can ease the symptoms, discomfort, and stress for children living with life-threatening conditions and their families. This paper aims to increase nurses' and other healthcare providers' awareness of selected recent research initiatives aimed at enhancing life and decreasing suffering for these children and their families. Topics were selected based on identified gaps in the pediatric palliative care literature. Published articles and authors' ongoing research were used to describe selected components of pediatric palliative nursing care including (I) examples of interventions (legacy and animal-assisted interventions); (II) international studies (parent-sibling bereavement, continuing bonds in Ecuador, and circumstances surrounding deaths in Honduras); (III) recruitment methods; (IV) communication among pediatric patients, their parents, and the healthcare team; (V) training in pediatric palliative care; (VI) nursing education; and (VII) nurses' role in supporting the community. Nurses are in ideal roles to provide pediatric palliative care at the bedside, serve as leaders to advance the science of pediatric palliative care, and support the community.

Specialist paediatric palliative care services: what are the benefits?

Archives of Disease in Childhood, 2017

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A paediatric palliative care programme in development: trends in referral and location of death

Archives of Disease in Childhood, 2010

Arch Dis Child C M Vadeboncoeur, W M Splinter, M Rattray, et al. death development: trends in referral and location of A paediatric palliative care programme in http://adc.bmj.com/content/95/9/686.full.html Updated information and services can be found at: These include: References http://adc.bmj.com/content/95/9/686.full.html#ref-list-1 ABSTRACT Purpose To describe the formation of a paediatric palliative care programme providing care in hospital, at home or in hospice, ensuring continuity of care where the child and family desire. Study design Descriptive analysis was performed on referral source, diagnosis and reason for discharge for patients referred to the Palliative Care Team at the Children's Hospital of Eastern Ontario in Ottawa, Ontario, Canada from 1999 to 2007.